Heavenly father, I lift Leslie and Jason up in prayer. I pray for renewed strength for Leslie, I pray for calmness for Jason. Lord, please bless this couple in a very special way this week.
I have one more tip. Talk to the caregiver about them and just real life friend stuff. I personally get tired as being known as the saintly wife whose husband has “insert mental health condition here”. When every person at church greets you sadly and says so how is hubby? You are such a saint, angel, patient you start to want to avoid going.
This was another amazing video. I went through something similar with my wife who had Lewy Body Dementia. I would add three things to your list…. 1) if you stop over to visit, talk TO the person that has the illness. I can’t tell you the number of times friends would come over and only talk to me. The person is there! Be patient, give them time to respond. They WANT to be included. 2) Yard work. When my wife was sick the next door neighbor did all of my yard work! From mowing the grass to shoveling snow. This let me stay inside with my wife. I owe that man more than money could ever pay. 3) I was the sole caretaker, and at a point I could not leave her sight nor was it safe for her to travel. I even left the bathroom door open and continued to talk to her so she would not get scared. At that time I reached out to a Hy-Vee grocery store and asked them about food delivery. I told them I could pay, since they were 20 miles away (we are country folks). Well, the store manager called me and they delivered food, zero delivery fee!! for the last three years of my wife’s life, every Thursday like clockwork. When my wife passed away I called them to tell them that she had passed and they would not need to deliver food. The manager called back and said we WILL continue to deliver for free until YOU are ready. They also delivered a HUGE flower arrangement! They were so sweet!
This was a very important video. 10 years ago I found myself in a similar situation to you. We (the family) moved our Dad in with me as he began to show signs of dementia and was unable to remain on his own. I had zero experience and very little knowledge and as it turned out, family who weren't really very helpful - to him or me. Everything you have said here is so true - caregivers don't want a pity party but they could use someone to help out and to just listen!
Thank you for this video! 🙏🏼 My son is 20 with Severe Autism and is non-verbal. I get so frustrated and sad for my son when people talk about him in front of him. He is unable to speak verbally, but he can still hear you! You are helping so many! ((❤️))
I’m so sorry to read this. I know so many people don’t mean to cause pain, but this is just so insensitive and I can only imagine how much that hurts. ❤
My dad is caring for my mom who has LBD. One thing I have noticed with offering help. Many times, he would rather be doing the shopping, errand, lawn care, etc and have me sit with her so that he can get a break rather than me do the errands or housework. I live 7 hours away, so I'm only able to come up every 2-3 months. One thing we do after a visit is I give him a summary of the things I notice that have changed with her. Sometimes it's hard for him to gauge changes, because he is with her every day.
@@GrandmaLM thank you! I have increased my visits in the last couple of years as she is starting to have some memory and comprehension issues that are obvious to me. I have one entering high school this year, so getting away hasn't been as easy in the past, hopefully I can manage a bit more frequently soon.
My husband was diagnosed with Pancreatic Cancer in April. He has had surgery, and started Chemo last month. I understand how tough it is being a caregiver. Thanks for sharing your story. One of our daughters sent me a caregivers care package. That was a great welcome surprise. I maintain a group chat with our kids and his sister so I don't have to try to remember who I've told what. It has been a great tool to keep everyone informed on his condition.
Your videos have been a blessing more than you can ever realize. I thank God for you and Jason. Sending love, gratitude and prayers from Nova Scotia, Canada
Thank you so much , once again . I’m a caregiver for my 70 yr old ex husband. He has parkinson with dementia. I’m on my own - no family or friends locally . Each day it’s just me - and im on disability with panic and anxiety disorder. It’s so rough - omg - we never ever thought this would be our future . Your videos help so much . Sending hugs to you and Jason !
I understand. No Parkinson’s and five years younger, but it is lonely. Anxiety and panic make the smallest things seem so overwhelming. I watch ASMR by little me carmie and gentle whispering. Sounds crazy but it helps. People praying for you is good but the day to day worries are real. ❤
I learned to use TH-cam videos of my Dad’s hometown as a way to engage! He told me SO MUCH about my relatives who worked/lived in the area. He was fascinated by the memories that came up. (And so was I!)
My mom was the caregiver for my dad who had Alzheimer’s until she could no anymore. His last three years he lived at VA and got very excellent care. Mom visited very day for hours at a time for three years. He died after 10 years. She always felt guilty that she could not take care of him longer. So yes, pray for the caregivers. It is a job that has its own kind of suffering.
Thank you Leslie, as a caregiver for my husband I get so stressed when he has his rages & doesn't remember where he lives asking me to go check our other house which we don't have. You are so right that the caregivers need lots of prayer. I'm suffering sciatica & panic/anxiety disorder too. .
Yes, I pray for my brother, who is caring for his wife with stage 5 dementia, for wisdom and knowledge of this disease. Also to give him patience and compassion. My sister-in-laws bubble is home, church and grocery store. Took her to get new shoes and she got an anxiety coughing spell. Every time you do a dementia video I do pray for you. Thank you so much for sharing your caregiver journey with us. God loves you both and so do I.❤
Wow Leslie… you are a living angel on earth. Even tho I have no one right now who is needy, your words of wisdom are priceless for all to hear, and digest. I wish there were more genuine, selfless , people like you around . The world would be a better place. God Bless you and Jason.
These are great tips Leslie. I would add onto your tip for others to educate themselves to also not question the caregivers on the diagnosis. Casual friends or long distance relatives who only see the Showtime” behavior of someone with dementia sometimes make me feel like I’m making things sound worse than they are but they don’t witness the really hard times. I’ve also found myself so much less judgmental of other people’s behavior because you don’t know what they are going through. You are doing such a great job with Jason and your insight for others going through hard stuff. Prayers for wisdom as we make hard decisions and navigate this journey. ❤️
Oh yes! Totally agree with you! If your loved one has been officially diagnosed and being cared for by you, then NO ONE has any say what so ever about day to day care unless they are right there doing the care with you! Outsiders always want to have an opinion, but until they live it, they have no right to judge!
@@LIVINGWITHDEMENTIAPODCAST there is a saying and I would like it in a t shirt… ‘ you don’t look ill and you don’t look stupid!’ Take care of yourself as best you can ❤️
I had the same reaction from some family members when I was caring for my mom. Judgmental comments weren’t helpful when they weren’t here to see her day-to-day reality. Thankfully her doctor knew that she could pull herself together at times for her visits and believed what my brother and I were saying. Such a hard time, Leslie. I think you’re doing an amazing job. Prayers for you both.
My prayer for you is for faith and strength. This has got to be the longest , loneliest journey a spouse has to make. Grieving everyday, the loss of a little more of the person you love is heartbreaking. I do wish I was your neighbor and could be of help in some way. But all I can do is send love and prayers.
