ARV Fatigue explained | It gets the best of us

แชร์
ฝัง
  • เผยแพร่เมื่อ 7 ก.ย. 2024

ความคิดเห็น • 515

  • @damalienagujja4793
    @damalienagujja4793 3 ปีที่แล้ว +224

    My sister has been on ARVs for thirty year and she has never been admitted in any hospital for any case of illness.

    • @a.muchemi4360
      @a.muchemi4360 3 ปีที่แล้ว +4

      After 20 yrs refusing to medication in started and I feel so tired

    • @lionheart.5983
      @lionheart.5983 ปีที่แล้ว +1

      @@a.muchemi4360 are yu stil taking it?

    • @janetomari2405
      @janetomari2405 2 หลายเดือนก่อน

      Did you say 30?it's absolutely God's grace

  • @tuwilikaelias9664
    @tuwilikaelias9664 3 ปีที่แล้ว +243

    3 days ago, I woke up tired both emotionally and mentally from taking my ARV’s . Thank you for sharing, knowing that somebody else understands what one goes through is comforting..💜💜

    • @justinamusyoka4986
      @justinamusyoka4986 3 ปีที่แล้ว +8

      Hope you take plenty of water and exercise.

    • @justinamusyoka4986
      @justinamusyoka4986 3 ปีที่แล้ว +5

      Last meal should be at least 2 hours before retiring to bed.

    • @mumjoy4091
      @mumjoy4091 3 ปีที่แล้ว +5

      Hugs dear🤗

    • @molebohengmoletsane1297
      @molebohengmoletsane1297 3 ปีที่แล้ว +16

      My 17 year old cousin was born HIV positive. Her Mom told her when she was 15 and up until then, she was taking her meds well. The problem started when she turned 16 I believe. She stopped taking her meds and now her health is deteriorating and she's starting to develop sores all over her body and in her mouth so she can't eat and she's losing weight drastically. Things got so bad last year December that her Mom started to actually bathe her. I love her so much and I just want her to be ok. She actually told me that she's tired of taking treatment because she's been doing it all her life. Guys ke kgathetse hle. I've even resorted to bribing her with metarial things just for her to take her treatment but dololo help.
      I just wanted to vent😭😭

    • @justinamusyoka4986
      @justinamusyoka4986 3 ปีที่แล้ว +3

      @@molebohengmoletsane1297 its good showing concern and empathy.
      There are times i declined taking meds due to frustrations so its good to encourage her and show love.She may end up turning negative.
      I know its hard to understand for those born with the virus than those of us who got infected and can tell the difference.
      Peace to your family.

  • @mamimom2082
    @mamimom2082 3 ปีที่แล้ว +88

    Everyone from Africa is supposed to subscribe to this channel!!!!! This is literally a support group!!

  • @redeemablesoul
    @redeemablesoul 3 ปีที่แล้ว +21

    Im tearing up🥺🥺🥺i just want to tell each and everyone of you infected by HIV that im sorry for what you are going through..I want you to know that the Joy of the Lord is your strenght.Nozi is the best

  • @phindykhumalo6202
    @phindykhumalo6202 3 ปีที่แล้ว +88

    I started a support group of adolescents born with HIV in 2016 and pill fatigue is sooo real. These adolescents have been taking medication their whole lives and it really does take a toll on them. Thanks for this video and thanks for the reminder 'we live to fight another day'

    • @221800000
      @221800000 3 ปีที่แล้ว +4

      Hey. Where are you based I have a niece who would actually use your support group

    • @221800000
      @221800000 3 ปีที่แล้ว

      Hey. Where are you based I have a niece who would actually use your support group

    • @phindykhumalo6202
      @phindykhumalo6202 3 ปีที่แล้ว +1

      I am based in Durban, ZA. My support group is based in Northern KZN.

    • @ncumisamzondi6898
      @ncumisamzondi6898 3 ปีที่แล้ว

      Yhooo Sisi I work at the clinic as a Data capturer it breaks my heart to see these kids suffer from taking these pills

    • @zandirachael8326
      @zandirachael8326 3 ปีที่แล้ว +8

      Hey. Don't you know such support systems for adolescents born with HIV. I am a nurse by profession and have a beautiful niece who is in her adolescents, she is taking her treatment well but I feel like she can use support system or seeing that there are some of her peers who go through what she is going through. If I could, I would take her status and carry the burden for her.
      I just want to make her life more easier

  • @sukumackenzie8054
    @sukumackenzie8054 3 ปีที่แล้ว +44

    In this day and age there is absolutely no reason to stigmatise HIV thankyou for this channel..you helping many ❤🙏🏽

    • @mncedisidlaminibenya7479
      @mncedisidlaminibenya7479 3 ปีที่แล้ว +1

      off Couse now it is better if everybody knows his status thanx to Nozi she's so brave

  • @nolufefesiko7870
    @nolufefesiko7870 3 ปีที่แล้ว +80

    I had pill fatugue when i was pregnant. Taking pills everyday can be really tiring. Love and light to everyone who is on chronic medication 😊❤

    • @hildadhlakama2339
      @hildadhlakama2339 3 ปีที่แล้ว +3

      Thank you for mentioning chronic medication. I take pills for diabetes and sometimes it's emotionally draining

