Liz H's Vocal Cord Dysfunction Video
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- เผยแพร่เมื่อ 17 ต.ค. 2024
- Foxboro High School track star who ran for Boston College talks about her struggles with vocal cord dysfunction.
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This is so real. I remember suffering from this all the way back when I was in 3rd grade to now. I'm so happy to see this is being studied more!
When my daughter goes into the ER or urgent care for treatment, most of the providers have never heard of VCD. I usually hand them my phone and tell them to google it. Which they never do and proceed to try to treat her for asthma. Unfortunately, one of her major complaints is throat pain. So they think she's seeking drugs. It is such a frustrating experience for her and me too. Thank goodness her primary care doc takes it seriously. I'm so glad to hear you have overcome and learned how to live with your condition.
Our medical system is just appalling. I’m sorry you and your daughter went through that. I know it all too well.
Er has never been able to help me, only staying calm helps me when it happens
I'm 37 years old and JUST being diagnosed. I could never participate in sports because I couldn't breathe! It's very frustrating to have lost so many years not being able to breathe properly, but I'm so filled with hope knowing I might one day be able to breathe like a normal person.
Have you gotten any help for this and how are you doing? I am 37 and just now getting diagnosed as well.
@@davonsambrano1750 how are you doing now!? I randomly was talking (I’m 18) and it felt like air was getting thrown into my throat and I couldn’t speak i had to gasp for air and it happened 4 times before i could actually speak and I thought i was going to die in from of everyone! I have not seen my doctor for it but is this a symptom?
OMG! I just found what is happening with me. This is all new for me, is frustrating, I started this week with panics. The doctor run blood test and everything is ok. I think she thinks is my mind. I started to cry today because you think that you are crazy. One of my friend told me 2 hours ago about this syndrome and I googled and now I found this channel. Help me!!!!
I had the exact same asthma diagnosis when I was in 1st grade. It got worse when I was about 12. My mom always said that I was crazy, and the doctors said that if the inhaler wasn't working, to take more at a time. A year later I went to a hospital because it only got worse. They took a lung x-ray and they said that I don't have asthma at all. My mom was shocked, and I was confused. I got a lot of tests done. It was a very long process, and I was there for hours. They then told me that I have vcd. I was confused. Neither me nor my mom knew what it was and they told me that it was caused by emotional trauma and severed stress, which was kind of heart breaking. I felt like it was my fault. She then set me up with a speech and vocal therapist, and a psychiatrist. This was a few days ago. Researching and Learning more and more about my dissorder gives me hope. I'm a singer. It's been my dream and my entire life's mission to be a singer/songwriter professionally and to help people through my music. All my hope was lost when I had found out why I couldn't belt like I used to. This video helped me a lot. It gave me hope that this isn't just some incurable thing that I have to deal with alone. Thank you. ❤️
How are you now?
Thank you so much I am exactly the same with the symptoms
Thursday, I had a very abusive pulmonologist tell me that I was full of it, without even examining me. He actually laughed at me. I went home devastated and nearly skipped my allergist appointment the next day. Friday, an allergist said she feels almost certain I have VCD and that the ER was right both times: I also do have asthma (pediatrician thought I just had bronchitis from age 1-15 and never tested asthma). Seems like younger doctors recognize conditions and older doctors just pull a face at you and say you're faking being out of breath. I've been breathless and yawning/gasping for 10 years. Yawning and sighing for 15 years. Was always very active and athletic, so people think you're full of it if you can move around but can't breathe. I even had gone to a therapist for 5 years who felt 100% certain something was physically wrong. Doctors also missed a Dx of EDS-H on me all these years. Finally I'm getting my life back. Good video. It's always good to see someone else who describes feeling how you feel.
I also have hEDS and can totally relate to having to experience the ineptitude of our failed medical system! I’m sorry you’ve been through this. I just went to the ER and they did absolutely nothing for me - I think it’s likely VCD as it’s not responding to my asthma meds.
