Thank you for shedding light on mctd. It seems as if us that suffer from it get swept under the rug. Or made to feel as if it’s not as uncomfortable or serious as lupus or other autoimmune diseases.
I think it’s purely because of misunderstanding. I just got diagnosed with this, and one of the reasons I was referred, is because I had a classic lupus symptoms. Although when I tell people who actually have lupus that I have this disorder, they immediately try to shut me down and act like I have no idea what they are going through. My aunt actually has SLE, and she told me that she considers mixed connective tissue disorder, super lupus, because it actually has more symptoms or can have more symptoms and lupus, as well as lupus. I actually texted negative for lupus, but I have some sort of issue with my collagen in my immune system, attacking parts of my body very randomly because of it. I will say that I didn’t really deal with a lot of symptoms when I was younger I had Hashimoto’s and a few other issues but I never really dealt with them. The thing I say is, please don’t listen to what other people say because honestly I listen to them and I didn’t take it serious. And once that starts affecting your heart, it’s really hard to get your health back on track. And basically what I’m trying to say, is anybody that has lupus that says something to you clearly has never done any research on MCTD. Or they have and they’re just I guess jealous? I’ve had a hard time making friends because everybody is like in competition to be more sick or something. My aunt has been one of the only people husband understanding but it’s because she also has a lot of health issues and she knows that our genetics are not the best. And I’m sorry, but I felt for you because I’ve literally been through a situation similar with a few different people where they try to tell me I didn’t know what it was like to suffer. I literally don’t even say anything to them anymore. I just pop up my medical records and show them how ridiculously high my blood pressure is. I’ve now had three different people with lupus try to tell me that what I have either doesn’t exist or isn’t as bad as lupus. They don’t realize that mix connective tissue disorder is an issue with your collagen, so it can really attack almost any part of your body. I know for me it’s attacked my thyroid, my heart, my entire digestive system And a lot of my skin and joints. I legit went from being active leak, very active two struggling to even lift more than 15 pounds. I guarantee you have a similar story and if you don’t, please take care of yourself hun, just because somebody wants to say that they have it worse does not actually mean that’s true. Sending love and prayers ❤
Hi, Do you have it? Are you taking sny medicine? Do you feel better? We recently found that Mom have it and I am trying to check what she can given to help her.
@@sbakleh what kind of treatment you r taking for mctd...have ur mom Got decrease in symptom by medication if yes then facing any side effects of the medication
Im so confused i got diagnosed with this around 8-9 years old now that im 17 ive now want to learn more about this and my symptoms are flaring up idk what to do
This is killing me right now and the neuro doesn't know anything about it clearly or care to. I've also had AE that tend to happen at same time. Third flare happening now but the doctor who saved me no longer takes insurance. I have optic neuritis and lesions on the brain and brainstem, white matter disease, lesions on my body, my hands especially, and nothing but a few steroids from my primary. MRIs galore but it's always wait and see casual, new appointments maybe next time and so it goes. Scared and worried but I guess I have to be on m deathbed and maybe not even then.
Thank you for this description I thought it was very easy to understand as well as made a lot of sense. My rheumatologist just diagnosed me with this. He said it has something to do with the collagen in my body. It makes sense because I have a lot of random issues but I definitely have a lot of skin issues as well as lupus like symptoms. I was actually referred to the rheumatologist because of the lupus symptoms, as well as I had really high levels of centromere in my blood and high white blood cell count. I definitely think that it is why I have other issues as well. I also have Hashimoto’s fibromyalgia and unspecified IBD. my Crohn’s test came back positive but when they did a biopsy it came back negative. I deal with a ton of digestive issues though because of it. I actually didn’t realize how serious this was until my blood pressure started getting really high. Doctors used to not take me serious and now they look at me like they feel bad. But thank you so much for explaining this well. It’s crazy too, because my body literally has aged like 10 years in the past two. When I first got diagnosed, I was really scared because there was really no information about what was going on. I definitely think if anyone is diagnosed with this before it’s severe to definitely take care of yourself. I had no idea this was my problem, and I ignored it for a really long time. I was forced to take care of it because of how severe my hypertension got.
