We Realised Our Baby Was Born Blind
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- เผยแพร่เมื่อ 18 พ.ย. 2024
- When baby Elliot was 4 months old, he was diagnosed with Leber's congenital amaurosis (LCA), an incurable condition that causes severe vision loss and blindness. It came as a shock to his parents, Wei Shi and Eric, who had big dreams for their first born.
There was little information on raising a blind baby because the condition is so rare. They had to come up with their own ways to teach Elliot to crawl forward and chew - things that would have come naturally for sighted children who largely learn from visual cues.
They also sought help from organisations such as Guide Dogs Singapore through which they met people like orientation mobility specialist Cheryl Yeo. She gave Elliot his first cane, which he now uses for exploring.
A year since Elliot's diagnosis, seeing how well he's been doing, Wei Shi and Eric worry a little less. Their biggest hope is for Elliot to be independent and achieve his dreams like any other sighted person, in spite of his disability.
(This video was filmed before Phase 2 Heightened Alert.)
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He’s standing in the light of parents who love him. I don’t see darkness for him.
After watching this, I felt emotionally touched by the young and optimistic parent. I could really empathy their story as it brings me back my memories, 27 years ago, because I also have a son who was diagnosed with Leber’s congenital amaurosis. Today, my son works as a software engineer, after facing many obstacles - he struggles in the society especially in education, but his effort and determination of hard work bring him to where he is today. I am so proud of him! Just believe in youself and there is light at the end of the tunnel!
Information Technology has really help my son alot
Wow!27 years ago wd hv been even harder,👏🏻👏🏻👏🏻thank u for sharing your story.
Please help to share your experience with this pair of young parents 🙏🏻🙏🏻🙏🏻
Thank you for sharing with us nothing is impossible
❤🌼
I hope Elliot’s parents read this comment. I understand how hard it can be to raise a visually impaired child. It must also be realy heartbreaking to learn about his condition at first. Want to encourage you that blind people can have equally, if not, more fulfilling lives than others. I went to a music college and one of my professors who is blind is able to teach classes, do research, is married and has a beautiful family and daughter. A blind friend of mine is a lovely person and is getting married. The journey is going to be hard, but Elliot’s potential and future is so bright! Keep doing what you’re doing! Jia you!
My child is also blind but he is paralyzed and cannot stand he is 5years old now😢
@@swarankaur125you strong enough to handle this situation
I hope that future technology will allow him to gain vision again. Sending lots of love to parents ~
It would be scary for him to have vision because he doesn't know what it is like to have one. You can't miss something you never knew.
@@heisyahweh7148 yea but u can adapt n change. It’s like u saying if I was poor I won’t want to be rich becos I won’t miss something I nvr had...I mean I may be wrong but that’s how ur msg came across as, to me
@@heisyahweh7148 tons of kids who've never heard before receive hearing aids and cry at what they hear and live normal lives. scary. sure. but it would be more cruel to deprive him of that opportunity to see.
@@heisyahweh7148 I agree with everyone else here. If technology can bring some sort of sight back to this little angel, the opportunity should be given to him. In fact I saw something recently where they implanted something near the retina and people could start seeing in very low resolution grey scale vision? Not perfect, but definitely a start. There's still hope that technology can help us all lead better and more complete lives.
May GOD provides his vision and show him light. Stay positively God loves children and I believe Jesus surely heal your child.
Hope CNA will cover more families and individuals with special needs, make a difference in other’s lives etc
Your comment touched my heart.
A very touched moment, when the baby acknowledged his parents was cheering for him, and he was happy he could navigate to ground successfully..... Praying for the cute baby and his family.... God bless :)
You guys are amazing parents. Think that he is a child with a different ability. Your love and strength will develop him.
Be brave and accept him às he issues
God bless him
I know you guys are struggling but as a deaf person i assure you he will do well like all people. I am 23 and will graduate in medical microbiology this July. Blindness, deafness or any other ability are not disabilities these are special abilities.
Thanks that you have tell us .