    • @chimfwembedipa9531
      @chimfwembedipa9531 2 ปีที่แล้ว +1

      Does the fatigue end , am going through the same thing in my pregnancy Nd the diarrhea is becoming even worse, I really want to know if it ever ends

  • @zimasamanyotsha3899
    @zimasamanyotsha3899 3 ปีที่แล้ว +63

    I can listen to this woman all day and night ♥️😔

    • @khuselwabeaulahngece3404
      @khuselwabeaulahngece3404 3 ปีที่แล้ว +2

      Me too yhaz

    • @losper5291
      @losper5291 3 ปีที่แล้ว +2

      Yoh I can not find a comment section on my page..She made me feel so strong and not afraid anymore🙏🙌

  • @Drceliwe_dada
    @Drceliwe_dada 3 ปีที่แล้ว +116

    Me when I saw a treatment defaulting patient before I met Nozi "heeee sisi, umhle kangaka mfazi, why are u not taking treatment? Wenzani? Ufuna ukuzilimaza? Ufunukufa?" 🙌God forgive me. Even though I would say it playfully and with all the humor in me. I now know it was completely rude and insensitive. Iam a much better person because of you NozNoz❤️❤️

  • @yonelisazide1819
    @yonelisazide1819 3 ปีที่แล้ว +35

    Oohh Nozi, thank you for this. I had a lengthy discussion with one of my family members over the holidays, his "why can't I be like other kids?" broke me💔 He is exhausted and hates his pill time. I wish my whole family can listen to this.

  • @nokukhanyahadebe9511
    @nokukhanyahadebe9511 3 ปีที่แล้ว +60

    My partner is diabetic and before I got all this knowledge (thanks to you sis Nozi) I couldn’t understand why at times he’d say he doesn’t want to take this medication. Mind you this is someone who lives with insulin and on top of that was prescribed pills. I guess all I’m saying is that you’re helping us all over. God bless you and uSkhu 🥺

    • @nozukogysman3073
      @nozukogysman3073 3 ปีที่แล้ว +4

      Tjooo that's a tough one cc coz the moment you go off I sulin it goes up. Sometimes I even get lazy to check my sugar. It's not an easy one.

  • @ygalada
    @ygalada 3 ปีที่แล้ว +21

    Pill fatigue doesn't discriminate, I take bipolar treatment, some days I intentionally pretend to have forgotten to take them, cause hubby always checks. 💛💛💛

  • @nozamuxolodlephu5968
    @nozamuxolodlephu5968 3 ปีที่แล้ว +26

    I'm on Arvs since 2018 i even lost my merrige because of ndaba honest to my husband so wathi ize nam so ndamyeka wahamba isendim nangoku with my Arvs tanks Nozie sana uyasikhutaza thina yhazi luv u

    • @thembiecele1397
      @thembiecele1397 3 ปีที่แล้ว +1

      Ewe inyani bavesane bakuyeke hle kubuhlungu

    • @saramoyo4807
      @saramoyo4807 3 ปีที่แล้ว

      If your husband left because of your honest disclosure, then he was not worth it. God bless you!

  • @writingpad7142
    @writingpad7142 3 ปีที่แล้ว +20

    I really needed this. I carried the burden 4 14 yrs that I was not enough 4 my mum to take the pills to stay alive, even just 4 me (her only child). I also know on my more mature days that it was not about me, and it was her choice, for her life... still sad. However listening to u could give me a tiny incline of her mindset at the time... I miss her... but it was her decision to make... even though it feels like the wrong one (being the 1 left behind all alone)... ur a shinning star and so is ur hubby

    • @lihlemokgalaka4548
      @lihlemokgalaka4548 3 ปีที่แล้ว +1

      @Writing Pad Axactly the story of my life. My mom past on 3yrs ago. Being the only child left behind is a very sad thing but with God's grace I'm taking it one step at a time. Thanks a lot

    • @lateshiabrooks2180
      @lateshiabrooks2180 3 ปีที่แล้ว

      God bless u!

    • @Nah.ImCool
      @Nah.ImCool 2 ปีที่แล้ว

      And this is the part you don't hear in the HIV/AIDS discussions. Sometimes I think that if my friend had told me he was dealing with this I could have encourage him to take his medication and keep living. His first wife passed almost 10 years before him. They had 4 children. He passed it on to his 2nd wife who is undetectable. He just gave up and stopped taking the pills. Maybe it was the daily reminder the pill(s) would bring. I'll never know.
      It pains me when I hear people say, "Oh, it's treatable. I'll just take a pill." They don't realize that that's a pill until further notice. Furter notice may be a loooong time for most. I'd rather not. Know your status. Know the status of your partner. Stay safe out here.

