I'm finally able to work my dream job full time. But I still have POTS. . . heres how I do it. . . . Follow us on Instagram at: Blessedwithacurse1 and piperthesd
So sweet to know I’m not the only person working long nursing shifts with POTS. Some days I wanna break down in the bathroom at work when my POTS symptoms act up but I remind myself I’m stronger than I know to handle this crazy condition. Definitely not easy
Thank you. I’m in nursing school and have POTS and part of me is worried I won’t be able to have my dream job of being a Nurse Practicioner. You have given me hope ❤️
this video was so amazing on so many levels I suffer with pots as well it took me years to get to a point where I could work again and now I'm back at point a with my pots almost bed ridden I spend most of my day in the bed and only get up if it is very necessary I know it is going to take me a while to get back to the point where I could work again and that's dreadful everyday it feels like I'm running a marathon and I'm super tired so the fact that you are actually working as a nurse and taking care of other people when I know personally that you need to be taking care of yourself is amazing you are amazing 😍👏👏
Thank you! I really needed this today actually. You are a rockstar and I’m cheering you on all the way! Prayers you get better soon! There is a light at the end of the tunnel!
Hoping you're doing better. I was bedridden from POTS and my other Ehlers Danlos syndrome issues about 12 years ago, and it was tough for me to dig out of that hole. Inactivity and muscle atrophy makes POTS worse over time. Compression calf sleeves and putting on more leg muscle helped me quite a bit. Pyridostigmine was the POTS medication that helped me most. Other POTS medications include Ivabradine, Atenolol, Propranolol, Guanfacine, or Clonidine. Since each patient is different, it might take time and trials to find the medication that works best.
You just gave me so much hope! I haven't worked a regular job in 4 years because of pots and the other health issues i have which has resulted in me living in poverty with my ma and siblings in a falling apart house in a run down neighborhood in Flint Michigan, we still don't have safe drinking water bte. Its an overwhelming feeling and makes me feel hopeless! This video gave me hope!
I really felt that when you cried on the camera. I do that sometimes after a stressful day, and I will just pull out my phone camera and just cry to myself on camera. I have never shown those videos to anyone else. I don't know what it is, but I feel much more free to cry and let go when I recording myself, even for me. I see you and I appreciate you. Thank you for being vulnerable and open. It made me feel a little less lonely today
Thank you for vlogging about working while having Pots. I have recently been diagnosed and currently in second semester of nursing school 😭 . This is very encouraging.
Glad that you're finding a way to work around your POTS! I have POTS and other issues from my hypermobile type Ehlers Danlos syndrome. Compression calf sleeves and putting on more leg muscle has helped a bit. The big helps for me are Pyridostigmine during the day to treat my POTS and digestive motility issues, and low dose Guanfacine before bed to further treat my POTS and to also help my sleep and prevent migraines. Several other types of POTS medications are out there, and it can take time to find the right one.
I'm struggling to find work that I can do. My trade is in the culinary field and the heat is killing me. I don't have family and friends to rely on and this is giving me some hope.
Thank you for making this video. I have POTS too and I also have type 1 diabetes. I just graduated with a biomedical science degree and have found it incredibly hard in my area to find a job that will accept a service dog in the healthcare field. If you don't mind me asking, but have you asked your employer about accommodations for a service dog? If so, are they going to allow your service dog to ever accompany you while working? I am just trying to see if anyone has ever been able to bring their service dog into a hospital setting, as an employee. I can't imagine going to work without my service dog by my side. She has been with me for 5 years and went through college with me. However, I really need to find a job but am finding it near impossible to find an employer who will accept a service dog.
I have never asked my boss about bringing piper just because I personally don’t see how it would work out. I do a lot of bedside care directly with the patients- many of which are extremely sick and even dangerously contagious. With that in mind even if my employer allowed piper to join me it would probably put her and others in more danger due to germs etc. if you are working somewhere such as radiology or somewhere where you are behind a desk that might be more possible. But once again I didn’t even ask my employer because of what my job entails it would be impossible to work out. But I’m lucky to not need my service dog with me constantly like you do. Sorry if this isn’t helpful 😅. Best of luck to you!
I have POTS that seems similar to hers and the compression socks she's wearing may be helpful with her not fainting while driving. I do not have issues with fainting but still wear compression clothing because it helps me so much and allows me to function better
What do you do when you have an episode at work? I always try to hide it, but then I know my boss is seeing me not doing as great of a job, and I don’t want them to rate my performance low because of it.
@@katieagain3357 You're so lucky haha. I'm a student nurse in England. We're not allowed to wear jewellery, nail varnish, trainers...the list goes on😂 I too struggle with chronic health problems which can make work tricky at times, so I just want to say you are doing an amazing job! Good luck with your studies and placements, I am sure you'll make a great nurse!💜
So sweet to know I’m not the only person working long nursing shifts with POTS. Some days I wanna break down in the bathroom at work when my POTS symptoms act up but I remind myself I’m stronger than I know to handle this crazy condition. Definitely not easy
Thank you. I’m in nursing school and have POTS and part of me is worried I won’t be able to have my dream job of being a Nurse Practicioner. You have given me hope ❤️
Same here .... 🥺😭
Me too
this video was so amazing on so many levels I suffer with pots as well it took me years to get to a point where I could work again and now I'm back at point a with my pots almost bed ridden I spend most of my day in the bed and only get up if it is very necessary I know it is going to take me a while to get back to the point where I could work again and that's dreadful everyday it feels like I'm running a marathon and I'm super tired so the fact that you are actually working as a nurse and taking care of other people when I know personally that you need to be taking care of yourself is amazing you are amazing 😍👏👏
Thank you! I really needed this today actually. You are a rockstar and I’m cheering you on all the way! Prayers you get better soon! There is a light at the end of the tunnel!
