Yes! I "discovered" this connection too (a few other people had already found the connection but they've been far and few between. I think the awareness is spreading now, so thank you so much for sharing too) during the research I did that led to Autism diagnoses for myself and both of my daughters last year. Yes, there appears to be a trifecta (Neurodiversity, POTs/dysautonomia, digestive or immune conditions including Mast cell disorders) which may all be related to collagen and affected by hypermobile conditions. It's very exciting research with some interesting implications. May even be related to en utero brain development and epigenetic response to stress and trauma, but we'll see where the research goes. Thanks again for spreading awareness. ❤️
Heds in my family since least 1860 my great great grandmother lost my mum severe ms grandfather Parkinson's stress effects us seriously for me autism ADHD fybromyalgia CFS symptoms
Hi ! Just discover your channel. Wow for someone who has a recent diagnosis, you already know quite a lot ;) You are perfectly right to encourage your community to check for EDS or HSD if they have autism or other stuff (like ADHD, dyslexia, those are quite common in EDS/HSD). Thank you for spreading awareness and happy EDS month ! Lots of spoons ;)
I was diagnosed with HSD by a rheumatologist to my surprise when she noticed my knees and elbows extend beyond typical limits. I always was flexible and would show off, like a party trick, splits and kicks. I have traits of autism and have adhd. My skin is very soft too and as a 52 yr old, I’m frequently told I look much younger. The joint pain sucks big time tho and need to find a good PT
I also have psoriatic arthritis and fibromyalgia (autoimmune issues galore). Im debating seeking an autism diagnosis as I think I am but as a professional in the autism world (I test for autism, im a psychometrist), I get told im crazy. I think this link is sooo helpful diagnostically as I have family who are autistic
Parents of autistic youngsters also may have HM or EDS - also CFS, fibro etc as these are often diagnosed later on can be a linked diagnosis, I have EDS HM, my son is also HM and autistic, also PDA, my son also has a diagnosed genetic condition linked to this which explains some of his ASC/PDA characteristics, but this is in addition, my dad has stretchy skin, its all very strongly genetic and hence why I support the research project that many are against, I know many families which share some or all of these characteristics. EDS causes anxiety due to the stress on the nervous system, as well as a host of other symptoms, women are more likely to be symptomatic in terms of chronic pain, and can be affected by hormonesx
I am here for your PDA content for my 7 year old son… and probably myself really. I am unable to homeschool him anymore as I have hEDS and developed severe Dysautonomia, MCAS, ME/CFS, and recently was offered BRAIN SURGERY for Chiari Malformation. I absolutely despise that I have to force him into the school system where he feels he does not fit, as my experience too was horrible. Thank you for all of your videos. I’m hoping to figure out ways to make it less hellish for him but feeling so hopeless. I’m not surprised one bit that you’re also a zebra! 🤍 Thanks for raising awareness for hEDS & PDA.
Yes! I "discovered" this connection too (a few other people had already found the connection but they've been far and few between. I think the awareness is spreading now, so thank you so much for sharing too) during the research I did that led to Autism diagnoses for myself and both of my daughters last year. Yes, there appears to be a trifecta (Neurodiversity, POTs/dysautonomia, digestive or immune conditions including Mast cell disorders) which may all be related to collagen and affected by hypermobile conditions. It's very exciting research with some interesting implications. May even be related to en utero brain development and epigenetic response to stress and trauma, but we'll see where the research goes. Thanks again for spreading awareness. ❤️
Heds in my family since least 1860 my great great grandmother lost my mum severe ms grandfather Parkinson's stress effects us seriously for me autism ADHD fybromyalgia CFS symptoms
Thank you for posting this. My daughter has hEDS and is in the process of getting an autism diagnosis. Glad you are bringing awareness.
Hi ! Just discover your channel. Wow for someone who has a recent diagnosis, you already know quite a lot ;) You are perfectly right to encourage your community to check for EDS or HSD if they have autism or other stuff (like ADHD, dyslexia, those are quite common in EDS/HSD). Thank you for spreading awareness and happy EDS month ! Lots of spoons ;)
I was diagnosed with HSD by a rheumatologist to my surprise when she noticed my knees and elbows extend beyond typical limits. I always was flexible and would show off, like a party trick, splits and kicks. I have traits of autism and have adhd. My skin is very soft too and as a 52 yr old, I’m frequently told I look much younger. The joint pain sucks big time tho and need to find a good PT
I also have psoriatic arthritis and fibromyalgia (autoimmune issues galore). Im debating seeking an autism diagnosis as I think I am but as a professional in the autism world (I test for autism, im a psychometrist), I get told im crazy. I think this link is sooo helpful diagnostically as I have family who are autistic
Parents of autistic youngsters also may have HM or EDS - also CFS, fibro etc as these are often diagnosed later on can be a linked diagnosis, I have EDS HM, my son is also HM and autistic, also PDA, my son also has a diagnosed genetic condition linked to this which explains some of his ASC/PDA characteristics, but this is in addition, my dad has stretchy skin, its all very strongly genetic and hence why I support the research project that many are against, I know many families which share some or all of these characteristics. EDS causes anxiety due to the stress on the nervous system, as well as a host of other symptoms, women are more likely to be symptomatic in terms of chronic pain, and can be affected by hormonesx
Hi Harry it’s rose
Hi Rose! Great to see you here :)
I am here for your PDA content for my 7 year old son… and probably myself really.
I am unable to homeschool him anymore as I have hEDS and developed severe Dysautonomia, MCAS, ME/CFS, and recently was offered BRAIN SURGERY for Chiari Malformation. I absolutely despise that I have to force him into the school system where he feels he does not fit, as my experience too was horrible.
Thank you for all of your videos. I’m hoping to figure out ways to make it less hellish for him but feeling so hopeless.
I’m not surprised one bit that you’re also a zebra! 🤍 Thanks for raising awareness for hEDS & PDA.
My son doesn't go school 14 school doesn't care a hoot