A DAY IN THE LIFE OF ANGELMAN SYNDROME

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  • เผยแพร่เมื่อ 8 ม.ค. 2025

ความคิดเห็น • 75

  • @fevertree1957
    @fevertree1957 3 ปีที่แล้ว +32

    Wow Emily - your mom would be SO proud of you as a mother - you give it your all. So much to do just for Griffin - then you have Sawyer and all the others....plus all the therapy, calls etc. Must be SUCH a help having Will home - your a really great team. Love to you all from Scotland xx

  • @victoriasantrich1679
    @victoriasantrich1679 3 ปีที่แล้ว +27

    Wow, Emily you're super mom! I'm a special needs mama to a beautiful 8 year old girl with a rare syndrome as well, and it can be such an intense, but beautiful journey! Griffin is lucky to have you for his mama! He is so adorable!!!

    • @SodapopCurtisLover
      @SodapopCurtisLover 8 หลายเดือนก่อน

      Are u comfortable saying her/his syndrome

  • @Chelsea-jq2os
    @Chelsea-jq2os ปีที่แล้ว +1

    Griffin is just the sweetest and your just the best mother and Griffin could not have any better of a parent

  • @aliciakillen1940
    @aliciakillen1940 3 ปีที่แล้ว +10

    Very informative and really shines a light on the complexity of taking care of just one special child and you have 2+ and also the regular needs of the other kids! Doing a fantastic job!

    • @joystevenson9014
      @joystevenson9014 3 ปีที่แล้ว +1

      You r both doing a great job. Can I please ask what the strapping is over griffens body that you wrap arounD him.

    • @joeybonavita2739
      @joeybonavita2739 ปีที่แล้ว

      @@joystevenson9014I think Will said that they are called Twizer Cables and Emily said that they are supposed to help him with his Pigeon Toe

  • @tanya32757
    @tanya32757 3 ปีที่แล้ว +8

    Emily & Will, you are rocking this journey!!! Griffin has come so far along and is such a joy to watch! 👍💕

  • @margepaz
    @margepaz 3 ปีที่แล้ว +6

    Whooo. Exhausted just watching you getting thru one kid’s day! And you do it while looking like a model.

  • @Meemagolding
    @Meemagolding 3 ปีที่แล้ว +11

    It’s AMAZING how well Griffin is doing ❤️‼️ YOU ARE WONDERFUL ❤️❤️❤️

  • @nancycoy9510
    @nancycoy9510 3 ปีที่แล้ว +6

    You two are the best. Griffin is blessed to have the both of you!

  • @coriparc
    @coriparc 3 ปีที่แล้ว +12

    Emily you’re amazing!! Such an inspiration to other mothers. Love Griffin 🥰🥰🥰🥰🥰🥰

  • @lauranorton3119
    @lauranorton3119 3 ปีที่แล้ว +4

    Thank You for sharing some of his life. You are Amazing Parents. God Bless you all.

  • @avamcelroy-re9oj
    @avamcelroy-re9oj 6 วันที่ผ่านมา +1

    Griffin has gotten so much bigger and has better equipment to keep him safe. Now, i have 4 siblings with disabilities (2 have angleman syndrome), and my 8 year old brother seems to only be a few months ahead in development than griffin in your newer videos i just want you to know he did just learn how to take his shoes and orthotics... sometimes a blessing (" Hey knox, please take off your shoes") sometimes a curse (" KNOX KEEP YOUR SHOES ON YOU LITTLE STINKER!")... Especially in the car. If you would like any updates, i have 2 very swiftly developing angles in my house

  • @user-yu3ci4sl8v
    @user-yu3ci4sl8v 3 ปีที่แล้ว +3

    What a beautiful children you have 😍❤️ All of them!

  • @AlwaysGrandmaKelley
    @AlwaysGrandmaKelley 3 ปีที่แล้ว +3

    Thanks for this video! Griffin... You are wonderful ❤ 💖 ♥

  • @Meowcatfox
    @Meowcatfox ปีที่แล้ว +1

    taking the labels of bottle is my favorite thing to do

  • @SodapopCurtisLover
    @SodapopCurtisLover 7 หลายเดือนก่อน

    It never fails that she is super extremely informative

  • @susannahpeters778
    @susannahpeters778 3 ปีที่แล้ว +3

    You are the wonderful one, love your family ❤️

  • @sharonswan5048
    @sharonswan5048 3 ปีที่แล้ว

    You do have your hands full Emily.I sometimes dont know how you handle everything.I only had 2 and I was worn out alots.God must have known you could handle things.Hang in there ..

