My prolactinoma went undiagnosed until I was 25. The doctors told me it likely started growing when I was 13. My pituitary was non-functioning for more than 10 years. I lost vision, body hair, I had throbbing pain going down the side of my head, i was jaundice, and my voice never dropped during puberty. Further, I lost all interest sexually in anyone at 15. After surgery they put me on testosterone, prednisone, and a thyroid med. I've been taking all of them for over 35 years. I've been blessed with a long career and a fairly normal life.
@@yoshtisune as the tumor had been undiagnosed for more than 10 years, it had reeked havoc on my entire person. It permanently damaged my vision. I think nowadays, if you're tumor is discovered fairly soon. Any damage done can be reversed.
I had gynecomastia, before the surgery they found elevated levels of prolactin and of course, prolactinoma. I always wondered why I was never super interested in girls, I've had girlfriends/sex partners before. but I was never really into them. at least now I know. Next week, I'll be seeing an endocrinologist so that I can sort myself out and start a family😇, Oh and I'm a 33 year old Male by the way. To all who suffers from what we suffer from, let's hope and pray, but most important of all, let's all take action!
During our internship, many women presenting with infertility who also suffered from hypothyroidism, had elevated levels of prolactin. Our teacher that time, told us that this could be due to the stimulatory effect of low serum T3, T4, that augmented sectetion of TSH(from pituitary) and TRH (from hypothalamus). TRH, in it's bid to increase TSH and the overall thyroid status, also increased prolactin release that inhibited, release of FSH and LH.
I went totally blind in my left eye and partially un the right wye before my prolactaninoma was found. I had broken both feet, both wrists, and my humerus also. By the time it was found, it was a macronoma. Cabergoline successfully shrank it and my vision miraculously came back. Take action before this happens to you. Several doctors missed mine. An opthomologist found it. 😢😊
This information help a lot to me, a few months ago after my blood test i was diagnosed with high prolection level and started to take bromocrotine and suffer from very bad side effects from the drug
I must vehemently disagree with your assessment that micro prolactinoma is do not have symptoms. I was diagnosed with a microprolactinoma when I was 21 and I've had a huge range of symptoms that have negatively impacted my life.
ive was diagnosed with this because i had menopause symptoms,they didnt really do anything about even tho my symptoms were quite harsh...so started taking hight doses of vitamine E and b5,it helps symptoms a lot just have to be very consistent with taking them. unfortunately i have no money to treat this, and it is effecting my vision and everything else and i am always beyond exhausted,every single day... :(
@Crow_mauler•Yes I found out the hard way ..Neuroleptic Malignant Syndrome..Ex GP gave me a brain injury now off to the Endocrinologist..Eyes not working together.I got no clue what’s going on but my Lactate went sky high ?I had some problem with Rabdomylomis a coma -I had One Flipping Not cyst removed it was what I thought was another breast cyst ?Then ovarian cysts it totally stopped all dopamine oxygen to my brain?So I have no memory of it I was in a coma
I'm a 42 (1 month shy of 43) year old male and my prolactin levels were good at 4.9. If my prolactin is good but Testosterone level is at 233 (which is still low for my age) - would i need to do an MRI for the brain?
When I want to study I always search the subject in osmosis to get a general idea. After that I study in UpToDate. Thanks a lot for this wonderful review.
Pls guide me. My age is 36 male My prolactin level isp 10.9 FSH 2.17 & testosterone ttl 572. I face ed issue for more than 5yrs. I have checked many andrologist as well as sex therapist. No one is providing me a solution. What should i do??
Hello mam I'm 25 years old having macroadenoma prolactin level 1950 after taking dostinex for 1 month still not control and now it's 2045 please guide me why dostinex not working what should I do ?
