Loeys-Dietz Syndrome Frequently Asked Questions
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- เผยแพร่เมื่อ 23 มิ.ย. 2022
- Loeys-Dietz Syndrome Foundation co-founder, Gretchen MacCarrick, MS CGC, answers common questions for individuals and families newly diagnosed with Loeys-Dietz Syndrome.
Links referenced in the discussion:
Monthly Loeys-Dietz Support Group: www.loeysdietz.org/events/202...
General Marfan/LDS Support Groups: marfan.org/resources/patients...
Gastro Issues in LDS: • Pediatric Gastrointest...
Colon Issues: • Gut Wrenching! LDS & V...
LDS School Packet: static1.squarespace.com/stati...
Creating a School Safety Plan: • Creating a School Safe...