Also, took a bunch of strangers on the internet to help me figure out in my 40s that I have hEDS, POTS, Lyme and MCAS. It’s so unbelievable what people go through trying to sort out what’s wrong with them!!
Thanks for sharing some positive hope for us.
It's been suspected that I have this for years but the thing that kind of annoys me is that no one talks about how agonising it is. Makes me wonder whether I'm misdiagnosed cause that's the main feature
I get spasms in my throat after singing like real painful spasms it's so painful I can't even explain. Keep looking but can't find anything to know why :(
I had paralysis vcd from an incubation in 2009. I kept telling the Dr's and Nurse's something wasn't right. or should I say whisper because I had no voice to talk with. they did not believe me. One month after I left the hospital I found myself back interested hospital with the worst infection surrounding my vocal cords and throat. My oxygen was so low I was suffocating to death. After three antibiotics and steroids to get the inflamation down I was released 4 days later. I was told that both vocals were paralyzed and that I will have stridors for the rest of my life. (adult form of croup). If my vocals wake up they will in 6 to 12 months, otherwise they will remain paralyzed. I have to say they are both awake but I do not speak in the voice I remember and I am not the singer I once was. I don't think I will ever sing again but I would like to get a goo deep breath of air and go for a walk one of these days.
Did this problem go away for you carrie? Did the cords wake up?
hello, I have vcd and was hoping you could help me out and answer some questions I may have?
Hi, because of HIPAA privacy issues that best thing to do is to contact our office directly.
@@vcdandvoice Do you do telemedicine for this?
Thank you for sharing this.
I’m 23, and I’ve been suffering with this for 9 years (started at 14). I was born with asthma and as a child I had to use a nebuliser. In my teenage years I didn’t manage my asthma on my own, my father was responsible for that. At 14 I began to feel these symptoms, shortness of breath, constantly clearing my throat, tightness in the throat, unable to get enough air into my lungs... and one of the worst ones is the constant need to yawn. When I turned 16 I started smoking (idiotic, I know). I continued like this until I was 20. It was at that age I knew that this wasn’t mere asthma.. but every visit to the hospital/doctors was met with “you’re fine” or an asthma exam... which always came back 100% fine. I’m still struggling with this condition, and the only thing that keeps me anywhere close to normal is avoiding triggers (cigarette smoke is the biggest one).
I need help and I don’t know what to do. This condition isn’t taken seriously where I live in the UK. I feel hopeless and when I’m at my worst I feel suicidal. I wish I could get the treatment that she has gotten.
I just wish I could be normal again.
Qualedog yeah it is depressing. I'm 64 years old and it feelsike your going to die from short Ness of breath.
Extremely, in a sense its slightly comforting to know that im not isolated.. but at the same time its hard not to be down when you go through this every hour of every day. I live in Northern Ireland and the condition is seemingly unknown here.
Hi how are you doing? I’m afraid I might have VCD now and I’m just wondering what it feels like? Do you feel your throat tight constantly? Like you can’t get enough air in?
i’m 14 and i was also born with asthma, my asthma is uncontrolled and i have flair ups frequently. recently i’ve noticed different symptoms similar to the ones you’ve mentioned, i’m starting to think i might also have VCD along with severe asthma. “i just wish i could be normal again” this really made me tear up because it’s so frustrating not being able to breathe and not being able to do anything about it. it’s currently 5:40am in the U.S rn and i haven’t been able to sleep because i feel suffocated. I wish you and everyone else suffering the best of luck💗
Goodness maybe I have same - thought it was asthma but doesn’t respond so puffer really. Thought it was then GERD - still might be......otherwise this may be my problem. Will go through with doc and see what comes of it
I hate having vcd
Me too!!!😒
Hi ma'am. i've had VCD for quite a long time, i guess its been 10 years now. all these years i thought i have asthma and im just keeping up with my inhaler. i've done breathing exercises recently and it improved the way i speak and had helped me relax. i really thought it (my vcd) was totally gone and i stopped doing breathing exercises. And now it came back :( it affected my job and the way i deliver my speech or in expressing myself to other people through speaking. i've tried to seek for professional help and look for a voice/speech therapist but i found none. I'm from Philippines and it seems that we lack professionals like u here in our country. So i wrote you this message hoping that you could help me in some way. Maybe you can share some breathing exercises for me..something that you've taught your students. I dont have the financial means to pay you. But i am hopeful that you will help me.
