GRIFFIN'S 24 HOUR EEG

Griffin has his 24 hour EEG at the hospital. Please Subscribe to watch our family grow!
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We are a big family of eight with Mom(Emily), Dad(Will), and our six kids, Harrison, Wyn, Griffin, Sawyer, Posey, and Lindy.
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[@lifebymel]

Mama! I can't imagine! I'm mama of two AS kiddos. & They want us to do a 72 hour EEG for my youngest... I haven't even scheduled because i have no idea how this will go... LOL ... BUT.... you are motivating me :)

[@shelley6746]

Praying for Griffin to have a good outcome🙏🏻♥️

[@brooklynnwhite3074]

As someone a year away from being a Special Education teacher, I love that you know what the kids are thinking or communicating but also allow them to do it themselves without finishing every single thought for them and you validate their non-verbal communication. It is so important!

[@jjamesgames6573]

As a student with special needs can I give you some advice? Just remember all kids with disabilities or struggles don’t learn or cope exactly the same so please try to keep in mind each child’s feelings and differences. ❤

[@brooklynnwhite3074]

@@jjamesgames6573 you are exactly right.

[@chaoticwhenever1457]

I have a weird tremor I get multiple times throughout the day. It’s my head and neck, apparently for me it’s just a tic so hopefully it’s something minor and easy for you. You deserve a break

[@williamaftonmylovelywifeis4711]

Oh no I'm sorry to hear about that 😥

[@robinbackus8313]

🙏🙏🙏 Hello from West Virginia, my grandson was diagnosed with LGS Lennox Gastaut Syndrome..he had drop seizures, focal and infantile spasms. He just had surgery Feb. 15 to stop the seizures. So far prayers answered no signs of seizures, but he's not drinking or eating anything by mouth and has a NG Tube. Now we will return to Nationwide Children's Hospital in Ohio for intensive feeding program for 8 weeks. Many hugs and prayers.

[@mkabs19]

You are amazing Emily! What you go through with your kids is so much! Thank God Will seems to help so much. God Bless you all! I hope all is good with Griffin and this helps give you and the doctors more insight into his seizures so you can help him better.

[@MsLilacLover1]

I wonder if Griffin would like one of those fidget boards with locks and such on them? They are so cool and you can get everything from the dollar store :)

[@irelandkingumu8153]

I have absent seizures and I think I have I think I have drop Caesars and absences

[@christinebishop5291]

He was listening to you so intently as you were explaining what was going to happen in the hospital.

[@mecpratt]

You guys are the best parents! You really work as a team. It's amazing to me how you get through all of these challenges ❤❤❤

[@albussnape2]

👏👏Credit to you and Will for all you do for your family! Glad Griffin did so well. Just wish he slept longer so Will could sleep. It seemed like he was really tired after all that play and tablet time. Hope you get some helpful information from the study! ❤️ to you all!

[@phillisob]

I love watching Griffin's journey! You'll probably never see this, but if you do, I would have one suggestion. If he could transition to a different bedtime activity (and this could be totally different than at home!), it may help some with his sleep. I'm an adult with pretty extreme sensory needs, and I'm unbelievably sensitive to blue light. The first thing I do with a new device is turn on the blue light filter lol. I wear glasses at home with such protection that they're orange, or else I don't sleep. Given that Griffin has epilepsy and insomnia, maybe he could benefit from other sensory input types of things at bedtime. My daughter and I do joint compressions, temperature activities, the different textures of slime, squishing between pillows, etc. And we read or sing in between. Also, can he take over-the-counter melatonin? I can't because of autoimmune issues, but my kids all have some degree of sleep trouble and melatonin really helps.
Note: I do not want to tell you how to parent and I know you know them better than anyone else does. It's simply an observation and suggestion for a potential aids. 😊❤

[@rebeccawalters4271]

I had a week eeg done before I have seizures too little guy I am here for you little guy!

[@stephaniemoore7889]

Praying for you all.

[@danielleayde2330]

I hope Griffin has a good outcome. I bet he liked the bubbles.

[@AlexaDiBisceglie]

I have a lot of experience with a eeg

[@wendyreed8055]

You two are amazing parents xx

[@callumortiz6723]

Prayers are with you all.

[@mariacasella6474]

Sending so many prayers and positivity for good results

[@AryannaBrown]

The only way

[@Kittkat1980]

Go Griffin your are so cute

[@nataliamcbryde6966]

Griffin is doing so well with walking

[@wendyreed8055]

You 2 are amazing parents xx

[@alexisfuhr1846]

@0:20
What is drop epilepsy

[@nataliamcbryde6966]

Atonic seizures are a type of seizure that causes sudden loss of muscle strength.

[@robcopley5132]

What does EEG stand for

[@robcopley5132]

Love Ur kids