This little guy has amazing parents. Dancing seems to be an instinctive response to music.
The crazy part is that as he grows up, being blind will be normal to him that he wouldn't be able to imagine his life with vision. Blindness is all he has known since birth and that's normal to him. This is to say that everyone's "normal" is different and we should respect that! Wishing him and his lovely parents all the best!
Yes, the child is born blind and he does not have any concept of colour, light, shapes and forms. He does not know what he is missing out. So, what are the parents grieving on? They are grieving on their own loss. Expectation not met and hence, grief and sorrow set in.
When he reaches a certain age, he would talk to his classmates and he would somewhat imagine what being a sighted person would be like.
@@retrovox actually blind people arnt really that interested in forms and objects. Because they can somewhat understand how that works. But most blind people are really amazed at depth and distance. They find it odd that the average person can see objects 100 meters away. And they know how far and how close it is. Thats something they find impossible to understand
This isn't normal.
I'm sick and tired of everyone justifying the brutality and violence of Nature as "Normal"
He is blessed to have these two for parents. They're doing a wonderful job!!!! He will grow up to do AMAZING things! 👏
I have an family friend who is visually impaired lives independently, he is in his 60's. He goes skiing with a guide and a beeper for him to guide him. With your love and dedication to him, and the technology like braille key boards for computers. He can do anything , but just in a different way.
He’s a beautiful boy! What an 👼 angel. Mom and dad are doing a great job!
This kind of Documentary make you feel grateful of what you have and a reason to try to make the world a better place.
Don’t worry too much, everything will turn out fine. Take things one day at a time. As a parent with a special needs child myself, I have also asked myself a million times what will happen to my child when I’m not around for him anymore. I have learned to trust in God and do whatever we can for him now. You have an amazing child who will bring you on an amazing journey as parents. God blessed.
❤❤
His father said the best thing: your expectations shouldn't be reduced! He'll just reach his targets in a different way! Don't let something that others may view as an impairment keep you from reaching high!
This is the first time I cried. It’s so painful to see a blind baby. Elliot’s parents are spiritually strong and caring. I wish this baby be happy and always healthy in his life.
have been following your story since the reddit post, really inspiring couple and elliot will grow up just fine with such great parents!!
Aww, can I have the link to the post?
@@MsEverAfterings www.reddit.com/r/singapore/comments/kaje6j/part_3_baby_born_blind_need_help/ here you go!
amazing parents!!! keep going eliot's mommy and daddy
I wish you all the strength you need and lots and lots of joy with you wonderful boy. All the best from Thailand
❤❤
Keep up with the good work parents. He’ll turnout to be a fine young man one day. 🙏🏼❤️
There's going to be a reason for him to look up one day. You guys are truly amazing. Do not be discouraged. God bless you and keep watch over Elliot every step of the way.
I am a single father of 2. I can see that it’s not easy for the 2 of you, especially your kid. Please don’t give up. God will bless you all.
With both of ur supports, the boy will grow up stronger. From the vdo, he is vey young, but very understandable.Perhaps, visual impaired teach him to greatly adapt to it and become even more independent.
amazing parents! I'm sure Elliot will grow up and achieve great things. keep up the good work!
That kid has amazing parent! Definitely gonna succeed in life!
I have a special needs girl too. Can fully understand where u come from, we have to be stronger than any other parents in order to bring joy to our kids. We have these fear that if one day we pass on and how they can survive independently. Whatever going to be just try our best in raising them in a healthy and happy environment. All the best to you guys and your cute baby boy
All respect to parents who love their kids (leading them to live according to their abilities)
He may not be able to see in the traditional way but his blindness allows him to see the world in a far more unique way
What a strong mother he has. So inspiring. ❤︎
The parents are doing amazing job hang in there.💕💕
Great parents! Keep up your spirit! Elliot is lucky to have u both as his parents!
Thank you for loving him sincerely...he's so lucky to have you guys as his parent.
He's a special kid, special kid is for special parents. So i bet you two are special...believe in that!
