There is a variety of ways in which the Behçet of Behçet's Syndrome is pronounced around the world. In this video, I pronounce this condition with a soft ch sound ("beh-shet's"), which is by far the most common pronunciation in the US. Internet references state that in Turkey (the home of Dr. Behçet), Behçet is pronounced with a hard ch ("Beh-chet's"). However, the word should definitely not be pronounced with a silent T ("Beh-shay").
From being a medicine resident to becoming interventional cardiologist now, I have Enjoyed listening up to all your videos. . Please continue the good work..
I can't forget how many Behcet's cases I've seen in Turkey during my med school training, neuroBehcet; pulm artery aneurysm, even our ophthalmology department had a Behcet's clinic! I also remember most oral&genital ulcers do not manifest simultaneously in most patients which makes it incredibly hard to recognize without expertise & attention and I think it's underestimated in the US!
Thank you. I’m a Behcet’s patient in the US. I build medical and patient education professionally. I knew what I had because of it in 2019. I got diagnosed in 2022 when I found a rheumatologist who trained at a program with a clinic. I have neuro involvement now because Tx was delayed. Pls keep advocating for us. TY.
I believe I have this, I currently am on prednisone for a month from my PCP bc of my CRP and ESR, but the rheumatologist refused to see me, and I don’t know who or where to look for care. My PCP doesn’t have the appropriate expertise, he dx’ed me with PMR and I am only 45; one of the reasons the rheumatologist would not see me. I noticed yesterday my mouth was filled with bleeding sores. They hurt, but I am used to them. I also had PV last year in my groin and a necrotizing rash on both feet. Any advice would be most welcome. I am in USA, Missouri
As a general Physician (under training), your videos are invaluable for me... You did a great job.. Very well-explained in a simple way. I have enjoyed all of your videos.
My symptoms include joint pain, very painful oral and genital ulcers, brain aneurysm, skin lesions, and ocular disease. I take only colchicine and it seems to be working!
@@bhawnasharma9136 rheumatologist are their primary care physician. It involves the team of doctors depends upon the area affected opthalmologist for eyes dermatologist for skin neurologist for nerves etc etc but rheumatologist is the one you should see he is the main doctor
You should be able to view the automatically generated captions/subtitles through the closed captioning option. It's not perfect - it spells Behcet's 10 different ways through the video, all of which are wrong - but it's otherwise pretty accurate.
I was diagnosed with Behcet's in 2012 after having many large mouth ulcers, sore throats, aches & low-grade fevers, boils, joint pain, and frequent strep throat & tonsillitis infections. I just always had a general ill feeling, even as a child. I'm 61 now, and on Humira which keeps me pretty stable, except I keep UTI infections. Is there any research on Behect's associated with urinary tract infections?
I recommend speaking with your own doctor about this, but in general, the most likely reason a person with Behcet's syndrome would get recurrent UTI is the immunosuppressive medication they are on for Behcet's (i.e. Humira).
I have Behçets Disease, diagnosed in 2018. Mostly affects my skin (mouth/genital ulcers, various skin lesions). I also have MS (diagnosed 2008). My ethnicity is English, Irish, Scottish, and I was born in Canada (been here my whole life).
I’ve tried to find info on sacroilitis in behcets but only found one small study and as we k ow correlation isn’t causation. My rheumatologist thinks I may just be unlucky enough to have AxSpa AND Behcet’s. There’s family history of both in my family.
It took 1 years for me also its common in my family we are turkish and my uncle has it too but it took so long they also did a Genetic Test HLB51 it was positive and now i have 1 in my right eye a optic atrophy and i had a BrainInflammation kinda looks like MS but i once did the Liqour Test it was negative for MS i am also dealing with Hashimoto Disase
Thank you sir, it's intersting how behçet works. Recent research showed a possible relation between Behçet and "SIBO"(Small Intestinal Bacterial Overgrowth), what is your point of view about that?
Thanks for the question. A literature search on this just now only turned up one relevant study of 25 patients with intestinal Behcet's: pubmed.ncbi.nlm.nih.gov/28666309/ . Unfortunately, that's not enough information on which to draw any conclusions, other than concluding it's something deserving of more research.