what happens when your prolactin levels have been raised by an antipsychotic . im going through hell from paliperdrone aka invega sustenna its hell i had 4 injections of the poison, i have lost everything. ive lost my concentration, i cant think, or feel. i have no emotions. i cant concentrate on anything eg read,write,watch tv/youtube paint or listen to music. i have lost all my motivation, i cant do anything i cant even self care eg shower/brush my teeth, change my clothes. i just dont care about anything or anyone anymore, just no feelings. i havent had my menstrual cycle. i have no hunger or thirst. everything is dead, my body if not functioning anymore. my personality has gone, im dead inside. on top of it all i cant sleep, i havent slept since november 2022 that was before i had the first injection. i had two in december first one was 100mg second 50mg 2022, one in january was 50mg and one in february was 50mg . my life has been hell. its been 9 months since my last injection and no improvement. i wish i had hope i dont think i will recover from this its a nightmare, i just want to die
Thank you so much for bringing this to our attention! I will be sure to pass this along to my colleagues on the Content Team so they can check the details with our Chief Medical Officer. 😊
Me too. One month ago' 2"×4" Plus wrapped around my artery- i had a major seizure and now taking 1500mg Kerrapan us 2.5mg Brociptmine if im not mistaken. How are you doing
I had erectile dysfunction for the last 13 years... At the time of marriage I took some performance enhancing drugs to increase my testesterone and sperm count and erection and I have 2 kids all these times doctors were not able to diagnose my case 2 weeks back I saw an andrologists and he ask for my blood test and he told my prolactin level 25 ngl is too much and gave some medication. Could I recover and go back to normal erection and sex life after taking this medication as I had been suffering from this condition for the last 13 years from the age of 24 to current age 37.
@@jackyg1237 it's a very unstable hormone, even stress or waking up at the wrong time can get it as high as 50ng/mL or even higher. the guy is just getting older and thinks he can have the same erections as he could when he was a kid. that's not how life works. look for solutions elsewhere. 25 ng/mL is normal level of prolactin.
Would prolactin levels on the high end of normal be considered elevated? My fsh and lh are low, I'm not ovulating so my oestrodiol has decreased to the very low end of normal and my prolactin is on the very edge of high normal... I don't know what to make of it :( normal range in the lab is 102 - 496 mu/l and mine is 492
It's not severe to treat, but due if you have galactorrhea Or have menstrual delay, it's better to suggest doctor, and mostly they observe the severity, and provide hormonal replacement therapy if necessary
I am female I have zero clue what’s going on or if someone could tell me what’s right it might help ..All I know is vision problems working separately not together after a brain injury that stopped all the dopamine to my brain in 2016 (One Dr screwed a lot of me up )Came out on another planet periods going insane breast cyst one had to be removed eyes don’t work together but do separately .Just had a brain scan a long MRi and 2 hours later it was also my spine I have further damage this my Dopamine stopped completely oxygen stopped/Seizures a feever over 104 I don’t even know how long I was in a coma but clearly bits of me do not work .Multiple Cysts (Ovaries/Breasts had an operating on the ones in my ovaries and some sort of microwave oven experience..But my Lactate 7.4 I am nearly 48 no periods defo no baby’s I have one son ..My brother has POEMS effecting his entire endocrine system I think personally dodgy DNA in me as I have low sodium am falling over and to be honest I am absolutely exhausted
I was just diagnosed with a mircoprolactinoma and my prolactin levels were almost exactly three times higher than normal for my age. Everyone is different but I hope that helps give you an idea!
@@missylee7969 I believe the normal amount is 25 so it you were 3x it could have been around 75??? But I dnt know what I'm talking about. I'll be honest.
My prolactinoma went undiagnosed until I was 25. The doctors told me it likely started growing when I was 13. My pituitary was non-functioning for more than 10 years. I lost vision, body hair, I had throbbing pain going down the side of my head, i was jaundice, and my voice never dropped during puberty. Further, I lost all interest sexually in anyone at 15. After surgery they put me on testosterone, prednisone, and a thyroid med. I've been taking all of them for over 35 years. I've been blessed with a long career and a fairly normal life.
@@yoshtisune as the tumor had been undiagnosed for more than 10 years, it had reeked havoc on my entire person. It permanently damaged my vision. I think nowadays, if you're tumor is discovered fairly soon. Any damage done can be reversed.
Did it affect your liver?
@@kristianegauthier8381 no. However, from time to time my liver does become stressed from all the medication's that I take.
❤
please communication me
This woman’s voice and personality are awesome and perfect for these videos. Wish she did them all!
I had gynecomastia, before the surgery they found elevated levels of prolactin and of course, prolactinoma. I always wondered why I was never super interested in girls, I've had girlfriends/sex partners before. but I was never really into them. at least now I know.
Next week, I'll be seeing an endocrinologist so that I can sort myself out and start a family😇, Oh and I'm a 33 year old Male by the way.
To all who suffers from what we suffer from, let's hope and pray, but most important of all, let's all take action!