I wish I had your videos years ago when I took care of my Mother with dementia. It was difficult to always know the correct response to odd things happenning all the time. She was always a tough lady, so you can imagine with dementia she was not easy going. I have never regretted taking care of her the best I could at the time. I did try to show her compassion and love. She knew I loved her. That was the one thing she always remembered. ***Leslie, You are such a sweet person and a wonderful, strong, and giving human being. You are very appreciated by making all these videos. God never gives us more than we can handle, even when we don't see it at the time. I pray for you and Jason- a wonderful couple.
Leslie, I admire you so much. I've walked your walk. My husband died in 2014 from early onset dementia. After he died my sister wanted me to start a caregiver group for people going through the same thing and I was do burnt out, mentally, emotionally, physically that I know I had post traumatic stress. I told her no and I know that upset her but you are so right about the caregiver needing prayer and emotional support. Only by the grace of God I got through it and sometimes years after he has past away I think back on how I could have handled things differently. Please know that I'm praying for you and Jason, and your family. I'm so happy to hear you have a good support system that rallies around you. Thank you for helping others learn about this disease. I don't think I could have gotten through some of the videos you done - you are a strong woman.
As someone who helped my sister-in-law care for my brother with glioblastoma, (she worked part time) and a few years later, a sole care giver for my mom with Alzheimers, even though my caregiving roles are over, I so thought this video was so wise and so important. I appreciated everything you said. And every care giver, like the patient's situation is unique. Keeping YOU and Jason in my prayers.
I have learned if I am to roll my eyes in frustration and my loved one sees it NOT to feel guilty. He will forget and I can make peace with myself and move forward. I am not perfect and I can’t expect to be 24/7. I pray for good days. For calm days. And for peaceful days. Your videos and of course hearing from Jason are helpful. 💜
As I have been in your shoes before, let me say that people do not understand that when you have a functional "dementia" patient, people do not see that the person we knew personally is gone. They are there in person, but our relationship the way we knew it personally is very diminished, altered, and changed. It's difficult to have people from the outside understand we need a friend/sitter/support person, so we can have a mental break, if even for an hour in our own home.
I can so relate to your comment, "They are there in person, but our relationship the way we knew it personally is very diminished, aldtered, and changed." AND might I add: It is very lonely! I am thankful for the 3 dear friends in my life I can talk to without judgement!
🤗💕🙏 I share tears with you today. I'm a fatigued caregiver. I'm so thankful I can do this, by the grace of God, but I do wish those around us could see I'm really not super human. 😉 These are wise suggestions, Leslie. I will continue praying for strength, wisdom, guidance and support as you press on showing the love of Christ to Jason and all others watching from the outside. Thank you🙏💕
You're in my thoughts and prayers.🙏❤️🙏When my husband passed away I moved in with my elderly mother who has dementia, and it's getting worse. Before my husband died he was exhibiting a lot of signs of dementia, but he died from a massive heart attack, and the dementia didn't get to the point of not knowing a lot of things, but I think the dementia was working on him before the heart attack. When I moved in with my mom to help her, I didn't realize that she had Dementia, but it didn't take me long to see the signs. She also noticed things about herself, and she was finally diagnosed with dementia. My mom can't go to the store by herself anymore , and she tried to drive herself to the gas station while I had to do a military funeral, and she couldn't remember what kind of gas her jeep took. She thought it was lead gasoline, and I told my mom they don't sell lead anymore, so she finally put premium in it and thought she ruined her jeep. I told her as long as she didn't put diesel in it she's fine. She got so upset, she couldn't remember how to get home. This all happened while I was at American Legion, but thank God, by the time I got back, she had made it home. I let her drive to the end of the road to the dollar store, but it's getting to the point that I'm afraid to let her drive at all. Nobody but me knows how bad she really is because I'm with her everyday. Just being with her for a short period, and talking to you, you wouldn't think anything is wrong, so when I try and tell my brother and daughter, they act like they don't believe me. They didn't see her the morning that I had her at the grocery store, and she got so confused, she didn't know where she was at, and I had to lead her to the frozen food, but then because of the situation she had a full blown panic attack. My mom"s personality has completely changed. I'm her only caregiver, and it's so hard😢
My husband was diagnosed with dementia 5 years ago at his age 62. Three years in he was diagnosed with PPA (the aphasia dementia Bruce Willis has) and now rarely communicates. Before that he was verbally abusive and was hyperactive, completely opposite from my husband as a caring and loving pastor. He is at stage 6 now and on hospice which has been a godsend. Thank you for sharing your journey. I keep saying "I remember that" when you share what is happening to you now. Shows me how far we've already come. He's homebound now but loves visitors even though he may not recognize them.
You single handedly saved me from giving up. I mean that! What you and your family is doing is a great sacrifice & I would be grateful to see you be given as much comfort, guidance & support as possible.
My MIL who had dementia was living with her daughter. One day she was looking in her checkbook and saw checks written to someone she sort of knew. There came a point where her daughter had to explain that her funds were being used to pay someone to stay with her when the daughter needed to go do something alone. My MIL was mad as a wet hen. She thought these people were coming over to just visit and stated she didn’t need a babysitter, which she did for safety reasons as their home’s common living spaces were on 2 levels. There are parts of caregiving that are easier when the patient isn’t as cognizant of their world.
This video is an eye opener for me . I used to hide my exes illness. When he would forget what he was talking about or lose his train of thought, I would play it off as if he didn’t just go off the rails and is talking about something completely different. Also when he would get frustrated with someone, I would pretend it was something else . I know we protect them but people don’t realize the mental breakdown a caregiver goes through privately and the tears of what feels like hopelessness. But I have good news , after all that he is still alive from 2001 , 22 years and not gone. Hang in there girl, I’ll be praying Jason will be here in 22 years and by then they will have found a cure for whatever it is that he has .
Teepa Snow’s TH-cam videos were a Godsend when my mom had dementia. Teepa’s seminar was transformative for me and my sister as helping caregivers along with my stepdad. Sending prayers💜
Your first suggestion about not interrupting them by talking because they will forget what THEY were talking about is so relevant for me. It is something I’ve just realized helps in communicating with a loved one with memory issues. Thank you for all of your videos!
Father God, I pray for strength and comfort for this couple. I pray that Jason has calming energy and Leslie receives all the love that she deserves. In your son Jesus Christs name, Amen!
