What a great question! Actually, from what I’ve read the DBS in the Globus pallidus internus (GPi) is said to be more effective for severe dyskinesia, while the STN-DBS correlates to more medication reduction overall. It’s debatable whether one or the other is more indicated in the case of dyskinesia. You can still have dyskinesia and dystonia after DBS, but it may take a long time to show up more again.
i am a little confused with regards to my father's diagnosis one neuro says its chorea, he told me me to completely cut down sinemet Extra and begin with Small dosages of dosik. initially some improvement but then again heavy movements specially neck n head movements. another neuro told me it's not chorea and its dystonia and he started sinemet again along with hexidyl n another med I cant recall. He said if no improvement then we may opt for botox injections on the neck. Jan 17th I will be meeting another neurologist. Can i have your whatsapp number or email, I will share my fathers video
Hi there. That is strange. I would be happy to take a look. Why don’t you send by Messenger here on the Facebook Page: facebook.com/share/NscbVt7VJqzJRA1K/?mibextid=vo1riV
Thankyou for making it informative & fun! FYI- what FINALLY got me on track for a Dystonia diagnosis is when I told my physical therapist that if I am having repetitive & very painful hand & foot spasms I drink 2 shots of Vodka & within 20 minutes the contortions & cramping stops. 🙂👍
Wow! That’s great that you were listening to your body and that your therapist listened to you! Do you have Dystonia that is along with Parkinson’s or Dystonia as a stand-alone diagnosis?
@Parkinson’s Disease Education Thankfully, I was told I dont have Parkinsons, M.S. or A.L.S., but I do have an incomplete spinal cord injury C4-C6 that could be the cause. After watching your video, I consolidated all of the images of what happens with my hands & feet. My doctors are sending me to spinal clinc in Seattle because they are mystified that my toes & arches contort painfully just like my fingers & palms do. I appreciate their honesty and referral out. I look forward to learning more from your channel!🙂👍
That’s very interesting. I’m glad you are getting the help that you need and I’m grateful that this channel is a help to you as well. Thanks so much for your feedback
Hi Kamran, thanks for your question! I am well also, so thank you for that. Honestly, I haven’t heard that gabapentin is very effective for Dystonia in particular. Since gabapentin is a neuroinhibitor it is possible that it could help some. Most of the studies out there about use of gabapentin to treat dystonia are limited to children with dystonic cerebral palsy. But, in theory it’s possible it could help other forms of dystonia such as in PD.
Thank you for your useful content 🌹 Surprisingly, the body tremors of my mother, who has been suffering from Parkinson's for about 11 years , increase in both the minimum and maximum dopamine points . but stiffness and slowness of movement can only be observed at low levels of dopamine . The way I have taken to make her medicines work faster , of course only when necessary , is to give her medicine along with vitamin C or a sweet drink . doing things that she likes a lot , and distracts her is also very effective . it seems that her mind is deceived and her body calms down . of course , these activities should not be physical and the patient should be the viewer/observer . for example , showing her a movie about nature , taking her by car to the forest or mountain road . isn't it strange that when she exercises and her physical activity increases, or when she takes a bath , she needs medicine more and earlier ?! and of course , as you said , discomfort , anger and stress quickly make my mother feel bad . Thank you very much for your good and intimate videos . in the last few years , because of going to the office of some doctors who , although they had high knowledge , but were very bad manners and bad behavior , I have developed a phobia towards doctors and hospitals , even towards online doctors ! But you, while being professional , are really polite and friendly and this is very valuable ❤
Thank you very much for your kind encouragement. 🙏 The mind and the body are so connected. It’s amazing how something happening outside of us can “trigger” a reaction in the mind and body simultaneously. This connection shows up even more readily with conditions like PD. Anyway, I’m so blessed to know that these videos are helpful and that they are delivered in an approachable and understanding way.
![ได้เวลา! พาน้องแฝดฉีดวัคซีนครบ 1 เดือน🫣 [cc] แดนแพทตี้ SS2 | EP.52 |](http://i.ytimg.com/vi/IzeLtaXBLNE/mqdefault.jpg)
Are the subthalamic nuclei the target of DBS for these symptoms?
