How to Navigate a Cancer Diagnosis in a Broken Medical System
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- เผยแพร่เมื่อ 27 พ.ค. 2024
- Kathy Giusti was given a fatal cancer diagnosis over twenty-five years ago when she was 37 years old, at the height of her career, and a new mom to an 18-month-old baby. Thankfully, Kathy is still here today and sharing all she's learned from her cancer journey in her latest book, "Fatal to Fearless: 12 Steps to Beating Cancer in a Broken Medical System," a book Katie Couric says is "so badly needed."
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I ran out of insurance after two cancer surgeries, because I had to stop working. The US medical system is TERRIBLE.
You're 💯 percent right. I lived in Norway for years, and really miss how wonderfully they treat people with health challenges. America should be ashamed! Health issues here literally ruin people. Not so in Europe, and specifically Norway. I have a genetic condition, along with overlapping autoimmune illnesses. I'm uninsurable here in the U.S., and am on combined Medicare/Medicaid. Thank God, 💯 percent coverage, including drugs.
I am glad you have the Medicare/Medicaid then. It is so important to be able to access some type of care with chronic conditions. I am a veteran, and the VA declines to send me into the community for thorough breast cancer followup. I think it all may pertain to how US society prioritizes military spending and violence over health and quality of life, in my opinion.
Oh KaAtie, I don’t think I could be more graceful for you. This is a really horrible situation for patients and their families. I’m praying for and rooting you in.
Thank you, Katie.❤
Bless you both. Im awaiting a diagnosis. Am widow alone on assignment out of US. Am terrified. Thank you -never heard of a some of the assistance you’ve said are available. I’m completely alone. This is most helpful. May you both be blessed with healthy happy long lives. (Uh oh Amazon says can’t be sent here!)
Conventional doctors need to work with holistic doctors, functional medicine doctors, traditional Chinese medical doctors and integrative doctors to form a multiple disciplinary team for the best medical treatment plan for each patient. Conventional doctors work within the algorithm they have been given by the medical institution they work for. It all comes down to the billion dollar pharmaceutical industry that cancer treatments support rather than about truly caring to save people from the dangers of harsh treatments. It is so very, very sad. Thank you for sharing your story and for writing a book that will help people navigate a cancer diagnosis and treatment plan. God bless.
Teacher in CA - diagnosed w BC recently - after 20+ years of teaching , I found out that they’ll give me 100 disability days (after first using my sick days) - then while using the 100 days, first they pay my daily substitute rate and I get the remaining of the amount - roughly 65% pay. After 100 days are used , they’ll place me on non-pay leave and that’s it … I become unemployed and lose my insurance. After I heal, I would have to apply and interview for my position again. 😮
It’s not just cancer, my daughter died because she was never diagnosed with hydrocephalus. We realized she needed a mRI the night before she died. No one in the medical community even thought about it.
I am very sorry about your daughter. MRI’s can be hard to even get referred to, or covered by insurance.
Thank you, ladies. ❤
Very informative! Thank you!!
Thank You 😢
We are self employed and get flopped from one insurance carrier to the next which make primary care almost impossible.
You pay, they deny. Employers will fire you while in the hospital, ending your insurance.
This only happens in America
Very informative
Katie, I would love for you to contact MGFA and learn what diagnosis, treatment is like for women with Myasthenia Gravis. Then ask about those who test sero negative. Ask what happens if you are given the wrong anesthesia or antibiotics before you get a solid diagnosis. This has been the most horrid experience when neurologists glance at you and say "you don't look too bad" as you are seated having waited 30 min. Please help.
I was diagnosed with colorectal cancer in 2021. I was lucky to be treated at the cancer center of St Joseph Medical Center in Burbank, California where the doctors worked together on my treatment plan.
Also consider getting a 2nd opinion from a university cancer center.
What caregiver?? I was my own caregiver.
"hi doc it hurts when I do this" doc "don't do that" don't kill do no harm