My Alopecia Areata Story

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  • เผยแพร่เมื่อ 22 พ.ย. 2024

ความคิดเห็น • 503

  • @itsAivy
    @itsAivy 5 ปีที่แล้ว +299

    Crying with you because I’m going through the same thing.

    • @e.m.4652
      @e.m.4652 5 ปีที่แล้ว +5

      I understand your frustration, sweaty - I am also going through the same since 2016. I want you to know that you were not the fist one and will not be the last one who suffers from this disease. So you are not alone. Remember that you are still so BEAUTIFUL no matter what. Thank you for sharing this very personal subject with us. It takes a very strong person to be so vulnerable!

    • @mishalkhan4096
      @mishalkhan4096 4 ปีที่แล้ว +4

      I got diagnosed a few weeks ago. Its attacking my scalp, eyebrow, and eyelashes. I am so insecure about it and it sucks because I wear the hijab so no one sees my scalp and i can fill in my eyebrow but my eyelashes are what make me confident and they are just falling. There isnt anything i can do to stop it and it is actually heartbreaking for this to happen my senior year of high school.

    • @ariannaramirez2384
      @ariannaramirez2384 4 ปีที่แล้ว

      Same!!!

    • @ruqaiyyahnajib6822
      @ruqaiyyahnajib6822 4 ปีที่แล้ว

      @@mishalkhan4096 In the same boat as you! I wear hijab too and its very hard for people to understand or realise that im going through it as its all covered. if you need someone to talk to my instagram is analopecianstory xx

    • @dessieavila829
      @dessieavila829 4 ปีที่แล้ว +2

      I feel u miss😭😭 im so scared now cause this is actually my first time to have this. And the first time I've noticed this was like a very small spot and now it became bigger like a peso coin . I dont know what to do now im just scared 😭😭 i am praying I'd rather have a covid than this. I feel so fucked up.

  • @theworldtodaytwthelpmereac6842
    @theworldtodaytwthelpmereac6842 4 ปีที่แล้ว +78

    Crying here. 😭 other people will say that it’s just a hair but they don’t really know how it feels.

    • @auliamiftahulrazaq2268
      @auliamiftahulrazaq2268 3 ปีที่แล้ว +1

      Huhuhu...

    • @samarthlaad6320
      @samarthlaad6320 3 ปีที่แล้ว +4

      ikr it hurts so much i used to cry everyday before sleeping thinking why am i the one who has to go through all of this but after watching this video im so relaxed

    • @theworldtodaytwthelpmereac6842
      @theworldtodaytwthelpmereac6842 3 ปีที่แล้ว

      @@samarthlaad6320 hi my hair currently grew thick. I just use Aloederma Naturals Shampoo. You can buy it n Watsons. I also take collagen. This is my hair now. I also have a vlog about the shampoo I use when I discover I had alopecia. It almost got me completely bald. th-cam.com/video/1LrSsNbno7k/w-d-xo.html

    • @tarunrohin9364
      @tarunrohin9364 2 ปีที่แล้ว

      Yes buddy I am totally depressed right now i know past 3 days ago 😭😭💔💔

  • @brianbravo7061
    @brianbravo7061 5 ปีที่แล้ว +145

    I'm with you beautiful. I was diagnosed in may. But I'm learning to cope with it. Those that have it. Love all of ya. Be strong ❤❤

    • @wmtribejudo
      @wmtribejudo 4 ปีที่แล้ว +1

      thank you for this! we are going to get through it 💕

    • @solusirambutrontokparahnal9038
      @solusirambutrontokparahnal9038 4 ปีที่แล้ว

      *Rontok Parah, Pitak atau Alopecia Areata*
      *Taukah Anda Alopecia Areata??*
      *Rambut jangan di beri Tonic kimia dan minyak, yg ada smakin rontok dan rusak*
      *Pakai Green Natural Hairtonic, Hairtonic alami tanpa kimia, ratusan Testi cek FB Chandra Tonic*
      *pemesanan WA 082390650477*
      *Ampuh utk mengatasi rambut rontok parah, rontok akibat kemoterapi, ketombe, pitak/alopecia areata, menumbuhkan rambut, membasmi jamur di kulit kepala*

    • @robinrubendunst869
      @robinrubendunst869 3 ปีที่แล้ว +1

      @@wmtribejudo what's the alternative? of course we will. A sad depressed attitude just makes it worse! It's really and truly only hair.

  • @lijingleilazhang7742
    @lijingleilazhang7742 ปีที่แล้ว +4

    Came across your video cuz my 2 yr old daughter is also going through alopecia. We shaved her hair completely bold in order to apply topical solutions better. None of my family nor my husband side has ever had this decease. Seeing your hair growing back makes me feel better. I hope one day you would walk out of this disease completely

  • @kristinamarie8382
    @kristinamarie8382 4 ปีที่แล้ว +25

    I had alopecia 2 years ago! Ive been told stress can trigger it! So you not caring about losing your hair anymore is probably what helped your hair grow back!!

  • @nevergiveup7502
    @nevergiveup7502 5 ปีที่แล้ว +86

    I'm going through a lot of emotional stress, due to alopecia. I've been feeling really down and depressed and your videos and those like yours have given me strength. I'm a guy and your stories is just like mine. I too have cried and felt sorry for myself I still struggle with not feeling adequate. Once again thanks for your video.

    • @lifewithmelissa2351
      @lifewithmelissa2351  4 ปีที่แล้ว +3

      I too found that hearing other people's stories have given me strength and made me realize that I'm not alone! I hope you are better able to cope with your alopecia now.

    • @nevergiveup7502
      @nevergiveup7502 4 ปีที่แล้ว

      @@lifewithmelissa2351 Melisa, thank you forbthe reply. How's your Alopecia coming along? Have you gotten any growth? Mine is getting a little worse😤😢

    • @lifewithmelissa2351
      @lifewithmelissa2351  4 ปีที่แล้ว

      @@nevergiveup7502 Since this video, I've lost a little more than 50% of my hair /: but yes, most of it is growing back now. Those hairs are about 2 inches long now.
      Oh no :( You don't have any regrowth at all?

    • @cryptonairzisascam2798
      @cryptonairzisascam2798 4 ปีที่แล้ว +4

      Nevergiveup the more you stress the more hair you will lose! Eat healthy, sleep well, drink lots of water and be happy and ur hair will come back! Don’t let this fuck up ur life

    • @nevergiveup7502
      @nevergiveup7502 4 ปีที่แล้ว

      @@lifewithmelissa2351 have your regrow or eyelashes ever fell out?

  • @sherryhu9891
    @sherryhu9891 4 ปีที่แล้ว +43

    My daughter is experiencing it now, type 3. As her mum, I’m more worry than her....she is only 13. I’m crying more than her...I wish to shave all my hair to replace her pain....she has to face her classmates, and friends. Pray to God her hair can grow back...thank you for sharing your story.

    • @soonsims
      @soonsims 4 ปีที่แล้ว +5

      Dear Sherry Hu, I will pray for you and your daughter! May she grow her hair back soon! There's nothing more heart breaking than mother's pain for her child. You have to be strong for your daughter, you will get through this! I will pray tonight for you! 🙏

    • @xoxozaxi2212
      @xoxozaxi2212 3 ปีที่แล้ว +1

      Don't go for steroid injection they are bad .....go for natural remedy apply ginger plus onion juice ..... Yes do exercise n yoga it will really help .....n hydrate her a lot the hair will come back don't worry

    • @anoopg4996
      @anoopg4996 3 ปีที่แล้ว +1

      Try BITTER APPLE fruit. Just apply the raw juice 3 to 4 times a day @ the infected area, and rinse your hair once a week with plane water, within 1 month you'll notice the change... I have the same problem but the magic fruit is giving good result..

