I love watching your videos. I'm currently working on getting help and a diagnosis, and you videos kinda make me feel less alone in my medical struggles. You're looking great and thanks from Vegas ✌
Add some whiskey to the drink. It helps with a cold big time. We melt rock candy add whiskey and honey etc.. Hope he feels better and TPN gets worked out.
Hope Tom gets better soon. Lemon sip sounds similar to something we have called theraflu. A drink meant to help with a cold or flu and can be drank warm or cold.
I am frustrated for you on this TPN issue. It seems like there should be something than can do for you. I hope they get it sorted out so you only miss the one day. This is essential to your well being. I'm worried since today is Friday and we don't know if you have had any since Tuesday. I hope you're well.
If you want a dog that does not shed AT ALL get a bishon frise. I have one and she has never shed. I can’t have normal dogs cause of my asthma and shitty lungs so she is perfect and doesn’t effect my health at all
I was so concerned around the 8:00 minute mark because you started to breathe really weirdly. I’m so happy you’re okay even though your TPN issue is shit.
Happy international womens day to you beautiful! Just a little side note....I just want to say you are my favorite youtuber, and one of the only people I watch religiously from start to finish! With everything your body puts you through you dont BS or turn it into a pity party! It is nice for someone like me, even though we are worlds apart, watching your videos is like talking with a friend! I have a package coming to your PO box hopefully doesnt take too long to come from Canada! I love you and hope your TPN issues get fixed. Feel better soon Tom! ❤
My question is couldn't you have put the TPN that was broke and put in another container like the one you use for your feed. And use it that way? Sorry unsure how all this works
Seriously??? That is absolutely unacceptable for them to expect you to go without tpn ever! Thank goodness you had fluids at home! You may want to talk with your doctors about having several bags of iv dextrose on hand at all times. You can add tpn vitamins to it in emergencies. It won’t have fat or protein, but at least would have carbs and vitamins. Lemon soup sounds a lot like some here called alka-seltzer. I know is sucks but you guys need to sleep in separate rooms or one of you needs to wear a mask when Tom is sick. You are doing awesome, but I wouldn’t want to rock the boat too hard... The program you are going to sounds awesome! We have something similar here but I was denied because of my broviac and MCAS.
Kerri McVinney I think you are right! I can’t take anything like that and the alkaseltzer box with a lemon on it was the first thing that came to mind.
I can't take alkaseltzer because it has asprin in it and I'm on a blood thinner for clots in my lungs so I wouldn't have thought of alkaseltzer lol! Every person has their own perspective and things in their world that makes up their own mind! 😀❤
Your skin looked so irritated at the end of your vlog. 😢Hoping you get your TPN sorted soon and back on track. Also sending well wishes for your grandparents to have a safe journey home and for Tom to get to feeling better.
Feeling rough today 😢 POTS is acting up and I keep feeling like I'm gonna have a seizure but I'm not having auras but I have that weird feeling ya know? But I'm glad your ok and I hope TPN sorts out. It's not fair having all these complications 💜💛💚💙
Sending love and hope y'all both get better soon and you get your tpn sorted out that is horrible I don't know much about tpn but seems they should have a better way to handle stuff like this for your health will going say bye for know from your lousiana cajun friend can't wait for next video ❤💚💜💛💙
Get well Tom I hope you get your tpn sorted Amy you go down hill fast Me and my husband have the cold Tom has it makes your chest rough and your throat some of my kids have had it I think loads of people have had it there’s always something going round 🙁 My bloods never drop quick even when I can’t eat and I’m dehydrated my bloods show fine my blood pressure drops to day I’m dehydrated my bloods always show I’m ok they never even picked up the kidney stone I just past ;( so Fairfield hospital treated me like a piece of shit I past a stone a few days ago and I took it to the doctors my dr was furious with my calcium on my kidneys that they ignored this but it’s because my bloods was ok Anyway enough blabber about me I hope you and Tom get well soon take care x
my CBD life thanks for the response this video actually motivated me to buy her merch hopefully it helped her makes some money it’s unfortunate that ppl have it this tuff.....
Hope your TPN situation gets better this is awful ☹️ xx
Hope you get everything sorted out and that Tom is feeling better soon x
I love watching your videos. I'm currently working on getting help and a diagnosis, and you videos kinda make me feel less alone in my medical struggles. You're looking great and thanks from Vegas ✌
Same here! Don’t give up
@@crystal3897 thank you 😊
Don’t ever lose the ANGEL 👼🏻 THAT TREADS BESIDE YOU LITTLE AMY🌹♥️🌹♥️🌹♥️🌹♥️
I prayed for both of you. I hope you get a new, good batch of TPN soon. Take care.
Add some whiskey to the drink. It helps with a cold big time. We melt rock candy add whiskey and honey etc.. Hope he feels better and TPN gets worked out.
Hope Tom feels better soon, and that you get your TPN situation fixed.
Matching your mask with those shoes
Hope Tom gets better soon. Lemon sip sounds similar to something we have called theraflu. A drink meant to help with a cold or flu and can be drank warm or cold.
Please keep us posted on your TPN. I hope Tom is feeling better. Your just beautiful and kind.
I just bought Merch !! I’m excited I can’t wait to rock Amy’s life 👌🏽🙂💜 I hope it helps 🙏 Goodluck
I am frustrated for you on this TPN issue. It seems like there should be something than can do for you. I hope they get it sorted out so you only miss the one day. This is essential to your well being. I'm worried since today is Friday and we don't know if you have had any since Tuesday. I hope you're well.