What a great question! Actually, from what I’ve read the DBS in the Globus pallidus internus (GPi) is said to be more effective for severe dyskinesia, while the STN-DBS correlates to more medication reduction overall. It’s debatable whether one or the other is more indicated in the case of dyskinesia. You can still have dyskinesia and dystonia after DBS, but it may take a long time to show up more again.
i am a little confused with regards to my father's diagnosis
one neuro says its chorea, he told me me to completely cut down sinemet Extra and begin with Small dosages of dosik. initially some improvement but then again heavy movements specially neck n head movements.
another neuro told me it's not chorea and its dystonia and he started sinemet again along with hexidyl n another med I cant recall. He said if no improvement then we may opt for botox injections on the neck.
Jan 17th I will be meeting another neurologist.
Can i have your whatsapp number or email, I will share my fathers video
Hi there. That is strange. I would be happy to take a look. Why don’t you send by Messenger here on the Facebook Page: facebook.com/share/NscbVt7VJqzJRA1K/?mibextid=vo1riV
Thankyou for making it informative & fun! FYI- what FINALLY got me on track for a Dystonia diagnosis is when I told my physical therapist that if I am having repetitive & very painful hand & foot spasms I drink 2 shots of Vodka & within 20 minutes the contortions & cramping stops. 🙂👍
Wow! That’s great that you were listening to your body and that your therapist listened to you! Do you have Dystonia that is along with Parkinson’s or Dystonia as a stand-alone diagnosis?
@Parkinson’s Disease Education Thankfully, I was told I dont have Parkinsons, M.S. or A.L.S., but I do have an incomplete spinal cord injury C4-C6 that could be the cause. After watching your video, I consolidated all of the images of what happens with my hands & feet. My doctors are sending me to spinal clinc in Seattle because they are mystified that my toes & arches contort painfully just like my fingers & palms do. I appreciate their honesty and referral out. I look forward to learning more from your channel!🙂👍
That’s very interesting. I’m glad you are getting the help that you need and I’m grateful that this channel is a help to you as well. Thanks so much for your feedback
Hi . Dr Michael, I hope you r well. Can we try Gabapentin in parkinson's Dystonia ??
Hi Kamran, thanks for your question! I am well also, so thank you for that. Honestly, I haven’t heard that gabapentin is very effective for Dystonia in particular. Since gabapentin is a neuroinhibitor it is possible that it could help some. Most of the studies out there about use of gabapentin to treat dystonia are limited to children with dystonic cerebral palsy. But, in theory it’s possible it could help other forms of dystonia such as in PD.
@@parkinsonsdiseaseeducation thanks a lot for your answer, Sir . I'm following you for more good stuff.
That’s very kind of you, thank you 🙏
Excellent overview of options of treatment for Parkinson’s Dystonia.
I’m glad you thought so! This is not an exhaustive list, but it certainly lists some of the most common routes of treatment
I'll take the DBS over the botox or Botulinum toxin
I could see that being desirable over years of injections that are only temporary.
Botox is bacteria from what I know ..... pass
Thank you for your useful content 🌹
Surprisingly, the body tremors of my mother, who has been suffering from Parkinson's for about 11 years , increase in both the minimum and maximum dopamine points . but stiffness and slowness of movement can only be observed at low levels of dopamine .
The way I have taken to make her medicines work faster , of course only when necessary , is to give her medicine along with vitamin C or a sweet drink . doing things that she likes a lot , and distracts her is also very effective . it seems that her mind is deceived and her body calms down . of course , these activities should not be physical and the patient should be the viewer/observer . for example , showing her a movie about nature , taking her by car to the forest or mountain road .
isn't it strange that when she exercises and her physical activity increases, or when she takes a bath , she needs medicine more and earlier ?!
and of course , as you said , discomfort , anger and stress quickly make my mother feel bad .
Thank you very much for your good and intimate videos . in the last few years , because of going to the office of some doctors who , although they had high knowledge , but were very bad manners and bad behavior , I have developed a phobia towards doctors and hospitals , even towards online doctors ! But you, while being professional , are really polite and friendly and this is very valuable ❤
Thank you very much for your kind encouragement. 🙏
The mind and the body are so connected. It’s amazing how something happening outside of us can “trigger” a reaction in the mind and body simultaneously. This connection shows up even more readily with conditions like PD.
Anyway, I’m so blessed to know that these videos are helpful and that they are delivered in an approachable and understanding way.
@@parkinsonsdiseaseeducation
🥰
0:42
😊
Cut to the chase, is that what you’re trying to tell me Scott? 🤨 😂