SOT for Bartonella (Supportive Oligonucleotide Therapy)

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  • เผยแพร่เมื่อ 19 ต.ค. 2024

ความคิดเห็น • 81

  • @BartonellaBabe
    @BartonellaBabe  3 ปีที่แล้ว +2

    → SHOP MY MERCH HERE: bartonella-babe.creator-spring.com
    ✩ Thank you for supporting my hard work and my channel!
    ✩ 25% of all proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. To donate directly to the Bartonella Project donate via this link through the Bartonella/Vector Borne Disease Research Fund:
    securelb.imodules.com/s/1209/giving/plain.aspx?sid=1209&gid=214&pgid=3813&cid=6343&appealcode=LB000278&dids=3869&bledit=1&sort=1&fid=6343

  • @TruthSeeker410
    @TruthSeeker410 8 หลายเดือนก่อน +2

    RIP Jake! 😢❤ your dedication to educating us on this disease is so appreciated. Your insight and contributions will be missed. Prayers to the family.

  • @peggyburress8837
    @peggyburress8837 8 หลายเดือนก่อน +3

    I was diagnosed by a VIBRANT WELLNESS test which gives pinpoint specificity as to the strains of Lyme and other tick-borne illnesses. This is the test needed for the S.O.T. treatment to work. This after 28 years of failed diagnoses of multiple doctors.

  • @trainsdawgz
    @trainsdawgz 3 ปีที่แล้ว +14

    I appreciate your information! We need people to ask these questions. I have Chronic Lyme 5 years. I went by the science with cancer treatment success before getting my SOTs for Lyme. No coincidence...I don't think...my life is so much better 1.5 years after my Lyme SOT. I pray for a valid cure for these tick borne diseases! 😊

    • @bigshoots1181
      @bigshoots1181 2 ปีที่แล้ว +1

      How many sot's did you get for it? Are you still feeling better? Symptom free?

    • @trainsdawgz
      @trainsdawgz 2 ปีที่แล้ว +2

      @@bigshoots1181 I have been exposed to many different Lyme species which I am working on a successful strategy with my doctor. That part is going well. With Bart. I have Bart H. I just had my second SOT last week. Things are going well. It's important that Borrellia Burgdorferi be treated and taken care of before doing the SOTs for Bart as Burgdorferi is the worst of the infections. Then Bart is easier to deal with. That strategy worked well for me. Zero Bart symptoms now.

    • @bigshoots1181
      @bigshoots1181 2 ปีที่แล้ว +2

      @@trainsdawgz that's great news! I've heard of ppl doing bart sot with Borrelia because borellia alone causes bart to flare, did you experience this?

    • @trainsdawgz
      @trainsdawgz 2 ปีที่แล้ว +1

      @@bigshoots1181 I never experienced any herx or flare reactions with any of my SOTs. 🙏

    • @Hmy8799
      @Hmy8799 ปีที่แล้ว +2

      Wow I’m SO happy for you! If you happen to come across this I’d love to hear an update-and hope you’re feeling great now💚 thanks so much for sharing your experience. I’ll be starting in the upcoming months (I’ve had it since I was 5, all coinfections-am now 32 but it really flared at 21 after mono). Wishing you all the best💚💚💚

  • @DeoLightLife
    @DeoLightLife 2 ปีที่แล้ว +2

    You’re a beautiful being. thank you for your work. I’ve have many of the same concerns about the testing and enrichment process. This was very helpful.

    • @BartonellaBabe
      @BartonellaBabe  2 ปีที่แล้ว

      Thank you! The enrichment process at Galaxy is genius. So grateful for their continued hard work with North Caroline State University to continue to push the research and science forward for patients

  • @alfonindatube
    @alfonindatube ปีที่แล้ว +2

    Thanks for being a voice for reason . Best resource for Bartonella in the internet

  • @workingforabettertomorrow
    @workingforabettertomorrow 2 ปีที่แล้ว +1

    You are so awesome 😎💖! Thank you so much for looking out!!