During our internship, many women presenting with infertility who also suffered from hypothyroidism, had elevated levels of prolactin. Our teacher that time, told us that this could be due to the stimulatory effect of low serum T3, T4, that augmented sectetion of TSH(from pituitary) and TRH (from hypothalamus). TRH, in it's bid to increase TSH and the overall thyroid status, also increased prolactin release that inhibited, release of FSH and LH.
How to cure this problem please
@@nylakhan5658 if hypothyroidism is suspected it should be treated with drugs so TRH-induced prolactin excess should go down
This is accurate. I currently have this issue.
Diagnosed with this at age 18. Still have it am now 21. Life’s been getting better every year though! :) i feel it doesn’t impact my life that much
Thanks for sharing!
Did you take any medications or have you done surgery in regard ?
I went totally blind in my left eye and partially un the right wye before my prolactaninoma was found. I had broken both feet, both wrists, and my humerus also. By the time it was found, it was a macronoma. Cabergoline successfully shrank it and my vision miraculously came back.
Take action before this happens to you. Several doctors missed mine. An opthomologist found it. 😢😊
So you never had surgery? Medicine can work ? Can you kindly tell me what were your prolactin levels
This information help a lot to me, a few months ago after my blood test i was diagnosed with high prolection level and started to take bromocrotine and suffer from very bad side effects from the drug
I must vehemently disagree with your assessment that micro prolactinoma is do not have symptoms. I was diagnosed with a microprolactinoma when I was 21 and I've had a huge range of symptoms that have negatively impacted my life.
ive was diagnosed with this because i had menopause symptoms,they didnt really do anything about even tho my symptoms were quite harsh...so started taking hight doses of vitamine E and b5,it helps symptoms a lot just have to be very consistent with taking them. unfortunately i have no money to treat this, and it is effecting my vision and everything else and i am always beyond exhausted,every single day... :(
Please read about the vitex herb, it can help you.
Didn’t know heavy use of antipsychotics can give you one of these things.
My doctor didn’t even tell me it could.
@Crow_mauler•Yes I found out the hard way ..Neuroleptic Malignant Syndrome..Ex GP gave me a brain injury now off to the Endocrinologist..Eyes not working together.I got no clue what’s going on but my Lactate went sky high ?I had some problem with Rabdomylomis a coma -I had One Flipping Not cyst removed it was what I thought was another breast cyst ?Then ovarian cysts it totally stopped all dopamine oxygen to my brain?So I have no memory of it I was in a coma
Very helpful indeed.
I'm a 42 (1 month shy of 43) year old male and my prolactin levels were good at 4.9. If my prolactin is good but Testosterone level is at 233 (which is still low for my age) - would i need to do an MRI for the brain?
This is the best explanation
يعطيكم الصحة ❤🥲
ايش تسوي هنا
Easily understood. Thank you.
Great to hear!
When I want to study I always search the subject in osmosis to get a general idea. After that I study in UpToDate. Thanks a lot for this wonderful review.
You are most welcome, Santi! 🥰
Superb 👍. easily understood...
Glad to hear that, Esther! 😊
Pls guide me. My age is 36 male
My prolactin level isp 10.9
FSH 2.17 & testosterone ttl 572.
I face ed issue for more than 5yrs.
I have checked many andrologist as well as sex therapist.
No one is providing me a solution.
What should i do??
Hello mam I'm 25 years old having macroadenoma prolactin level 1950 after taking dostinex for 1 month still not control and now it's 2045 please guide me why dostinex not working what should I do ?
The tumor should be removed ( in toto removal of tumor is not possible but curettage by microsurgery can give you few decades' symptom free life)
@@kaydee5639I've had two surgeries radio still have it
Very helpful thank you 🤩
You’re welcome,Ola! 😊
Fascinating, thank you!!
I have pituitary adenoma that's why I'm hhere
I also have milk coming from my breasts ,but I can’t get pregnant 😢
Excellent. Thanks a lot
Thanks !
what happens when your prolactin levels have been raised by an antipsychotic . im going through hell from paliperdrone aka invega sustenna its hell i had 4 injections of the poison, i have lost everything. ive lost my concentration, i cant think, or feel. i have no emotions. i cant concentrate on anything eg read,write,watch tv/youtube paint or listen to music.
i have lost all my motivation, i cant do anything i cant even self care eg shower/brush my teeth, change my clothes. i just dont care about anything or anyone anymore, just no feelings.
i havent had my menstrual cycle.
i have no hunger or thirst. everything is dead, my body if not functioning anymore. my personality has gone, im dead inside.
on top of it all i cant sleep, i havent slept since november 2022 that was before i had the first injection. i had two in december first one was 100mg second 50mg 2022, one in january was 50mg and one in february was 50mg . my life has been hell. its been 9 months since my last injection and no improvement.
i wish i had hope i dont think i will recover from this its a nightmare, i just want to die
you said prolactine has a negative feedback but it is completely wrong prolactin and oxytocin has a postive feedback , Please edit your videos
Thank you so much for bringing this to our attention! I will be sure to pass this along to my colleagues on the Content Team so they can check the details with our Chief Medical Officer. 😊
I was diagnosed with a giant prolactinoma, it sucks!