  • @cnaearl1413
    @cnaearl1413 3 ปีที่แล้ว +53

    Sending light to the infected and the affected ♡

  • @motlatsilinamohlamonyane4398
    @motlatsilinamohlamonyane4398 3 ปีที่แล้ว +26

    This is so informative Sisi. Last part is when you say you need to give the person peace of your mind but then you say it is better to move on and heal. This is forgiveness I preach for you to heal and get better. Unforgiving as another things that cause unnecessary stress. 💕❤️

  • @lekholokoelekotsoanamoloi9593
    @lekholokoelekotsoanamoloi9593 3 ปีที่แล้ว +9

    Thank you . Please always take a firm stand against the thoughts of suicide

  • @AmantleMapoka
    @AmantleMapoka 3 ปีที่แล้ว +11

    this video is helping me grieve the loss of a loved one who passed on at the height of the pandemic last year. i was so resentful that they were refusing medication. but this is giving me some much needed clarity. thank you.

  • @Thari_Manhissa
    @Thari_Manhissa ปีที่แล้ว +4

    I absolutely love how transparent and vulnerable you are in your videos, you're genuinely so authentic and refreshing. I am negative but have often been on the end of being judgemental and selfish expecting people to fight even when they were tired. My uncles also passed from cancer, so did my grandpa. This changed my perspective entirely

  • @user-sk4uk5ml7o
    @user-sk4uk5ml7o 3 ปีที่แล้ว +10

    Nozi keep it up girl you are truly chosen by God to touch so many lives all over the World ❣️ and you are truly blessed to have Skhu. True love have no limits, may God bless you both 💐🙏

  • @tfa4782
    @tfa4782 3 ปีที่แล้ว +24

    When you realise that 95% of the video was addressed to those affected not necesarily infected. Thanks for this amazing content.

  • @TheWoolfordFamilyLove
    @TheWoolfordFamilyLove 3 ปีที่แล้ว +183

    Does anyone else like before they even watch cause you know it’s going to be good love you Nozi 🥰🥰

    • @ladybee4044
      @ladybee4044 3 ปีที่แล้ว +3

      Lmfao I just did and drove straight to the comments while waiting for the advert to finish 🤣🤣🤣🤣I loooooooooove her so much.

    • @irenekubheka9502
      @irenekubheka9502 3 ปีที่แล้ว +1

      Thanks beloved , Ve3 good communication skill, l really applaud hands for the courage to help others with this valuable information. You need to start a foundation sothat this knowledge will be impacted to those affected and infected physically, emotionally, and even psychologically., You have vast knowledge and information which needs to be known by others, because in hospitals there isn't enough time to reinforce effective communication.

    • @nandintutyu5077
      @nandintutyu5077 3 ปีที่แล้ว

      Thank you ❤️❤️

    • @princephiri5251
      @princephiri5251 3 ปีที่แล้ว

      Send me your line please

    • @lisaskepe_Amisu
      @lisaskepe_Amisu 3 ปีที่แล้ว

      Yebooo

  • @nolusizodlalisa5573
    @nolusizodlalisa5573 3 ปีที่แล้ว +16

    I totally understand....I can't even take my post pregnancy vitamins everyday, and I need them because my body feels weak. Taking any pill DAILY is a lot of work.

  • @afro-swedishfamily2677
    @afro-swedishfamily2677 3 ปีที่แล้ว +22

    I cant help it but admire the way You look in this video. Love from a fellow African living in Sweden

  • @siphosethumjiwu1223
    @siphosethumjiwu1223 3 ปีที่แล้ว +48

    Heey treatment kunzima bafethu I’m not on ARVs Kodwa hayi sana it’s struggle taking my antidepressants so I fully understand the pill fatigue thanks Nozi I relate

    • @tinyikoubisi2402
      @tinyikoubisi2402 3 ปีที่แล้ว

      I started mine 2008 but I never get used to it even today. Sometimes I feel like giving up everything 🙈

    • @bridgetsiyothula4915
      @bridgetsiyothula4915 3 ปีที่แล้ว +2

      @@tinyikoubisi2402 I also relate, I started antidepressants same year or 2007 if I'm not mistaken, I got tired in 2017 and decided to stop, guess what I went back 2019. I have just accepted that this could be the part of me my whole life. Pills are really tiring.

    • @tinyikoubisi2402
      @tinyikoubisi2402 3 ปีที่แล้ว +1

      @@bridgetsiyothula4915 is program like this where we can encourage each other, knowing that you are not alone is really helpful. Mega love for you guys.

  • @tatendamusinahama3781
    @tatendamusinahama3781 ปีที่แล้ว +4

    Tjo! You are so strong! You are powerful. I could see the pain and passion when you were talking about your experience. This is another layer that people never talk about or think about. I hope to God that I am not going to sound like I am stigmatising, but a lot of young people are engaging in risky sexual behaviour because they think if they get HIV, they can simply take pills and live long healthy lives. This is not a walk in the park and I wish love, power and light to everyone going through this journey

  • @gugulethuzwane5530
    @gugulethuzwane5530 3 ปีที่แล้ว +13

    You made me cry Nozi when you shared of your Father's chemotherapy...I went through the same with my mom...the water in the lung ( same)...you are a strong woman and you make me strong each time I listen to you...keep up the good work...love u girl

  • @odwaduka6760
    @odwaduka6760 ปีที่แล้ว +1

    You are so pretty, your skin is flawless, your energy is amazing, May God continue bless you

  • @MissLegodi
    @MissLegodi 3 ปีที่แล้ว +16

    I've honestly fell in love with this lady not only her stories but everything 😭may God bless you I'm honestly touched

  • @pearlmore595
    @pearlmore595 3 ปีที่แล้ว +4

    I have listened to a lot of people talk about this but this one is at another level. I'm learning.

