Eosinophilic esophagitis (NORD)
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- เผยแพร่เมื่อ 14 ต.ค. 2024
- Eosinophilic esophagitis, or EoE, is a chronic food allergy associated digestive disorder in which people have large numbers of eosinophils in the esophagus.
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Before this was a recognized condition I had this. It was horrible! Thankfully I found out what I was allergic to and I have been symptom free for almost 30 years.
What were you allergic to
@@Kim-ss5bb I had a strange hobby of breeding non pest species of roaches for insect collectors. I developed an allergy to them.
Can you tell me what your most common symptom was? I get terrible spasms in my esophagus and nothing is working
@@Ashpleeeease that was the most common, couldn’t even swallow water. Also bloating and nausea.
Have your doctor check your eosinophil level, if it’s elevated it’s possible it is due to an allergy.
I’ve just been diagnosed, what should my next step be?
There needs to be more research done on this!
I was diagnosed at age 15, and now, 13 years later, as a pharmacist, and someone who overcame EoE autoimmunity without any medication, and I think I can offer immense insight. I urge you to explore the carnivore diet, more specifically, what I'd recommend, is carnivore plus carbohydrates such as white rice or sweet potatoes. Thick meats like steak reveal the underlying inflammation, but they don't actually cause it. The cure hides where the cause resides, and for me it was gluten that was making me highly inflamed. I will upload a video soon to my channel, a complete guide, for sufferers of EoE. This condition has taken so much from me in the front end (i.e., shyness, social anxiety, light-level autism, etc.) but offered so much more on the backend, on the other side of that struggle.
@@JasonActualization I was just diagnosed and had heard good things about the carnivore diet. I’m honestly looking forward to any insight you can share.
@@JasonActualizationI’m now gtube dependent and meat will not go down my gtube no mater how long I blend it or how much water I add
I have an infestation of mycotoxins (mold) that I believe have caused my EOE anybody else?
@@ProfNoGoodbeef has been incredibly good for me!
I’ve had this for as long as I can remember.
It has been terrifying, and the worst for me is a surging pain in the diaphragm. Turns out my esophagus was so inflammed that apparently, the diaphragm itself began cramping/spasming from my throat’s attempted contractions. Very painful.
I can’t speak during these episodes from the sensation of choking and pain. So the best I can do is give someone a thumbs-up that I’m okay.
BY ALL MEANS I must avoid oats and potatoes. Thankfully a PPI was prescribed to me and it’s somewhat helped.
But honestly,
living a mostly normal life. Just taking the proper steps and it’s really not all that bad if approached diligently
Having eoe and trying to find what’s causing it is the DEFINITION of uncertainty!
Be aware of: wheat, rice, soya, milk (caseine and lactose), all preservative and cellulose, eggs, all the other gluten free grains.
Just got out of the ICU tonight after a ruptured esophagus and they diagnosed me with this!
Ruptured esophagus? Yikes! Did they just stitch you up? How does that get treated?
After 20 years of symptoms & several Upper GIs I was dx by a very smart GI physician. Eternally grateful to her
And what was the treatment exactly?
@@hamadbinramis7160 I was recently diagnosed and prescribed Jorveza and a PPI (Lansoprazole). Since then my swallowing has improved drastically, I can now eat any food without fear of an impaction.
Hey can you please tell what was the treatment because I am facing this problem from past one year so please tell me what you can do and what not to do plus what was the diagnosis of it for you
@@yashdukiya7480 You need to have an endoscopy with biopsies to measure the eosinophil count in your esophagus.
Look up the 6-food elimination diet (cut out dairy, wheat, soy, eggs, nuts, and seafood/shellfish). This can be used to identify your triggers.
Treatment wise, budesonide has worked great for me.
