Fighting for Fun: Disney DAS Pass w/ Duchenne
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- เผยแพร่เมื่อ 28 ก.ย. 2024
- Planning a Disney trip with Duchenne Muscular Dystrophy (DMD) can be tough, especially navigating the Disability Access Service (DAS) Pass process. In this video we share our experience advocating for Mason and Jack to get their DAS Pass and unlock some core memories at Disney World before we go to the PPMD Conference!
👉🏻 Disney DAS Pass Portal : disneyworld.di...
Disclaimer: This is not medical advice. These videos simply serve as documentation surrounding this treatment and decisions we've made, as parents, to potentially better the lives of our children.
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What's Elevidys? Elevidys is a gene therapy from Sarepta. It's the first gene therapy FDA approved for pediatric patients (4-5 years old) with Duchenne muscular dystrophy.
Sarepta has also produced Exondys 51.
HUGE THANK YOU to Sarepta (Elevidys) and the Seattle Children's Hospital!!!
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Hey! If we're meeting for the first time- We are the Bafus family, and we are starting this TH-cam channel to give hope, document our journey, and to shine light on duchenne muscular dystrophy.
For our first 7 days, we posted one video a day, documenting Mason's $3.2 million, once in a lifetime gene therapy.
You can watch that here ➡: • Mason's Gene Therapy
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We are typically private people, just like you, but this disease has forced us more into the public, and that's ok. We've learned that this is not a disease that anyone can fight alone. So we decided to take to TH-cam to help spread the message and raise awareness of this rare disease.
You can follow us here 👇
/ bafusfamily
/ @bafusfamily
#disney #dmd #familyvlog
im 19 and have high functioning autism, i STRUGGLED to get das. i did the call with my behavioral therapist, 2 healthcare professions said no so i had to get a coordinator on who got a 3rd healthcare professional that finally said yes. the entire call took over an hour ( 5 minutes waiting in the queue ). it was very stressfull for me and i love disney so much but the thought of having to do that again really upsets me, maybe it will be easier next time? so glad you got it though, DAS really does help and do wonders! i hope yall had fun :)
The DAS was definitely a game changer I agree! I also was not easy for us either they almost denied us and dropped the call before I requested to talk to a health care representative to explain the disease/autism that he experiences and had to push. I also hope we have the same luck next time. It is stressful!
I just wanted to tell our experience. We have an 8 year old daughter with high functioning autism. Applying for DAS for 1st time.
We got on @ 6:58 did the terms of service agreement and entered chat at 7 AM exactly. Answered the questions from cast member. She asked name of person for which requesting das and names of all others in the party, arrival and departure date of upcoming visit, if the person in need of das was present and if we were on a device with video and audio capabilities as we would have to move conversation into a video chat.
Then the video chat stated and she first explained the recent changes to the DAS system and that past eligiblity does not guarantee current eligibility. Then she asked out concerns. We told her of our daughters diagnosis and offered to show or email documentation, to which she said was not necessary. Then she asked what issues would extended waiting in line cause..to which we explained our concerns. She then asked if she could speak to our daughter and asked her a how she felt about waiting in a lines (which she was unable to answer as she does not do well understanding hypothetical questions). After which she said that she was approved and took her picture then took about 5-10 minutes explaining how the DAS system works and. How to use it on the app.
We were completely done by 7:20 am and so relieved as I spent weeks worrying about this. Overall it was painless and seems as though they are trained to look for inconsistency and people trying to get das who don't really need it.
I agree 😁 I’m glad you were approved!
Did you get to choose the pre selection for rides?
Did you get the ride pre selection eventually?
No actually! Apparently they got rid of that feature to pre select.
@@XinaGri they don't do that anymore
I live in the UK and we are going to Disney World and Universal Studios in 9 days time! I have primary progressive multiple Sclerosis and have had it for 11yrs, about 5 yrs ago when we last went to Disney world DAS pass was so much easier, but we will be trying to contact Disney World to see if we can get it! I’m in a wheelchair 90%of my time and my bladder can wake up at anytime and say I need to go now! And I don’t have long to hang around! Hopefully we will get in??
I really really hope so! I hope you all have a wonderful trip 😃
They no longer offer pre-selections. Glad you got approved. Thank you for letting us know that you can push a little bit in case they try to quickly turn you away. Will be applying for a toddler with autism for the first time.
I wish you luck and a fun trip!
While I’m glad you were able to receive accommodations, technically your boys don’t qualify per Disney Parks’ new policy regarding the DAS.
We were pleased that they did actually qualify for the pass as they were approved for it.
@@BafusFamilyI’m genuinely happy for you. I hope you can get as much help as you need for your children. The problem with Disney Parks is there’s a complete lack of consistency in their decision making with how the new requirements have been advertised. I meet the newly implemented requirements exactly as stated (as one of the “Guests who, due to a developmental disability like autism or similar disorder, are unable to wait in a conventional queue for an extended period of time”), yet was denied accommodation, and I’m finding out from other autistics, as well as the parents of autistic children that they’re also being denied.
Oh wow…I’m sorry to hear that. And I agree it’s very frustrating with programs like this have so many inconsistencies like this one when the qualifications are stated clearly. I really had to push for it and didn’t take no for an answer so it definitely was not easy. I agree it can get extremely frustrating and this is just one out of many!
I’m Happy you were able to get the DAS. I’ve gotten the DAS in the past for my son he’s 23 and is High Functioning Autistic. He might be denied when we go back in a few years, from what I’ve heard they seem pretty strict about giving the DAS. We just went to WDW this past November/December and my son was approved, as well as when we went in 2017 and 2010. If my son is denied we’ll purchase lightening lane single pass and the new lightening lane multi pass. You All Have Fun ❤😊
They do tend to be pretty strict so I was happy to be approved. I agree the new multi pass would be a great second option 🥰 I bet Christmas time was a wonder time to go! I would love to see it all decorated!
@@jenniferagee2450 Hopefully, they’ll have the problems since the revamp sorted out. Still apply, but don’t be surprised if you get denied.
I don’t recommend the purchase of the Multipass, though, especially if you decide to come to Disneyland. The times are artificially inflated by about 20-25 minutes depending on the ride.
there are no longer preselects, they did away with that with the changes
That is great to know thank you for that information! Makes sense 🥰
Great, because Disney says only autism
So great!
They’re denying autistic persons, too.