All of these diseases are auto-immune diseases. There are over a hundred. MCTD, Thalassemia, Fibromyalgia, diabetes1, some others are in the red blood cells (hemoglobin), as well as the white blood cells (leucocytes) of the others. I have a few of them that have appeared during different times of my life. I'm 72, and they've gained up on me. When you experience a flare-up, stop, sit down, or lie down; ask yourself about getting sunshine, eating properly (alkaline foods and water), and drinking water! Rest or find a place to doze off in order for your body to regain energy. Avoid falls! Promote the cause against autoimmune diseases. Take certain vitamins according to your body. Plan ahead for special events. Take time for yourself. See rheumatologist, arthritis, and hematology specialists. There is so much going on in your body, including your brain. You are not crazy just your body is fighting autoimmune cells! During your birthday month, get your eyes checked and hearing, too: a dental visit and a physical. (And, renew vehicle, boat, airplane, etc., licenses. LOL.) Reminders help during brain fog episodes. Medical researchers have just isolated the cause, and a simple medicine could stop, maybe reverse the severity. Let's hope so! I want these diseases to be treatable before I'm too old to care! :) Also, Google it to find more information. The recommended diet is awful but wonderful. Carbs 35%, Proteins 15%, Fats 50%. My doctors are not happy. When I'm in pain and no over-the-counter works, I eat a slice of white bread with butter and it eases. No preservatives, artificial ingredients, dairy, and sugar. Limit caffeine and salt. (1 cup of coffee or tea per day.) Be careful with this bad diet. Best wishes! I'm praying for all of us. In the Holy name of Jesus Christ, the Great Physician, amen. Hallelujah! Amen.Amen.Amen.
Do not buy into this. Get positive and treat with alkaline foods. If the pain gets difficult, eat a slice of white bread with butter. Here's the recommended diet. Be careful. 35% Carbs, 15%, Proteins, and 50% Fat.
I had connective tissue disease and my hands and feet were swollen and in severe pain, but since I corrected my diet and started working out in the gym, the disease disappeared and I was back to normal and I stopped taking my pills. The doctor saw the test results. My blood was surprised
Thank you for the comment. I see that the image quality is sub optimal indeed. Unfortunately, I don't know if it's possible to fix it without reuploading a new video, or the same in a better video format, but I will see if there is anything I can do.
All of these diseases are auto-immune diseases. There are over a hundred. MCTD, Thalassemia, Fibromyalgia, diabetes1, some others are in the red blood cells (hemoglobin), as well as the white blood cells (leucocytes) of the others. I have a few of them that have appeared during different times of my life. I'm 72, and they've gained up on me. When you experience a flare-up, stop, sit down, or lie down; ask yourself about getting sunshine, eating properly (alkaline foods and water), and drinking water! Rest or find a place to doze off in order for your body to regain energy. Avoid falls! Promote the cause against autoimmune diseases. Take certain vitamins according to your body. Plan ahead for special events. Take time for yourself. See rheumatologist, arthritis, and hematology specialists. There is so much going on in your body, including your brain. You are not crazy just your body is fighting autoimmune cells! During your birthday month, get your eyes checked and hearing, too: a dental visit and a physical. (And, renew vehicle, boat, airplane, etc., licenses. LOL.) Reminders help during brain fog episodes. Medical researchers have just isolated the cause, and a simple medicine could stop, maybe reverse the severity. Let's hope so! I want these diseases to be treatable before I'm too old to care! :) Also, Google it to find more information. The recommended diet is awful but wonderful. Carbs 35%, Proteins 15%, Fats 50%. My doctors are not happy. When I'm in pain and no over-the-counter works, I eat a slice of white bread with butter and it eases. No preservatives, artificial ingredients, dairy, and sugar. Limit caffeine and salt. (1 cup of coffee or tea per day.) Be careful with this bad diet. Best wishes! I'm praying for all of us. In the Holy name of Jesus Christ, the Great Physician, amen. Hallelujah! Amen.Amen.Amen.
![Scleroderma / Systemic sclerosis [Essential medicine]](http://i.ytimg.com/vi/CrG5OHEmHpc/mqdefault.jpg)
![Scleroderma / Systemic sclerosis [Essential medicine]](/img/tr.png)
![[UNCUT] “บอสณวัฒน์” ลากไส้!! ใครหนุนหลัง "แม่ตั๊ก ป๋าเบียร์" I คนดังนั่งเคลียร์ I 30 ก.ย. 67](http://i.ytimg.com/vi/QlD7mU2KKRk/mqdefault.jpg)
Thank you for shedding light on mctd. It seems as if us that suffer from it get swept under the rug. Or made to feel as if it’s not as uncomfortable or serious as lupus or other autoimmune diseases.
I think it’s purely because of misunderstanding. I just got diagnosed with this, and one of the reasons I was referred, is because I had a classic lupus symptoms.
Although when I tell people who actually have lupus that I have this disorder, they immediately try to shut me down and act like I have no idea what they are going through.