  • @therealkamogelom
    @therealkamogelom 3 ปีที่แล้ว +44

    Hehe sesi Nozi yaz am really not lying when I say your the xhosa version of me struu.some of your story its exactly wat happened to me the years oh Nkosi yam😄😄😄aaiii shem we wer meant to be social media friends I promise you....when u started ur meds how it happened its exactly, ur cd4 count yooo haaai only God knows.
    I remember I had pill fatigue 2018 and my bf at that point coincidentally called me and found me crying and I was like bra am tired this everyday pill its starting to bore me but he begged me and calmed me down hey ever since my son helps me remind me EVERYDAY...

    • @bongimacanda3425
      @bongimacanda3425 3 ปีที่แล้ว

      Thank you Nozie, i love yoy❤️❤️❤️

  • @lebozungu2301
    @lebozungu2301 ปีที่แล้ว +1

    I literally teared up here. Support is key only when you trust. Losing a parent to Cancer does not help either. Thank you for this video

  • @sibongilegome1205
    @sibongilegome1205 3 ปีที่แล้ว +15

    Thank you for speaking up and teaching so much. It is very much appreciated. Continue doing the good work♥️

  • @pheladithobakgale3509
    @pheladithobakgale3509 3 ปีที่แล้ว +13

    I found this very motivating, besides the chronic illness issue, it's also about fighting for one's wellness, healing and being kind and understanding to other people and the decisions they take. Thank you, felt the passion and fight

  • @keabetsoemokoka2235
    @keabetsoemokoka2235 3 ปีที่แล้ว +3

    Hey sister, may you continue sharing this could help many of us, affected and infected, we should learn not to be quick to judge. I salute you my sister.

  • @womenaftergodsheartsarah5677
    @womenaftergodsheartsarah5677 3 ปีที่แล้ว +13

    Every video I watch i learn something new from you nozi..love from Namibia

  • @sinethembaxaba1201
    @sinethembaxaba1201 3 ปีที่แล้ว +46

    Having a romantic partner that uses your status as an excuse to cheat, its the stigma for me, and difficulties in finding love, I'm exhausted. Thank you for this post sisi

    • @portiaseekola9365
      @portiaseekola9365 3 ปีที่แล้ว +5

      People do that? Hai thats terrible. Don't worry you'll find the right guy whose wise and who'll love all of you♥️💕

    • @onlybuhle
      @onlybuhle 3 ปีที่แล้ว +19

      Leave him please! If Nozi could find Skhu there’s hope for you too sis

    • @AboutZinzi
      @AboutZinzi 3 ปีที่แล้ว +3

      That's awful. Love and light, baby. You deserve better❤️❤️

    • @nolusizodlalisa5573
      @nolusizodlalisa5573 3 ปีที่แล้ว +13

      Yhu, uyanya that person. Ugh, imagine someone deciding to be disloyal on their own and then blaming their partner, highest level of trash.

    • @keshebileonekbmorwe3163
      @keshebileonekbmorwe3163 3 ปีที่แล้ว +7

      Leave plz, cheaters uses any excuse

  • @ashleyndliwayo5695
    @ashleyndliwayo5695 3 ปีที่แล้ว +14

    "I am you, you are me" ...I felt that🥺💞

  • @cookingwithphindile4525
    @cookingwithphindile4525 3 ปีที่แล้ว +1

    What a brave girl you are, talking about this frowned upon topic. Your video is very insightful. Thank you for being compassionate and brave. I pray for everyone affected by this killer disease.
    Taking medication can be challenging 🙏. Love from🇿🇦🇬🇧🇳🇬

  • @TshepiVlogs
    @TshepiVlogs 3 ปีที่แล้ว +25

    I decided to do TH-cam too about infertility I know what u saying from me taking any kinds of medicine trying to get my periods back I got exhausted we learn a lot from you sis wam God bless

    • @princephiri5251
      @princephiri5251 3 ปีที่แล้ว +1

      I love you

    • @TshepiVlogs
      @TshepiVlogs 3 ปีที่แล้ว

      @@princephiri5251 thank u I appreciate you 🫂❤️

    • @wisdomEmah1998
      @wisdomEmah1998 3 ปีที่แล้ว +1

      Meds can be tiring. I also started my on TH-cam to motivated myself and another's

    • @wisdomEmah1998
      @wisdomEmah1998 3 ปีที่แล้ว +1

      Just subscribe

    • @wisdomEmah1998
      @wisdomEmah1998 3 ปีที่แล้ว

      @@TshepiVlogs thank you sister and good luck to you too

  • @siskazikekana5819
    @siskazikekana5819 3 ปีที่แล้ว +2

    Nozi Sisi, you are Gift, you so right I always tell people when they would say why didn’t one said so my response would be , would you love that person less or more. Let’s just love one another as God loves us.
    As for cancer my mom went through that and when she said NO I was the one who told the Dr and family that let’s continue to love her.
    Having conversations with my mom, her mother passed on when she was very young she prayed to God to see her grandkids jonga she saw them even the 2months one from her last born , We all started late 2 have kids ngenxa yam 1st born. I used to tell her @ 60yrs I can go home, wathi thina ekhaya we live until 70yrs unless it’s accident. Last year Aug she turned 70yrs October she rested🙏🏾❤️ Prayer and Love. Ndiyanithanda