    • @mirnadaoudelnakouzi7520
      @mirnadaoudelnakouzi7520 3 ปีที่แล้ว

      My daughter too she is 9 years old she lost her eyebrows and eyelashes when she was 7 and she lost all her hair 3 months ago.
      It's very painful for all of us ☹

  • @emilyderwin1687
    @emilyderwin1687 5 ปีที่แล้ว +108

    I have had alopecia areata for 8 years now and in high school luckily I was confident enough to not care what anyone thought or knew about me I was very open about my condition so everyone just acted like it was fine because my alopecia is very visible but I'm so glad I didn't hide it - be open, be proud about who you are - we can get through this!!

    • @nevergiveup7502
      @nevergiveup7502 5 ปีที่แล้ว +8

      Thank you this means spook much.. I'm 42 years old and just had my first round of alopecia and I'm feeling depress. However, swing all these videos and comments inspire me and I no longer feel alone.

    • @theconnection3474
      @theconnection3474 4 ปีที่แล้ว

      @@nevergiveup7502 sorry to hear u are depressed, but if you are located in USA, CANADA , UK, IRELAND OR POLAND I CAN DEFINITELY HELP U WITH HAIR GROWTH. NO WIGS NO MEDICATION. ONLY A TREATMENT LINE:
      - SHAMPOO/CONDITIONER
      - SPRAY
      - HAIR OIL
      OUR PRODUCTS ARE HELPING THOUSANDS OUT THERE RIGHT NOW. U CAN SEE THE TESTIMONIALS. IF INTERESTED ...PLEASE DM ASAP ON INSTAGRAM(timing matters)
      ARIANA @business_hairskin

    • @sienna1598
      @sienna1598 4 ปีที่แล้ว +1

      Same

    • @marciachambers3197
      @marciachambers3197 2 ปีที่แล้ว +2

      I’m 57 I have alopecia for 8-10 years I cry a lot, wearing weaves, hate going to the beauty salon because everyone is looking at me I spend a lot on wigs weaves to make me look good and get my self esteem back, but now I realize that I love myself and I don’t care what people say or think about me my kids love for the person that I I’m…. Thank you for sharing your journey with alopecia

    • @lindsay653
      @lindsay653 2 ปีที่แล้ว +3

      I’m still in high school and it’s so stressful trying to hide it all the time.

  • @ninanario9080
    @ninanario9080 4 ปีที่แล้ว +43

    I suddenly burst into tears while watching your video. I'm going through the same thing right now. I feel you, girl! hugs & kisses

    • @mariaella1042
      @mariaella1042 4 ปีที่แล้ว +3

      Me too I just noticed yesterday 😭

    • @shah1985murad
      @shah1985murad 3 ปีที่แล้ว

      I have same problem alopecia totally

    • @tarunrohin9364
      @tarunrohin9364 2 ปีที่แล้ว

      @@mariaella1042 me too just know 3 days ago what is your condition right now please help me 😭

    • @dileepkumar-mk6ez
      @dileepkumar-mk6ez 2 ปีที่แล้ว

      @@tarunrohin9364 have you found any cure or it worsened

  • @youavang1973
    @youavang1973 4 ปีที่แล้ว +13

    I know that bald skin feeling very well. 😭 I have alopecia areata for over a year now and I couldn’t help but cried with you too. 😭 Thank you so much for sharing your story. You’re so beautiful and strong.

    • @NurseKenDoll
      @NurseKenDoll 4 ปีที่แล้ว

      Isn’t that bald skin feeling the weirdest.... like she said I’ve never felt something so smooth.....

  • @kristelnavarroirola8081
    @kristelnavarroirola8081 4 ปีที่แล้ว +14

    I cried with this, l really know the way you feel. I have had alopecia for 16 difficult years, now I am 19 years old. And I am in the worst time in this disease because I have lost my eyebrows, lashes, all my hair. Thanks for sharing this video, you can not imagine how much this has helped me, you have encouraged me XOXO

    • @shah1985murad
      @shah1985murad 3 ปีที่แล้ว

      Me same

    • @shah1985murad
      @shah1985murad 3 ปีที่แล้ว

      Be strong

    • @shah1985murad
      @shah1985murad 3 ปีที่แล้ว

      I think those people are some different to all people have this problem

  • @nomadgirl1082
    @nomadgirl1082 4 ปีที่แล้ว +17

    If you have alopecia, please read this.
    Drink BONE BROTH & Take FISH OIL.
    DO NOT STRESS! It gets worse.
    It’s a gut problem so do some cleanse too. I suffered it 2 years ago. It was really bad, I wanted to die and not go outside but after eating more clean and doing lots of bone broth, it helped ALOT. please cure your gut! For me I believe stress triggered it, now my hair is all full but recently it was falling out but not in patches. I believe it’s because I’m stressing a lot again but I’m back on bone broth and lowering my stress level. I’m trying to prevent it. Stay positive! 🤗

  • @amabonsu6493
    @amabonsu6493 5 ปีที่แล้ว +44

    For the first time, I'm starting to lose my hair to alopecia areata for 6 months now. I found my first spot on New years. Honestly finding ur video and ur willingness to share your story has helped me so much. I've been so scared for others to find out that i have bald spots and scared that people would judge me but ur confidence to be so open and honest has really inspired me! Thank u so much for sharing

    • @lifewithmelissa2351
      @lifewithmelissa2351  5 ปีที่แล้ว +3

      I'm really glad my story has helped you! We're all in this together!

    • @theconnection3474
      @theconnection3474 4 ปีที่แล้ว

      @@lifewithmelissa2351 If you need help fighting Alopecia I can help you depending on ur location . If you are interested DM me on Instagram
      ARIANA @business_hairskin

    • @theconnection3474
      @theconnection3474 4 ปีที่แล้ว

      Hi there! I can help you regrowing hair! Without medication. Depending on ur location. If you are interested DM on Instagram
      ARIANA @business_hairskin

    • @hawajuma9651
      @hawajuma9651 4 ปีที่แล้ว

      @@theconnection3474 yeah how

    • @baldproudbeautifulchappie4843
      @baldproudbeautifulchappie4843 4 ปีที่แล้ว +2

      I have it . Let no one make u feel bad at all. You are Beautiful. I am bald . I used to be so scared but now i walk with my head held up high. ALOPECIA DOESN'T OWN YOU BUT U OWN ALOPECIA. Ok so lost our hair .ok there are wigs weaves and more. People are going to judge us about anything who cares. Remember you are someone special. I am here to chat with anyone.
      Bald Proud Beautiful.

  • @deedoubleyou9987
    @deedoubleyou9987 4 ปีที่แล้ว +15

    Your story is very inspiring! I found a huge patch gone and cried hysterically before deciding to carry on even if I have failed efforts in treatment. It’s nice to know others stories because this is a journey.