  • @guchavela4721
    @guchavela4721 3 ปีที่แล้ว +14

    So what is there to say for the people that have healed completely from Lyme thanks to SOT? I know three people by now.

    • @Jimo225
      @Jimo225 2 หลายเดือนก่อน

      who do you know that got healed?

    • @benjaminbritt7862
      @benjaminbritt7862 หลายเดือนก่อน

      This is bartonella, different pathogen

    • @guchavela4721
      @guchavela4721 หลายเดือนก่อน

      @@benjaminbritt7862 you can get SOT for Bartonella. Most people with Lyme test positive for Bartonella as well.

  • @katjab2718
    @katjab2718 11 หลายเดือนก่อน +2

    You are very wrong.. vibrant pick up Bartonella very easy and they need the patient’s blood to compare with their result and make sure they are making the right strain/ the don’t make sot from blood.

  • @Denise-Lynn
    @Denise-Lynn 4 ปีที่แล้ว +4

    You crack me up. I'd love to hear RGCC's response. I'm going to check out Galaxy. A lot of what you discuss is over my head but is still interesting to listen to. One never knows what seed might be planted. Thank you!

    • @BartonellaBabe
      @BartonellaBabe  4 ปีที่แล้ว +2

      Denise S thank you for your comment! Time will tell if RGCC shows their expertise in Bartonella SOT through published journal articles. Meanwhile, Galaxy is the bees knees!

  • @decodr-ring
    @decodr-ring 11 หลายเดือนก่อน

    Hi Jake, thanks for this analysis of S.O.T. This treatment is being promoted again and the was pushed into my news feed on YT. I was skeptical but in a way that less technical than your analysis. My view on it is, if it really works then why aren’t patients posting about it in the forums on GroupsIO? I think that you gave clear reasons. I appreciate it, thanks! 🌟

  • @inthehouse9062
    @inthehouse9062 10 หลายเดือนก่อน +1

    Nice logic I would like to hear an equally cogent response from the proponents of SOT

    • @Annalovestheocean
      @Annalovestheocean 8 หลายเดือนก่อน +1

      @inthehouse9062 I have gotten an extensive amount of sots for my Lyme & coinfections these past 2 years. It seems to have diminished my infection load over time & have seen improvements. However, I’m still not fully recovered & am still showing positives for Lyme, even after 2 sot rounds for it. I do not show positive for Bartonella or any other coinfections at this point in time tho.

    • @inthehouse9062
      @inthehouse9062 8 หลายเดือนก่อน

      @@Annalovestheocean How do you test for lyme and coinfections? Thnks

    • @inthehouse9062
      @inthehouse9062 8 หลายเดือนก่อน

      ​@@Annalovestheocean How much herx did you have? What kind of tests did you have for Bart and coinfections?

    • @Annalovestheocean
      @Annalovestheocean 7 หลายเดือนก่อน

      @@inthehouse9062 hey just an update I didn’t get all the way with sot therapy so am trying whole body hyperthermia. I can let you know how it goes if you’d like?
      If you’re looking to do sot, vibrant tick panel 2.0 is good. The hyperthermia clinic I’m at did a different panel through armin labs which seems much more accurate.
      The tickplex plus by armin is the only lab that tests for persistent borrelia. I tested positive for that so no wonder why sot didn’t fully get me healed as it can’t get to persisters.
      Hopefully hyperthermia with horowitzs triple antibiotics can get to my persistent borrelia. But seems like sot diminished all my other coinfections that I had treated..
      Hope this helps.

