I appreciate the important information you’ve shared in this video. Biases in health care are unacceptable especially since there’s this looming distrust and lack of research in MS focused on ethnic minority groups. Thank you for sharing!
I like this discussion, however what I experienced with my journey to a diagnosis of MS took over 30 years. I feel that even in general medical care, there is less concern with our health. As a black woman in North Carolina, I have lived this for the majority of my life and it continues to this day. I have always had life insurance and some money yet it continues.
Hello Dr. Boster! Thank you for this informative video. As a 24 year old African American MS patient I am happy to hear a provider shed light on the issues that African Americans or minorities may face with this form of disease. Personally I have seen how drs treat and talk to me: specially when it comes down to ms related symptoms. Many times I feel like my voice is not even being heard even after paying multiple copay’s:leaving out feeling lost, confused and feeling like I’m not being heard. I’m glad that you shed light on this particular situation because being a college healthcare professional and a African American MS patient I have both been a victim and seen others how others are treated differently in health care. which is hurtful but yet eye opening! Keep doing what you do because you have blessed me and others with great content, more that I have ever received while battling MS for 6 years.
This is such an important and overlooked topic, thank you for speaking so candidly about this issue and bringing attention to marginalised groups. I do think that part of this discussion that wasn't touched on fully is the evidenced bias of medical professionals themselves and the challenges that that presents to many ethnic minorities, particularly those who are female, in seeking diagnosis and treatment. It is a perpetuating cycle when ethnic minorities do not feel they can trust clinicians and on the more uncommon occasions that they do seek help they may be turned away and thus become even more convinced that clinicians will not provide them with the help that they need (for example, there is a known bias of female minorities being falsely diagnosed with functional psychiatric or psychosomatic issues for what actually turns out to be symptoms of physical diseases like MS).
You are a very good doctor. You cleared many misunderstanding about MS. My daughter 17 year old just confirmed for MS and she is given first dose of Tysabri in September 21. Hoping for best results. Thanks for your guidance.
Excellent topic Dr. B! Some of us know very little about our ancestral blood lines so this is always a pertinent issue. I’ve been told that I’m fundamentally Scot Irish but, genetically, I register as Northwestern European. Makes sense, knowing a bit of the history of the region. But there were other genetics in there that made very little sense and for which there is no oral or documented history. I battle several autoimmune conditions and no one in my known family has ever had these conditions. I’ve often wondered if there were family secrets that were hidden away for cultural reasons, that might be relevant to my medical situation. In the long run, it’s irrelevant. The situation is what it is and life goes on. My inner nerd is hanging out in public again, lol!
This is a great dialogue because my group is ethnically diverse. I've heard of that in history but what I also hear is that doctors were taught minorities do not feel pain,that hurts to hear. I am not diverse but I have my stories of no empathy going into ER's and not get past a P.A. in the ER. Doctors don't even see you now until my husband stands up as an advocate. Any tips other than never go to an ER and suffer at home.
When I was diagnosed in 2005 I told the doctor that I suspected MS (based on my own research) and he told me "Black people don't get MS". I proved him wrong.
The video stops before you get to speaking about telehealth. I live right outside Philadelphia and consider myself super lucky because I have access to lots of quality care! Telehealth has really helped me talk to my doctor when I needed to outside of my scheduled appointment time. I hope you will post the other part of your lecture. Also how can we send info to your study, as an African American woman I am happy to help. It took a team of docs to figure out my course of treatment when I got diagnosed in 2018.
#SharingIsCaring There is SO much BS & Misinformation out there regarding ethnicity- in this day and age in our country it’s hard to believe. While I help run a global group- there are MS’rs EVERYWHERE in the world. Black, white, Hispanic,Israeli, African, Australian ( which you’d be surprised how many members from Australia/NZ we have… that seems like something not looked into as well either). I’m so so happy that you have befriended the world of MS, as I think more people would trust YOU and would be willing to participate in these studies. It’s scary giving all your information to someone.. about your life, grandmas life, family history… Believing in someone , offers them the chance to open up , know their information will be safe & they will not get “ dismissed“ when they talk about family history or how they feel things are going. It is valuable information and not always kept that way. Thank you Doc for your education, your efforts to ease the minds of those you are trying to help. Rock on 🤘🏻 ( ps- Cymbalta Withdrawal Syndrome- if you’re looking for a brief topic in the future- not fun- days sick in bed- worse than the MS itself IMO.)