  • @taylorvigil6531
    @taylorvigil6531 ปีที่แล้ว +5

    Thank you for sharing your story that was incredibly brave❤ I was diagnosed two months ago and have already started the injections . I’ve unfortunately lost a lot of my hair already and have really been struggling emotionally with it. This autoimmune disease makes you feel so alone in the world but hearing your story helped me not feel so alone anymore. Thank you for that✨

  • @debraashley8831
    @debraashley8831 3 ปีที่แล้ว +6

    Don't cry. You are so brave and selfless to share this with the world. I wish you could know how your story has helped me. I am so grateful for all, whose videos I've been watching and learning from.
    My 13 y/o daughter developed a quarter-sized bald spot on the crown of her head at near the end of Feb, 2020, just before her birthday. She'd recently transitioned to remote-learning due to covid, so I attributed it to trichotillomania (she is stoic and reticent - puberty and Covid arrived close, together for her), but by mid-March it was obvious something else was happening.
    Em was born with a a head-full of hair, and she's never had it cut - she would cry if I trimmed her split-ends - so it's always been very long. Most of her hair fell out over the summer. Before school started this August, her sisters took her to shave her scalp. She hates the wigs, and decided to just go to school as she is. She stood-down a bully who pretended to be her friend while surreptitiously taking pictures to share with her ugly bully-friends. So proud of her.
    Anyway, after no results with the topicals, Fluocinonide/Tofacitinib, she has an appt on the 11th for injections.
    I've been watching a lot of videos like yours, sharing your personal experiences,, and I appreciate you.
    Who knows why this happens? Who cares?? You are beautiful, with or without hair, inside and outside. ❤❤❤

  • @alexistang7685
    @alexistang7685 4 ปีที่แล้ว +8

    Honestly this means so much to me that you are able to share your story. I have had alopecia totalis for about 4 years now. I had to start wearing wigs at age 12, it wasn't very fun everyone would ask what was wrong with my hair or why I was wearing a wig. At that point it was very hard for me. My hair still hasn't grown back but sometimes patches will grow back for a few months and then fall out. Living like this is hard but it means a lot when people like you share your story. Thank you for making me feel as if its not just me dealing with this. Love your videos💕

    • @lifewithmelissa2351
      @lifewithmelissa2351  4 ปีที่แล้ว +1

      I am so glad that my video helped you! I'm so sorry that you are going through this :( when I wore a wig in high school, I also got asked a lot about my hair because it looked "different" and I agree, it was not very fun. But I think things like this can only make us stronger!

  • @floydfarano3284
    @floydfarano3284 ปีที่แล้ว +1

    I read on another site a woman who was in the beauty business.So her looks were her pay check.She did a donor transplant.I know that I could not do.I am sorry you are going though this at a early age. You will learn it is what is inside not so much the outside that counts.Woman of color can shave their hair and look fabulious.Your telling your story is helping so many people.

  • @naimachaabi4319
    @naimachaabi4319 5 ปีที่แล้ว +17

    well, I discovered it today, I was running my fingers through my hair and then BAAMMM I found a round smooth hairless spot and yeah that's why I'm here, I just wanna say you're not alone dear there is always a cure for every disease.

    • @lifewithmelissa2351
      @lifewithmelissa2351  4 ปีที่แล้ว +1

      That sounds so similar to my story! Stay strong

    • @naimachaabi4319
      @naimachaabi4319 4 ปีที่แล้ว

      @@lifewithmelissa2351 thank you 💗

    • @dileepkumar-mk6ez
      @dileepkumar-mk6ez 2 ปีที่แล้ว

      @@naimachaabi4319 have you found any method

  • @jeicarolacv
    @jeicarolacv ปีที่แล้ว +1

    Oh darling, I found your video while having a mental breakdown because for the third time I have this shitty condition. It sucks that just comes out of nowhere. I appreciate so much your openness and how brave you are to speaking about this because I hide my alopecia as far as I can, I am so scared of this shit taking my life away from me. I am crying with you in here... Thank you for this video

  • @marianakimysufamilia6539
    @marianakimysufamilia6539 2 ปีที่แล้ว +2

    I'm crying with you I'm going through hair loss I haven't seen any doctor yet. I'm 48 and you are so young and you had to go through this? I admire you. Thanks for sharing your story

  • @Thetoonseries
    @Thetoonseries ปีที่แล้ว +2

    Literally so proud of you for sharing your story. I’ve been diagnosed with the same and I’ve lost my hair thrice now. Staying positive is really hard but trust me that’s the key. To viewers coping with Alopecia try applying fenugreek seed water and hair mask on your scalp it really helps. And stay strong! ❤

  • @amitysantalucia6265
    @amitysantalucia6265 ปีที่แล้ว +1

    Hi 👋 I just wanted to say that I completely understand and emphasize in what your going through #hugs ❤! For the last two years I have been battling an aggressive, unique breast cancer. I lost my hair going through chemotherapy then radiation, etc… then to my dismay it didn’t grow back right in the front on both sides!!! I tried pretty much everything and it’s still exactly the same! I have learned however to embrace who I am and like you have the attitude that THIS DOES NOT AND WILL NEVER DEFINE ME ❤!!!! It’s all about a positive attitude and self love, you are beautiful and you’ve got this !!!! Tc of you and please remember that!!!!! Love, Amity

  • @annemeddaugh3960
    @annemeddaugh3960 4 ปีที่แล้ว +4

    You are such an inspiration for me. You’re young, you’re beautiful and now you are “free” from the hiding. I am 66 yrs old and I’m struggling with everything you’ve described. Thank you for your honesty and strength.

  • @hxcvocalist
    @hxcvocalist 3 ปีที่แล้ว +8

    Alopecia really freakin sucks. I'm a man and Two years ago i started growing my hair, I had the prettiest hair ever, Thick, Shiny, Elastic, Healthy, full or volume. People would compliment on it very often. It became my identity and extension of myself. November 2020, i got a paronychia on my nails. It hurts super bad, stress a lot about it because i've ended up losing my nail entirely and was reluctant going to hospital with Covid lines and stuff. It finally started to grow back. I was super glad to see that the moisty part under the nail actually became a nail while the real one will push this temporary nail out. While discussing about it, me and my Gf started to say what disease we had in the past or hereditary stuff. And i said well my cousin lost all his hair, from head to toes and my sister had a bald patch like couples years ago, not sure if it's good now. As i was saying this, hell damn me if i lie, i touched my scalp and felt a HUGE bald spot at the back/left of my head, like 3/4 the size of my palm. I freaked so much. After a better look it was actually two circle overlapping. I'm 31 and i cried like a baby. I couldn't believe my eyes. How could i've lost so many hair without noticing? I didn't seem to shed more than before. Went to doctor, was prescribed steroid solution to apply. 3 persons in the same family. 2 areata and one universalis. Anyways, going on with the solution, I also try to eat better and make sure i don't lack Vitamin D, C, Biotin, Zinc, Iron and Magnesium.. Started to use a lot of oil on my scalp, Rosemary, Red onion, Coconut, Castor oil. Tonight i had enough and shaved all around the bald spot into an undercut. I feel liberated from that weight of always feeling the spot. Now that it's shaven i feel a lot of tiny hair that grew back already on the earliest part of the patch . I'm about 1 month in the treatment. I just feel happy for now as it is localized under the level of my ears which was perfect to hide. Be positive. I also started to take Relaxing pills over the counter like L-Thanine. No prescription. Helps to calm Anxiety and empty your thoughts without sedative or losing control.