  • @ltwilke
    @ltwilke 3 ปีที่แล้ว +4

    Hi Jake, love your videos. I do have to share our experience with SOT tho. I understand there are questions, I have the same ones. Nothing about any of my daughter's tickborne infections or treatments make a lot of sense to me either. BUT! We embarked on an SOT journey because after MANY different treatments, my daughter's infections were not improving. After 3 years of multiple Bartonella 1:256 test results, she did the SOT. (No side effects, no ABX) 6 months later her Bartonella test returned and it's 1:32. I spent a few months lurking on the SOT Facebook page before we embarked on the journey. My daughter still has a long way to go, but there is something about SOT that is helping many people. I'd recommend that if you want to try to get better, TRY IT!!! Then let us know how you did.

  • @melarenee308
    @melarenee308 2 ปีที่แล้ว +1

    I can understand how SOT can be better for Lyme and Babesia because those are easier to find in the blood, but like you say, Bartonella is not easily detected in the blood because it hides elsewhere so SOT may not be the best option until you can test positive proving its in the blood stream. I know someone who has Bartonella symptoms yet he is unable to do the SOT for it because it’s not showing positive on the tests. Seems like honest work at least.

  • @TKO8974
    @TKO8974 4 ปีที่แล้ว +2

    I know I have henselae, I am one of the blessed ones, prayers for everyone 🙏❤🙏

  • @TheJanaMitic
    @TheJanaMitic 2 ปีที่แล้ว +2

    At first I thought I don't understand SOT therapy, but now I am absolutely sure I don't get it. Also, living in Europe makes it even harder to get it, so much confusion about where to even find it...and I definitely have bartonella, all those "electric" feelings through my body, zaps and red lines. Quantum medicine helps a lot though, but I've been expelled from some lyme groups for saying that. Just really weird. Can't wait to get this out of my system.

    • @TheJanaMitic
      @TheJanaMitic 2 ปีที่แล้ว

      @@BartonellaBabe would you try SOT by the way? I’ve been crying because I have no money for it but maybe there are other ways (unnecessary crying though)

    • @BartonellaBabe
      @BartonellaBabe  2 ปีที่แล้ว +1

      Sorry the comment that I sent to you was meant for another person. I don't know how that happened but I deleted it. To answer your question about SOT, no I would never do it. It makes no sense and I think it's a scam and/or pseudoscience and many patients and docs that I have talked to agree. I think many therapies for Bartonella and similar conditions are scams and/or pseudoscience and holds my community back from being accepted by the mainstream medical community

  • @inthehouse9062
    @inthehouse9062 8 หลายเดือนก่อน +2

    Such a lovely girl sad that she is gone

    • @Jimo225
      @Jimo225 2 หลายเดือนก่อน

      what happened to her?

    • @inthehouse9062
      @inthehouse9062 2 หลายเดือนก่อน

      @@Jimo225 She ended her own life She was suffering

    • @Jimo225
      @Jimo225 2 หลายเดือนก่อน

      @@inthehouse9062 that is very sad. Im sorry. Do you know what she was suffering from?

  • @dashatrebichavska509
    @dashatrebichavska509 4 ปีที่แล้ว +1

    amazing amount of knowledge and objectivity; I love your reporting--great service for the 'bartonella' sufferers; question: What do you know of Genetic First Lab for genome alignment of pathogen presence in urine/post antibiotic provocation (had 3xBart app. showing in the result)

    • @BartonellaBabe
      @BartonellaBabe  4 ปีที่แล้ว

      Thank you so much! I think it is so important that patients with bartonellosis stick to sound science, not only for their own protection but also so that one day bartonellosis will be recognized as a legitimate and major contributor to chronic, debilitating illness. I have never heard of Genetic First Lab but Bartonella experts (and by experts I mean published researchers) agree that urine is not a viable method of detecting Bartonella in humans 😕so that alone makes me very suspicious of that lab, I am sorry to say. That doesn't mean you don't have a Bartonella infection, however

    • @JP-xs5lo
      @JP-xs5lo 2 ปีที่แล้ว

      Cdc used a urine antigen trap dna type test for Lyme

  • @wakester912
    @wakester912 4 ปีที่แล้ว +1

    Excellent Excellent video 👍👍 I have Lyme and Bart and have been trying to make a decision to get SOT

    • @BartonellaBabe
      @BartonellaBabe  4 ปีที่แล้ว

      Thank you for watching! I am agnostic on the Lyme SOT but for the Bartonella SOT, I would say hold off until more info comes to light 😊

    • @182saga9
      @182saga9 3 ปีที่แล้ว

      Did you do it?