I took the Mavenclad and when I felt better and start esting the Chayote and made me good to my gut to Work well and better and recomend it, only wayting my mri to prove that I am cured 🍀
if EDSS score is Zero..if treated by Alemtuzumab...what is the prognosis???....can it prevent from progression into SPMS...??...can we stay in Remission throughout life ..plz answer this Dr B
hi when would your next live stream be when you answer questions as I find them very helpful and I wanted to ask if you have come across tumefactive lesions on the spine as I have just found this on my previous mri reports and it's never been mentioned to me before by my neurologist? so any info you have would be helpful
Hi.. what about latin americans? I know I have mostly spanish genes (from Spain) but I also have a bit of american aborigen genes.. Do I count as caucasian or not? How are the prognosis and disease for us.
plz make a video about Alemtuzumab 2nd course and how can we prevent Thyroid disorders,ITP and Good pasteurs syndrome....how to make Alemtuzumab course more Effective....
I am Puerto Rican and have MS and thought it was a White woman disease as well. It took a while, but compared to my diagnosis to now, my MS is in a recession (I work out 5 days a week and stay on Dimethyl Fumerate. My girlfriend has MS and it is like she tried kissing the Express Train (she is Black and she is currently on Ocrevus). I see how it has really damaged her in the process (wheelchair bound).
Thank you for making this video! When I was diagnosed I there was no information out about people of color with MS. I really appreciate this content!
#StrongerTogether #WeHaveMS BosterMS.com
Same I was wondering why my experience with this disease is so different than other people I know with it
I appreciate the important information you’ve shared in this video. Biases in health care are unacceptable especially since there’s this looming distrust and lack of research in MS focused on ethnic minority groups.
Thank you for sharing!
Thank you so much for the video!!!!!!! When I was first diagnosed with MS in 2015, not many Hispanics at the clinic
I like this discussion, however what I experienced with my journey to a diagnosis of MS took over 30 years. I feel that even in general medical care, there is less concern with our health. As a black woman in North Carolina, I have lived this for the majority of my life and it continues to this day. I have always had life insurance and some money yet it continues.
Hello Dr. Boster! Thank you for this informative video. As a 24 year old African American MS patient I am happy to hear a provider shed light on the issues that African Americans or minorities may face with this form of disease. Personally I have seen how drs treat and talk to
me: specially when it comes down to ms related symptoms. Many times I feel like my voice is not even being heard even after paying multiple copay’s:leaving out feeling lost, confused and feeling like I’m not being heard. I’m glad that you shed light on this particular situation because being a college healthcare professional and a African American MS patient I have both been a victim and seen others how others are treated differently in health care. which is hurtful but yet eye opening! Keep doing what you do because you have blessed me and others with great content, more that I have ever received while battling MS for 6 years.
This is such an important and overlooked topic, thank you for speaking so candidly about this issue and bringing attention to marginalised groups.
I do think that part of this discussion that wasn't touched on fully is the evidenced bias of medical professionals themselves and the challenges that that presents to many ethnic minorities, particularly those who are female, in seeking diagnosis and treatment. It is a perpetuating cycle when ethnic minorities do not feel they can trust clinicians and on the more uncommon occasions that they do seek help they may be turned away and thus become even more convinced that clinicians will not provide them with the help that they need (for example, there is a known bias of female minorities being falsely diagnosed with functional psychiatric or psychosomatic issues for what actually turns out to be symptoms of physical diseases like MS).
Thank you Dr Boster for ALL you do!
Tuskegee experiment it's just a fraction of the issues. A good book to read doctor is a book written by Harriet Washington called Medical Apartheid
You are a very good doctor. You cleared many misunderstanding about MS. My daughter 17 year old just confirmed for MS and she is given first dose of Tysabri in September 21. Hoping for best results. Thanks for your guidance.
