I love this video. Ironically, my young nephew (8) was the most understanding and enlightened person about my illness when I first became sensitive to pollution (mcs). He had no problem wearing the clothes I got for him and showering with my soaps. He would check places for safety for me etc. He brought laughter at times to the situation, frustration when laundry chemicals ruin our time outside but always kindness. Then his mother and friends made him cruel and ashamed of me and as an adult he ignores me. -In reflection, society is about being "normal" or like everyone else, consumerism and looking to authority/system in place for answers. Sadly, it's not as simple as getting in their car and driving to us to get us safe places to live, & work. The understanding is if it's real then "everyone" would say it was real instead of authority/system not acknowledging us. The hardest thing I have in understanding is why our doctors, well off people with our illness and people with illness near us don't establish a real support system.
Yes, I agree with everything you say. I think I have some understanding about why doctors don't establish a real support system. It's because they just haven't experienced anything close to it. But yeah why well off people don't help, is a mystery.
I love this video. Ironically, my young nephew (8) was the most understanding and enlightened person about my illness when I first became sensitive to pollution (mcs). He had no problem wearing the clothes I got for him and showering with my soaps. He would check places for safety for me etc. He brought laughter at times to the situation, frustration when laundry chemicals ruin our time outside but always kindness. Then his mother and friends made him cruel and ashamed of me and as an adult he ignores me. -In reflection, society is about being "normal" or like everyone else, consumerism and looking to authority/system in place for answers. Sadly, it's not as simple as getting in their car and driving to us to get us safe places to live, & work. The understanding is if it's real then "everyone" would say it was real instead of authority/system not acknowledging us. The hardest thing I have in understanding is why our doctors, well off people with our illness and people with illness near us don't establish a real support system.
Yes, I agree with everything you say.
I think I have some understanding about why doctors don't establish a real support system. It's because they just haven't experienced anything close to it. But yeah why well off people don't help, is a mystery.
Very interesting video. I hope lots of people see it and hear your message.
Thanks very much. 🙂
I totally get it my now deceed in-laws treated me like I had a common cold, suck it up, get some sleep,youll be better, do for me! Whine,whine...