  • @busisiwepakade3924
    @busisiwepakade3924 3 ปีที่แล้ว +16

    Awusemhle as always, dear. Thanks for this video, you help us to understand by balancing the different perspectives. I could not understand why a family member didn't want to continue with treatment, thanks to you, I know better now. She is still alive, I will humble myself to her & make things right. Forgive us, guys, we did not know the depth of your pain & struggle.😭😭😭 Please find it in your hearts to forgive us. Sicela uxolo.

  • @samanthamoonga9587
    @samanthamoonga9587 3 ปีที่แล้ว +7

    How I wish my brother watched this video before he passed on...due to stopping treatment for the third time.

    • @Jameson161
      @Jameson161 หลายเดือนก่อน

      the very first time I started seeing testimonies about you Dr Abiola, I had that full confidence in you that I even purchased your medicine, my HIV test was tested negative, now I'm so happy that I could finally say thank you so much #DRABIOLAHOME for your hard work care & encouragement you really are a God sent and i appreciate you #drabiola

  • @msshayflorida
    @msshayflorida 3 ปีที่แล้ว +3

    My God this woman is so powerful with her words 🙏🏾♥️… Nozi you are truly God sent. I recently found your channel not even a week ago and I have almost watched every video you have posted and my God you are so motivating and watching your strength gives me so much strength ♥️ The topics that you touch on are so on point. Praying for your continued strength 🙏🏾

  • @zanelebukali2638
    @zanelebukali2638 3 ปีที่แล้ว +11

    I don't care about the mental part if I have to take medication for my health and saving my life I choose life with my kids. My youngest is three their father went MIA they only have me so the fatigue can miss me😏

  • @khululwagxekwa9578
    @khululwagxekwa9578 3 ปีที่แล้ว +10

    Listening to your videos makes me stronger Sis' Nozi and also seeing someone who encourage us about any kind of sickness it's really supportive.💕💖

  • @thandoshabalala8193
    @thandoshabalala8193 3 ปีที่แล้ว +11

    Thanks sisi being in this line of work gives a different perspective. We always call patients judging why they missed their appointments, this shows there are more factors involved.

  • @Hulisanir
    @Hulisanir 3 ปีที่แล้ว +9

    I can relate! Being on TB treatment and having to take 3 tablets does something to you. The side effects really mess up with the mind.

  • @previous633
    @previous633 3 ปีที่แล้ว +17

    Nozi, I understand sisi. I am diabetic and I am taking 7 pills a day.

  • @tmash6732
    @tmash6732 3 ปีที่แล้ว +2

    You are brilliant Nozi, everything you said in this video is very correct. Thank you.

  • @afikafanti
    @afikafanti 3 ปีที่แล้ว +7

    This video helped me understand so much and release anger and resentment that I didn’t realize I was unfairly holding onto. Thank you 🙏🏾

  • @christianmaterial2417
    @christianmaterial2417 3 ปีที่แล้ว +24

    I sat next to my friends bed begging her to take her pills, while trying to keep my voice down because if her family heard they would have shouted at her. I did not understand her sometime, but i was always on her side, i didn't want her to be shouted at. So i came up with an idea of grinding them into a powdery for so she can atleast drink them.

  • @ntombisiro
    @ntombisiro 3 ปีที่แล้ว +5

    This video was so emotional Nozi. And when you spoke about your FATHER my heart just broke💔.
    HIV is really a difficult journey.
    Thanks you for being such an important VOICE for both the affected and infected 🤗

  • @beulahhishono6002
    @beulahhishono6002 3 ปีที่แล้ว +9

    Sis Nozi, I can’t thank you enough for what you are doing. I truly thank God for your positivity, we are learning a lot. (Healing is not base on someone else but you) This is deep. Thanks sis❤️

  • @tandompobole1645
    @tandompobole1645 3 ปีที่แล้ว +63

    Public clinics are sometimes the reason why people can't take their pills. Sometimes you do get tested without pre-counselling they'd say "if it has to lines your hiv positive, if not you are negative" and that's not counselling.

    • @nelisiwemakhubu8208
      @nelisiwemakhubu8208 3 ปีที่แล้ว +2

      Very true

    • @moemo4016
      @moemo4016 3 ปีที่แล้ว +16

      Even with the stigma..I mean why not put the ARV where everyone get their medication,that way no one would know that those going that side have virus..and the more people would be free to take their medication when they are ready..I think docs need more training too,n even thou sometimes whites annoy,but I think their plan, and consideration when it comes to dispensing ARV's should be adopted

    • @Magcuda
      @Magcuda 3 ปีที่แล้ว +1

      TRUE

    • @benevolencebandawe5015
      @benevolencebandawe5015 3 ปีที่แล้ว +4

      It happened to me dear and l was supper scared .thank God the results came out negative

    • @asanori7415
      @asanori7415 3 ปีที่แล้ว +1

      Totally true

  • @ayavuyapapiyana7968
    @ayavuyapapiyana7968 3 ปีที่แล้ว +5

    I love you sis❤ I am not affected/infected but you have impacted & changed my mindset for the better.