Thank you.. more power and God bless. :) looking forward for your response.
Kate Hojilla hi, I was wondering if you ever had progress with your vcd? or any help?
Oh my god! Dude as soon as she said I felt the urge to constantly yawn it was like the first time I've ever felt something so confirmed. I've been having this issue for the last couple years and I just recently found out from my asthma specialist that I have vocal cord dysfunction. That was about a month ago and for some reason she didn't prescribe me any speech therapist to help me practice with breathing exercises so I've just been going off of whatever I could find on TH-cam which obviously I don't think is the right way to do it.
Hello, I may be able to help you with your breathing issues. Please fill out our contact form on our website:
speechandvoicetherapycenter.com/contact-us/
I'm in medical school and I was taught PCVM in one paragraph. This is a very interesting disorder and I've been watching YT videos on it. Would love to see some live examples so I can recognize it when I see it. This is mostly a psych disorder like irritable bowel syndrome or conversion disorder.
The Larson Maneuver stops Laryngospasms. It's often used by anaesthesiologists on extubation: th-cam.com/video/eIdWRYOQenQ/w-d-xo.html
What I noticed, this is pretty common around people who do sports/training. I guess for all that heavy breathing and exertion, overtime, it requires your muscles or your breathing into a more effortful breathing.
I have the same symptoms, I went to get tested and they said I don't have vcd
I have the worst case of VCD. It was developed from GERD Gastro esophageal Reflux. A silent attack from acid reflux that goes into my lungs hurt my vocal chord and closed and prevent me from exhaling. VCD is a problem of exhaling while asthma is a problem of inhaling ( that’s the difference). I wish to hear more people who are suffering from the same problem. My Pulmonologist said, it’s a very rare case. There’s no treatment. Only breathing exercises. He sent me to Speech therapist and I also did Yoga for more breathing exercises. If you want to hear more, just let me know. To all with VCD, hang in there.
porsh quez I have the same thing but my reflux is so bad that I have to get my stomach removed to stop the reflux. My daughter also has reflux and vcd.
It's actually the opposite. Asthma is a condition which creates problems exhaling, VCD creates problems with inhalation. But nonetheless, im sorry you're going through that.. but I need to ask.. are the breathing exercises helping? do they make you feel normal? my biggest fear is that there is nothing at all that will help.
Yes
@@CoachSeamus you said everything I wanted to say. Please let me know if there is anything to help guys.
How long did you have to take antacid for it to go away? My kid has this really bad and it’s horrible it’s been years now and no help at all.
How is Liz now 8 years later?
I’m curious too
It's amazing when they get it right I used to get dizzy
What is pb FM?
I think you mean PVFM. PVFM stands for Paradoxical Vocal Fold Motion which is another name for Vocal Cord Dysfunction (VCD).
Thank you! I heard it as PBFM as well, I wondered why I couldn't find anything on Google.
Please help me. My shortness of breath is constant I do occasionally have a sore throat I was diagnosed with Gerd I’ve been to a pulmonologist a cardiologist the ER countless times and they have found nothing wrong with my heart and lungs I brought up vocal cord dysfunction to a doctor and he said he doesn’t think I have it. My question is Ken vocal cord dysfunction cause shortness of breath all day and made worse by inhaling smoke and fumes because that seems to happen to me a reply would be very appreciated I’m in a lot of pain for years now
@@forgivemylaughterihaveacon2556 hey I’ve been having the same issues post covid. I joined a VCD group on FB and many people have shortness of breath all day. They feel like they can’t breathe pretty much all the time. I’m the same situation now due to covid
@@vl2663 TY TY TY I didn't even think of that!!! Great idea.
I have to take your appointment soon
This is me