Let's Talk to an Adult with GMFCS Level 4 (Severe) Cerebral Palsy: Meet Rachel , Part 1
ฝัง
- เผยแพร่เมื่อ 5 ต.ค. 2024
- I am so excited for you to meet Rachel. She is a 30-year-old with Level 4 Cerebral Palsy (CP) on the Gross Motor Function Classification System. She has quadriplegia with an athetoid component, with significant physical involvement in her arms, legs, and trunk. She needs assistance for bed mobility. She needs to be spotted closely to sit and typically has support. She needs at least her hands held to stand. She can walk short distances with trunk support or in a supportive walker with assistance. She uses a power wheelchair for daily mobility. She had repeated eye and hip orthopedic surgeries. She did not have a rhizotomy or other tone-modifying surgery. She is quite intelligent and delightful. She has a graduate degree in social work and looking for employment in clinical social work so she can help people like her. She lives with her family. I was her physical therapist in her teen years and early 20s. This interview is broken up into 10-15 minute segments.
If you have difficulty understanding her speech, turn on the closed captions. They are accurate.
Watch her playlist for future segments.
• Interview with Rachel ...
My website is www.pediatricPTexercises.com My Facebook page is Pediatric Physical Therapy Exercises. Do not hesitate to contact me at amysturkey@gmail.com with questions, concerns, or favorable reviews! Please note I am unable to provide treatment recommendations for a child I have not personally evaluated.
I also have available 6 children's educational books addressing Autism, Down Syndrome, Cerebral Palsy, Attention Deficit Hyperactivity Disorder, Anxiety, and Encopresis and Enuresis. I now also have 3 professional books "Pediatric Physical Therapy Exercises for the Hips," "Pediatric Physical Therapy Exercises for the Knees, and "Pediatric Physical Therapy Exercises for the Ankles." If you have questions or suggestions, feel free to contact me at amysturkey@gmail.com. Please note: I cannot provide treatment suggestions for a child I have not personally evaluated.
I am so honored to have people from all over the world watch my videos. I have reviewed and corrected the closed captions for this video so that you might understand what I am saying even if you don't speak English. I hope the directions below are helpful to you.
To turn on Captions, click CC in the bottom or top right corner of the video
To choose a different caption language:
At the bottom right, click Settings. It looks like a wheel.
Click Subtitles/CC.
Select a language.
If the language isn't listed when you click Subtitles/CC:
Click Auto-translate.
Select a language.
Of course, if the captions are in the way of viewing the details in the video, you can always turn them off in the bottom or top right-hand corner of your video screen.
Here are the links for my books on Amazon:
"P is for Poop and Pee Accidents"
www.amazon.com...
"A is for Anxiety"
www.amazon.com...
"A is for Attention Deficit Hyperactivity Disorder"
www.amazon.com...
"C is for Cerebral Palsy"
www.amazon.com...
"D is for Down Syndrome"
www.amazon.com...
"A is for Autism"
www.amazon.com...
"Pediatric Physical Therapy Strengthening Exercises for the Hips"
www.amazon.com...
"Pediatric Physical Therapy Strengthening Exercises for the Knees"
www.amazon.com/...
"Pediatric Physical Therapy Strengthening Exercises for the Ankles"
www.amazon.com...
As a parent of a grade 5 non verbal child, it is frustrating that people associate difficulty speaking or non verbal as an intellectual disability. Also, her story of diagnosis is not unique, it is more the rule than the exception. My son had a birth injury and nothing positive was said and we had to fight tooth and nail for therapy. Great series and its a pleasure to view this and see her story.
Thank you for adding your story and kind words
Wow! Rachel you are a badass! To have faced everything that has been thrown at you, head on, and yet still achieve a Masters Degree, and, want to spend to your life helping others...that, is the embodiment of real strength! Thank you so much for sharing your story! You are a true inspiration! Keep doing great things! I'll be rooting for you!
100% agree!
I love hearing stories from people like Rachel. It makes me smile and cry both at the same time. Seeing and learning how they've been able to overcome some of the most difficult obstacles in life and still able to do what they do, she's so strong, I can only wish to have the strength and integrity she has. Such an inspiration and I i hope to God that she stays strong and grows even stronger. Such an amazing woman.
So happy you liked the interview. She is getting stronger all the time, even still!
She is very sweet, bless her. I had tears in my eyes watching this. Never take things for granted. I wish that human technology can solve CP, or at least minimize it greatly. I wish that I am powerful enough to help people like her.
You sound like an amazing person. I wish for more people like you
Hi to everyone.My daughter is with CP level 4. She was born at 26 , Emma is an identical twin.
Rachel you are a very special girl, a fighter 🤗☺️
Love from Ireland.
Love your videos,Amy. Thanks for your work.
Thank you for your encouragement and your support!