    • @revathypasupathy8231
      @revathypasupathy8231 3 ปีที่แล้ว

      just thought of sharing our experience with you as we know the emotional pain. Even now I will be in tears the moment i think about the helpless situation we were going through and how it felt to see our son like that.
      For our son (age:12 years now) this condition 'Alopecia areata' started from Jan 2020, started as just one small patch, by June he lost around 80% of hair. Till Oct we tried allopathy, ayurvedha and sidha methods of treatments. Nil result. It kept aggravating.
      Came across a naturopathy doctor video in internet, spoke to him, followed his instructions from Nov. By a week's time hair started growing (i mean that 0.01% result we look for/deeply stare at the head every day), it took almost 6 months to gradually grow back to normal.
      No medicines, no ointment, no application, no oil.
      Find below the gist of what we did;
      Stopped all medicines immediately
      'Oil pulling' every morning in empty stomach
      'water enema' procedure twice a day (internet search 'jala basti in yoga' video)
      Practice yoga or exercise or walking atleast 15 to 30 mins daily in open/fresh morning air
      Spend time in direct sun for atleast 10 to 15 mins around 10 to 11 am
      Strictly no hot/warm water bath
      Bath in cold/normal temp water (bearable temperature for your location/weather condition) thrice a day, incl head wash, no need of soap/shampoo everytime
      Eat 80 to 90% (per day intake) only fruits (esp seasonal fruits)
      Balance % can be cooked millets with lots of vegetables and some greens
      Totally avoid following :
      dairy products (all forms)
      wheat related products ( all forms)
      dal/pulses (all forms)
      meat, egg (all forms, no non veg)
      No snacks, no fastfood, no oily / deep fry items, no bakery items.
      No sugar, no cofee, tea.
      Strictly sleep early - atleast 9.30 pm to 5 am
      This is just a glimpse of it. Might look wierd and impossible for a normal person, but I know we would do anything for our hair to grow back naturally.
      It was difficult at the beginning. We all followed these as a family. Especially the diet. We made sure there are no other eatables present in the house which would be tempting. Will not cook anything that he is not allowed to eat.
      It's art of living rather than treatment I would say.
      This system believes in detoxification in a natural way by giving minimum work to the digestive system/respective organs along with healthy life style and therefore allowing the body some time to repair itselves.
      If interested I shall forward the detailed guide as a link which the doctor shared with us.

    • @shriyashibangini
      @shriyashibangini 25 วันที่ผ่านมา

      Did you heal ??? Please please any suggestions

    • @hxcvocalist
      @hxcvocalist 25 วันที่ผ่านมา

      @@shriyashibangini Yes but it is complicated. It wasn't actually Alopecia aerata in itself. It was a response to my scalp after picking off scabs caused by inflammation. The inflammation was caused by my bad diet. Mostly sugary drink and fast food. The steroid solution prescribed by the doctor stopped the hairfall and the supplements and vitamin helped regrow my hair. But it started again because i didn't know at that time what caused it. I still thought it was a immune problem. Anyway, nowadays i don't get inflammed scalp as much as i used too because i stopped consuming ultra processed fast food and sugary drink. I cannot help with Alopecia caused by auto-immune problems but if it's caused by inflammation, change your diet, get your supplement and vitamins, reduce your stress and you could fix it.

  • @周玮滢
    @周玮滢 ปีที่แล้ว +1

    Thanks for making this video Melissa. Hope the best with you.

  • @GameOverHon
    @GameOverHon 4 ปีที่แล้ว +12

    Haven't even finished your video, but I'm getting the feels already. I'm going through this right now as a guy. Just started a few months ago and I felt the same way you do. Thanks for letting me know I'm not alone!

    • @theconnection3474
      @theconnection3474 4 ปีที่แล้ว

      Hi Michael! If you want to fight Alopecia I can help you depending on location. Many men regrowing hair thanks to our products when nothing else working. If interested DM me on Instagram
      ARIANA @business_hairskin

    • @dileepkumar-mk6ez
      @dileepkumar-mk6ez 2 ปีที่แล้ว

      Have you found any method to grow hair back , what is the condition now

  • @itosbeauty4201
    @itosbeauty4201 3 ปีที่แล้ว +2

    You are beautiful...Crying with you cos I’m going through the same thing

  • @matejakovacicsubic168
    @matejakovacicsubic168 ปีที่แล้ว +1

    I just wanted to say how really brave you are for sharing your strugle. I have been dealing with similiar feelings for 2 years now becouse of telogen elfuium and androgenic alopecia...I am still learning how to accept myself the way I am...the strugle is real and painful. I know this doesn't help much but I just wanted to say that I can relate ... it surprises me how much shame I have been dealing with just with sharing with the people that I love what I am going through. And how much I have to take care and love myself despite what goes wrong in my life.

  • @cynthia8433
    @cynthia8433 4 ปีที่แล้ว +12

    You are brave! I have cried too about my situation. I can’t even imagine what that would be like to go through that in high school. You are amazing!

  • @BeautyHasArrived_
    @BeautyHasArrived_ 5 ปีที่แล้ว +5

    Baby i have the same problem. Try washing your hair with only water and stay away from all products ( grease, gel, conditioners ). Keep your hair as thick and natural. Guys hair grow perfectly fine with just water yours will to.

  • @hanninhaifa8957
    @hanninhaifa8957 4 ปีที่แล้ว +8

    I'm literally crying with you because I am suffering with the same issue. My hair is thinning so badly. I literally loose half of the volume of my hair every year. I feel so so insecure and ashamed of this condition and the worse part is, is that doctors don't have a cure and we have to deal with this issue and cope with it. Thank you for expressing yourself. truly made me feel like I am not alone

    • @shamsulchowdhury1877
      @shamsulchowdhury1877 4 ปีที่แล้ว

      My same problem, what should i do😭😭😭😭??? Please Tell me😭

    • @hanninhaifa8957
      @hanninhaifa8957 4 ปีที่แล้ว +1

      abc de hey thank you for your advice :) I’ve actually looked into absolutely everything and went to multiple doctors got my blood tested multiple times throughout the years and still no luck. I guess I just got unlucky. As of rn I’m doing a hair mask of coconut oil, aloe, and castor oil while taking hair supplements. Gonna see how this goes for a few months and to try staying consistent. Hair transplant wouldn’t work for me since I’m loosing hair all over my head not just a certain area so it’s bound to weaken over time.

    • @hanninhaifa8957
      @hanninhaifa8957 4 ปีที่แล้ว +1

      @abc de what are you currently doing ?:)

    • @hanninhaifa8957
      @hanninhaifa8957 4 ปีที่แล้ว +1

      abc de I tried the onion juice but couldn’t stand the order at all. In fact the odor lingered l. Thank you for sharing your own treatment give me an update :)

    • @hanninhaifa8957
      @hanninhaifa8957 4 ปีที่แล้ว +1

      @abc de you explained it perfectly thank you for your advice! so sweet :) I wish you the best!

  • @vasim.ahamed
    @vasim.ahamed 3 ปีที่แล้ว +2

    Your story is exactly like mine, I am suffering from AA since 2018. Thank you for sharing this video, we shall overcome this soon. Insha Allah.. Be strong.

  • @Bman2706
    @Bman2706 4 ปีที่แล้ว +1

    You are so beautiful, long hair, short, no hair don’t care. Thank you for sharing your story. I know it’s hard going through what your going through. I will pray for you and your story was so helpful for me. Thank you so much again. Your awesome

  • @yami3242
    @yami3242 5 ปีที่แล้ว +23

    You're beautiful no matter what, girl. And super brave

  • @betterrebecca5826
    @betterrebecca5826 5 ปีที่แล้ว +2

    My son just developed this condition. It started in may 2019. He has probably lost 70%. I don't know how to help and support him. He's a young person in college. Thank you for sharing. I see that there isn't anything I can do, other then be supportive. My heart goes out to you and you are beautiful... no matter what

    • @jrdiaz1022
      @jrdiaz1022 5 ปีที่แล้ว

      Better Rebecca mine started around the same time. How is he doing now?