    • @Annalovestheocean
      @Annalovestheocean 8 หลายเดือนก่อน

      I got sot for both Lyme & bartonella. I no longer am testing positive for bartonella but I am still testing positive (yet diminished infection load) for Lyme. I’m still symptomatic, but have seen improvements.

  • @den2554
    @den2554 4 ปีที่แล้ว

    Jake, hi! Are you on any kind of therapy right now? Does it help? Ive been on all kind of antibiotics protocols, sometimes combining up to 5 different abx. No luck at all. My last doc told me there's nothing medicine could do. My main symptom is Pain. I have a systemic infection. You were absolutely correct in your video - that you need to run sample enrichment in order for PCR to pick it up. In my case they run culture tests and then double checked them with PCR

    • @BartonellaBabe
      @BartonellaBabe  4 ปีที่แล้ว

      new message I’m still unfortunately not on anything to treat the Bartonella as my MCAS is too severe and that’s why I’m pursuing exosomes therapy. Have you tried clarithromycin and rifampin (and then the rifampin is switched to Rifabutin?)

    • @den2554
      @den2554 4 ปีที่แล้ว

      @@BartonellaBabe can I pm you on Facebook? yeah I've tried almost every possible antibiotic there is

    • @BartonellaBabe
      @BartonellaBabe  4 ปีที่แล้ว

      @@den2554 sure. Feel free to PM me on my Bartonella Babe FB page or my Bartonella Babe Instagram

  • @tomshaffer3888
    @tomshaffer3888 3 ปีที่แล้ว

    Can you point me in the right direction to studies on SOT treatment?

  • @dand8770
    @dand8770 4 ปีที่แล้ว

    There is no question that exposure to B. henselae via cats, dogs and fleas is more common than exposure to the human body louse .Infection with B. henselae is far more prevalent than other Bartonella strains. For all antibody-based diagnostic tests. As far as treatment concerned, what works for one may not work the next, the the way it goes for all TBI treatments. Good luck everyone 😊

    • @BartonellaBabe
      @BartonellaBabe  4 ปีที่แล้ว +1

      It is true that exposure to the common cat flea is more common than the human body louse. It is also true that B. henselae is probably the most common species that infects humans. However, scientists have found B. quintana, B. clarridgeiae, B. koehlerae in fleas and B. clarridgeiae has been known to cause cat-scratch disease in humans.
      Moreover, veterinarians and others who work with animals have been found to be infected with B. clarridgeiae, B. koehlerae, and B. vinsonii subsp. berkhoffii. Some veterinarians have been found to be infected with two species simultaneously. Dogs are the reservoir for B. vinsonii subsp. berkhoffii and get sick from this species and can pass this on to their owners with flea infestations. A farmer has been found to be infected with B. bovis.
      So, my argument still stands that it makes no sense that RGCC is making an SOT for your Bartonella species because it is extremely unlikely that they know your species because it is extremely unlikely that they are finding your species from a single, unenriched blood draw.
      Just want to educate the public about these inconsistencies!

  • @kopesthetic
    @kopesthetic 4 ปีที่แล้ว

    I’d email my doctor this question but she charges $125 per response so want to try and figure it out first before shelling out the dough...
    My doctor had me only test for one species of Bartonella (henselae) in hopes of a positive for SOT treatment. The test from Galaxy labs came back positive (1:64). Doesn’t make sense to me though why my doctor had me only test for 1 species of Bart? If I have other species too then doing SOT for hensalae seems pointless??? Idk but would love your option.