Good evening Leslie! I am praying for you. I pray that God holds you close to Him and gives you His sufficient grace while you take care of Jason. I firmly believe that God will never leave you nor forsake you. I pray you are able to get some rest. Thank you for sharing your journey. 🙏🏻💕
Prayers…. I feel your pain so much… our journey ended 02/28/2023… My love, and prayers, are with you every second, minute, and hour, of each day. I understand your life 100%, many of us out here, we feel your love for Jason…
I took care of my ex-husbands grandad for 3 yrs who had Alzheimer’s. That was the hardest thing I’ve ever done. I totally understand. But I was “an outsider”. Not a relative. But it was still hard. I admire you what your doing. It’s very hard. I wish I had something like this years ago when I had to do it. May God bless you and keep helping others with the difficulty of caring for them. :)
I have seen the devastating effects of dementia as a nursing assistant, RN and NP. It can be a difficult journey for caregivers. Thank you for sharing your journey and these insights for caregivers. I wish you continued strength and the ability to find moments of joy. 😊❤
New subscriber and so blessed to come across your channel 🙏. I am the sole caregiver for my 85 year old mom with Alzheimer’s. I’ve never been so physically,mentally and emotionally exhausted in my life but remind myself that if she has to go through this heartbreaking journey, I can find the strength to go through it with her. Thank you for your compassion and understanding of the challenges of being the caregiver. Prayers and strength to you both🙏🙏
Sweet Leslie, thanks so much for sharing these wonderful tips!! Both of my parents had Lewy Body and I practiced all of these. Believe me, they absolutely work!! Keep sharing, you’re helping so many that are new or struggling with caregiving. Much love, sweetheart!! ❤️❤️❤️❤️
Such great tips. I’m a caregiver for my special needs adult son with Down syndrome and now my husband who’s has Friedrich’s ataxia. My husband is declining and can’t get around well. In fact he fell last week and has hurt his shoulder. Prayers are very much appreciated. I pray for you and Jason.
I was a caregiver for my husband, who has passed. I still come here to watch you Leslie. You were the light of my week during my husband's lengthy illness. This video is really important. Being a caregiver is grueling. There is no downtime. Caregivers need support. Love to you Leslie.
I remember Mom would sit in the corner when we had a house full of people and she wouldn't talk. So unlike her. She wasn't able to follow conversation. If she would say things I learned to let her talk as you said. Otherwise she'd forget. It's hard at times. I didn't really have a support group. But in good times and bad times you're making memories. Praying for you and your family and Jason. Love his sense of humor.
Leslie, this is such a great video. You put into words what I want to say to people I know. I am currently caring for my 96 y/o mother with dementia. Sometimes it’s like riding a roller coaster. So many emotions mixed with fatigue. But God gives the strength. I also have some great friends who pray for me and mom and offers respite care. I pray for you and Jason on this journey. You are an excellent caregiver ❤
This was so helpful. I went thru 10 years caring for my mom at my home. I had to plan and schedule my days, yet be flexible because her day may not turn out as we hoped. I felt that sometimes my friends did not understand why I might need to cancel something at the last minute. I think if they had heard your videos, it would have made more sense to them, and they could have encouraged me. Mom died last year. I sorely miss her, as she was funny and happy and sweet, even with dementia. But I always knew where she was going and I was glad she could be promoted to heaven and live without her health complications.
Thank you for these tips. They are so important for those who aren’t caregivers to understand. I have a 20-year-old daughter with microcephaly, which means she functions like a three-year-old. I especially appreciate the tip about talking directly to the person and allowing them to speak. My daughter tells cyclical stories, but I so appreciate people who take the time to listen to her. It means the world to her that someone thinks enough of her to do that. And the prayers are also key. She’s started with some behavioral issues. I have to get her up now and going for the day, and it’s hard because I never know what mood she’s going to be in or what struggles I might face today. Bless you for all the important work you do and how God is using you and your situation to touch so many others. I will add you and Jason to my prayers. ❤
I'm so glad you mentioned the distance . It's one if the most painful but easily shifted with education . I think it happens because we are all grieving, and so people pull away. What I notice with dimentia and alzheimers is the human struggling with it notices the distance
So appreciate you and Jason. Just starting this journey. I am finding I have to slow down, let him finish and then interpret internally or gently for other people who he may be talking with. This and your other suggestions came at the right time. I am learning and you are helping so much.
My mother had a brain bleed 3 years ago. I dropped everything and went to her state to care for her. I was there for 7 months. No one in the family, none of her neighbors or friends ever offered to sit with Mom for an hour or two to give me a break. No one did anything for us at all. My sister never came to help at all. It was pretty awful really. I'd wish so badly that I could go out alone for a coffee or lunch or even to the grocery store then I'd feel bad and guilty for wishing I could have an hour or two to myself away from my mom's house. It was obvious all of mom's friends, these super churchy people, her relatives that talk about praying all the time, the neighbors that mom thought loved her really didn't care about my mom at all. No one offered to do a damn thing and it ticked me off. It also showed me how things are going to be if mom becomes ill again. Mom recovered, thank goodness. Mom is almost 91 she's made me promise never to put her in a home, she refuses to consider any senior living facility or to have a stranger live in her home to help her so when it becomes necessary it's going to be me doing it all, on my own with no help . Thank goodness I'm tough. I thought about sending thank you for all of your help during mom's illness and recovery cards out to everyone that should be ashamed of themselves but I'm nicer than that. Lol These people, except for my sister are all the kind of people that go to church every Sunday and are involved in all of these things at the church during the week, they wrap themselves in religion but sure don't practice what they preach. It's really sad how fake they all are.
I took care of my mom who had dementia --- My dad helped to what he could do but it was me mostly. What a lot of people do not understand that a caregiver basically is removed from the real world is the only way I could describe it. Sometimes the caregiver can feel very alone and you have my prayers for sure. I will be praying for you both. I can see what a beautiful marriage you have. I appreciate you sharing because I would often wonder what my mom was going thru and it broke my heart not understanding it. However it was a very humbling experience. God Bless you both!
Thank you so much for your videos, Leslie. I to am a caregiver for my husband. He's going on 4 years with this awful disease. His neurologist is leaning towards FTD diagnosis. I look forward to each video that you make concerning your journey, and helping me through mine. Uplifting you and Jason daily, God bless.
It is SO FRUSTRATING to let them interrupt you constantly but to never interrupt them. It feels so unbalanced and disrespectful but when you accept that it is not a case of "bad manners" but a medical condition it is helpful. We don't have any support, it is literally just the 2 of us & grown kids I try to keep out of it. I feel so alone most of the time but I KNOW I am supported by friends unseen. ❤
I know what that feels like; my husband interrupts me at the first word he hears that comes out of my mouth, continuing to say what he thinks I will say. It used to bother me but I am learning to let it go for my own sanity
Just recently found your channel. Thank you for this, sharing your personal grief is admirable to help others. I was recently diagnosed with early inset Dementia, I also have an autoimmune Arthritic condition that is debilitating, as well as heart disease -- I'm 59. I seem to be close to Jason's "stage" I am better in some ways and worse in others. I am completely focused on my Wife, I feel like my future is spoken for and the thing that Frightens me most is becoming a Burden to my wife. I already am in many ways, ie. not travel, not socializing, no activities, .... I have vowed that I will not allow myself to become a Burden and will hit the "check-out" counter before it is too debilitating.