  • @anikaanjum2210
    @anikaanjum2210 5 ปีที่แล้ว +8

    I’m by your side I got diagnosed today

  • @sharon2210able
    @sharon2210able 4 ปีที่แล้ว +18

    Hey, I'm a girl from India and I just wanna tell you- Thank you! Thank you for sharing your story and you are not alone. I'm going through the same thing too. Please talk about it more.

    • @iamravishah8505
      @iamravishah8505 3 ปีที่แล้ว

      Go with yoga.

    • @atekashaikh2254
      @atekashaikh2254 2 ปีที่แล้ว

      Hi sharon.. I m also suffering from alopecia... I m from India.. Can you talk with me.... I m so depressed

    • @allabouttruth2222
      @allabouttruth2222 2 ปีที่แล้ว +1

      I am also suffering from alopecia areata .. n its so depressing

    • @tarunrohin9364
      @tarunrohin9364 2 ปีที่แล้ว

      Buddy what should I do i am surffing from this also just know that past 3 days ago

    • @tarunrohin9364
      @tarunrohin9364 2 ปีที่แล้ว

      @@allabouttruth2222 i can feel right now i am also totally divasted i just know past 3 days ago😭

  • @golden_ruby2305
    @golden_ruby2305 4 ปีที่แล้ว +4

    I think i was seven when i first went through it, I was bullied so much, i had no hair at all, none, These girl’s in my school found out and everyday i got called “cancer girl”. I’m lucky enough not to have cancer. But as a seven year old my heart broke every time, they didn’t touch me because they said it was contagious, i had to eat lunch with my teachers because no one would eat with me. I lost everything those years, it broke my family and I lost all my confidence, i’m 16 now and i still have parts of my hair that are missing and my confidence is still never gonna recover :(

  • @topazzz79
    @topazzz79 4 ปีที่แล้ว +2

    Thank you for sharing, it was so helpful and I feel like I'm not alone. I was in tears as I watched, just started down the path of diagnosis and its hitting hard....

  • @NurseKenDoll
    @NurseKenDoll 4 ปีที่แล้ว +5

    Thank you for sharing this.... it literally just made me tear up because I’m going through the same thing and just diagnosed about two months ago and it has been really hard I’ve always taken pride in my hair... I remember the morning I woke up to hair on my pillow and ran to the bathroom and noticed the second spot which was on the front close to my forehead and I literally started bawling and shaking because I just couldn’t understand why it was happening to me... We can do this!!!!!

  • @ItsMyLifeDaralynn
    @ItsMyLifeDaralynn 5 ปีที่แล้ว +2

    I'm sorry this happened but thankfully it's only alopecia and not Cancer... Praise the Lord! However its great to see other races share their story, because its a stereotype that people of color have it due to neglect. Its tough to get people to understand that alopecia with the exception of traction alopecia is beyond a persons control. Areata, runs its course and there isn't anything you did to help it grow. It just runs its course. The emotional roller coaster is real. I get it, because I have it. I was 23 year when I found a quarter size spot. It got worse of course as the years went by. It's ok, you're beautiful and thanks for sharing.

  • @viviana835
    @viviana835 4 ปีที่แล้ว +1

    I completely understand...I have alopecia areata. I developed after a surgery I had last year of my ovaries. After 6 months of my surgery I began to lost my hair, until all my hair was gone..I cried so hard. I began to use rogaine and other creams, until my hair started to grow. I still have some parts without hair, but I'm getting there. As a woman alopecia is hard. But the people who really loves you. Will be there for you no matter what. Lots of love.

  • @tylerengalla3781
    @tylerengalla3781 4 ปีที่แล้ว +3

    Thank you for sharing your story. I’ve been dealing with alopecia areata for over a year now and it’s encouraging to see others “own it.” It’s an emotional rollercoaster and a real confidence killer because, in our minds, our hair is a part of our identity. Our beauty. And to have no control over that is frustrating. So I’ve become an avid hat wearer day in and day out. But I’m honestly just tired of trying to hide it. Hopefully this time isn’t as severe for you and it grows back but for myself as soon as one spot grows it seems a second and a third show up. And so this disease is a slow killer - wearing you down emotionally. Funny how I can look at Covid and the WFH setting as a blessing because I can just let my head breathe and not hide. But I’m tired of feeling like I can’t be comfortable with what I’m living with. I want to share and be free. I don’t want the weight of “hiding something” and feeling like I’m not bringing my full self. And that starts with accepting it and owning it. And there’s true beauty in that - we just have to remind ourselves. Watching this, seeing similar stories/ struggles helps. So again, thank you for sharing with us.

  • @teresamarrero1533
    @teresamarrero1533 2 ปีที่แล้ว +1

    You have so much courage . I'm starting to lose my hair and I hear you . I have others health conditions and by the years I accept them . So I believe that this hair condition will not be a difference.
    You are brave and as you said " you want to be free" you don't want no more pressure . That's so great. Your honest with your feeling and I can relate with your feelings. Thank you for sharing your story.

  • @janenecampbell3109
    @janenecampbell3109 4 ปีที่แล้ว +3

    Thank you so much for making this video! I've had alopecia for 10 years and so many of the things that you said resonated with me!

  • @slappz100
    @slappz100 4 ปีที่แล้ว +5

    You’re so strong and beautiful. My fiancé recently just discovered he has alopecia and currently only has 3 spots. It’s easy for the outside world to say “don’t stress” but I can’t imagine the feeling. I love him
    Regardless just like your friends and family love you regardless ❤️

    • @supstar90
      @supstar90 ปีที่แล้ว

      It’s so sweet of you to watch the video. You care so much for him.

  • @seywhat226
    @seywhat226 4 ปีที่แล้ว +1

    Thanks for being brave enough to share your story. My 6 year old daughter has alopecia totalis and is almost completely bald except for one patch on the side of her head. It's really hard for me as a mom to deal with this condition because everyone thinks she has cancer. I refuse to get injections or take meds due to the possible long term side effects. We just use cute scarves/headbands to cover her head when out in public. In addition I always tell her how beautiful she is despite whether she has hair or not. I do pray for a cure one day but in the interim just stay confident. No one is perfect. People will judge you no matter what. Love yourself first no matter what and that confidence will come shining through.

  • @MsJacqqq
    @MsJacqqq 4 ปีที่แล้ว +3

    I dont know why you havent upload in a while but I hope everything is good with you. If i could give you a hug right now, I would. You are not alone in this battle.

  • @143forever3
    @143forever3 4 ปีที่แล้ว +2

    Thank you for making this video. I recently noticed that my hair has been thinning and it is scaring me to death. It is making me so stressed and I feel something is wrong. I came across your video and just your story has helped me so much. This is all new to me. I am sorry for how this has changed your life. You are very beautiful and courageous.

  • @marciabirdsong1156
    @marciabirdsong1156 ปีที่แล้ว +1

    God bless you beauty for sharing your story🙏🏾

  • @Sasuke_1vs99
    @Sasuke_1vs99 5 ปีที่แล้ว +1

    I have alopecia from 5 years stay confident and you look beautiful don't care what others say...