  • @robinnahnampiima7275
    @robinnahnampiima7275 3 ปีที่แล้ว +1

    Yoo girl you really a greater teacher this is not only about sharing is teaching old woman iam on high blood pressure but I am struggling twice a day but sometimes I remember after three days than my child your very Educating May almy protect you 🙏

  • @siyethabakito
    @siyethabakito 3 ปีที่แล้ว +5

    I love you and your channel so much 😭❤️. This is that safe space. I watched this video last night and I couldn't comment because I was just crying. I got my diagnosis last year July. I started taking my treatment last year in August. Three months later I stopped because wawu 💔. I was not emotionally and mentally prepared. I don't think I am even now.
    Thank you for your message ❤️❤️

    • @thanyanimafune5927
      @thanyanimafune5927 3 ปีที่แล้ว +2

      Don't give up

    • @sukumackenzie8054
      @sukumackenzie8054 3 ปีที่แล้ว +1

      Starting and stopping is dangerous sisi don't give up on life yet

    • @mapeshzn
      @mapeshzn 3 ปีที่แล้ว +1

      ❤️❤️

  • @mbalimavuso8735
    @mbalimavuso8735 3 ปีที่แล้ว +7

    Thank you Sis for the work you doing. These stories are not told. I am learning to be more Sympathetic 🤞💐

  • @kegobotjeng6447
    @kegobotjeng6447 3 ปีที่แล้ว +3

    Thank you. The explanation for the value of patient support for the terminally ill is on point. True, it’s not about the caretakers but the patient. My late brother had cancer.

  • @naledimphomane4886
    @naledimphomane4886 3 ปีที่แล้ว +7

    This is powerful and very educational. Thank you so much

  • @ashleighhassan3281
    @ashleighhassan3281 3 ปีที่แล้ว +8

    Thank you soo much for this it has really motivated me i feel like your HIV story is almost the same to mine

  • @ncumisamzondi6898
    @ncumisamzondi6898 3 ปีที่แล้ว +5

    I love watching you. I'm working at the clinic and try to support people even though I'm not a nurse. I sometimes help those ask me to bring them their treatment but the problem I'm experiencing is that some start thinking that you taking treatment as well. For me it's easy to try and support as my mum was always open about HIV please help me

    • @busisiwehlophe3422
      @busisiwehlophe3422 3 ปีที่แล้ว +1

      Let people think what they want to think,it's okay wena God put u there for a reason n let HIM use you

  • @khanyisazinto7664
    @khanyisazinto7664 3 ปีที่แล้ว +9

    I could listen to you all day, you speak so well.

  • @elsiesidumo7693
    @elsiesidumo7693 3 ปีที่แล้ว +1

    Wow this is so powerful and very helpful. I am so grateful for the opportunity to have crossed paths with your institution of teaching us on how to embrace the fight against the diseases we face. Chronic diseases are taking a toll on many levels of our lives. I have learned so much. Love you lots 😘❤️❤️❤️💐🌹

  • @makwenamonica5414
    @makwenamonica5414 3 ปีที่แล้ว +2

    You r such a brave and young woman 🙌🙌ur bravery made me to go and test as I feared for my status

  • @makepecaroline7488
    @makepecaroline7488 3 ปีที่แล้ว +2

    I totally hear you dear, I have been taking medication for diabetic & high blood pressure for years.the painful thing is when you take the medication it reminds you that by the way you are the sick one & that tiring. Thank you sis at least you not the only one who get tired some time,love you

  • @Kai-Malachi
    @Kai-Malachi 6 หลายเดือนก่อน +1

    I’m glad I found you.❤ need the advice & support. Going on 5 yrs. Meds for bipolar & ARV’s = have med fatigue 💊 🥹

  • @katynyambi
    @katynyambi 3 ปีที่แล้ว +2

    Woooooow......just landed on this amazing video yhuuuu I am touched.
    Thank u so much sis for this amazing video 💗💟" You are me and I am You"
    Four years later still healing and chose to keep it to myself than sharing with family and seeing that person sometimes brings the flash backs of betrayal in the most unexpected way!
    But heeeeey now we live to fight another day and sis is slaying and happy 90 % of the time🥰🥰💗

  • @gobuamangmotswasele2864
    @gobuamangmotswasele2864 3 ปีที่แล้ว +11

    Huuuuu sisi i thank u for this info cos i was feeling so frastrated when my niece didnt want to take her ARV but now i understand her feelings

  • @Officiallychloi
    @Officiallychloi 2 ปีที่แล้ว +1

    Glad you’re doing well sister keep winning in life. Take advantage of the good years that you have ahead of you.

