Sarcoidosis 101 | American Lung Association

Sarcoidosis is a rare disease that can affect any organ, but 90 percent of cases affect the lungs. If you, or someone you love, is experiencing respiratory symptoms like a cough or shortness of breath, or skin rashes, eye irritation or fatigue, talk to your doctor.
Developed in partnership with the Foundation for Sarcoidosis Research and CHEST Foundation, the project was produced with support from Mallinckrodt. Learn more about sarcoidosis at Lung.org/sarcoidosis.

[@lillyrocks2011]

These are the kind of diseases where most doctors will tell you that "it's nothing, and it's fibromyalgia and go to take psychotherapy".
It's sad many doctors don't know of all these diseases leaving the patients without diagnosis.

[@here-i-am2316]

Sadly, my sister died from this disease on July 30, 2021. She had the clusters in her lungs removed ten years earlier. It got so bad two weeks before hear death that it caused internal bleeding and leaked blood through holes created through the nodes pressing up against her esophagus, and ultimately we could not save her. Before she entered the hospital, she was getting night sweats and chills for hours. She had been on prednisone to relieve her symptoms too. It was a bad ending for her as we had to force a coma to keep a stint in place to cauterize the broken artery wall, and after 15 days of battling, many blood transfusions, her organs could not take it. She had been a causal smoker and had allergy shots as a child. She did not exercise and eat well either. You can fight this disease if you can do yourself a favor, try to change to a healthier lifestyle before it's too late.

[@beaulieuc8910]

well said. my partner only found out as he had a mri and ct scan

[@lillyrocks2011]

@@beaulieuc8910 😲 wow!! What does he have? What's his diagnosis? What did the doctors tell him before?

[@hlifebowserE]

Fact

[@aliciamccallum3289]

I've had since childhood. Pulmonary lung sarcoidosis. Chronic. Going on disability.

[@hlifebowserE]

More info on this i feel the same way but i was not diagnosed intell now after my lungs collapse end it getting x-ray then so something real crazy granuloma the size of a golf ball 3 big balls n bunch a little ones they was telling me I had cancer, 😢then thank there was a doctor that said it could be sarcoidosis

[@shontaemurray21]

@@hlifebowserEthat was like my husband story

[@Tralman1965]

It does not just "go away!"

[@chengfusaechao7243]

for the past 1year......
I've been feeling very
Fatigue(malaise)
tired all the time
malabsorption
digestive/gi issues
difficulty digesting foods
difficulty breathing
Body fever/aches
skin rashes
swollen face/hands/legs
chestpain that migrates to
my back.....WTF,i feel
like I'm a dead woman
walking with all these
PAIN..literally......

[@gresszillers3090]

I'm going through the same thing. Did you find out what it is?

[@vatsalsundarananthan7476]

My mother a sarcoidosis patient diagonosed in 1993 after 4 years struggle is still alive I am an Indian She is still on eyedrops under the treatment of Dr J Biswas for eyes by Occular Pathologist of Shankara Netraiaya Chennai It is under control since 2002 after 1 year on Metatroxate

[@beaulieuc8910]

great

[@MatureTaks]

Hi, I am 42 male from Punjab, diagnosed with sarcoidosis just this week. Pls suggest best doctor

[@natasham3096]

Great. I've been suffering through it for the last 15 yrs. Diagnosed after 15 yrs of traumatic experiences. I got severe choroiditis.

[@hlifebowserE]

​@@natasham3096I know what you when through I feel the same I hate this sickness struggle for years since i was teen not knowing what was wrong to me intell i got covid that really made feel like i was not gonna make it first time second time im like i got this no i thought wrong was the worst 3 time was not covi but other chronical disease the took x-ray they thought the worst cancer but they made me wait long time for biopsy me thinking the worst.

[@hlifebowserE]

Hello my name is Mr Bowser 😢any one know what doctor I can call in the Carolina's that can help get relief from sarcoidosis I been diagnosed a year ago

[@americanlungassociation]

Try calling our free LungHelpline, they may be able to point you to some resources. 1-800-LUNG-USA

[@Nisha-kl8rl]

Living with sarcoidosis isn't easy, but Planet Ayurveda's remedies have made a noticeable difference in my quality of life.

[@leroygreen5263]

What remedies are you using?

[@shivanichhabra1166]

Sarcoidosis ki problem koh solve krne ke liye ap planet ayurveda ayo , or dr vikarm se consult kro , or apni es bimari koh solve kro.