  •  4 ปีที่แล้ว +4

    I got this condition 5 months ago and it's a pain in the arse!! I actually cried once then I decided I won't let it affect my mood again, but I put that down to being a male .. I have a huge amount of sympathy for women who get this condition!
    If you're a woman with AA I hope you know that men will still find you to be attractive... I personally love the bald look on women even before I got AA

  • @rosesharoncharm637
    @rosesharoncharm637 4 ปีที่แล้ว +4

    You are so beautiful and brave ! Thank you for being vulnerable❤️. I’ve had Alopecia totalis for 7 years and it’s still a journey of acceptance. The journey may not get easier , but YOU WILL GET STRONGER !! Sending you much love and light ✨#AlopeciaStrong💙

  • @reagan2077
    @reagan2077 2 ปีที่แล้ว +1

    i've had alopecia 3 times, and im very thankful that i haven't had it in over a year. i'm really scared that i'll find out that i have it again. i relate so much to your video, thank you so much for sharing your story

  • @ronnadu6909
    @ronnadu6909 4 ปีที่แล้ว +2

    I have the same problem. You have to be strong. Losing hair does not change you as a nice person

  • @mariamahmed1782
    @mariamahmed1782 4 ปีที่แล้ว +1

    Thankyou for sharing this ♥️ i've been diagnosed with alopecia recently and I still don't know where it will take me but I just needed to hear people who relate to me so thankyouuu

  • @pviv222
    @pviv222 9 หลายเดือนก่อน

    watching your video and seeing you breakdown i feel your pain. I have been dealing with Alopecia Areata for a year now and it has drastically all fell out. One day you have a full patch of hair and then all of a sudden you have none. I've been hiding it from my friends and bf. Thank you for sharing your story, I can relate so much to you. never lose faith

  • @tawnybass5884
    @tawnybass5884 2 ปีที่แล้ว +1

    I was diagnosed February 2022. I’m still trying to accept it. I cry in silence sometimes. ❤️❤️❤️❤️❤️❤️❤️

  • @RAJ-oj7ut
    @RAJ-oj7ut ปีที่แล้ว +1

    u r amazing and strong. thanks for the video its very helpful.

  • @yasn3038
    @yasn3038 5 ปีที่แล้ว +3

    My husband had alopecia spot a couple of years ago and he said he rubbed garlic on it until he it turned red. I do recommend using garlic juice and maybe a Derma roller let to let it penetrate into your scalp.

  • @aditipawar9954
    @aditipawar9954 4 ปีที่แล้ว +4

    I am too going through this and it's very depressing. Trust me you are so beautiful. God bless you.

  • @jadelopez5457
    @jadelopez5457 5 ปีที่แล้ว +3

    Hi Melissa, Ive just come across your video and I think you're doing an amazing job in accepting what your condition is. I have alopecia universalis and I've had this condition since I was 1, so this disease is really part of my life now. As I grew older, the hair gradually grew with me. I have not experienced a full head of hair yet, but I know the day will come soon. Im now 21 years old, social media doesn't necessarily help with self confidence but its a work in progress. I suggest to stay entirely away from steroids. I have not used steroids and I dont think I ever will, since I believe it gives a temporary satisfaction or worsens the condition. I used to follow ayurverdic and homeopathic treatments growing up but that did nothing obviously. I have followed different regimes which has encouraged hair growth, these are; applying onion juice and leaving it over night, castor oil, coconut oil. Defo incorporate essential oils onto the scalp, massage your scalp daily, meditate whenever you can. The one thing that Ive noticed a great difference in trying to treat alopecia is the AIP diet (Auto immune protocol), for a month I did the Paleo diet and by far has done the most change out of the other regimes I followed through out my life, I havent been quite strict with it now since Im quite lazy and it is pretty hard considering paleo doesn't contain any carbs lol but Im planning to go back on it soon. I hope this helps and stay positive, tell your mind it will grow back and I do hope this disease will be avoided permanently for all those suffering, whatever type you have.
    Good Luck!!

    • @lifewithmelissa2351
      @lifewithmelissa2351  5 ปีที่แล้ว +2

      Thank you so much for this comment! I actually have tried steroid shots and it did help temporarily but I truly believe there's something within that's the problem. I've been looking into the anti-inflammatory diet and have been trying to incorporate that into my life. Hopefully it helps! Good luck to the both of us!

    • @reneeclarkcoaching6600
      @reneeclarkcoaching6600 5 ปีที่แล้ว +1

      I'm sorry you've had to deal with this for so long but, your words are so inspiring. Thank you and I wish you joy and healing.

    • @dileepkumar-mk6ez
      @dileepkumar-mk6ez 2 ปีที่แล้ว

      How is the condition now

  • @mommieswinetoo1647
    @mommieswinetoo1647 2 หลายเดือนก่อน

    Just now finding this, thank you for your transparency 🙏🏽

  • @jmarianevarez208
    @jmarianevarez208 5 ปีที่แล้ว +14

    I have it also it’s a living hell I feel your pain :(

  • @BrittneyJoy_
    @BrittneyJoy_ 4 ปีที่แล้ว +2

    I understand your pain. I have my own alopecia story on my channel. No one understands it but us. It does not define US!

  • @deepannitadas2419
    @deepannitadas2419 5 ปีที่แล้ว +4

    I feel your pain. Finding a bald spot after thinking you're done with this is the worst. But wig/ no wig you're still an awesome person with so much to offer

  • @makennahart8353
    @makennahart8353 3 ปีที่แล้ว +1

    Thank you so much for being so brave and sharing your story. I just shared my story on youtube for the first time and I am so excited to be another voice! Keep being so authentic. You are blessing people more than you know!

  • @gabrielazbrankova7927
    @gabrielazbrankova7927 4 ปีที่แล้ว +2

    I'm going through the same tough times like you girl. 60% of my hair is gone and spots all over my head, but we are alive and can do anything we can! Your soul is beautiful! You are beautiful! Don't forget about it ;-)

  • @jmercy3191
    @jmercy3191 8 หลายเดือนก่อน

    I’m so sorry you went through this. I hope it has gotten better and I really appreciate you sharing. I am going through it and trying a carnivore diet. The diet is suppose to help with auto immune disorders. I wish you the best.

  • @ems8397
    @ems8397 2 ปีที่แล้ว +1

    Hello. Thank you for sharing your story. I have suffered with alopecia areata for over 10 years. I lost most of my eyebrows and facial hair too.
    My doctor prescribed me Olumiant
    It just arrived yesterday so I didn’t take it yet. I’m gonna start tomorrow. Perhaps you can talk to your doctor about it. It was recently FDA approved for alopecia.

  • @mryankee3566
    @mryankee3566 2 ปีที่แล้ว

    You are brave for making this video, to all those who have this we can only hope that the hair returns and keep the faith.

  • @S8BASTIAN
    @S8BASTIAN 4 ปีที่แล้ว +4

    Thank you for telling your story. I’m in the early stages, & it’s depressing. I’ll fight it back.

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  • @drpotato1108
    @drpotato1108 5 ปีที่แล้ว +1

    Good luck bro. Be strong. Love yourself for who you are.. this society stereotyped what a perfect lady should like. Perfect hair. Perfect body. Perfect lips. Boobs. Ass. Everything has been stereotyped. Just.. try your best to get over this. It's not easy. Sometimes even I am trapped in the shithole. I've partial alopecia. And that too on my front region. Everybody who knows me , knows that I'm bald from the front. And it's becoming worse day by day. But you know what ? This is who I am. And that's who you are. It's your body. Be kind to yourself. Love yourself. xx

  • @hyeonggeunpark1569
    @hyeonggeunpark1569 5 ปีที่แล้ว +8

    I found bald spots on my head 3weeks ago and the spots are getting bigger . I feel your pain. Its so hard for us not to get stressed. Only thing we should do is that we should find a way to get rid of stress, frustration, and fear.

    • @lifewithmelissa2351
      @lifewithmelissa2351  5 ปีที่แล้ว

      Yes I totally agree! Most importantly, we need to stop stressing about it

    • @anoopg4996
      @anoopg4996 3 ปีที่แล้ว

      @@lifewithmelissa2351 Try BITTER APPLE fruit. Just apply the raw juice 3 to 4 times a day @ the infected area, and rinse your hair once a week with plane water, within 1 month you'll notice the change... I have the same problem but the magic fruit is giving good result..

