Same as well: emergency surgery! Nothing was mentioned about the rectal pressure, etc. plus, it didn’t occur until recently, three months post-op. The ostomy clinic was helpful when I called in a panic, but seeing your post really brought it home. Yet, I wonder why the hospital or its “ostomy educator” didn’t bother to mention this possibility. I’ve learned almost everything about colostomy, products to use and coping mechanisms via You Tube. Thank you!
I had surgery just last month for perforated diverticulitis rupture. He took out like 8 inches of my sigmoid colon and next thing I know I’m wearing a ostomy bag. He said I could do the reversal surgery later on, but these nurses never said anything except this is how you empty the bag out. I learned everything two days before I was discharged on TH-cam, so I’m so grateful there was so many good TH-camrs talking about how to change your bag and different supplies to use!
Hi Michaela, same as you emergency surgery, in hospital for 3 weeks, not told a thing. The only advice I received was don't eat oranges. I also get the baring down sensation and was told to use glycerin suppositories they help, but don't cure it, it comes back from time to time. I think it's something we have to put with. Wish you luck Carole
Hi sweetheart, I was and still am the same. I'm going on 5 months now. Mine was an emergency operation. I ended up having 7 operations and still have to have more done in the future xxx
Funny - I was just thinking about this the other day. I am 2 weeks post ileostomy surgery. I was told by the surgeon beforehand that I might have mucous come out of my butt. I also thought, oh, ok, I'm probably not completely cleaned out at first so I'll have one or two instances. Well, it's been every other day or so for this whole time. So I was wondering if this was normal and how long it was going to last. I have a surgery followup next Wednesday and was going to ask. But nice to find this video with your information and experience. Thank you!
You will still be passing mucus every other day.. or week etc. whilst you still have your colon/rectum.. your colon constantly makes mucus so whilst your colon is still there so is the mucus
Oh yes!! I had sub-total coletemy in 2019, was a life saving thing after years of battling with UC since 2015. I thought once the surgery was done it would be ok and I'd get my life back, but had massive bleeding and mucus etc coming out of the back and then about a year later had an explosion out of my stomach which turned out to be a mucus fistula and now I have 2 bags on my stomach - one for the stoma and one for the fistula ! No one ever told me -- and I'm still waiting for surgery or something to be done! UGH ! They said before I had this done that I would get my life back ... and well .. not happened and I'm currently wondering if it was all worth it and I should have just snuffed it out back then!?
Noone told me that you still need to go the toilet to pass the mucus that lines your bowel.. every day/week when you still have your colon/anus.. i have a prolapsed bowel etc hence needing a ileostomy but i carnt pass the mucus so iv still got suffering
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Same as well: emergency surgery! Nothing was mentioned about the rectal pressure, etc. plus, it didn’t occur until recently, three months post-op. The ostomy clinic was helpful when I called in a panic, but seeing your post really brought it home. Yet, I wonder why the hospital or its “ostomy educator” didn’t bother to mention this possibility. I’ve learned almost everything about colostomy, products to use and coping mechanisms via You Tube. Thank you!
I had surgery just last month for perforated diverticulitis rupture. He took out like 8 inches of my sigmoid colon and next thing I know I’m wearing a ostomy bag. He said I could do the reversal surgery later on, but these nurses never said anything except this is how you empty the bag out. I learned everything two days before I was discharged on TH-cam, so I’m so grateful there was so many good TH-camrs talking about how to change your bag and different supplies to use!
I had the same damn thing after 4months of the bag of doom I finally had the 2nd surgery 3 half weeks ago so far so good
Hi Michaela, same as you emergency surgery, in hospital for 3 weeks, not told a thing. The only advice I received was don't eat oranges. I also get the baring down sensation and was told to use glycerin suppositories they help, but don't cure it, it comes back from time to time. I think it's something we have to put with. Wish you luck Carole
Same thing ,panic attack thought I was leaking waste .
Hi sweetheart, I was and still am the same. I'm going on 5 months now. Mine was an emergency operation. I ended up having 7 operations and still have to have more done in the future xxx
Funny - I was just thinking about this the other day. I am 2 weeks post ileostomy surgery. I was told by the surgeon beforehand that I might have mucous come out of my butt. I also thought, oh, ok, I'm probably not completely cleaned out at first so I'll have one or two instances. Well, it's been every other day or so for this whole time. So I was wondering if this was normal and how long it was going to last. I have a surgery followup next Wednesday and was going to ask. But nice to find this video with your information and experience. Thank you!
You will still be passing mucus every other day.. or week etc. whilst you still have your colon/rectum.. your colon constantly makes mucus so whilst your colon is still there so is the mucus
Oh yes!! I had sub-total coletemy in 2019, was a life saving thing after years of battling with UC since 2015. I thought once the surgery was done it would be ok and I'd get my life back, but had massive bleeding and mucus etc coming out of the back and then about a year later had an explosion out of my stomach which turned out to be a mucus fistula and now I have 2 bags on my stomach - one for the stoma and one for the fistula ! No one ever told me -- and I'm still waiting for surgery or something to be done! UGH ! They said before I had this done that I would get my life back ... and well .. not happened and I'm currently wondering if it was all worth it and I should have just snuffed it out back then!?
I have the same problem and I actually learn everything myself I still have to sit on the toilet and this is forever
Emergency op.the same,also 😂
Noone told me that you still need to go the toilet to pass the mucus that lines your bowel.. every day/week when you still have your colon/anus.. i have a prolapsed bowel etc hence needing a ileostomy but i carnt pass the mucus so iv still got suffering
Nobody tells us that they saidvut wasn't needed.
What I wish I knew is why you tube thinks I want to see this?