Management of the Pediatric Patient with Marfan Syndrome

Dr. Kenneth Zahka, Pediatric and Adult Congenital Heart Disease cardiologist discusses changes in the aorta that occurs with pediatric Marfan Syndrome, Loeys Dietz and Ehlers Danlos Syndrome: how the aorta is measured; changes that occur in the heart along with aorta; approaches to medical therapy; when it is time for surgery; activity and recreational activity restrictions; multidisciplinary approaches; lifestyle choices; and transition to adulthood. Filmed at the Regional Symposium on Marfan Syndrome and Related Disorders presented by Cleveland Clinic and The Marfan Foundation

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My heart goes out to people with marfan syndrome 😢