@@yashdukiya7480 honestly, prednisone or another steroid would work best for your esophagus and help close the gastroesophageal sphincter so the acidic stomach contents won’t constant regurgitate
Very nice….. treatment needs to be updated and more specific about food allergens gluten, shell fish, and which are the most common
I was diagnosed today. Did both endoscopy and colonoscopy
I was diagnosed 13 years ago, I highly recommend making it your life mission now to determine what is causing the underlying inflammation. Let me know if you need any help (gluten was my personal kryptonite).
@@JasonActualization bro I was diagnosed with this today only. I got food stuck on my throat which is really scary. My question will you die form choking because of this? Also what cured your from EOE?
@@owenyey It's very scary and has happened to me many hundreds of times, I hate for others to have to experience this themselves. Try to eat only red meat and white rice for a week and see how you feel. We need to get a handle on your immune system which is attacking itself and creating inflammation. We will add foods back sequentially once your inflammation is under control.
@@owenyeythere’s no cure there’s only treatments
It's crazy you can eat certain foods for years n years and not know you actually have become allergic to some of the same foods you been eating for decades.
after a year of symptoms I finally got my diagnosis. Hopefully medication will help.
same here...
How long do you have to take pump inhibitors ( cuz long term it causes problems with nutrients absorption) how long to take the steroid ( long term steroid causes life threatening complications)
I just was diagnosed with this. This past month. My esophagus was very narrow during Edg. I already had 2 terrifying choking episodes. I was a failure to thrive baby so I wonder if I've had this my entire life. Given a steroid right now and trying to alter my diet.
Hwz ur esophagus now
Please reply.?
Just got diagnosed, I don’t know what I’m allergic to , will skin allergy test help?
No, even if the results are negative it slcan still be cause by those main foods
Had a similar question, my dr’s answer was no.
No, because those are two different systems which process immune system differently. Now as to why the
immune system is different in those two regions… that’s a question to ask an immunologist possibly.
What may become an allergen blip on your epidermis/dermis may not be an allergen to the tissues within your throat, and Vice versa.
My input on allergies is this, since I also have this condition and trying to help out:
Try to make a list of which foods you’ve noticed have the highest risk of an episode. Try to avoid those foods, or at least eat them very slowly and in small, small bites.
If you don’t have one already, try a PPI. They can help.
love it you make too easier to study, thanks
Happy to help, Jana! 😊
All my food testing came back negative. It’s so frustrating.
This happened to me.. I had to take liver test
first of all thank you so much for sharing this video! helped a lot with reviewing gastrointestinal diseases. I have one question though.. how do proton pump inhibitors help treating the disease? I mean what's the benefit of it as it's - as far as I know - reducing the production of stomach acid (treatment of reflux)? thanks in advance! greetings from austria :)
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I know this is months after you asked, but thought I’d answer anyway in case you didn’t find out.
You’re right, PPI’s decrease the production of stomach acid by certain cells in the stomach. The reason it’s used as a treatment in EoE is mainly to help prevent further damage to the esophaghus. While the stomach acid is not the cause of the inflammation in itself, if there is any acid reflux, this can further inflame the affected tissue, thus increasing the number of eosinophils that are recruited to the area, making any difficulty in swallowing even worse than it already was.
They actually had a pretty decent effect in my case for a good few months before symptoms started to worsen again, meaning I had to progress to steroids on top of the PPI.
Hope that helps
@@caleb_dume thank you so much for giving me a reasonable explanation :) all the best to you
Diagnosed in 2nd grade and have been fine for a while
I recently was diagnosed, does it correlate to my breathing issues potentially? My workouts are non existent now :/
People with EoE have a higher incidence of allergic comorbidities.
I just had a biopsy to evaluate for EoE
❤how long does it take for results to some
what was your result???
I just had an biopsy to see if I have EoE , but it will take up to 3 weeks , I pray I don't have it .