I have Behcet's, I was 8 the first time I was hospitalized and finally diagnosed A grueling couple years later. I would definitely not refer to Behcet's as a "syndrome" because it is not a collection of symptoms and it is classified as a autoimmune disease. :)
A friend of mine says she has Behcet's, and she's not Arabic nor Turkish, but of northern European descent and from Canada. From her information to me, she has every single symptom, and has to give me numerous detailed descriptions of this malady on a daily basis. I think she may have Munchausen syndrome, too. I even used to get very detailed descriptions of her explosive diarrhea, and had to tell her it was just TMI!
I m from Pakistan on behalf of HlA b52 positive doctors diagnose my son's is suffering from bechet. Wd mouth ND eyes ulcers wd high fever.nd doctors r treating hm by 2 infleximab injs once a month ND 2 steroids tblts daily bt we r afraid to face flayers again while tempering steroids.i need help fr my son s accurate treatment.if anyone knows.please
In the absence of more classic Behcet's symptoms (e.g. genital ulcers, joint symptoms), distinguishing Behcet's from recurrent aphthous ulcers can be very difficult. As a general rule, patients with Behcet's have a greater number of simultaneous ulcers than those with recurrent aphthous ulcers. Also, ulcers on the soft palate or oropharynx increase the probability the person has Behcet's. There are also strong ethnic/geographic differences in the prevalence of Behcet's. But none of these rules are absolute. It may not be possible to know for sure until waiting and seeing if additional symptoms eventually develop, which can be a very frustrating wait for patients since it can take years for Behcet's to move from ulcers only to other symptoms.
@@StrongMed is there anything that could activate this disease in someone? I read somewhere that it can be transmitted via Sexual contact.. But I assume they are incorrect thats why I double checked with you
@@thetruth3316 No, it's not caused by STIs or by any form of sexual contact. Because of the prominent genital ulcers in many patients, it is frequently mistaken by patients and doctors alike for a sexually transmitted infection.
@@StrongMed Oh yeah, that’s right. Well, I have something like this happening. Definitely the burning mouth plus other symptoms. I go see a rheumatologist in one month. Been waiting since May to get in. That’s why I’m doing natural remedies, and looking to God for healing. Hopefully I won’t need the doctor by November 16.
@@proudman6651 Thank you. I have improved. I really think my problem is arthritis and high blood sugars. Once I changed my diet & lost weight, I am much improved.
@@Chels-fz5uq I’m doing much better now. I spent two years losing weight. I had finally reasoned that all my problems & symptoms were caused by arthritis and high blood sugars. I stopped eating bread & potatoes (and of course zero sweets). Both have improved after losing 32 pounds. No more prediabetes. And joints feel much better. So does my mouth.
I have oral ulcers. Well I have read now a lot for Behcet. I‘m afraid to have this disease. But I never had ulcers at the genitals or other symptoms. I hab like 5-6 oral ulcers in the last 3-4 months.
Well if you wanna be correct about the pronunciation, it should be "Beh-CHAT" (after the Turkish doctor who researched this). At least he didn't pronounce it Beh-shay as if the name was French, which would be worse. Lol
Or Beh-kets lmao. He is pronouncing it correctly tho. I joke and tell ppl "BAH-SH-ETS, kinda like "the-shits" (I have a very agressive form and find humor to make ppl laugh when I'm in the hospital)
@@xBassel92x it is the Turkish word from Arabic بهجة and since he was born in the ottoman empire hus name was written بهجت , and the j sound leans to word the ch sound but not quite , use google translate to listen to it.
@@sabertoothxiii it was always beh-chet we did change our alphabet not the language. (That is also a reason for alphabet change. Some words sounds different when you read it like in this case.)
To understand this post, you need to be familiar with the medical terminology a lot. So, this is not for non-medical people. Your effort is appreciated though.
I used to smoke and never got mouth ulcers during that time. Quit smoking in 2008 and the ulcers came back with a vengeance (I had them all through childhood).
Because it isn't researched or talked about enough. It is rare with fewer than 20,000 cases a year and us who have it are suffer more when drs don't even know what it is let alone treat it.
@@medicallymo the discomfort you prove when you go to see a doctor and he asks “why” and you reply “because I have Behçet’s syndrome…” and he look at you like he has no idea what you are talking about 🙄 And the longest part of the visit is you trying to spell “BEHÇET” for him 😂🥲
My mom was recently diagnosed with Beycets. It was 100% caused by the Covid vaccine. She didn’t believe me when I suggested it but after her third booster she got a horrible flare up with painful mouth sores and pain in her legs.
