Hey Emma, same same! I’m wondering if we have the same thing. I have autoimmune autonomic neuropathy, and am also on an every ten day schedule. Recently was able to graduate from weekly, woohoo! I didn’t tolerate the IVIG so I do Rituxan but man I’ve never seen someone my age with the same crap going on haha! I would love to connect if you would be okay with that, is APEX buddies gotta stick together! I’m glad you’re doing well, it was so crazy how quickly I started getting my life back once I started proper treatment. Not cured, but I am actually a human again for the most part. Super thankful! Thanks for sharing your experience!!
I have autoimmune autonomic neuropathy issues too.....I have only been 'allowed' to try IVIG (when all other pill form medications failed)....no one will allow me to try apharesis - I keep getting told if it would ever be allowed it would be a 1 time thing because it is too dangerous to do it anymore than a few times in your lifetime....of course that is not what the real data says in the medical literature....I'm glad Emma is feeling better even if it does require repeat treatments often. What is the best way to find a doctor that will listen? I have been sick for 15 years now....
This is good for lyme and tickborne diseases. I saw somehone here on TH-cam sharing his story about it and it gave him his energy back. He had to do a number of them. and also continue medication but this procedure definitely helped him.
I’m a platelet donor, this inspires me to keep donating.
You're saving lives. That makes us so happy. Glad we could inspire you!
Thank you❤️ so much for helping so many like myself fight these diseases .🙏
Going to donate plasma soon. And more frequently too! What a great story to motivate donors
Thank God 🙏 Emma is doing great! She's awesome! I'm Apharesis 💕 I think we rock!!!!
Myasthenia graves also needs this help.
Hey Emma, same same! I’m wondering if we have the same thing. I have autoimmune autonomic neuropathy, and am also on an every ten day schedule. Recently was able to graduate from weekly, woohoo! I didn’t tolerate the IVIG so I do Rituxan but man I’ve never seen someone my age with the same crap going on haha! I would love to connect if you would be okay with that, is APEX buddies gotta stick together! I’m glad you’re doing well, it was so crazy how quickly I started getting my life back once I started proper treatment. Not cured, but I am actually a human again for the most part. Super thankful! Thanks for sharing your experience!!
As a linguist, I'm glad initial clippings can save lives ☺️
Wake up
This girl has LYME
can u do this for lpa?
I have autoimmune autonomic neuropathy issues too.....I have only been 'allowed' to try IVIG (when all other pill form medications failed)....no one will allow me to try apharesis - I keep getting told if it would ever be allowed it would be a 1 time thing because it is too dangerous to do it anymore than a few times in your lifetime....of course that is not what the real data says in the medical literature....I'm glad Emma is feeling better even if it does require repeat treatments often. What is the best way to find a doctor that will listen? I have been sick for 15 years now....
Hi, is there a safe way to do Apharesis using leg veins instead of arm veins? I'd likely donate more if so.
Thanks!
what is her condition called?
CRPS maybe…?
I need this but not from donors with covid vaccine. That is what got me here with sfn and POTS
Look into Medical Medium for you symptoms. He has answers.
LYME Good lord she has Lyme
maybe. But I think she posted what her ailment was.
The good news is she doesn’t seem to have a rare blood type and has access to her type
an-ti-bod-ies!
you have lyme ? or another tick borne illness ?
This is good for lyme and tickborne diseases. I saw somehone here on TH-cam sharing his story about it and it gave him his energy back. He had to do a number of them. and also continue medication but this procedure definitely helped him.