  • @UNEMPLOYEDSENSEI
    @UNEMPLOYEDSENSEI 2 ปีที่แล้ว

    thank you for making this video. You are VERY STRONG. what's good for you is that your alopecia areata doesn't hurt. Mine burns like fire in all the spots where the hair is going to fall out. I know you've tried it like the rest of us, changing your diet, hair products, taking vitamins, wearing hats, etc. I felt like I could've dealt with so many other hardships in life than this disorder you know. It's like, if people only knew maybe they'd think twice before complaining about their day. Or when we're in a bad mood maybe it's because we're going through something disfiguring and not because we're naturally rude. Thank you again for speaking up for all of us.
    The only thing that helps me is my spirituality--Revelation 21:3,4

  • @andrewpunzalan1855
    @andrewpunzalan1855 4 ปีที่แล้ว +2

    I’m still 13 years old and in Grade 9 right now. I’ve had this sickness since I was Grade 5 and when I was in Grade 6-7, I got bullied alot alot alot alot..... Because I’m going bold. Because of that I got depression and anxiety.
    At March-September that’s when my sickness comes in and the other months it goes away (because of steroid injections).
    Now I can’t do steroid injections because of the pandemic.
    What I also wanted to say is that this video helped me alot even tho I’m crying w/u rn.
    Mann Girls have it more worse than boys tbh.
    Well thank you so much for this video because it helped me alot!

    • @Shepdoggaming
      @Shepdoggaming 3 ปีที่แล้ว

      Hey I have a son dealing with this no matter what condition you have don’t let it define you and don’t ever let anyone bully you period ok. I know it’s not easy but and time it will get easier

  • @lucylovesxander
    @lucylovesxander 4 ปีที่แล้ว +2

    Thank you for being so transparent! You’re so beautiful!

  • @defkake
    @defkake 4 ปีที่แล้ว +1

    I have alopecia too thanks for sharing. I feel like stress and anxiety is the biggest cause of alopecia I’m trying hard to make positive life changes.

  • @robinrubendunst869
    @robinrubendunst869 3 ปีที่แล้ว +1

    I'm 60, and I just developed this disorder. It's very upsetting. And my pattern is very similar to yours right now. Bare behind each of my ears, a. rather large spot (the first I saw) behind my left temple. I went to the dermatologist immediately and he shot me full of steroids and gave me a clobestal (sp?) steroid solution to treat the spots. the loss has slowed somewhat, but I'm still shedding all the time.
    You said something about how hair is SO important. I want you and others to know that it is important, but it isn't important, too. You still have a whole beautiful life to live, and you can't let this condition (not disease) ruin your happiness. Pursue your dreams and ambitions in life. If you're one of the lucky ones whose hair does grow back, then think of yourself like a bird that molts (loses it's feathers) every once in a while. ("Well, I guess it's molting season, again!"). Invest in some better wigs, learn how to wrap turbans, and have some cool hats you like to wear. Here's the deal, too. If people, especially younger people, see you accepting this condition with a shrug of your shoulders, they will learn from your own acceptance of yourself, that it's not a big deal. Of course there might be assholes and bullies who make fun. But MOST people will not. Most people will follow YOUR lead.
    I never had great fabulous thick and luxurious hair, and life was still pretty damn good. I know sixty probably sounds ancient to some of you, but it's not (especially when it's you who's sixty!). One of the things I told myself when this started, to help me keep it in perspective, was "How bad am I going to feel about this? I don't have much control over it, if any. While it is upsetting, it's not the end of the world. It's just hair. It's not cancer, I'm night dying and I'm not disfigured or paralyzed from some accident. I can still dance, sing, laugh, swim, think, write, work, cook, travel, make love, get around by myself. And if this happened to someone younger that me, what would I tell a 10 year old, or a 15 year old or a 24 year old? I'd tell her, get on with your life! Keep swimming. Keep smiling. None of us knows how much time we have on this earth, or what's going to happen. But rest assured, bad stuff is gonna happen. And if it's only alopecia, consider yourself lucky it's not something worse."
    So if any of you out there are crying your eyes out over this, stop. Love yourself as is. You're gorgeous with or without hair. Put your hat on, wear sunscreen. Go. Do. The world needs you as you are.

  • @piperdraconi1034
    @piperdraconi1034 4 ปีที่แล้ว +2

    Thank you for posting this video! I’m riding in the same boat with you. I had my first spot at age 16; then it grew back. It comes and goes for me. I lost about 70% of my hair in the last year, triggered by severe life stress. I’m in my 40’s now, it’s still a challenge to deal with this mentally. I feel like a Saint sent to experience hell. I just want to know you’re a beautiful young woman, never forget that, also you are shedding light on those suffering by sharing your story. Facebook has some great Alopecia support groups. I don’t wish this disease on anyone, but going thru hell is easier when you have strong comrades at your side. 👍🏼

    • @nn-cl6sm
      @nn-cl6sm 2 ปีที่แล้ว

      Hey ..Did u face hair fall in patches or extensivr hair fall all over ? As i am facing severe hairfall from past 4 year its not in patches but its very extensive ..can it be alopecia areata ? None of the doctor are able to diagnose it properly so im pissed off completely

    • @piperdraconi1034
      @piperdraconi1034 2 ปีที่แล้ว

      @@nn-cl6sm My hair falls in patches all over my body. I have Areata. I stopped eating gluten and less stress. Hair growing back now. It comes and goes for me. Since age 16.

    • @nn-cl6sm
      @nn-cl6sm 2 ปีที่แล้ว

      @@piperdraconi1034 thank u for the reply.. will it possible to have alopecia areata with extensive hair fall but no patches?

    • @piperdraconi1034
      @piperdraconi1034 2 ปีที่แล้ว

      @@nn-cl6sm Prolly You might be having Telegium Effluvium or something else. Have them do a scalp biopsy and blood test. Also check Thyroid and allergies.

    • @nn-cl6sm
      @nn-cl6sm 2 ปีที่แล้ว

      Yes i do have hashmitos from past 3 yr and hair is falling from that time ..i dont think it should be TE because it should not be for this many months. Dermotologist is not ready in india to do scalp biopsy ..i m tired of asking them

  • @sheridanruth
    @sheridanruth 3 ปีที่แล้ว

    It's beautiful and empowering to find people that share their stories, but also open a space for many others to come and share theirs. When I look at this comment section, I see lots of people that are starting their journeys, and some others that are just educating themselves, and there's so much value in that. This is how we form a community, and this is how we stop feeling alone.

  • @healingchasecounselling
    @healingchasecounselling 5 ปีที่แล้ว +1

    My husband is 30 years old. His hair was everything and he has universalis only a less than a near. He has lost hair all over. Including lashes and brows. IMAGINE THAT! He has accepted his fate and karma. Just living and loving life and living with it. He’s recently started taking CBD oil seems to be helping.
    YOUR ADVICE: You have to accept this love. Love yourself (your heart, mind and soul) Frustration and sadness isn’t going to help you. Best wishes. 🥰

  • @shiba_mandu
    @shiba_mandu 3 ปีที่แล้ว

    Thank you so much for sharing your story. I am currently dealing with alopecia for the first time and I don't feel so alone.