Hoping you're doing better. I was bedridden from POTS and my other Ehlers Danlos syndrome issues about 12 years ago, and it was tough for me to dig out of that hole. Inactivity and muscle atrophy makes POTS worse over time. Compression calf sleeves and putting on more leg muscle helped me quite a bit. Pyridostigmine was the POTS medication that helped me most. Other POTS medications include Ivabradine, Atenolol, Propranolol, Guanfacine, or Clonidine. Since each patient is different, it might take time and trials to find the medication that works best.
You just gave me so much hope! I haven't worked a regular job in 4 years because of pots and the other health issues i have which has resulted in me living in poverty with my ma and siblings in a falling apart house in a run down neighborhood in Flint Michigan, we still don't have safe drinking water bte. Its an overwhelming feeling and makes me feel hopeless! This video gave me hope!
You’re a rock star!
Agreed!
I really felt that when you cried on the camera. I do that sometimes after a stressful day, and I will just pull out my phone camera and just cry to myself on camera. I have never shown those videos to anyone else. I don't know what it is, but I feel much more free to cry and let go when I recording myself, even for me. I see you and I appreciate you. Thank you for being vulnerable and open. It made me feel a little less lonely today
Thank you for vlogging about working while having Pots. I have recently been diagnosed and currently in second semester of nursing school 😭 . This is very encouraging.
Man you are a trooper!
so right you are! health care workers are a special breed. keep up the good work, and be as well as can be ☀️.
Glad that you're finding a way to work around your POTS!
I have POTS and other issues from my hypermobile type Ehlers Danlos syndrome. Compression calf sleeves and putting on more leg muscle has helped a bit. The big helps for me are Pyridostigmine during the day to treat my POTS and digestive motility issues, and low dose Guanfacine before bed to further treat my POTS and to also help my sleep and prevent migraines. Several other types of POTS medications are out there, and it can take time to find the right one.
you RAN before your shift? oh man that sounds like hell to me. i used to work 8 hour shifts standing in college but probably can’t anymore
"You might be a mess, but at least you're a hot mess." I'm gonna remember this till the day I die. Thank you for sharing this video 💜
I'm glad you can work even though I know it's hard for you. I look up to you. Keep up the good work and faith.
I’m pretty sure I have pots I’m waiting on a diagnosis and you are an inspiration
Amazing!
You are amazing !
I'm struggling to find work that I can do. My trade is in the culinary field and the heat is killing me. I don't have family and friends to rely on and this is giving me some hope.
You are fucking admirable, my goodness.
Thank you for making this video. I have POTS too and I also have type 1 diabetes. I just graduated with a biomedical science degree and have found it incredibly hard in my area to find a job that will accept a service dog in the healthcare field. If you don't mind me asking, but have you asked your employer about accommodations for a service dog? If so, are they going to allow your service dog to ever accompany you while working? I am just trying to see if anyone has ever been able to bring their service dog into a hospital setting, as an employee. I can't imagine going to work without my service dog by my side. She has been with me for 5 years and went through college with me. However, I really need to find a job but am finding it near impossible to find an employer who will accept a service dog.
I have never asked my boss about bringing piper just because I personally don’t see how it would work out. I do a lot of bedside care directly with the patients- many of which are extremely sick and even dangerously contagious. With that in mind even if my employer allowed piper to join me it would probably put her and others in more danger due to germs etc. if you are working somewhere such as radiology or somewhere where you are behind a desk that might be more possible. But once again I didn’t even ask my employer because of what my job entails it would be impossible to work out. But I’m lucky to not need my service dog with me constantly like you do. Sorry if this isn’t helpful 😅. Best of luck to you!
I admire you !
I’m super late but I needed this . I’m about to start a new job and I’m super scared
Thanks for sharing, you’re tough as nails. Keep on pushing.
You are a beautiful young lady inside and out. You're funny as well and make entertaining videos! 💪🏆💪
How can you drive with pots? Because for me I passout ALOT! so I cant have my license which prevents me from getting a job :(
I have POTS that seems similar to hers and the compression socks she's wearing may be helpful with her not fainting while driving. I do not have issues with fainting but still wear compression clothing because it helps me so much and allows me to function better
What do you do when you have an episode at work? I always try to hide it, but then I know my boss is seeing me not doing as great of a job, and I don’t want them to rate my performance low because of it.
Do you have blood pooling
How are you allowed to wear nailvarnish and rings as a nurse?
As long as it’s not in the way of our work, we wear gloves in patient rooms and wash our hands all the time, it’s not a problem! 😊
@@katieagain3357 You're so lucky haha. I'm a student nurse in England. We're not allowed to wear jewellery, nail varnish, trainers...the list goes on😂 I too struggle with chronic health problems which can make work tricky at times, so I just want to say you are doing an amazing job! Good luck with your studies and placements, I am sure you'll make a great nurse!💜
💪💪💪💪👏👏👏👏👏👏👏
Vitamin d cured my pots, maybe getting your vitamin levels tested may be something worth looking at.