There is a variety of ways in which the Behçet of Behçet's Syndrome is pronounced around the world. In this video, I pronounce this condition with a soft ch sound ("beh-shet's"), which is by far the most common pronunciation in the US. Internet references state that in Turkey (the home of Dr. Behçet), Behçet is pronounced with a hard ch ("Beh-chet's"). However, the word should definitely not be pronounced with a silent T ("Beh-shay").
From being a medicine resident to becoming interventional cardiologist now, I have Enjoyed listening up to all your videos. . Please continue the good work..
Congratulations 👏
I can't forget how many Behcet's cases I've seen in Turkey during my med school training, neuroBehcet; pulm artery aneurysm, even our ophthalmology department had a Behcet's clinic! I also remember most oral&genital ulcers do not manifest simultaneously in most patients which makes it incredibly hard to recognize without expertise & attention and I think it's underestimated in the US!
Thank you. I’m a Behcet’s patient in the US. I build medical and patient education professionally. I knew what I had because of it in 2019. I got diagnosed in 2022 when I found a rheumatologist who trained at a program with a clinic. I have neuro involvement now because Tx was delayed. Pls keep advocating for us. TY.
I believe I have this, I currently am on prednisone for a month from my PCP bc of my CRP and ESR, but the rheumatologist refused to see me, and I don’t know who or where to look for care. My PCP doesn’t have the appropriate expertise, he dx’ed me with PMR and I am only 45; one of the reasons the rheumatologist would not see me. I noticed yesterday my mouth was filled with bleeding sores. They hurt, but I am used to them. I also had PV last year in my groin and a necrotizing rash on both feet. Any advice would be most welcome. I am in USA, Missouri
As a general Physician (under training), your videos are invaluable for me... You did a great job.. Very well-explained in a simple way. I have enjoyed all of your videos.
My symptoms include joint pain, very painful oral and genital ulcers, brain aneurysm, skin lesions, and ocular disease. I take only colchicine and it seems to be working!
I have this problem also
I am from Bangladesh
@@asifasir5255 could you please tell me what kind of treatment or Dr is suitable for this?
@@bhawnasharma9136 rheumatologist are their primary care physician. It involves the team of doctors depends upon the area affected opthalmologist for eyes dermatologist for skin neurologist for nerves etc etc but rheumatologist is the one you should see he is the main doctor
@@bhawnasharma9136 hiii...do u hv behcet?
@@karanjangid3766 yes
Thank you for the info!!! I hope you consider adding subtitles in the future, it would be very helpful for non native english speakers like me haha
You should be able to view the automatically generated captions/subtitles through the closed captioning option. It's not perfect - it spells Behcet's 10 different ways through the video, all of which are wrong - but it's otherwise pretty accurate.
I was diagnosed with Behcet's in 2012 after having many large mouth ulcers, sore throats, aches & low-grade fevers, boils, joint pain, and frequent strep throat & tonsillitis infections. I just always had a general ill feeling, even as a child. I'm 61 now, and on Humira which keeps me pretty stable, except I keep UTI infections. Is there any research on Behect's associated with urinary tract infections?
I recommend speaking with your own doctor about this, but in general, the most likely reason a person with Behcet's syndrome would get recurrent UTI is the immunosuppressive medication they are on for Behcet's (i.e. Humira).
Thank you for your reply! @@StrongMed
Very interesting and essential to my training as a resident of a city with a large Turkish community.
Really outstanding resource. Thank you!
I have Behçets Disease, diagnosed in 2018. Mostly affects my skin (mouth/genital ulcers, various skin lesions). I also have MS (diagnosed 2008). My ethnicity is English, Irish, Scottish, and I was born in Canada (been here my whole life).
Thank you for mentioning your familial lineage. I am too and have way too many ulcers
Humira saved my life I had vision problems mouth ulcers genital ulcers and joint pain the doctors at mass eye and ear and MGH are the best
I’ve tried to find info on sacroilitis in behcets but only found one small study and as we k ow correlation isn’t causation. My rheumatologist thinks I may just be unlucky enough to have AxSpa AND Behcet’s. There’s family history of both in my family.
Excellent teaching !
It took 1 years for me also its common in my family we are turkish and my uncle has it too but it took so long they also did a Genetic Test HLB51 it was positive and now i have 1 in my right eye a optic atrophy and i had a BrainInflammation kinda looks like MS but i once did the Liqour Test it was negative for MS i am also dealing with Hashimoto Disase
I hope you're doing well, how are you doing ?