  • @albussnape2
    @albussnape2 3 ปีที่แล้ว +1

    Was missing you! Good to see this. Well done! 👍💖💙

  • @mariacasella979
    @mariacasella979 3 ปีที่แล้ว +3

    Best family on TH-cam

  • @phillisob
    @phillisob 29 วันที่ผ่านมา

    He's absolutely perfect.

  • @stacyvakassian2334
    @stacyvakassian2334 3 ปีที่แล้ว

    Love everyone’s positivity!

  • @tinatalks
    @tinatalks 3 ปีที่แล้ว

    Amazing!!! I cannot believe how far Griffin has come since being in Colorado. It’s hard work for you and Will but thankful to God you are in Colorado and Will is his nurse! Take a bow, all of you! Cheers to Colorado!

  • @ellasuella7495
    @ellasuella7495 3 ปีที่แล้ว +2

    Are the twins in the same classroom/have the same teacher.
    Can you do one of these for his twin/ the other kids.

  • @Iampregnetwithringosbaby
    @Iampregnetwithringosbaby ปีที่แล้ว

    Someone in my town has AS. And he loves this playground ware I shoot hoops.Then when the mom saw my clamshell AFO’s.She cried and told me about AS.And also he has AFO’s but not clamshell.

  • @sethaldrich6902
    @sethaldrich6902 ปีที่แล้ว

    Where did you get the touch screen computer? We need one for our son. Thanks so much

  • @valerielowery5453
    @valerielowery5453 3 ปีที่แล้ว +3

    Griffin is so handsome and has a great smile 😄💗

  • @SodapopCurtisLover
    @SodapopCurtisLover 8 หลายเดือนก่อน

    I like how you put the last video in the description

  • @mariacasella979
    @mariacasella979 3 ปีที่แล้ว +1

    Good Night sweet Griffen

  • @Edits4you16
    @Edits4you16 ปีที่แล้ว +1

    Have u ever wondered what griffin’s voice will sound like if he could talk

  • @joanncarr740
    @joanncarr740 3 ปีที่แล้ว

    Hello. You are a. Great mom for takeing such gd care of him irs are wk . soo glad he is getting. So much better. As.you say a year ago . andmuch more help then as BEFORE. You would have stayed back in the other atate things would have never.changed for your family. And will would still a postal. Man wking long hrs and you with little help .. I no what thats like no kid help at all its hard and nofamily help period. !! Till next time. Take care !

  • @SuperValgal
    @SuperValgal 3 ปีที่แล้ว

    Great job Emily and Will a lot of work but you managed 👍

  • @anniewall2822
    @anniewall2822 3 ปีที่แล้ว

    My favorite time of the day is when I take my showers I feel So clean After I take my shower

  • @snuggyxiii7642
    @snuggyxiii7642 4 หลายเดือนก่อน +1

    How loves the (its our wonderful life)

  • @krisjones5960
    @krisjones5960 ปีที่แล้ว

    Do not use your laptop without the need for the new battery system, or if it doesn't have a new version, you will be prompted for the

  • @danahummer765
    @danahummer765 3 ปีที่แล้ว +1

    Wow 11pm here

  • @LailaLausch
    @LailaLausch ปีที่แล้ว

    Griffin is the cutest kid in the world

  • @heathercate1812
    @heathercate1812 3 ปีที่แล้ว +1

    New follower here, just want to ask a question. Why does Griffin wear a strap around his legs?

    • @joeybonavita2739
      @joeybonavita2739 ปีที่แล้ว +1

      5:26 she says that it’s supposed to help with his Pigeon Toe. Basically to straighten and strengthen his legs. Then the SMO’s she said once is supposed to help with his feet so he can walk flat because just like Sawyer he is prone to falling down when walking on tip toes. And then the walker is supposed to help with his walking and his balance at school!

    • @SodapopCurtisLover
      @SodapopCurtisLover 10 หลายเดือนก่อน

      The straps are called twizer cables they help with pigeon-toes. Smos help with balance. Now he wears cables for the same reason

  • @murphy1616888
    @murphy1616888 3 ปีที่แล้ว

    can you do the day in in life of sawyer

  • @yuliharman288
    @yuliharman288 ปีที่แล้ว

    Does griffin take any new medicine?