  • @phumlamokoena6127
    @phumlamokoena6127 3 ปีที่แล้ว +10

    ❤️ A very touching and important topic to cover.. Greatful for the info and support to many🙏🏼

  • @tsheporose9439
    @tsheporose9439 3 ปีที่แล้ว +4

    Thank you Cc for sharing and opening this platform, for us who haven't yet disclose..

  • @ZeeInterpretationz
    @ZeeInterpretationz 3 ปีที่แล้ว +8

    I lost someone 8 months ago because they didn't wanna accept their status. I did everything I could to make them see there's more to life than their status. I had literally force them to take the pills but no they refused.

  • @fikilendlovu220
    @fikilendlovu220 3 ปีที่แล้ว +2

    You are so brave my sister I love you so much especially when you thetha Isixhosa 🥰yo voice is killing me Big up girl and stay blessed 🙏

  • @sthembilelushaba6483
    @sthembilelushaba6483 3 ปีที่แล้ว +3

    Thank you Nozi, for inspiring many lives.

  • @gracekolane3703
    @gracekolane3703 3 ปีที่แล้ว

    Thanks very much for your time and your encouragement I sometimes wants to quit taking my medication and I think of my kids.

  • @nomsyshongwe5622
    @nomsyshongwe5622 3 ปีที่แล้ว +33

    I wish my grandmother could see this video and understand kutsi sengikhatsele.... Yoooh, honestly, nothing bores me like taking my treatment. I've been living with HIV for 10 years and yooh, my word, it's the most annoying part of my life.

    • @user-sk4uk5ml7o
      @user-sk4uk5ml7o 3 ปีที่แล้ว +2

      Stay strong sister, you look amazing. When you give up , you will be giving up your life. About 70% of Africans are on treatment you are not the only one.❤️

    • @dineonkwane2276
      @dineonkwane2276 3 ปีที่แล้ว +1

      May the Lord continue to give you strength to take the pill, sending you lots of love and hugs❤️

    • @sifisojele4000
      @sifisojele4000 3 ปีที่แล้ว

      @@user-sk4uk5ml7o True dat

    • @sifisojele4000
      @sifisojele4000 3 ปีที่แล้ว

      Hang in there baby girl - all is well.

    • @oyamadumela9466
      @oyamadumela9466 3 ปีที่แล้ว

      Hang in there 💗

  • @mahadisunflower
    @mahadisunflower 3 ปีที่แล้ว +12

    I just want to say,thank you.🥺🙏🏼❤️

  • @tebogombalate5937
    @tebogombalate5937 3 ปีที่แล้ว +4

    Thank you sis, now I know am not alone. Thank you so much. And to think now I have a support system that is not judgemental. I love you so much you are my pillar 💪strong because you are hear for me

  • @sontosimelane3990
    @sontosimelane3990 3 ปีที่แล้ว +4

    Thanks Nozi, this shades light on how we could support our loved ones. We should really be supportive & understanding and how to offer more support.

  • @nomsantsoane3984
    @nomsantsoane3984 3 ปีที่แล้ว +1

    It is beautiful how I see myself in Nozibele. Her past and her life and what she went through. ❤

  • @yvonnegaywood5487
    @yvonnegaywood5487 ปีที่แล้ว

    Thank you mis your video help me a lot you are a strong woman God bless you

  • @motshidisimolefe7228
    @motshidisimolefe7228 3 ปีที่แล้ว +3

    Thank you Nozi. You are empitomy of power and strength.

  • @nhlaksmkhz1892
    @nhlaksmkhz1892 3 ปีที่แล้ว +6

    Thanks Nozi but that's true i started taking ARV's from 2005 and sometimes I get fatigue and if that happens i skip taking it. Yooh! its so boring knowing that I will leave them the day i go to the grave

  • @mvulohmthiyane6186
    @mvulohmthiyane6186 3 ปีที่แล้ว +2

    Thank you for educating us 😘🙏may the good Lord gives you strength every day ❤️

  • @janesibanda1003
    @janesibanda1003 3 ปีที่แล้ว +2

    Thank you for you encouragement I liked you from the day one I saw you on TH-cam.I like thi saying "I am you and you are me" good encouragement that

  • @hazelnxumalo4230
    @hazelnxumalo4230 3 ปีที่แล้ว +3

    I love you Nozi you’re a strong girl may god keep blessing you and your husband

  • @mamahnita
    @mamahnita 3 ปีที่แล้ว +4

    I do not have HIV but I know about taking alot of meds daily.
    I'm a diabetic I take 3 different injectable meds and 8 pills a day and it is a headache but must be done for me anyway.
    I also lost my mother from lung cancer so I know what you went thru.
    I test for HIV every year and I am not active in a relationship but i do it anyway.
    I will pray for you and all that have HIV.

  • @writingpad7142
    @writingpad7142 3 ปีที่แล้ว +1

    Thank u 4 this video. My late mother only took the pill once. She said they gave her bad dreams, and so she never took it again. 2 yrs later she was dead from an opportunistic infection.