Excellent topic Dr. B! Some of us know very little about our ancestral blood lines so this is always a pertinent issue. I’ve been told that I’m fundamentally Scot Irish but, genetically, I register as Northwestern European. Makes sense, knowing a bit of the history of the region. But there were other genetics in there that made very little sense and for which there is no oral or documented history. I battle several autoimmune conditions and no one in my known family has ever had these conditions. I’ve often wondered if there were family secrets that were hidden away for cultural reasons, that might be relevant to my medical situation. In the long run, it’s irrelevant. The situation is what it is and life goes on. My inner nerd is hanging out in public again, lol!
So glad that you are addressing this
This is a great dialogue because my group is ethnically diverse. I've heard of that in history but what I also hear is that doctors were taught minorities do not feel pain,that hurts to hear. I am not diverse but I have my stories of no empathy going into ER's and not get past a P.A. in the ER. Doctors don't even see you now until my husband stands up as an advocate. Any tips other than never go to an ER and suffer at home.
Amazing video. My goodness I really appreciate you shedding light with this topic.
Thanks for always keeping it real.
When I was diagnosed in 2005 I told the doctor that I suspected MS (based on my own research) and he told me "Black people don't get MS". I proved him wrong.
Thank you so much for this Vlog it's hlep me alot 👏🏾
The video stops before you get to speaking about telehealth. I live right outside Philadelphia and consider myself super lucky because I have access to lots of quality care! Telehealth has really helped me talk to my doctor when I needed to outside of my scheduled appointment time. I hope you will post the other part of your lecture. Also how can we send info to your study, as an African American woman I am happy to help. It took a team of docs to figure out my course of treatment when I got diagnosed in 2018.
Thank you for the video
Thank you for the on ethnicity.. Doug with coffee in hand from Lyndhurst
#SharingIsCaring
There is SO much BS & Misinformation out there regarding ethnicity- in this day and age in our country it’s hard to believe.
While I help run a global group- there are MS’rs EVERYWHERE in the world.
Black, white, Hispanic,Israeli, African, Australian ( which you’d be surprised how many members from Australia/NZ we have… that seems like something not looked into as well either).
I’m so so happy that you have befriended the world of MS, as I think more people would trust YOU and would be willing to participate in these studies.
It’s scary giving all your information to someone.. about your life, grandmas life, family history…
Believing in someone , offers them the chance to open up , know their information will be safe & they will not get “ dismissed“ when they talk about family history or how they feel things are going.
It is valuable information and not always kept that way.
Thank you Doc for your education, your efforts to ease the minds of those you are trying to help.
Rock on 🤘🏻
( ps- Cymbalta Withdrawal Syndrome- if you’re looking for a brief topic in the future- not fun- days sick in bed- worse than the MS itself IMO.)
I took the Mavenclad and when I felt better and start esting the Chayote and made me good to my gut to Work well and better and recomend it, only wayting my mri to prove that I am cured 🍀
I too feel many gi benefits from Chayote. Definitely a great idea
I want to know that is Alemtuzumab a Cure for MS....is it a better than HSCT and MSCT in treating or Curing MS
What do you think of the study Sweden did? Saying there could be a link between mono and MS
im the first one to comment this video...plz do some more videos about Alemtuzumab 2nd course...
if EDSS score is Zero..if treated by Alemtuzumab...what is the prognosis???....can it prevent from progression into SPMS...??...can we stay in Remission throughout life ..plz answer this Dr B
hi when would your next live stream be when you answer questions as I find them very helpful and I wanted to ask if you have come across tumefactive lesions on the spine as I have just found this on my previous mri reports and it's never been mentioned to me before by my neurologist? so any info you have would be helpful
Hi.. what about latin americans? I know I have mostly spanish genes (from Spain) but I also have a bit of american aborigen genes..
Do I count as caucasian or not? How are the prognosis and disease for us.
plz make a video about Alemtuzumab 2nd course and how can we prevent Thyroid disorders,ITP and Good pasteurs syndrome....how to make Alemtuzumab course more Effective....
I am Puerto Rican and have MS and thought it was a White woman disease as well. It took a while, but compared to my diagnosis to now, my MS is in a recession (I work out 5 days a week and stay on Dimethyl Fumerate.
My girlfriend has MS and it is like she tried kissing the Express Train (she is Black and she is currently on Ocrevus). I see how it has really damaged her in the process (wheelchair bound).
You know I kind of thought it was just me LOL