What 11 Common Criteria or Measures are used to diagnose Lupus?
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- เผยแพร่เมื่อ 17 ก.ย. 2024
- In this video you’ll find information on how lupus is diagnosed. I will also discuss why is takes an average of six years to diagnose lupus and the 11 common criteria or measures used to diagnosed lupus.
Please subscribe to Lupus Comforts channel for more videos on Lupus. Refer to my blog site www.lupuscomforts.com for more information.
Music credits: www.bensound.com
Sources:
- www.healthlink...
- www.lupus.org/...
- www.mayoclinic...
- www.cdc.gov/lu...
Thanks for talking about Lupus! It is SO important to raise awareness about this complex disease!
Yes it is.. Please share this video with everyone you know. Thanks and take care :)
Advise to keep up with all your medical records and take them with you to discuss with your doctor. Most docs want easy to treat patients and do not want challenging patients. Problem is..... Doctors want to test and test and test for years ($$$$$) giving all kinds of meds and never actually diagnose. By then 30 years have past and still suffering.
Good advice :)
Thank u so much for your videos, I hve been suffering ov’r 20yrs. I’ve been complaining to doctors for a long time. MCTD is not the correct diagnosis for my condition I’m almost certain. I knw MCTD can be a mixture of a lot of different autoimmune diseases but I had (8) out of the (11.)
Again, I will be getting a second opinion.
I am glad you could relate to my video.. Thank you. Yeah it is always better to get a second opinion. Most of the time our condition worsens because we keep on waiting for the doctors. Best to take charge of our condition and how we are feeling and explain thoroughly to the doctors so that they can help us in turn.
Thank you for this information. You just described my daughter perfectly. She was diagnosed with lupus recently and now can get the help she needs...🙏🏻
Glad it was helpful :)
Please have your daughter check out my TH-cam Channel SuperLoopieWoman, I talk about Lupus,Fibromyalgia and much more!
I think it is awesome for you to share this information! It helps others so much. The journey to diagnosis can be such a lonely one...as it took almost 6 years for me to get a diagnosis this year. But there really is a lack of information and awareness out here for us Loopies , so thank you 💜
I am hoping my video's can bring about awareness. Please share these videos with your friends and family so that they may understand this condition. Take care.
Fist time saw your video l have subscribed and just listening to you. I started my lupus journey for many years still no definite diagnosis as there is very less awareness l have severe dry eyes called sjorjens syndrome. Lung issues joint pain. Photo senstivity what not😩 nice to see you are sharing sending love fro. Uk
Thank you Jini.. I found it could be quite lonesome to be dealing with this condition so I thought to better raise awareness in the hopes that non-lupus sufferers can become aware of our condition. Take care of yourself and lots of love to you too.
And always have complete thyroid and parathryoid testing done, including calcium levels...as abnormal results can mimic other issues.
Yes, that is very true. We have to probe doctors to carry out these tests.
I am that 2% whose aba test is negative. Yet I have every other symptom. It has been the most frustrating thing I have ever experienced in my life!
I can imagine. Hang in there!
My rheumotologist say thst i have no problem, but my pains r really not bareable sometimes, i dont know what is going wrong with me, but i am deppressed so much for my hralth what can i do
Hi Soma, so sorry to hear you are not feeling well. Lupus diagnosis takes years so may be doctors are unable to pinpoint it to lupus. It would be best if you avoided lupus triggers and may be get your doctor to do ana and antidna tests to check your white blood cell counts, etc.
Madam i have eye uveitis for more than 1 year with joint pains with IBD, and also have ana+ test but after a month my ana became negetive, anti dsdna with other blood test, xray, ct scan, MRI were also negetive, but i have flare ups with chest pain and hradache with dizziness and fatigue, but all test r negetive, can i have lupus
Hi Soma, I am not a medical professional so cannot advice if you have lupus but your symptoms are definitely worrying. It might pay to see a rheumatologist with your blood test results. Hope you feel better soon and fingers crossed it is not lupus.
I just read a new test for Lupus came out last year for those who have a negative ANA. It is called EliA Rib-P by Thermo Fisher Scientic Inc. Has anyone heard of it? Is it out for the public? Does insurance cover it? Thank you for a great video.
I am glad you liked the video. I am not sure about this new test.
How much was your dna antibody, ESR and CRp plz?
My ESR is usually in 30s - 40s. Other tests keep on fluctuating. Hope your condition is stable.
Hi . today I have got confirmed as I have lupus..is it effect on pregnancy..nd is it life long desease. Please let me knw
Hi there, currently there is no known cure for lupus so it may last a lifetime :(. You can still get pregnant while having lupus but you could be classed as high risk. Currently I am pregnant (30 weeks) and have regular checks and blood tests. I would advice you visit your Rheumatologist and Obstetric team regularly and have regular blood tests and growth scans. Good luck :)
Hi priya lam jini
Hi Jini :)
I need to talk to you...for ur help
Hi Glinson, you may email me on lupuscomforts@gmail.com. Regards.
U r lupus patient mam
Yes, I have Lupus.
Are u from India?
I am Fiji Indian based in New Zealand :)