    • @moshididitshego2472
      @moshididitshego2472 3 ปีที่แล้ว +3

      @Writing Pad I’m currently going through the same thing. I’ve tried to convince my mother otherwise. She’s left the pills so many times and I suspect she’s left them again. I now have an idea of what she is going through, because I always thought I should give her tough love. You know give her reasons to take the medication. She even said that if she didn’t have us (her kids) she would gladly go to her ancestors. I found out that my late dad infected her when I was asking why she was taking pills, and she shouted “because your father infected me with HIV”. This happened probably in 2013-14. I honestly was in so much shook, I didn’t process it. Thought she had just said that to hurt my feeling. Now that I’m a lil older, I can understand why she always lashed out at me, because I remind her of my father. I honestly love my mother even thou she has a lot of healing to do, but thank God I did some sort of Psychology so I can understand and see when she is emotional. But honestly I’m stuck. I feel stuck. I’m depressed. I mean it’s just a mess. I don’t know what else to do. But I still pray and ask God, but I feel like God is preparing me. I literally will not have any parents if she leaves me, but I now understand that it is not about me. That’s a very hard pill to swallow. I feel like I’m allowing her to give up😢

    • @writingpad7142
      @writingpad7142 3 ปีที่แล้ว +3

      @@moshididitshego2472 babe, it's just not easy hey. I used 2 fantasise about crushing it up and putting it in her food. My mum scared me, so really I wouldn't have dared, even if I knew where she kept them. She was so stubborn, just like that, just one night and her mind was made up. I was just 19 and really did not understand the implications of her simply not taking them. I knew nothing about the virus. I often wish I had had the internet then (14 yrs ago), a channel like this might have saved her life. I wish I had spoken up and tried to give her tough love like u did (well done), but I was scared of her temper (she also lashed out at me). & I also did not want to scare her. As I watched her become thin and wither away, we just did not talk about the elephant in the room. I wish I had spoken up, shouted at her, called a doctor... anything. But my immature brain saw it best to stay quiet (and I was sooo scared myself because of lack of knowledge). With hindsight, I'm not sure what difference I would have made even if I had, she was a scientist. She made medicines in the lab, and still refused. I'm basically an orphan now as dad was always a ghost. Life is so sad sometimes. I would happily swap details with you so I can just be ur support when u want to tap into it (email me info@wordsmithpad.com). Even God himself can't prepare you for losing your mother. It hurts soooooo bad, all these years later I'm still depressed about losing her. Especially as it felt like she committed suicide. Your mum will not join my mum anytime soon! She will find her strength, forgive your dad as best she can, and accept her reality. Then she will live to be an old woman and look after her grandkids. I will be praying, I don't want no1 else to feel that pain 'unnecessarily'... much love x

    • @khanyisilemadungandaba5912
      @khanyisilemadungandaba5912 3 ปีที่แล้ว

      5yrs on the pill and still get those bad dreams .

  • @sphiwe_yinkosi
    @sphiwe_yinkosi 3 ปีที่แล้ว +3

    We live to fight another day sis Nozi🙏Enkosi for your powerful words

  • @moemo4016
    @moemo4016 3 ปีที่แล้ว +1

    Now I understand.thank u for this.I mean panado alone get me tired and it's for few days,imagine the rest of the life..I can only imagine..Bless u

  • @noxolo_n_msibi2261
    @noxolo_n_msibi2261 3 ปีที่แล้ว +5

    I really get it when you say it's not always about us but I still have a problem with people who doesn't wanna use a protection with negative people, knowing very well how tiring it is to take medication, like we must always feel bad for them but they just don't see anything wrong about that. I understand living with it is not easy but not wanting to use protection and lie about your status is something else.

  • @ziziphomaqungo4605
    @ziziphomaqungo4605 3 ปีที่แล้ว +35

    Dropped everything I was doing ❤️❤️

  • @FKWABABA
    @FKWABABA 3 ปีที่แล้ว +17

    Unsolicited advice: Ginger is a source of Zinc, if you put it into an extractor and take a shot of ginger is an excellent alternative, as opposed to taking meds/pills.

    • @thandolwethu
      @thandolwethu 2 ปีที่แล้ว

      An alternative to which meds, @Lufe?

    • @Nah.ImCool
      @Nah.ImCool 2 ปีที่แล้ว

      Just sh8t up. I saw that with all the disrespect possible. Ginger/Zinc is NOT an alternative to antiviral medication.

  • @zaneleorneliabila6092
    @zaneleorneliabila6092 3 ปีที่แล้ว

    Siyabonga cc keep on encouraging people may God grant you with love and blessing ❤️❤️❤️more marato nozi

  • @xolelwassimpleliving9219
    @xolelwassimpleliving9219 2 ปีที่แล้ว

    Yho. Am supporting my sister in EDUTYWA. She struggling mentally. It’s difficult. Thank you Nozi. I will be less frustrated with her.

  • @kehumilerankgomo5931
    @kehumilerankgomo5931 3 ปีที่แล้ว +2

    Thank you Nozi.. You are Godsent to soo many... Love you lots🥰

  • @abelphakathi2288
    @abelphakathi2288 3 ปีที่แล้ว +8

    Very informative Nozi , please school us about HIV tests and their accuracy

  • @unathimahlabela128
    @unathimahlabela128 3 ปีที่แล้ว +7

    Keep us informed sis..We apreciate you🥰🥰🥰