Leslie! I can not tell you how much your videos have helped me! Your talking to the caregivers is priceless. God bless you as you walk this journey, it’s so hard and you are a blessing through it. 🙏🏼😍
Wonderful information Leslie. I do my run to the store when my husband is napping. I am never more than 5 minutes away. My guy also would rather not have anyone here , he feels it’s an imposition to ask other family. So I like you, squeeze in my time out during naps, I have cameras in my home so I can always watch him when I am not home.
Again I thank you! As nurses, educating ourselves is second nature. Educating our support family is more challenging. I thank God daily for the support He has and is continuing to put in our lives thru this journey.
My husband has MS and he experiences the same thing that Jason does about being easily overwhelmed with too much stimulation and when grandkids come over with our daughter he tends to go to his room and isolate himself it's also hard to explain to our daughter because she misses her dad the dad she remembers and she wants to handle things in her way and doesn't always understand what I have to deal with when he just wants it to be me and him so I'm trying to be compassionate to her feelings about wanting to be there around her dad at the involved but also the fact that he doesn't always want her there with our grandkids being involved because it takes too much energy it's just hard to explain and to keep everybody happy because I know I enjoy my daughter and grandchildren so much but my husband also needs me and I work outside the home and I know that one day that's not going to be the case anymore because I just won't be able to do that I really enjoy your videos and your dedication to Jason and your family thank you
They want to see him and we live in a very very small town no real park here relationships between father and daughter can be complicated and theirs always has been even before ms . Its complicated but thank you for the suggestion it's good for us to all get feedback and not feel alone:)
Leslie, you are such a light. Thank you for sharing your experience with us. My husband has Parkinson’s and besides the hand tremors, is now having some non motor symptoms of the disease. One day at a time , or better one moment at a time. I pray for God to strengthen you and we just need to remember to lean lean lean on him. He’s always there for us❤I always look forward to your videos on both of your channels! Thank you for all you do!
When you get to this stage where he has trouble knowing who people are make sure everyone comes in and says something like hey mommydoodles angie is back to have fun. Make sure peeps around him know to give him that name so he doesn't have to work so hard to remember names. That was the best advice I got when mom got to that stage. Made it a better visit and less brain power they have to use. Be the first to say the person's name so he doesn't have to struggle. I pray for both of you every day. It is hard but God is good. You have alot of people who have gone through it or starting this long winding road. I love that you started a channel so we all can lift each other up and give bits of help. If I didn't have the meetings to go to, where I learned so much about how to claim and divert the the situation and when to walk away for a bit. May God be with you and help you to be strong.
Very good tips you shared. I always pray for the person and care givers. Care givers really have a hard career but you are doing well under the circumstances. Stay strong and draw strength from the Lord.
Leslie, Yes, Our Prayers are with you 🙏 I can't imagine going through what you are , trying to be supportive and positive. I think you're an amazing woman and a Wonderful Wife ! I can tell Jason loves and adores you . May your faith in our heavenly Father can give you strength beyond what is Normal ! 🙏🙏🙏
I take it one day at a time with my dad. His latest thing is removing food from pets’ dishes and not replacing it with enough or correct food. Thanks for the tips. May you have strength and peace as a caregiver,
In my prayers for you, the caregiver, I add a prayer for your health and well being. Not just for your ability to help Jason but for yourself. You are God’s beloved daughter and I pray that He carries you as you travel this road.
Sending prayers for you Leslie as care giver you get it all. Dear God please surround Leslie at this moment with your love, let her feel how much you love her and how much her family, friends, and viewers love her. Please give her wisdom in all situations as she navigates through this difficult journey. May she feel your blessings upon her now. Thank you for being her guide. Thank you for answering this prayer and for all prayers going up for her and her wonderful husband Jason. In your Sons name we pray, Amen.
Beautifully said Lesley🥰 Self Care is Important, so put your oxygen mask on first? Why? During pre-flight instructions, flight attendants tell passengers that in the case of an emergency they should put their own oxygen mask on first even before helping children because otherwise the passenger will run out of oxygen and be unable to help anyone else. This is true when it comes to self-care because putting oneself first is an unselfish act and a priority. If you do not take care of yourself, you cannot help others. Being the caregiver for someone with a health challenge can be very difficult, but try to take a little time for yourself. 🤗 My prayer are with you both 🙏
Perfectly said, your last point should have been your 1st point, soooooooo important❤❤❤❤❤You are just so gifted at communicating clearly, so appreciate you
Please know I do pray for both you and Jason. Your information and tips are so wonderful because unless one is going through what you are going through we don't know. Educating people is so important to help us understand better. You have been given a big cross to bear and you are so courageous in how you are doing.
Leslie, thanks for the the ways to help others. You both are so young to be walking this path. I pray that God will give both of you what you need and that can enjoy and cherish the good moments so when the tough moments come, you will be lifted up.
Heavenly father, I lift Leslie and Jason up in prayer. I pray for renewed strength for Leslie, I pray for calmness for Jason. Lord, please bless this couple in a very special way this week.
Amen 🙏♥️🙌
Amen ❤🙏
Amen
Amen & Amen in The Name of our Lord & Savior Christ Jesus and thru The Holy Spirit. Thank you Lord. 🙏💙♥️
Amen
Leslie, please know that you are included in the prayers of so many people that you will never know, including myself. God bless you both.
I have one more tip. Talk to the caregiver about them and just real life friend stuff. I personally get tired as being known as the saintly wife whose husband has “insert mental health condition here”. When every person at church greets you sadly and says so how is hubby? You are such a saint, angel, patient you start to want to avoid going.
Leslie, you are living the vows of your marriage in grace. You are a precious woman and caregiver.
This was another amazing video. I went through something similar with my wife who had Lewy Body Dementia. I would add three things to your list….
1) if you stop over to visit, talk TO the person that has the illness. I can’t tell you the number of times friends would come over and only talk to me. The person is there! Be patient, give them time to respond. They WANT to be included.
2) Yard work. When my wife was sick the next door neighbor did all of my yard work! From mowing the grass to shoveling snow. This let me stay inside with my wife. I owe that man more than money could ever pay.
3) I was the sole caretaker, and at a point I could not leave her sight nor was it safe for her to travel. I even left the bathroom door open and continued to talk to her so she would not get scared. At that time I reached out to a Hy-Vee grocery store and asked them about food delivery. I told them I could pay, since they were 20 miles away (we are country folks). Well, the store manager called me and they delivered food, zero delivery fee!! for the last three years of my wife’s life, every Thursday like clockwork. When my wife passed away I called them to tell them that she had passed and they would not need to deliver food. The manager called back and said we WILL continue to deliver for free until YOU are ready. They also delivered a HUGE flower arrangement! They were so sweet!
What a rare blessing that store manager is... God Bless all of you.💖
Omg there really are good people in the world ❤️
Absolutely lovely. Thank you for sharing your heartwarming experience.