@@mkc-x8e 3 weeks
As a Person with EoE I can confirm IT SUCKS
Me too
@@cyruschai3531 Let me know if you either of you two need any help controlling your symptoms, I was diagnosed 13 years ago, went on to become a pharmacist after being diagnosed, and then during my schooling, learned how to eliminate the inflammation without any medication.
@@JasonActualization I would be interested my son is dealing with this if I can help him without medication I’m all for it
@JasonActualization my son just got diagnosed this week with EOE. What do you recommend? He is 6 y/o...
I totally agree.
thanks very much for this video. its amazing. i have a EoE, i live in Spain.
You're welcome, Carlos! 🙏🏼
i got it too, suffering since 2014, have no clue what I'm allergic to after food allergy test. Thank you for the explanation, from israel ! :)
Most welcome, Sherez! And thanks for sharing! 🙏🏼
Try eliminating the most typical triggers for a month as a test; dairy and wheat.
Hi, I'm looking for an opinion from you. A year ago I was diagnosed with EOE, with 25 eosinophils. After steroid therapy I had a complete remission, but given the complications of candidiasis that it caused me, I interrupted the treatment and tried therapy with proton pump inhibitors, but my Eosinophils at the end of the therapy were 30. I have always been left between 20 and 30. I decided to do the 6 food elimination diet, but after 8 weeks my eosinophils became 100, and 50 also in another part of my esophagus. Could anyone give me their opinion on how this was possible. The only explanation I can give myself is that during the diet I was eating too much of a food to which I am allergic. I await your opinion too.
Which 6 food u eliminate in ur diet.????
Having sensation of a lump in the throat/ a bit of tightness,/ and a feeling of needing to yawn a lot very gradually coming on after eating something, last about an hour or 2, goes away, and maybe comes back a little bit later?
Is THIS consistent to eoe?
We are not alone
when your diet has all the allergens🥲
Same I looked it up, now what am I supposed to eat 😭
@@atkshow2111 how are you feeling , have you figured out allergens?
0/10 experience. Would not recommend. After burbing up acidic stomach content for 30 min ive induced vomiting and that seems to have cleared thing up. Anyone taking anything other than Prilosec for this?
My son has this condition it’s awful
how is your son doing ?
I had an "EGD" test done today, and they are going to check in a biospy if I have "EoE"
I hope it will be negative
My baby has it too he was born with it , was diagnosed at one when a rush to the er for severe vomiting after introducing milk and and more foods . Turns out he’s allergic to everything in the food group even soy and peanut. He has been prescribed dupixent weekly injection to allow him to eat regular foods and reduce inflammation
Does he feel a sensation of a lump in the throat/ a bit of tightness,/ and a feeling of needing to yawn a lot very gradually coming on after eating something?
Sodium and low stomach acid high ph
I have terrible allergies
Yeah me too. Environmental allergies and asthma are commonly seen in folks with EoE. Let me know if you need any help controlling your symptoms, I was diagnosed 13 years ago, went on to become a pharmacist after being diagnosed, and then during my schooling, learned how to eliminate the inflammation without any medication.
@@JasonActualization
Hi,
Can you please give me some advice treating EoE?
I was diagnosed about six months ago, followed six foods diet prescribed by doctor, but meanwhile I haven't seen much of improvement.
My main symptom at the beggining was (and still is) chest pain and throat pain when swallowing (very rare, once in 6 months).
Can you tell me is it ok for me to consume coffee, chocolate..., I miss those two the most...
@@goranmicic937 100%. It will be easier on another platform if you're able to search Instagram for example and DM me there, or search for my Email address on my TH-cam channel here. So just to clarify, you are only getting throat pain once every 6 months on average? What about slowed/difficulty swallowing? Also, how often do you get chest pain? Any acid reflux?
Med students everywhere thank you haha
Happy to help, Mac! 💖
@@osmosis Can you help ? how do you heal acid reflux and heal esophagus ?? Thank you .
She does sound a little bit like Siri, doesn't she?
I cant eat chicken rice, steak or most meats
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