  • @brookeray1203
    @brookeray1203 3 ปีที่แล้ว

    Thanks for coming out about this I suffer from the same thing it feels good to know I’m not suffering alone

  • @adventureswiththefamily
    @adventureswiththefamily ปีที่แล้ว +1

    I haven't done anything with my TH-cam Channel yet. I'm mostly on my Official Instagram page, but I wanted to say, Thank you, for sharing your story! I believe your very beautiful! Your hair, is not why your beautiful. Your beautiful because of what is in your heart! You will be beautiful without hair, as well.
    I do feel for you. I have hereditary hair loss myself, and have also, always felt self-conscious. In photos (I am a Press Photographer) my crown area looks almost bald because of the lighting in them. My whole head of hair is very thin, and I would actually like to buy a nice wig for photos, or for when I do videos. It's frustrating, because men go bald by choice. They'll shave off their hair, and they're considered cool, or macho. Women are made to feel less feminine, like what you've said, in your video. We need to normalize baldness. I personally think you'd rock a bald head! We shouldn't have to wear scarves, or wigs. I've always said, since high achool that people should like me for who I am, and NOT what I look like! However, these days it's easier to stand tall, and to say accept me as I am, and to not shy away. Anyway, I thought you were very brave in creating this video! I'm also, very proud of you! When I look at you btw, I don't see your hair, I see your pretty eyes, and your beautiful smile. Your kind heart is all that matters! I pray for you, much peace and happiness.God bless you, and yours

  • @eze2k06
    @eze2k06 4 ปีที่แล้ว

    Thank u for posting this . I currently have alopecia areta and thanks to this video I know I’m not alone. To anyone who’s going through it I just want to let you know you are loved and this doesn’t define you! You are strong ❤️

  • @Ac_Blondii
    @Ac_Blondii 5 ปีที่แล้ว +5

    I also have alopecia and we have very similar alopecia story. Yes alopecia has been playing with my feelings, it falls grew back again and then falls and grew again. I'm really fed up of this. And some people acted really weird when they find out that I wear a wig. Some people be like they are curious about me but not brave enough to come up to me and ask so what they do is just talk behind my back..how nice it would be if they actually ask me if they wanna know st abt me. But now I've healed a lot from this pain. I prayed a lot to God, cried all night, felt so depressed, done all sorts of possible things but seems like nothing gonna work with me. Why is this happening to us ? I really hate. No cure. Wtf.
    I used to have long,silky, thick, browned coloured beautiful hair and people admired my hair, I liked my hair very much but it was taken from me at a very early age. I feel so sad like a soul departed.
    Hm it's okay whether my hair grew back fully and matured or not at all too because I'm fine w myself. We'd be very sexy with our hair so God took it from us. Let's take it this way.
    I pray that I be the last human to suffer alopecia.

  • @BriONeil
    @BriONeil 2 ปีที่แล้ว

    💗💗💗 It makes my heart hurt to see you cry. I am going through this same thing for the 2nd time. I just shaved it today. Just know someone from Alaska is sending you lots of love.

  • @karenl3231
    @karenl3231 5 ปีที่แล้ว +15

    Thank you for sharing your story Melissa. I also have alopecia areata, and I'm hiding this secret from a lot of people...i know it's just hair, and I always feel guilty for feeling sorry for myself for something that's a "cosmetic desiese ." I went to my family doctor, and she referred me to a dermatologist. I live in Vancouver bc so unfortunately there was a six month wait list. My condition kind of just cleared itself and I also have no idea what I did different. It sucks having this desiese, it tears down every bit of self confidence I have, and I'm always ashamed of having anyone find out about it. I hope to find the strength like you to just come out and tell people about one day and stop giving a fuck about people think.

    • @lifewithmelissa2351
      @lifewithmelissa2351  5 ปีที่แล้ว +3

      I totally understand how you feel!! Even to this day, I feel guilty for feeling sad about my cosmetic disease when others actually have a life threatening disease. But I came across this saying which now, I don't quite remember how it goes but pretty much it was like... just because someone broke 3 bones in their body and you only broke 1 doesn't mean that you can't feel pain too. Originally I was going to take this secret to the grave with me but since it happened again, I just thought it was better to just tell people. It took a lot for me to just say "fuck it" and tell people. I really hope you are able to find the strength one day to let people know! I really like this feeling where I don't have to hide a part of myself to others anymore. Please don't hesitate to reach out to me again. I am more than happy to be your support system when it comes to this disease!

    • @ItsMyLifeDaralynn
      @ItsMyLifeDaralynn 5 ปีที่แล้ว +1

      @Karen L you tell people when you're ready. I made a video nearly a year ago telling my story, but I just posted it a few days ago. I was ready. There will be mean people , but not as many as supporters . Stay beautiful !

    • @edgarpedro1859
      @edgarpedro1859 4 ปีที่แล้ว

      I also live in Vancouver bc and i have also been waiting for 5 month to see a derma. It sux

    • @karenl3231
      @karenl3231 4 ปีที่แล้ว

      @@edgarpedro1859 I waited almost full year to see Dr khalia at the skin care center. By then my hair had grown back and He looked at me for five min, and just said I didn't need the shots for hair regrowth and to call them If my hair fell out again. Kinda useless.

    • @edgarpedro1859
      @edgarpedro1859 4 ปีที่แล้ว

      Well in my case i also have vitiligo. So he better take his time with me. And i dont remember his name. Its a japanese last name. 2 star reviews... apparently not a ver empathic dr. But i still have a month to wait :(

  • @emmq1eigh
    @emmq1eigh 5 ปีที่แล้ว +5

    Ive had alopecia my whole life now I'm 12 y/o and its amazing to know that im not alone. Im not sure if you have been to CAP (CHILDRENS ALOPECIA PROJECT) But its like a camp you can go to for about 2-3 days and do fun things with people that have alopecia too. I hope this helped and you want to look into CAP. ❤

    • @lifewithmelissa2351
      @lifewithmelissa2351  5 ปีที่แล้ว

      Aww that sounds like an amazing program for children! I'm not considered a child anymore but I'm so glad they have programs like that for people with our condition! :)

    • @emmq1eigh
      @emmq1eigh 5 ปีที่แล้ว

      @@lifewithmelissa2351 adults can go to not just children but im glad your happy with the program's! 💕

  • @gjunk3361
    @gjunk3361 5 ปีที่แล้ว +2

    Thank you for speaking for me. You are so much braver than I am.

  • @SandyViet
    @SandyViet ปีที่แล้ว +1

    Thank you for this video 🙏🏼
    You just help me so much ❤

  • @irisposey9710
    @irisposey9710 5 ปีที่แล้ว +1

    May God truly bless you for sharing your story with the world! Blessings to you and your family, always.

  • @misschloe3678
    @misschloe3678 5 ปีที่แล้ว +2

    I'm so glad I've watched this video, I feel so alone right now as my alopecia is the worst it's ever been. Waiting for the doctors to get back to me on the best treatment but I just feel hopeless about it.

  • @6boysareus
    @6boysareus 5 ปีที่แล้ว +4

    God bless you, kind sweet soul. You are beautiful.

  • @debadritaghosh8659
    @debadritaghosh8659 3 ปีที่แล้ว +1

    So sick of hiding it. You are right.

  • @roshnikarkera5437
    @roshnikarkera5437 5 ปีที่แล้ว +2

    With or without hair... Ul always be Beautiful.... Tc god bless you... N dnt fall weak.. We all love you... Tc ❣

  • @beedear8886
    @beedear8886 3 ปีที่แล้ว

    You are not alone beautiful young lady. Thank you so much for sharing

  • @deytulrigss
    @deytulrigss 4 ปีที่แล้ว +1

    Good job, you are a brave girl, I’m with you and I also have alopecia areata and I’m finding ways to regrow my hair again. good luck.