Jason is incredibly blessed to have a partner and caregiver like you. ❤️❤️
This was a very important video. 10 years ago I found myself in a similar situation to you. We (the family) moved our Dad in with me as he began to show signs of dementia and was unable to remain on his own. I had zero experience and very little knowledge and as it turned out, family who weren't really very helpful - to him or me. Everything you have said here is so true - caregivers don't want a pity party but they could use someone to help out and to just listen!
Thank you for this video! 🙏🏼 My son is 20 with Severe Autism and is non-verbal. I get so frustrated and sad for my son when people talk about him in front of him. He is unable to speak verbally, but he can still hear you!
You are helping so many! ((❤️))
I’m so sorry to read this. I know so many people don’t mean to cause pain, but this is just so insensitive and I can only imagine how much that hurts. ❤
As caregivers, it’s nice to be able to just talk and vent a bit. We don’t need to fix it and we are not being mean or don’t love them.
7 tips: “spread them in the world, be kind, and spread joy”. I hope your words travel far Leslie. You are a gift 🙏
My dad is caring for my mom who has LBD. One thing I have noticed with offering help. Many times, he would rather be doing the shopping, errand, lawn care, etc and have me sit with her so that he can get a break rather than me do the errands or housework.
I live 7 hours away, so I'm only able to come up every 2-3 months. One thing we do after a visit is I give him a summary of the things I notice that have changed with her. Sometimes it's hard for him to gauge changes, because he is with her every day.
My wish is that you could visit more often. Someday you may wish you had.
@@GrandmaLM thank you! I have increased my visits in the last couple of years as she is starting to have some memory and comprehension issues that are obvious to me. I have one entering high school this year, so getting away hasn't been as easy in the past, hopefully I can manage a bit more frequently soon.
My husband was diagnosed with Pancreatic Cancer in April. He has had surgery, and started Chemo last month. I understand how tough it is being a caregiver. Thanks for sharing your story. One of our daughters sent me a caregivers care package. That was a great welcome surprise. I maintain a group chat with our kids and his sister so I don't have to try to remember who I've told what. It has been a great tool to keep everyone informed on his condition.
Your videos have been a blessing more than you can ever realize.
I thank God for you and Jason.
Sending love, gratitude and prayers from Nova Scotia, Canada
Thank you so much , once again . I’m a caregiver for my 70 yr old ex husband. He has parkinson with dementia. I’m on my own - no family or friends locally . Each day it’s just me - and im on disability with panic and anxiety disorder. It’s so rough - omg - we never ever thought this would be our future .
Your videos help so much .
Sending hugs to you and Jason !
I understand.
No Parkinson’s and five years younger, but it is lonely. Anxiety and panic make the smallest things seem so overwhelming.
I watch ASMR by little me carmie and gentle whispering. Sounds crazy but it helps. People praying for you is good but the day to day worries are real. ❤
God bless you. You are an angel to your ex!
my husband also has Dementia and Parkinsonism 😔
Bless you for caring for him! ❤ prayers for strength. It’s amazing what you are doing
Me too for my husband with Parkinson’s I have depression and anxiety and feel so sad here’s we are just retired and we can’t go anywhere 😞
I learned to use TH-cam videos of my Dad’s hometown as a way to engage! He told me SO MUCH about my relatives who worked/lived in the area. He was fascinated by the memories that came up. (And so was I!)
My mom was the caregiver for my dad who had Alzheimer’s until she could no anymore. His last three years he lived at VA and got very excellent care. Mom visited very day for hours at a time for three years. He died after 10 years. She always felt guilty that she could not take care of him longer. So yes, pray for the caregivers. It is a job that has its own kind of suffering.
Thank you Leslie, as a caregiver for my husband I get so stressed when he has his rages & doesn't remember where he lives asking me to go check our other house which we don't have. You are so right that the caregivers need lots of prayer. I'm suffering sciatica & panic/anxiety disorder too. .
💐🙏
Yes, I pray for my brother, who is caring for his wife with stage 5 dementia, for wisdom and knowledge of this disease. Also to give him patience and compassion.
My sister-in-laws bubble is home, church and grocery store. Took her to get new shoes and she got an anxiety coughing spell.
Every time you do a dementia video I do pray for you.
Thank you so much for sharing your caregiver journey with us.
God loves you both and so do I.❤
With a spouse with dementia l thank you so much.
You will never know how much you are helping.
May God give us caregivers strength.
Bless you.
Wow Leslie… you are a living angel on earth. Even tho I have no one right now who is needy, your words of wisdom are priceless for all to hear, and digest. I wish there were more genuine, selfless , people like you around . The world would be a better place. God Bless you and Jason.
These are great tips Leslie. I would add onto your tip for others to educate themselves to also not question the caregivers on the diagnosis. Casual friends or long distance relatives who only see the Showtime” behavior of someone with dementia sometimes make me feel like I’m making things sound worse than they are but they don’t witness the really hard times. I’ve also found myself so much less judgmental of other people’s behavior because you don’t know what they are going through. You are doing such a great job with Jason and your insight for others going through hard stuff. Prayers for wisdom as we make hard decisions and navigate this journey. ❤️
Yes the oh he seemed fine to me when we saw him out the other day. Well good I’m glad but behind closed doors it is NOT fine most of the time
Oh yes! Totally agree with you! If your loved one has been officially diagnosed and being cared for by you, then NO ONE has any say what so ever about day to day care unless they are right there doing the care with you! Outsiders always want to have an opinion, but until they live it, they have no right to judge!
@@LIVINGWITHDEMENTIAPODCAST ❤️
@@LIVINGWITHDEMENTIAPODCAST there is a saying and I would like it in a t shirt… ‘ you don’t look ill and you don’t look stupid!’
Take care of yourself as best you can ❤️
I had the same reaction from some family members when I was caring for my mom. Judgmental comments weren’t helpful when they weren’t here to see her day-to-day reality. Thankfully her doctor knew that she could pull herself together at times for her visits and believed what my brother and I were saying. Such a hard time, Leslie. I think you’re doing an amazing job. Prayers for you both.
My prayer for you is for faith and strength. This has got to be the longest , loneliest journey a spouse has to make. Grieving everyday, the loss of a little more of the person you love is heartbreaking. I do wish I was your neighbor and could be of help in some way. But all I can do is send love and prayers.
Praying for you Leslie and for Jason. Thank you for sharing and being so brave!
God is using you, Leslie, in a mighty way! Thank you!
I wish I had your videos years ago when I took care of my Mother with dementia. It was difficult to always know the correct response to odd things happenning all the time. She was always a tough lady, so you can imagine with dementia she was not easy going. I have never regretted taking care of her the best I could at the time. I did try to show her compassion and love. She knew I loved her. That was the one thing she always remembered. ***Leslie, You are such a sweet person and a wonderful, strong, and giving human being. You are very appreciated by making all these videos. God never gives us more than we can handle, even when we don't see it at the time. I pray for you and Jason- a wonderful couple.