How are you doing now?
How r you did you find treatment
Me too. One month ago' 2"×4"
Plus wrapped around my artery- i had a major seizure and now taking 1500mg Kerrapan us 2.5mg Brociptmine if im not mistaken. How are you doing
@@asmrbynature3057 take black seed oil capsules good for tumors
Really good video very informative
Glad it was helpful! 😊
Thank you...
What if testosterone and prolactin are very low
likely you have a prolactinoma
Impressive
I had erectile dysfunction for the last 13 years... At the time of marriage I took some performance enhancing drugs to increase my testesterone and sperm count and erection and I have 2 kids all these times doctors were not able to diagnose my case 2 weeks back I saw an andrologists and he ask for my blood test and he told my prolactin level 25 ngl is too much and gave some medication. Could I recover and go back to normal erection and sex life after taking this medication as I had been suffering from this condition for the last 13 years from the age of 24 to current age 37.
Damn it i have plolactin 21.3 ng/dl could be high or just normal.
Which medecine he gave to lower prolactin
25 prolactin is normal
@@53milviewsno not necessarily in men, it’s definitely high end of the reference range depending where you come from.
@@jackyg1237 it's a very unstable hormone, even stress or waking up at the wrong time can get it as high as 50ng/mL or even higher. the guy is just getting older and thinks he can have the same erections as he could when he was a kid. that's not how life works. look for solutions elsewhere. 25 ng/mL is normal level of prolactin.
That's amazing 👏
Thank you, Amal! 😄
Would prolactin levels on the high end of normal be considered elevated? My fsh and lh are low, I'm not ovulating so my oestrodiol has decreased to the very low end of normal and my prolactin is on the very edge of high normal... I don't know what to make of it :( normal range in the lab is 102 - 496 mu/l and mine is 492
How you cure this
It's not severe to treat, but due if you have galactorrhea Or have menstrual delay, it's better to suggest doctor, and mostly they observe the severity, and provide hormonal replacement therapy if necessary
Mine is 3 191,5 Ulml so..
I am female I have zero clue what’s going on or if someone could tell me what’s right it might help ..All I know is vision problems working separately not together after a brain injury that stopped all the dopamine to my brain in 2016 (One Dr screwed a lot of me up )Came out on another planet periods going insane breast cyst one had to be removed eyes don’t work together but do separately .Just had a brain scan a long MRi and 2 hours later it was also my spine I have further damage this my Dopamine stopped completely oxygen stopped/Seizures a feever over 104 I don’t even know how long I was in a coma but clearly bits of me do not work .Multiple Cysts (Ovaries/Breasts had an operating on the ones in my ovaries and some sort of microwave oven experience..But my Lactate 7.4 I am nearly 48 no periods defo no baby’s I have one son ..My brother has POEMS effecting his entire endocrine system I think personally dodgy DNA in me as I have low sodium am falling over and to be honest I am absolutely exhausted
How high does your prolacin need to be to have a micoprolactinoma?
I was just diagnosed with a mircoprolactinoma and my prolactin levels were almost exactly three times higher than normal for my age. Everyone is different but I hope that helps give you an idea!
@@missylee7969 thank you so much. Would you happen to know he exact number? Mine os only 54.7 not sure what to make of it. I have endo and pcos....
@@missylee7969 I believe the normal amount is 25 so it you were 3x it could have been around 75??? But I dnt know what I'm talking about. I'll be honest.
@@missylee7969 I wish you nothing but the best too k! You'll get thru this.
@@Hereforthetea12 I was told the normal range for non-pregnant females is anywhere from 2.8- 29.2 ng/mL mine was 92.6 ng/mL.
🔥🔥🔥🔥
🥰❤️🙏🏼
Wow, you are amazing!, thank you, thank you so much.🤍🤍🤍
Our pleasure to help, Zahraa! 🥰❤️🙏🏼