My aunt actually has SLE, and she told me that she considers mixed connective tissue disorder, super lupus, because it actually has more symptoms or can have more symptoms and lupus, as well as lupus.
I actually texted negative for lupus, but I have some sort of issue with my collagen in my immune system, attacking parts of my body very randomly because of it.
I will say that I didn’t really deal with a lot of symptoms when I was younger I had Hashimoto’s and a few other issues but I never really dealt with them.
The thing I say is, please don’t listen to what other people say because honestly I listen to them and I didn’t take it serious. And once that starts affecting your heart, it’s really hard to get your health back on track.
And basically what I’m trying to say, is anybody that has lupus that says something to you clearly has never done any research on MCTD. Or they have and they’re just I guess jealous? I’ve had a hard time making friends because everybody is like in competition to be more sick or something.
My aunt has been one of the only people husband understanding but it’s because she also has a lot of health issues and she knows that our genetics are not the best.
And I’m sorry, but I felt for you because I’ve literally been through a situation similar with a few different people where they try to tell me I didn’t know what it was like to suffer. I literally don’t even say anything to them anymore. I just pop up my medical records and show them how ridiculously high my blood pressure is.
I’ve now had three different people with lupus try to tell me that what I have either doesn’t exist or isn’t as bad as lupus. They don’t realize that mix connective tissue disorder is an issue with your collagen, so it can really attack almost any part of your body. I know for me it’s attacked my thyroid, my heart, my entire digestive system And a lot of my skin and joints. I legit went from being active leak, very active two struggling to even lift more than 15 pounds.
I guarantee you have a similar story and if you don’t, please take care of yourself hun, just because somebody wants to say that they have it worse does not actually mean that’s true.
Sending love and prayers ❤
@@breannapiscitelli3941 thank you so much for your reply. I really needed your experience, support and prayers. 💕
Why are there so little videos on the subject of mixed connective tissue disorder and all done so many years ago?!
I’m trying to figure out the same thing! I just found out last year I have it.
Likely because the damn thing is so rare doctors and medical staff dont bother with it rather just focus on the more common things
Hi, Do you have it? Are you taking sny medicine? Do you feel better?
We recently found that Mom have it and I am trying to check what she can given to help her.
It feels like Drs brush mctd off. There’s times I’m so weak and in pain. There should be more support and information for people with mctd.
@@sbakleh what kind of treatment you r taking for mctd...have ur mom Got decrease in symptom by medication if yes then facing any side effects of the medication
Would rather have this than bloody scleroderma... Of all the problems to get in life... Why this hell
Im so confused i got diagnosed with this around 8-9 years old now that im 17 ive now want to learn more about this and my symptoms are flaring up idk what to do
This is killing me right now and the neuro doesn't know anything about it clearly or care to. I've also had AE that tend to happen at same time. Third flare happening now but the doctor who saved me no longer takes insurance. I have optic neuritis and lesions on the brain and brainstem, white matter disease, lesions on my body, my hands especially, and nothing but a few steroids from my primary. MRIs galore but it's always wait and see casual, new appointments maybe next time and so it goes. Scared and worried but I guess I have to be on m deathbed and maybe not even then.
Thank you for this description I thought it was very easy to understand as well as made a lot of sense.
My rheumatologist just diagnosed me with this. He said it has something to do with the collagen in my body. It makes sense because I have a lot of random issues but I definitely have a lot of skin issues as well as lupus like symptoms.
I was actually referred to the rheumatologist because of the lupus symptoms, as well as I had really high levels of centromere in my blood and high white blood cell count.
I definitely think that it is why I have other issues as well. I also have Hashimoto’s fibromyalgia and unspecified IBD. my Crohn’s test came back positive but when they did a biopsy it came back negative. I deal with a ton of digestive issues though because of it.
I actually didn’t realize how serious this was until my blood pressure started getting really high. Doctors used to not take me serious and now they look at me like they feel bad. But thank you so much for explaining this well.
It’s crazy too, because my body literally has aged like 10 years in the past two. When I first got diagnosed, I was really scared because there was really no information about what was going on.
I definitely think if anyone is diagnosed with this before it’s severe to definitely take care of yourself. I had no idea this was my problem, and I ignored it for a really long time. I was forced to take care of it because of how severe my hypertension got.
“If symptoms of systemic sclerosis then it’ll be worse prognosis”….I thought mctd was mixed lupus/SSc?