Leslie, I admire you so much. I've walked your walk. My husband died in 2014 from early onset dementia. After he died my sister wanted me to start a caregiver group for people going through the same thing and I was do burnt out, mentally, emotionally, physically that I know I had post traumatic stress. I told her no and I know that upset her but you are so right about the caregiver needing prayer and emotional support. Only by the grace of God I got through it and sometimes years after he has past away I think back on how I could have handled things differently. Please know that I'm praying for you and Jason, and your family. I'm so happy to hear you have a good support system that rallies around you. Thank you for helping others learn about this disease. I don't think I could have gotten through some of the videos you done - you are a strong woman.
As someone who helped my sister-in-law care for my brother with glioblastoma, (she worked part time) and a few years later, a sole care giver for my mom with Alzheimers, even though my caregiving roles are over, I so thought this video was so wise and so important. I appreciated everything you said. And every care giver, like the patient's situation is unique. Keeping YOU and Jason in my prayers.
Absolutely right on with all your tips.
I have learned if I am to roll my eyes in frustration and my loved one sees it NOT to feel guilty. He will forget and I can make peace with myself and move forward. I am not perfect and I can’t expect to be 24/7. I pray for good days. For calm days. And for peaceful days. Your videos and of course hearing from Jason are helpful. 💜
As I have been in your shoes before, let me say that people do not understand that when you have a functional "dementia" patient, people do not see that the person we knew personally is gone. They are there in person, but our relationship the way we knew it personally is very diminished, altered, and changed. It's difficult to have people from the outside understand we need a friend/sitter/support person, so we can have a mental break, if even for an hour in our own home.
I can so relate to your comment, "They are there in person, but our relationship the way we knew it personally is very diminished, aldtered, and changed."
AND might I add: It is very lonely! I am thankful for the 3 dear friends in my life I can talk to without judgement!
🤗💕🙏 I share tears with you today. I'm a fatigued caregiver. I'm so thankful I can do this, by the grace of God, but I do wish those around us could see I'm really not super human. 😉 These are wise suggestions, Leslie. I will continue praying for strength, wisdom, guidance and support as you press on showing the love of Christ to Jason and all others watching from the outside. Thank you🙏💕
Amen! Very good comment.
Me, too. In 8th year, one day break. I slept the whole time despite plans to catch up on everything.
You're in my thoughts and prayers.🙏❤️🙏When my husband passed away I moved in with my elderly mother who has dementia, and it's getting worse. Before my husband died he was exhibiting a lot of signs of dementia, but he died from a massive heart attack, and the dementia didn't get to the point of not knowing a lot of things, but I think the dementia was working on him before the heart attack. When I moved in with my mom to help her, I didn't realize that she had Dementia, but it didn't take me long to see the signs. She also noticed things about herself, and she was finally diagnosed with dementia. My mom can't go to the store by herself anymore , and she tried to drive herself to the gas station while I had to do a military funeral, and she couldn't remember what kind of gas her jeep took. She thought it was lead gasoline, and I told my mom they don't sell lead anymore, so she finally put premium in it and thought she ruined her jeep. I told her as long as she didn't put diesel in it she's fine. She got so upset, she couldn't remember how to get home. This all happened while I was at American Legion, but thank God, by the time I got back, she had made it home. I let her drive to the end of the road to the dollar store, but it's getting to the point that I'm afraid to let her drive at all. Nobody but me knows how bad she really is because I'm with her everyday.
Just being with her for a short period, and talking to you, you wouldn't think anything is wrong, so when I try and tell my brother and daughter, they act like they don't believe me. They didn't see her the morning that I had her at the grocery store, and she got so confused, she didn't know where she was at, and I had to lead her to the frozen food, but then because of the situation she had a full blown panic attack. My mom"s personality has completely changed. I'm her only caregiver, and it's so hard😢
Dear Cherie, I will be praying for you and your mom. So sorry you are going through this very hard time. ❤ Big hugs
My husband was diagnosed with dementia 5 years ago at his age 62. Three years in he was diagnosed with PPA (the aphasia dementia Bruce Willis has) and now rarely communicates. Before that he was verbally abusive and was hyperactive, completely opposite from my husband as a caring and loving pastor. He is at stage 6 now and on hospice which has been a godsend. Thank you for sharing your journey. I keep saying "I remember that" when you share what is happening to you now. Shows me how far we've already come. He's homebound now but loves visitors even though he may not recognize them.
You single handedly saved me from giving up. I mean that! What you and your family is doing is a great sacrifice & I would be grateful to see you be given as much comfort, guidance & support as possible.
So have my Mother's and it hurts all of us
My MIL who had dementia was living with her daughter. One day she was looking in her checkbook and saw checks written to someone she sort of knew. There came a point where her daughter had to explain that her funds were being used to pay someone to stay with her when the daughter needed to go do something alone. My MIL was mad as a wet hen. She thought these people were coming over to just visit and stated she didn’t need a babysitter, which she did for safety reasons as their home’s common living spaces were on 2 levels. There are parts of caregiving that are easier when the patient isn’t as cognizant of their world.
This video is an eye opener for me . I used to hide my exes illness. When he would forget what he was talking about or lose his train of thought, I would play it off as if he didn’t just go off the rails and is talking about something completely different. Also when he would get frustrated with someone, I would pretend it was something else . I know we protect them but people don’t realize the mental breakdown a caregiver goes through privately and the tears of what feels like hopelessness. But I have good news , after all that he is still alive from 2001 , 22 years and not gone. Hang in there girl, I’ll be praying Jason will be here in 22 years and by then they will have found a cure for whatever it is that he has .
Teepa Snow’s TH-cam videos were a Godsend when my mom had dementia. Teepa’s seminar was transformative for me and my sister as helping caregivers along with my stepdad. Sending prayers💜
Teepa is amazing - I have learnt so much about dementia and ways to support caregivers and those affected.
Your first suggestion about not interrupting them by talking because they will forget what THEY were talking about is so relevant for me. It is something I’ve just realized helps in communicating with a loved one with memory issues. Thank you for all of your videos!
Father God, I pray for strength and comfort for this couple. I pray that Jason has calming energy and Leslie receives all the love that she deserves. In your son Jesus Christs name, Amen!