Thank you so much for listing this. I have a 2 year old that was born at 27 weeks and had a grade 4 brain bleed. He is also mostly blind. It was very encouraging hearing Rachel’s story and gives me a lot of hope for what my son is capable of.
I love hearing that!
My grandson was born at 29 weeks, with a PVL grade 1, and I watch all the videos and do the exercises with my grandson. It's just now 6 months old but has not been diagnosed. I just do all the exercises I can with him, including our hot tub turned down to 97°. 😊
How blessed your grandson is to have you
Wow this is so interesting as my grandson was born at 27 weeks and had a grade 4 brain bleed on right side and a grade 3 on left side. I watch your TH-cam as trying to get in therapy is a nightmare. He is 15 months old and we have been trying since 7 months to get him even evaluated. I work with him everyday. Even though he “looks normal “ I’m not sure if anything has effected him I do know he doesn’t sit on his own or crawl yet. Thanks so much for all your videos!!!
You are so welcome. I I’m glad these videos are helpful for you.
Maybe this sitting playlist will help you
th-cam.com/play/PLAkJbMrHyKjMV5czJ3ZRd6JWW8Joh3qgH.html
I'm learning so much about CP by watching your interviews.
Wonderful!
Hey Rachel, you're amazing! Congrats to you on your MSW! You are proof that we can do anything we put our minds to! I have CP as well (level 2/3) and have an MPH! I enjoyed hearing your story and think you would make a great life coach/peer mentor! I did not have an ounce of difficulty understanding you....for everyone out there reading this...understanding US is not hard at all, just listen, be a friend, and be supportive! May God bless you, Rachel, in everything you do. - Melissa
Thank you for your kind words. I will text this to Rachel
❤ thank you for this video. My daughter has CP and CVI and its nice to hear and adult talk about their experience with cp since my daughter is only 4 yo and can’t tell me things yet.
That makes me so happy. Thank you
I was searching for Zach Anner to see how he’s doing and was drawn in by Rachel’s friendly smile. Thank you for sharing your personal story.
She is so engaging
A really interesting interview and great series. Thank you so much Rachel and Amy. Looking forward to seeing you for the next part of the interview.
You wil enjoy this series!
Blessings to you, Rachel. You are a force of nature.
You are exactly right
Hi Rachel i have Cerebral palsy as well. How do you deal with pain and muscle spasms. Do you have any experience with Baclofen pump. What exactly wheelchair do you have? Take care and good luck😍
I let her know that you had these questions.
I can tell the her mind is very good her mobility is affected
Her mind is great! But she is very physically affected
Nice video ,Keep on Rachel
Thank you!
Piekna,inteligentna dziewczyna niepoddaje się,zasluguje na wielki szacunek społeczeństwa ktore ją otacza❤
Absolutnie się zgadzam
Racheal you are a strong soul ♥️
She is
Go, Rachel!!! 👍👊🙌
Yes indeed!
Rachel is so great!
She is phenomenal
I can also dressed myself and brush my teeth and to the bathroom myself and no surgery.
Feel blessed!
I don’t know why she was diagnosed until 18 months old I believe the earlier you are diagnosed the better change u have walking. That s very disappointing
Frustrating isn’t it
😊 have you heard about the new robotic device called Trexo?
Yes. I saw it demonstrated at a Peds PT conference
I try many physiotheary but no one give to good result
I am so sorry to hear that. Keep looking
Maybe this playlist can help. I wish you and your son the best
th-cam.com/play/PLAkJbMrHyKjOdH92UyJNlOHbB_bIvOsnk.html
If this is level 4 (severe), what is my neighbor, 19, who cannot even speak (grunts only, some drooling) and seems far worse than this woman? Serious question
She sounds like a Level 5
@@pediatricPTexercises Thanks, I just assumed a level 4 (severe) was the "worst". I think my neighbor understands far more than I initially gave her credit for but her caretakers have never said a word so I'm left with trying to figure it out as I engage with them when her and caretakers ride around the neighborhood in their golf cart. For all I know, she understands 100% of everything. I'm guessing the best way to interact is to include her in conversation and assume she understands. It's obvious she does understand things but is it 10%? 50%? 100%? Wish I knew.
Starting a conversation sounds like a good first step
How to head control my child plz tell nd help me
Here is my head control playlist. Maybe it can be of help for you:
th-cam.com/play/PLAkJbMrHyKjNf7b1x0fPKdDimNNG2zfPj.html
Nice reachel
She was awesome in this video
I have 11 surgery
That is a lot of surgery
Hey there you have a good day you’re beautiful woman
I will let her know
Hay there so how is she doing I would like to talk to her if it’s ok OK with her❤️
@@RobertWells-o7p she does not typically speak to people that she does not know. But I will let her know.
Why you have CP
She said, “I had a brain bleed at birth that caused the CP. Basically like a stroke but at birth.”
My child 5 1/2 old he is cp and mr child
I am so glad you found my channel
As a. parent
???