    • @BartonellaBabe
      @BartonellaBabe  4 ปีที่แล้ว

      kopesthetic wow $125 for a response?! Never heard of that before. Your Galaxy test that is positive for Bartonella henselae does not mean that you necessarily are infected. It just means that you are creating antibodies. Furthermore, Bartonella species are incredibly cross reactive on IFA tests (which is the type of test that you got) so testing positive for Bartonella henselae doesn’t even mean that is the species you are creating antibodies for. You could have been infected/be infected with Bartonella quintana or Bartonella vinsonii subspecies berkhoffii or any other Bartonella species. It sounds like your practioner doesn’t know this, which is concerning. My two Bartonella literate medical doctors are not on board with SOT and they are the leading MD experts on Bartonella in the world. I don’t want to tell you what to do but I do want to give you the factual information so you can make an informed decision. Let me know if you have any further questions

  • @manikamia9687
    @manikamia9687 4 ปีที่แล้ว

    are you still treating your bartonella? i think i have bartonella induced mcas and wonerding you've had any luck

    • @BartonellaBabe
      @BartonellaBabe  4 ปีที่แล้ว +1

      I haven't been able to treat due to severe, refractory MCAS. I am now pursuing exosomes therapy to hopefully get that under control. I have a few videos up about it on my channel ❤️

    • @manikamia9687
      @manikamia9687 4 ปีที่แล้ว

      Bartonella Babe I found out that apparently using food grade H2O2 can help I can’t vouche for it just heard it can

  • @trsavage9778
    @trsavage9778 4 ปีที่แล้ว

    (Mutters to self, as I chug down my 5th pre-breakfast mimosa...I think she's just reading from an Acronym Compilation List, aka, an ACL, not to be confused with ACL, Anterior Cruciate Ligament, or Association for Computational Linguistics....the heck with it, I need a drink.) :)

    • @BartonellaBabe
      @BartonellaBabe  4 ปีที่แล้ว

      Wow a mimosa sounds so good. So does regular food lol. Have another mimosa for me!

  • @TKO8974
    @TKO8974 4 ปีที่แล้ว

    Thank you sweetheart 💚❤

  • @85360843
    @85360843 4 ปีที่แล้ว +3

    she's good ...

  • @JC-ly8pz
    @JC-ly8pz 2 ปีที่แล้ว +1

    Cheaper than Exosomes. Worth a try to see if it helps.

  • @deborahakey9308
    @deborahakey9308 10 หลายเดือนก่อน

    Going to Georgia??? Sometime it doesn’t work. Maby Greek people can figure it out!!!Thanks ❤

  • @nickp4793
    @nickp4793 3 ปีที่แล้ว +1

    I've been reading about SOT for the past week and have the same questions you raised in your video. They need the person ordering the test to tell them what to look for in the blood, they need a positive test from "any" lab, yet they make the antidotes specifically from your blood. None of that makes any sense, it just does not add up.

    • @BartonellaBabe
      @BartonellaBabe  3 ปีที่แล้ว +1

      EXACTLY!!! It makes no sense

    • @AStageForTheKingdom
      @AStageForTheKingdom 3 ปีที่แล้ว

      @@BartonellaBabe I’m pretty sure it’s just a pre-check, either for legal, liability, financial, or logistical reasons, or possibly all three. It’s the same as how many doctors won’t treat you for tick-borne illnesses unless you have a positive test for them.

    • @creativegirl9710
      @creativegirl9710 11 หลายเดือนก่อน

      That's makes sense to me. You're not understanding the process.

  • @marinasachse7136
    @marinasachse7136 ปีที่แล้ว

    could you translate the video into german? that would be so so great ✨🙏

  • @jimhoffmann2649
    @jimhoffmann2649 ปีที่แล้ว

    Hello Jake. Thanks for this informative video. I am trying to get my son through antibiotic tx for his Lyme and Bartonella. It has taken a great toll on his life. Hope you are hanging in there! You are very cute, keep those eyebrows just the way they are ! God bless you.