Good evening Leslie! I am praying for you. I pray that God holds you close to Him and gives you His sufficient grace while you take care of Jason. I firmly believe that God will never leave you nor forsake you. I pray you are able to get some rest. Thank you for sharing your journey. 🙏🏻💕
Prayers…. I feel your pain so much… our journey ended 02/28/2023…
My love, and prayers, are with you every second, minute, and hour, of each day. I understand your life 100%, many of us out here, we feel your love for Jason…
I took care of my ex-husbands grandad for 3 yrs who had Alzheimer’s. That was the hardest thing I’ve ever done. I totally understand. But I was “an outsider”. Not a relative. But it was still hard. I admire you what your doing. It’s very hard. I wish I had something like this years ago when I had to do it. May God bless you and keep helping others with the difficulty of caring for them. :)
I have seen the devastating effects of dementia as a nursing assistant, RN and NP. It can be a difficult journey for caregivers. Thank you for sharing your journey and these insights for caregivers. I wish you continued strength and the ability to find moments of joy. 😊❤
New subscriber and so blessed to come across your channel 🙏. I am the sole caregiver for my 85 year old mom with Alzheimer’s. I’ve never been so physically,mentally and emotionally exhausted in my life but remind myself that if she has to go through this heartbreaking journey, I can find the strength to go through it with her. Thank you for your compassion and understanding of the challenges of being the caregiver. Prayers and strength to you both🙏🙏
Pray for the caregiver as well!!! That’s such a good one!!! 🙏☀️♥️
Sweet Leslie, thanks so much for sharing these wonderful tips!! Both of my parents had Lewy Body and I practiced all of these. Believe me, they absolutely work!! Keep sharing, you’re helping so many that are new or struggling with caregiving. Much love, sweetheart!! ❤️❤️❤️❤️
Such great tips. I’m a caregiver for my special needs adult son with Down syndrome and now my husband who’s has Friedrich’s ataxia. My husband is declining and can’t get around well. In fact he fell last week and has hurt his shoulder. Prayers are very much appreciated. I pray for you and Jason.
I was a caregiver for my husband, who has passed. I still come here to watch you Leslie. You were the light of my week during my husband's lengthy illness. This video is really important. Being a caregiver is grueling. There is no downtime. Caregivers need support. Love to you Leslie.
I remember Mom would sit in the corner when we had a house full of people and she wouldn't talk. So unlike her. She wasn't able to follow conversation. If she would say things I learned to let her talk as you said. Otherwise she'd forget. It's hard at times. I didn't really have a support group. But in good times and bad times you're making memories. Praying for you and your family and Jason. Love his sense of humor.
I do pray for Jason AND you! God bless you both and give you strength and wisdom to best care for your sweet hubby. ❤🙏✝️
Leslie, this is such a great video. You put into words what I want to say to people I know. I am currently caring for my 96 y/o mother with dementia. Sometimes it’s like riding a roller coaster. So many emotions mixed with fatigue. But God gives the strength. I also have some great friends who pray for me and mom and offers respite care. I pray for you and Jason on this journey. You are an excellent caregiver ❤
This was so helpful. I went thru 10 years caring for my mom at my home. I had to plan and schedule my days, yet be flexible because her day may not turn out as we hoped. I felt that sometimes my friends did not understand why I might need to cancel something at the last minute. I think if they had heard your videos, it would have made more sense to them, and they could have encouraged me. Mom died last year. I sorely miss her, as she was funny and happy and sweet, even with dementia. But I always knew where she was going and I was glad she could be promoted to heaven and live without her health complications.
Thank you for these tips. They are so important for those who aren’t caregivers to understand. I have a 20-year-old daughter with microcephaly, which means she functions like a three-year-old. I especially appreciate the tip about talking directly to the person and allowing them to speak. My daughter tells cyclical stories, but I so appreciate people who take the time to listen to her. It means the world to her that someone thinks enough of her to do that. And the prayers are also key. She’s started with some behavioral issues. I have to get her up now and going for the day, and it’s hard because I never know what mood she’s going to be in or what struggles I might face today. Bless you for all the important work you do and how God is using you and your situation to touch so many others. I will add you and Jason to my prayers. ❤
Leslie, you’re helping so many people, and you are a true inspiration!
I'm so glad you mentioned the distance . It's one if the most painful but easily shifted with education . I think it happens because we are all grieving, and so people pull away. What I notice with dimentia and alzheimers is the human struggling with it notices the distance
So appreciate you and Jason. Just starting this journey. I am finding I have to slow down, let him finish and then interpret internally or gently for other people who he may be talking with. This and your other suggestions came at the right time. I am learning and you are helping so much.
Leslie sweetie I definitely will keep you in my prayers ! God bless you! Sending you a big hug.
My mother had a brain bleed 3 years ago. I dropped everything and went to her state to care for her. I was there for 7 months. No one in the family, none of her neighbors or friends ever offered to sit with Mom for an hour or two to give me a break. No one did anything for us at all. My sister never came to help at all. It was pretty awful really. I'd wish so badly that I could go out alone for a coffee or lunch or even to the grocery store then I'd feel bad and guilty for wishing I could have an hour or two to myself away from my mom's house.
It was obvious all of mom's friends, these super churchy people, her relatives that talk about praying all the time, the neighbors that mom thought loved her really didn't care about my mom at all. No one offered to do a damn thing and it ticked me off. It also showed me how things are going to be if mom becomes ill again. Mom recovered, thank goodness. Mom is almost 91 she's made me promise never to put her in a home, she refuses to consider any senior living facility or to have a stranger live in her home to help her so when it becomes necessary it's going to be me doing it all, on my own with no help . Thank goodness I'm tough. I thought about sending thank you for all of your help during mom's illness and recovery cards out to everyone that should be ashamed of themselves but I'm nicer than that. Lol
These people, except for my sister are all the kind of people that go to church every Sunday and are involved in all of these things at the church during the week, they wrap themselves in religion but sure don't practice what they preach. It's really sad how fake they all are.
I took care of my mom who had dementia --- My dad helped to what he could do but it was me mostly. What a lot of people do not understand that a caregiver basically is removed from the real world is the only way I could describe it. Sometimes the caregiver can feel very alone and you have my prayers for sure. I will be praying for you both. I can see what a beautiful marriage you have. I appreciate you sharing because I would often wonder what my mom was going thru and it broke my heart not understanding it. However it was a very humbling experience. God Bless you both!
I love you my friend! Praying for PEACE that goes beyond our understanding.
Very good information!! Thank you Leslie!!!
Thank you so much for your videos, Leslie. I to am a caregiver for my husband. He's going on 4 years with this awful disease. His neurologist is leaning towards FTD diagnosis. I look forward to each video that you make concerning your journey, and helping me through mine. Uplifting you and Jason daily, God bless.
I absolutely pray for you for strength! Jason is blessed to have you
Thanks Leslie. I pray for all of us caregivers 🙏❤️
It is SO FRUSTRATING to let them interrupt you constantly but to never interrupt them. It feels so unbalanced and disrespectful but when you accept that it is not a case of "bad manners" but a medical condition it is helpful. We don't have any support, it is literally just the 2 of us & grown kids I try to keep out of it. I feel so alone most of the time but I KNOW I am supported by friends unseen. ❤
I know what that feels like; my husband interrupts me at the first word he hears that comes out of my mouth, continuing to say what he thinks I will say. It used to bother me but I am learning to let it go for my own sanity
Just recently found your channel. Thank you for this, sharing your personal grief is admirable to help others. I was recently diagnosed with early inset Dementia, I also have an autoimmune Arthritic condition that is debilitating, as well as heart disease -- I'm 59. I seem to be close to Jason's "stage" I am better in some ways and worse in others. I am completely focused on my Wife, I feel like my future is spoken for and the thing that Frightens me most is becoming a Burden to my wife. I already am in many ways, ie. not travel, not socializing, no activities, ....