Hello ma'am pls could you pls guide me my bf is also suffering with behcet
Is hidrevantaitios superlative spelled wrong also inown as HS its really painfull puss filled boils in groin underarm would that a symptom
I have HS along with Behçets, my Rheumatologist says the HS is separate.
@dmphax thanks for answering. Life is hard enough without these painful conditions. Hope not suffering too much
Keep on the good work! You're an inspiration :)
I got diagnosed at age 13 or 14 and seem to have sytoms from all 3 classes
phenomenal video
Thanks Dr Strong...
All along I've been referring to it as canker sores.Thanks Dr Strong for the clear information.
Most recurrent oral ulcers are just canker sores (a.k.a. aphthous stomatitis). Only a small minority (
@@StrongMed thank you. It is MUCH MORE than a some cold/canker sore. I have almost died on numerous occasions from my behcet's
@@medicallymo hi Morgan, how did you get Beçets? Was you born with it? Does anyone in your family have it?
Thank you sir, it's intersting how behçet works. Recent research showed a possible relation between Behçet and "SIBO"(Small Intestinal Bacterial Overgrowth), what is your point of view about that?
Thanks for the question. A literature search on this just now only turned up one relevant study of 25 patients with intestinal Behcet's: pubmed.ncbi.nlm.nih.gov/28666309/ . Unfortunately, that's not enough information on which to draw any conclusions, other than concluding it's something deserving of more research.
@@StrongMed Thank you for your time!
Thank you very much. Very good lecture and very interesting syndrome.
I have Behcet's, I was 8 the first time I was hospitalized and finally diagnosed A grueling couple years later. I would definitely not refer to Behcet's as a "syndrome" because it is not a collection of symptoms and it is classified as a autoimmune disease. :)
Very informative video, thanks for sharing
Thanks for the video 😊 I like the fact you mentioned epi
Only people from arabic/turkish nationality can have the decease? Because i have a lot of symptoms since im young that suits this decease.
A friend of mine says she has Behcet's, and she's not Arabic nor Turkish, but of northern European descent and from Canada. From her information to me, she has every single symptom, and has to give me numerous detailed descriptions of this malady on a daily basis. I think she may have Munchausen syndrome, too. I even used to get very detailed descriptions of her explosive diarrhea, and had to tell her it was just TMI!
I m from Pakistan on behalf of HlA b52 positive doctors diagnose my son's is suffering from bechet. Wd mouth ND eyes ulcers wd high fever.nd doctors r treating hm by 2 infleximab injs once a month ND 2 steroids tblts daily bt we r afraid to face flayers again while tempering steroids.i need help fr my son s accurate treatment.if anyone knows.please
How much life expectancy?
People live normal healthy lives
@@terryhatzimagas7313 thanks
bildiğimiz behçet mi?
Thanks for infomation - very valueble
I’ve been so excited for this one!
I would just add that a lot of people with Behcets are misdiagnosed with an STI before getting a Behcets diagnosis.
Yes, definitely a problem if genital ulcers are the predominant feature at initial presentation.
How cani i siffrence b/w behcet's and aphthus?
In the absence of more classic Behcet's symptoms (e.g. genital ulcers, joint symptoms), distinguishing Behcet's from recurrent aphthous ulcers can be very difficult. As a general rule, patients with Behcet's have a greater number of simultaneous ulcers than those with recurrent aphthous ulcers. Also, ulcers on the soft palate or oropharynx increase the probability the person has Behcet's. There are also strong ethnic/geographic differences in the prevalence of Behcet's. But none of these rules are absolute. It may not be possible to know for sure until waiting and seeing if additional symptoms eventually develop, which can be a very frustrating wait for patients since it can take years for Behcet's to move from ulcers only to other symptoms.
I was so embarrassed. I seen 3 ER nurses & 1 ER doctor. They said it didn’t look like hsv. Nobody could figure what it was
Sir, it will be helpful if you add the references!
Thank you so much 🥰
Thank you so much sir
Thanks sir u made easy work
recent case of a middle aged Armenian female with mucocutaneous and arthritic presentation. Great video
Thank you so much
Thanks sir 👍
The best..god bless you
thank you sir
Wow! sir its good one♥
great video
Thanks
Is this behçet disease contagious?
No, not at all.
@@StrongMed is there anything that could activate this disease in someone? I read somewhere that it can be transmitted via Sexual contact.. But I assume they are incorrect thats why I double checked with you
@@thetruth3316 No, it's not caused by STIs or by any form of sexual contact.