If you want a dog that does not shed AT ALL get a bishon frise. I have one and she has never shed. I can’t have normal dogs cause of my asthma and shitty lungs so she is perfect and doesn’t effect my health at all
Or poodles
I was so concerned around the 8:00 minute mark because you started to breathe really weirdly. I’m so happy you’re okay even though your TPN issue is shit.
Happy international womens day to you beautiful! Just a little side note....I just want to say you are my favorite youtuber, and one of the only people I watch religiously from start to finish! With everything your body puts you through you dont BS or turn it into a pity party! It is nice for someone like me, even though we are worlds apart, watching your videos is like talking with a friend! I have a package coming to your PO box hopefully doesnt take too long to come from Canada! I love you and hope your TPN issues get fixed. Feel better soon Tom! ❤
My question is couldn't you have put the TPN that was broke and put in another container like the one you use for your feed. And use it that way? Sorry unsure how all this works
It's Simply Elle no because the other containers are not sterile and won’t fit in the pump
@@40771hothottie thanks for answering me
Just wondering, when you run fluids, do you run that to your Hickman or your g-tube?
They're IV fluids so they go through her Hickman
clairecheney into my Hickman
@@amyslife4457 Thank you. Sorry to be a pest, but when you had the NJ, before the Hickman, did you run to the NJ or the g-tube?
Seriously??? That is absolutely unacceptable for them to expect you to go without tpn ever! Thank goodness you had fluids at home! You may want to talk with your doctors about having several bags of iv dextrose on hand at all times. You can add tpn vitamins to it in emergencies. It won’t have fat or protein, but at least would have carbs and vitamins. Lemon soup sounds a lot like some here called alka-seltzer. I know is sucks but you guys need to sleep in separate rooms or one of you needs to wear a mask when Tom is sick. You are doing awesome, but I wouldn’t want to rock the boat too hard... The program you are going to sounds awesome! We have something similar here but I was denied because of my broviac and MCAS.
It also sounds like the packets of Theraflu
Kerri McVinney I think you are right! I can’t take anything like that and the alkaseltzer box with a lemon on it was the first thing that came to mind.
I can't take alkaseltzer because it has asprin in it and I'm on a blood thinner for clots in my lungs so I wouldn't have thought of alkaseltzer lol! Every person has their own perspective and things in their world that makes up their own mind! 😀❤
Ummm, yeah, I think we need to know how to make that lem sip when you get your TPN sorted😉💜
Where do you get your masks? Looking for a good one
Vogmask. You do need a prescription in America, I’m not sure about other countries
Your skin looked so irritated at the end of your vlog. 😢Hoping you get your TPN sorted soon and back on track. Also sending well wishes for your grandparents to have a safe journey home and for Tom to get to feeling better.
Feeling rough today 😢 POTS is acting up and I keep feeling like I'm gonna have a seizure but I'm not having auras but I have that weird feeling ya know? But I'm glad your ok and I hope TPN sorts out. It's not fair having all these complications 💜💛💚💙
Can't believe they wouldn't help you! X
What does your tattoo mean Amy I understand if it’s personal too you and you don’t wish everyone too know 🥰🥰
I think its the date tom and her met but im not sure x
Tee Smith that’s so cute
Ur really myninspiration..❤️please stay strong..❤️iloveyou❤️❤️❤️
Ánimo preciiosa. Estamos contigo
Great content today Amy and tell Tom to get better and keep up the great work on your pictures on instagram and videos on youtube 👍👋👌😊🙏😀🍂...........
Hope everything gets squared away with your TPN✌💜
Sending love and hope y'all both get better soon and you get your tpn sorted out that is horrible I don't know much about tpn but seems they should have a better way to handle stuff like this for your health will going say bye for know from your lousiana cajun friend can't wait for next video ❤💚💜💛💙
Song name please.
Get well Tom I hope you get your tpn sorted Amy you go down hill fast
Me and my husband have the cold Tom has it makes your chest rough and your throat some of my kids have had it I think loads of people have had it there’s always something going round 🙁
My bloods never drop quick even when I can’t eat and I’m dehydrated my bloods show fine my blood pressure drops to day I’m dehydrated my bloods always show I’m ok they never even picked up the kidney stone I just past ;( so Fairfield hospital treated me like a piece of shit I past a stone a few days ago and I took it to the doctors my dr was furious with my calcium on my kidneys that they ignored this but it’s because my bloods was ok
Anyway enough blabber about me I hope you and Tom get well soon take care x
Kerry Horrocks - kidney stones usually don’t show anything in blood work!!
Kelly Cannon that maybe true I’ve had lots of illnesses not show up in blood work my body is just rubbish!
Made me laugh when you said you couldn't just go rub a dog on your line.
Why did she run out of tpn or can’t get more
NEENEE VITOLLO she had her weekly supply but 4/7 of the bags started leaking and became unsterile so she couldn't use them
Sarah K oh ya ya I forgot about that crap so the company won’t replace them sense it was there packaging that caused the problem
NEENEE VITOLLO she can’t get ahold of her nurse until Tuesday because Monday is a holiday and they’re closed.
Can’t u purchase it in a pharmacy or somewhere like that ?
my CBD life thanks for the response this video actually motivated me to buy her merch hopefully it helped her makes some money it’s unfortunate that ppl have it this tuff.....
Iam from india i love your videos.stay long live
chittimani Ganeswararao ,Whaf is TPN called in India ?
Wasn’t sure if you’ve ever mentioned it but do you know when you’ll get off TPN or is it permanent?
Pretty sure its permanent however tpn can affect you liver in the long run so it depends on how that will play out
Hey Amy
You have a rash xx
Hopefully everything works out. Does running fluids pee all night?