I have vowed that I will not allow myself to become a Burden and will hit the "check-out" counter before it is too debilitating.
Leslie! I can not tell you how much your videos have helped me! Your talking to the caregivers is priceless. God bless you as you walk this journey, it’s so hard and you are a blessing through it. 🙏🏼😍
Wonderful information Leslie. I do my run to the store when my husband is napping. I am never more than 5 minutes away. My guy also would rather not have anyone here , he feels it’s an imposition to ask other family. So I like you, squeeze in my time out during naps, I have cameras in my home so I can always watch him when I am not home.
So strong you are.
You are such a blessing. Love you both and pray for you daily.
I absolutely agree! Letting them communicate when they start. My husband struggles with this a lot.
Blessings always Leslie for your loving spirit. God does not leave us unattended. 💕🙏
Again I thank you! As nurses, educating ourselves is second nature. Educating our support family is more challenging. I thank God daily for the support He has and is continuing to put in our lives thru this journey.
My husband has MS and he experiences the same thing that Jason does about being easily overwhelmed with too much stimulation and when grandkids come over with our daughter he tends to go to his room and isolate himself it's also hard to explain to our daughter because she misses her dad the dad she remembers and she wants to handle things in her way and doesn't always understand what I have to deal with when he just wants it to be me and him so I'm trying to be compassionate to her feelings about wanting to be there around her dad at the involved but also the fact that he doesn't always want her there with our grandkids being involved because it takes too much energy it's just hard to explain and to keep everybody happy because I know I enjoy my daughter and grandchildren so much but my husband also needs me and I work outside the home and I know that one day that's not going to be the case anymore because I just won't be able to do that I really enjoy your videos and your dedication to Jason and your family thank you
Would it work for your daughter to come see dad and you to take the grandkids to the park?
They want to see him and we live in a very very small town no real park here relationships between father and daughter can be complicated and theirs always has been even before ms . Its complicated but thank you for the suggestion it's good for us to all get feedback and not feel alone:)
@@teresajohnson5010 I’m sorry you’re dealing with such hard things right now. I do understand complicated and difficult relationships.
Thank you that's very kind. I appreciate Leslie and this whole group of great people.
I pray for you and Jason each day! 🙏❤️🙏
Leslie, you are such a light. Thank you for sharing your experience with us. My husband has Parkinson’s and besides the hand tremors, is now having some non motor symptoms of the disease. One day at a time , or better one moment at a time.
I pray for God to strengthen you
and we just need to remember to lean lean lean on him. He’s always there for us❤I always look forward to your videos on both of your channels! Thank you for all you do!
Praying for you and for my sister-in-law who is the caregiver for my brother.
Prayers to you and all the other caregivers.
Yes we need the prayers too my husband has Parkinson’s and I feel your sadness too
Great tips … the Lord is our Shepherd always…may He grant you peace, rest and strength
I'm praying that you can cope , find comfort, and continue your support in this experience . May God be with you always amen
When you get to this stage where he has trouble knowing who people are make sure everyone comes in and says something like hey mommydoodles angie is back to have fun. Make sure peeps around him know to give him that name so he doesn't have to work so hard to remember names. That was the best advice I got when mom got to that stage. Made it a better visit and less brain power they have to use. Be the first to say the person's name so he doesn't have to struggle. I pray for both of you every day. It is hard but God is good. You have alot of people who have gone through it or starting this long winding road. I love that you started a channel so we all can lift each other up and give bits of help. If I didn't have the meetings to go to, where I learned so much about how to claim and divert the the situation and when to walk away for a bit. May God be with you and help you to be strong.
Amen, sister! No one understands me like you do!
Praying for you two, your Family and All your loving Friends who are feeling this Walk with you two✝️🙏🏼🕊️❤️❤️
Thank you for caregiver support info. So often caregivers are forgotten
Very good tips you shared. I always pray for the person and care givers. Care givers really have a hard career but you are doing well under the circumstances. Stay strong and draw strength from the Lord.
Hang in there Leslie! ❤ talking out loud is good.. it’s exhausting ! 🙏
Leslie, Yes, Our Prayers are with you 🙏 I can't imagine going through what you are , trying to be supportive and positive. I think you're an amazing woman and a Wonderful Wife ! I can tell Jason loves and adores you . May your faith in our heavenly Father can give you strength beyond what is Normal ! 🙏🙏🙏
I take it one day at a time with my dad. His latest thing is removing food from pets’ dishes and not replacing it with enough or correct food. Thanks for the tips. May you have strength and peace as a caregiver,
In my prayers for you, the caregiver, I add a prayer for your health and well being. Not just for your ability to help Jason but for yourself. You are God’s beloved daughter and I pray that He carries you as you travel this road.
You ✨️ ✨️ ✨️ ✨️ are heaven sent.you will be able to rest with your prayers 🙏🏻
Thank you so much Leslie. I have 2 sons with autism. So many of your points are relevant. Sending love and prayers from London UK ❤
Sending prayers for you Leslie as care giver you get it all. Dear God please surround Leslie at this moment with your love, let her feel how much you love her and how much her family, friends, and viewers love her. Please give her wisdom in all situations as she navigates through this difficult journey. May she feel your blessings upon her now. Thank you for being her guide. Thank you for answering this prayer and for all prayers going up for her and her wonderful husband Jason. In your Sons name we pray, Amen.
Bless you! Thank you for sharing these tips. As a caregiver I bawled as you gave each one!
Beautifully said Lesley🥰 Self Care is Important, so put your oxygen mask on first?
Why? During pre-flight instructions, flight attendants tell passengers that in the case of an
emergency they should put their own oxygen mask on first even before helping children
because otherwise the passenger will run out of oxygen and be unable to help anyone else. This
is true when it comes to self-care because putting oneself first is an unselfish act and a priority.
If you do not take care of yourself, you cannot help others. Being the caregiver for someone
with a health challenge can be very difficult, but try to take a little time for yourself. 🤗 My prayer are with you both 🙏
Perfectly said, your last point should have been your 1st point, soooooooo important❤❤❤❤❤You are just so gifted at communicating clearly, so appreciate you
Please know I do pray for both you and Jason. Your information and tips are so wonderful because unless one is going through what you are going through we don't know. Educating people is so important to help us understand better. You have been given a big cross to bear and you are so courageous in how you are doing.
Leslie... you are so inspirational! Just the love you have for Jason and compassion....
Leslie, thanks for the the ways to help others. You both are so young to be walking this path. I pray that God will give both of you what you need and that can enjoy and cherish the good moments so when the tough moments come, you will be lifted up.
🙏 praying for you Leslie.