  • @apathysucks520
    @apathysucks520 4 ปีที่แล้ว +3

    When I was first diagnosed with Bartonella I found your videos to be comforting because you joked a lot and I thought.this can't be that bad and scary, but I was wrong because it is. I know that we can't lose are sense of humor and you're going to say something like, I need to have a sense of humor about this infection. Only problem with that is that it sends the wrong message. I am living with Bartonolla, I am bedridden getting worse with no end in sight except hopefully a cure or an end to this misery and in no way am I suicidel. I wish you could focus on giving people Hope rather than trying to make people laugh. I'm not coming at you like a rabid dog at all, only a realistic human who will probably end up dying a miserable death.

    • @BartonellaBabe
      @BartonellaBabe  4 ปีที่แล้ว +6

      I am sorry to hear of your suffering. I truly am. I also know what it's like to suffer. Currently, I spend about 23 hours a day in bed, can only tolerate ten foods, and haven't been on my feet for more than 15 minutes cumulatively in a day in 2 years. Every time I try a new food/supplement/med, I get burning nerve pain all over my body. I am intermittently suicidal. As you know, bartonellosis is often an invisible illness and with me, as well as many other patients, there is more than just what meets the eye on the computer screen.
      I do the humor because that's who I was before getting sick and that's who I am now. I recently did a video called Bartonella Success Stories and the thumbnail says "click here for hope!" So I am trying to give people hope on my channel while also trying to warn them about therapies that may not be all that they are cracked up to be.
      I hope you can find hope wherever you can and I wish you luck on your journey

  • @popokatapetl6995
    @popokatapetl6995 29 วันที่ผ่านมา

    They are lyong to us SOT is helping and just do not have loby on it cause ot is in Greece not in USA. Like they have all loby and licence for sodium oxybate and tou can not get it nowhere exept USA

  • @Andrewnutrition
    @Andrewnutrition 3 ปีที่แล้ว +2

    But the medical director of RGCC usa is a chiropractor so it has to be legit

    • @BartonellaBabe
      @BartonellaBabe  3 ปีที่แล้ว +1

      Bahahahaha this got me. See Andrew I don’t hate you

  • @KATEB33ful
    @KATEB33ful 2 ปีที่แล้ว

    You've just saved me $$$ Thank you.

    • @BartonellaBabe
      @BartonellaBabe  2 ปีที่แล้ว

      hahaha I love hearing this!

    • @joshgiraud
      @joshgiraud 2 ปีที่แล้ว +2

      I'd do more research than just this video though! Maybe there aren't enough studies for SOT yet but many people are healing from Lyme and Bartonella with it after trying everything else. It definitely is a risk though currently

    • @creativegirl9710
      @creativegirl9710 11 หลายเดือนก่อน

      Yeah no shit. This poster hasn't even done it. And with her name she doesn't want to give up her "label." @@joshgiraud

  • @michaelsanchez8457
    @michaelsanchez8457 4 ปีที่แล้ว +2

    Personally, I think you have a genetic issue rather than bart, so I wouldn't expect this to work for you, although you could have both a bacterial infection, and a genetic issue that inhibits part of your cellular immunity. I think that you are misunderstanding something. What is likely the case, is that you don't get how in biology, we use certain things which work, but we don't have a way to make things that are very small bigger. So, if you tell them that you are treating b. Henselae, they will have a particular sequence they will use to treat your blood, and make their oligos. You seem to have a particular theory of why they can't do something, maybe you should ask them for an interview. Maybe the reason you have to know the strain is to get the bacteria isolated in the first place, with a column that has a complementary pattern that will attach the bacterial dna. Why would this not be the best test in the world? because it probably isn't officially specific enough. It's mechanistic.