  • @calvinnaude2402
    @calvinnaude2402 ปีที่แล้ว

    How tell you he want to go loo? Does he have wearing Nappies?

    • @SodapopCurtisLover
      @SodapopCurtisLover 10 หลายเดือนก่อน

      He's nonverbal so he can't say. He still wears diapers

    • @SodapopCurtisLover
      @SodapopCurtisLover 8 หลายเดือนก่อน

      He wears nappies

  • @SodapopCurtisLover
    @SodapopCurtisLover 10 หลายเดือนก่อน

    He's so cute and sweet

  • @alexthesaintbernardlover5938
    @alexthesaintbernardlover5938 3 ปีที่แล้ว

    Awesome video

  • @naimarodriguez9515
    @naimarodriguez9515 ปีที่แล้ว +1

    Huh *im a special ed* They get to be a special ed teacher at kindergarten/ I need to wait till 3rd grade and special ed is you stay till 4th grade they are lucky

  • @yuliharman288
    @yuliharman288 ปีที่แล้ว

    What medicine does griffin take?

  • @sabrina19ization
    @sabrina19ization ปีที่แล้ว

    ❤❤❤prayers

  • @christinasanchez5894
    @christinasanchez5894 2 ปีที่แล้ว

    Hiiii is there any way we can communicate thou Email cuz my Daughter has Angelman too

  • @emilyneily4127
    @emilyneily4127 ปีที่แล้ว

    What school does Griffin and Swayer go to? Is it a school with kids with special needs?

    • @SodapopCurtisLover
      @SodapopCurtisLover 10 หลายเดือนก่อน

      I don't know what school they went to. They were in a special ed class. Griffin now is in full time ABA. Sawyer is still in school

    • @SodapopCurtisLover
      @SodapopCurtisLover 8 หลายเดือนก่อน

      Griffin got hurt at school so that's why he's not in school

  • @reneegoodin1317
    @reneegoodin1317 3 ปีที่แล้ว

    Will Griffen eat pudding or plain yogurt with his meds? Thank you for letting me see Griffin daily life.....he is such a happy camper....love his smile n Laughs...

    • @reneegoodin1317
      @reneegoodin1317 3 ปีที่แล้ว

      @@anothergoldilocks1077 it's just a question...

  • @SodapopCurtisLover
    @SodapopCurtisLover 7 หลายเดือนก่อน

    Is upd Angelman highsr functioning

  • @KevGahgan
    @KevGahgan ปีที่แล้ว

    How old are the twins

    • @SodapopCurtisLover
      @SodapopCurtisLover 10 หลายเดือนก่อน

      7. They both have disabilities. Sawyer has autism ADHD and hyperlexia. It makes him smart in reading and math. Griffin has dysphagia Angelman syndrome and epilepsy.

  • @danonda9584
    @danonda9584 3 ปีที่แล้ว +1

    👏🏼👏🏼👏🏼💜💖❤️

  • @LauraBidingCitizen
    @LauraBidingCitizen 3 ปีที่แล้ว

    Can ya just stop with these beautifully emotional videos Emily?? 😂💗 I was nodding along with you with your last comment about how far Griffin has come, I echo again everything I said in my last comment to you in your last video with his AAC device. I know not everyone has been with you guys since the beginning but I honestly URGE anyone to go back & watch older videos prior to your move, the change is truly amazing, & let’s not forget how amazing you & Will are too Emily. You’ve gone above & beyond for all of your babies.
    Just a quick question, because Griffin has the 2 male chromosomes, does that equate to his additional strength? Has that ever been mentioned? I was just curious.
    Love & blessings to all of you! Xxx

  • @nigelwilliams84
    @nigelwilliams84 ปีที่แล้ว

    😊

  • @percyjacksonandjoshuacolleyfan
    @percyjacksonandjoshuacolleyfan ปีที่แล้ว

    S

  • @gordonkennedy757
    @gordonkennedy757 5 หลายเดือนก่อน

    We

  • @vaneas8386
    @vaneas8386 3 ปีที่แล้ว

    Emily try to give Griffin vitamin B complex along with magnesium and potassium, it is very good for muscles, nervous system and the brain, try it, maybe you"ll see changes for the better, you are a superwoman!!!

  • @CrypticypherCc-do7eo
    @CrypticypherCc-do7eo ปีที่แล้ว

    Is he potty trained

    • @SodapopCurtisLover
      @SodapopCurtisLover 10 หลายเดือนก่อน

      No. He still wears diapers. His syndrome makes it hard