All of these diseases are auto-immune diseases. There are over a hundred. MCTD, Thalassemia, Fibromyalgia, diabetes1, some others are in the red blood cells (hemoglobin), as well as the white blood cells (leucocytes) of the others.
I have a few of them that have appeared during different times of my life. I'm 72, and they've gained up on me.
When you experience a flare-up, stop, sit down, or lie down; ask yourself about getting sunshine, eating properly (alkaline foods and water), and drinking water! Rest or find a place to doze off in order for your body to regain energy.
Avoid falls! Promote the cause against autoimmune diseases. Take certain vitamins according to your body. Plan ahead for special events. Take time for yourself. See rheumatologist, arthritis, and hematology specialists. There is so much going on in your body, including your brain. You are not crazy just your body is fighting autoimmune cells!
During your birthday month, get your eyes checked and hearing, too: a dental visit and a physical. (And, renew vehicle, boat, airplane, etc., licenses. LOL.) Reminders help during brain fog episodes.
Medical researchers have just isolated the cause, and a simple medicine could stop, maybe reverse the severity. Let's hope so! I want these diseases to be treatable before I'm too old to care! :)
Also, Google it to find more information. The recommended diet is awful but wonderful. Carbs 35%, Proteins 15%, Fats 50%. My doctors are not happy. When I'm in pain and no over-the-counter works, I eat a slice of white bread with butter and it eases. No preservatives, artificial ingredients, dairy, and sugar. Limit caffeine and salt. (1 cup of coffee or tea per day.) Be careful with this bad diet.
Best wishes! I'm praying for all of us. In the Holy name of Jesus Christ, the Great Physician, amen. Hallelujah! Amen.Amen.Amen.
I am MCTD patient
samee
Kab sy hai apko MCTD
Madam how mony years this disease plz mam
What do you mean by survival rate please do you mean life span?? Thank you in advance
Do not buy into this. Get positive and treat with alkaline foods. If the pain gets difficult, eat a slice of white bread with butter. Here's the recommended diet. Be careful. 35% Carbs, 15%, Proteins, and 50% Fat.
I had connective tissue disease and my hands and feet were swollen and in severe pain, but since I corrected my diet and started working out in the gym, the disease disappeared and I was back to normal and I stopped taking my pills. The doctor saw the test results. My blood was surprised
Hi what diet did you followed could you please suggest me hope it might works for me too.
Pls tell us what diet u had
As I m too suffering from MCT D
Some segments in the video are stamped not adjacent to each other
the video image is too poor, you need to fix it more
Thanks
No problem :D
Not able to see the wording on the slides 👎🏼👎🏼👎🏼👊🏼
then its you because everyone else can
the video image is too poor, you need to fix it more
Thank you for the comment. I see that the image quality is sub optimal indeed. Unfortunately, I don't know if it's possible to fix it without reuploading a new video, or the same in a better video format, but I will see if there is anything I can do.
what are the treatment
All of these diseases are auto-immune diseases. There are over a hundred. MCTD, Thalassemia, Fibromyalgia, diabetes1, some others are in the red blood cells (hemoglobin), as well as the white blood cells (leucocytes) of the others.
I have a few of them that have appeared during different times of my life. I'm 72, and they've gained up on me.
When you experience a flare-up, stop, sit down, or lie down; ask yourself about getting sunshine, eating properly (alkaline foods and water), and drinking water! Rest or find a place to doze off in order for your body to regain energy.
Avoid falls! Promote the cause against autoimmune diseases. Take certain vitamins according to your body. Plan ahead for special events. Take time for yourself. See rheumatologist, arthritis, and hematology specialists. There is so much going on in your body, including your brain. You are not crazy just your body is fighting autoimmune cells!
During your birthday month, get your eyes checked and hearing, too: a dental visit and a physical. (And, renew vehicle, boat, airplane, etc., licenses. LOL.) Reminders help during brain fog episodes.
Medical researchers have just isolated the cause, and a simple medicine could stop, maybe reverse the severity. Let's hope so! I want these diseases to be treatable before I'm too old to care! :)
Also, Google it to find more information. The recommended diet is awful but wonderful. Carbs 35%, Proteins 15%, Fats 50%. My doctors are not happy. When I'm in pain and no over-the-counter works, I eat a slice of white bread with butter and it eases. No preservatives, artificial ingredients, dairy, and sugar. Limit caffeine and salt. (1 cup of coffee or tea per day.) Be careful with this bad diet.
Best wishes! I'm praying for all of us. In the Holy name of Jesus Christ, the Great Physician, amen. Hallelujah! Amen.Amen.Amen.