Because of the prominent genital ulcers in many patients, it is frequently mistaken by patients and doctors alike for a sexually transmitted infection.
@@StrongMed okay thank you! So I understand it is in no way transmittable.
Is there cause that activates this disease in a person?
@@StrongMed if it transfer to my children
Thank you for making this great video!
Funny… I began to feel sick after my partner visited Turkey. I’ve never been the same since. Very interesting.
Behcet's disease is not contagious.
@@StrongMed Oh yeah, that’s right. Well, I have something like this happening. Definitely the burning mouth plus other symptoms. I go see a rheumatologist in one month. Been waiting since May to get in. That’s why I’m doing natural remedies, and looking to God for healing. Hopefully I won’t need the doctor by November 16.
@@proudman6651 Thank you. I have improved. I really think my problem is arthritis and high blood sugars. Once I changed my diet & lost weight, I am much improved.
@@joymckenziewendt4013🤦♀️ nutrition and prayers don’t fix autoimmune diseases like this. Don’t we all wish it were that easy.
@@Chels-fz5uq I’m doing much better now. I spent two years losing weight. I had finally reasoned that all my problems & symptoms were caused by arthritis and high blood sugars. I stopped eating bread & potatoes (and of course zero sweets). Both have improved after losing 32 pounds. No more prediabetes. And joints feel much better. So does my mouth.
I have oral ulcers. Well I have read now a lot for Behcet. I‘m afraid to have this disease. But I never had ulcers at the genitals or other symptoms. I hab like 5-6 oral ulcers in the last 3-4 months.
Same here
Nice
Well if you wanna be correct about the pronunciation, it should be "Beh-CHAT" (after the Turkish doctor who researched this). At least he didn't pronounce it Beh-shay as if the name was French, which would be worse. Lol
Or Beh-kets lmao. He is pronouncing it correctly tho. I joke and tell ppl "BAH-SH-ETS, kinda like "the-shits" (I have a very agressive form and find humor to make ppl laugh when I'm in the hospital)
It is pronounced (BAH- JAT)
Only arabs call it Bahjat .... It is named after a Turkish scientist and it is in fact pronounced beh-chet ...
@@xBassel92x it is the Turkish word from Arabic بهجة and since he was born in the ottoman empire hus name was written بهجت , and the j sound leans to word the ch sound but not quite , use google translate to listen to it.
In the US it is pronounced BAH-SH-ETS
@@sabertoothxiii it was always beh-chet we did change our alphabet not the language. (That is also a reason for alphabet change. Some words sounds different when you read it like in this case.)
@@sabertoothxiiitrust me, as a physican with this disease….we don’t care.
👏👏👍
👏🏽👏🏽👏🏽!!!
To understand this post, you need to be familiar with the medical terminology a lot. So, this is not for non-medical people. Your effort is appreciated though.
My doctor thinks I have this. I’ve been on Colchicine, to Prednisone, and now he’s prescribing me Otezla.
Hope this helps someone!
I have been on Otezla for 4 years now. I think my body is getting use to it. I am starting get ulcers back.
Since i smoke i dont have any problems
I used to smoke and never got mouth ulcers during that time. Quit smoking in 2008 and the ulcers came back with a vengeance (I had them all through childhood).
why suddenly a random disease
Because it isn't researched or talked about enough. It is rare with fewer than 20,000 cases a year and us who have it are suffer more when drs don't even know what it is let alone treat it.
s
@@medicallymo fr its rare and no one is educated on how serious and painful it can really be
@@medicallymo the discomfort you prove when you go to see a doctor and he asks “why” and you reply “because I have Behçet’s syndrome…” and he look at you like he has no idea what you are talking about 🙄
And the longest part of the visit is you trying to spell “BEHÇET” for him 😂🥲
My mom was recently diagnosed with Beycets. It was 100% caused by the Covid vaccine. She didn’t believe me when I suggested it but after her third booster she got a horrible flare up with painful mouth sores and pain in her legs.
Shut up, I won't give TIRTY-five seconds and I've no interest in your TREE million. Just let me finish this video.
Argh! I'm sorry, I usually turn off mid-roll ads on newly posted videos - I must have forgotten this one. It's off now.
It is called Adamantiadis-Behcet syndrome - not behcet alone. Period.
@@GeroG3N It is not a syndrome. I really wish would ppl stopped calling it one. it is classified as a rare auto immune disease
I got diagnosed at age 13 or 14 and seem to have sytoms from all 3 classes