You two are special, so does Elliot...❤️❤️❤️
Stay strong...be happy...be patient
This was inspiring, and my heart goes all out for the Koh’s.
Respect to the parents!!! Thanks for sharing
My son will be 3 next month and he was born blind as well and this was the first time I’ve seen anyone shed any light on the situation thank you for this.
Im afraid my daughter has vision problem too... she's 4mos now but she cant track things. Not even looking at me....we were scheduled for a visit to a pedia optha by the end of this month.
@@ireneamancio3265
I hope she'll do well
''Blind baby''. Sad words. You can see the heartbreak on his dad's face. Eliot is lovely.
Elliot is gifted to you both…your love,patience,understanding and compassion is so precious…your tenderness and your sincere voice makes life so easy on him…elliot’s aim In becoming a blessing child is a reward to you both..his strong personality will make life worth living..good parents
I was also visually impaired from 4 months old, and now 17 years later I'm still fighting through tough times 😭😭 I feel this baby😭 I wish the best ❤️
Love the spirit of the parents. Sending love from MY.
❤
Thanks CNA for this video. To Elliot's parents, I have 3 kids and one of them is Autism and the other one is 1 year old now. It is also not easy but i believe yours will be more challenging. Your story encourage me to do more for Kristabel to build up her confidence level. Keep up the good works. Miracle will happen.
Love how he flaps his arms like wings it's super cute
Elliot is a wonderful boy! I love him already! And his parents are such wonderful parents! This family is full of love
What a cutie he is! His smile is so contagious. He’s lucky to have supportive and loving parents to care, teach, and provide him resources so that he can grow an able and independent person. Sending you all the love and best wishes!
A very touching and inspiring story!
Weishi and Eric are such loving, resilient, amazing and brave parents! ❤️
Elliot is a lovely and cute baby boy! can tell that he is responding well to his parents motivation. Keep going!
Lots of love to you, Elliot, Weishi and Eric! Keep the faith and stay strong!❤️😍
Thank you for being such amazing parents.
For a period I was helping a blind adult and learnt that he is very independent in moving around in sg. He was also blind since young. I believe your son has no problem to achieve that and even more since both of you could try to map out the possible routes he could take. Very encouraged by both of you. Will pray for your family. God bless.
Thank u for being strong Elliot's mummy and daddy... pls dont stop persevering... u guys r in my prayers....
I wish nothing but the best for this family.
This boy is going to be very successful in future, trust me.. no worries. God bless and stay strong.
Heartbreaking. Im speechless. I feel for the parents and baby Elliot. Hard to watch....sigh...baby Elliot and parents - much blessings to you both and may your life be filled with joy and happiness from Baby Elliot. God bless
I’m glad that CNA and the parents are willing to be part of this video… so that other parents who are in the same boat won’t feel like they are alone when dealing with similar issues.
Elliot feels the parents love and that is what will help him be successful in life 😍😍😍❤️😍❤️😍❤️😍❤️😍❤️😍❤️❤️❤️❤️
With such great parents, Elliot will grow up just fine.
What a beautiful boy, I am so happy he has such a supportive family. He will definitely grow up to be someone amazing.
Such heartwarming friends and parents, much love and support for them all from 🇿🇦
He's an adorable little man. I'm sure with the love of his parents there to encourage him that he'll go on to make them prouder than they already are.
I pray for strength for the parents
This baby is very lucky to have such good parents .god bless.
Such admirable parents to raise their child
加油 both parents!! He will grow up to be a great man!
❤️❤️❤️ You guys have come so far~ I still remember the dilemma you had whether to put E in the public light to raise awareness for VI babies. Ultimately to aim for a society and environment that is assistive, receptive and inclusive. So proud of you both 😢, stick to your innate intuitive love yall have for E, it is what that will take him to places... Even highly exceeding your expectations~ 🤗🤗🤗
Amazing noble parents any child would be so blessed to have❤️❤️
I really salute to the parents who never give up on their visually impaired child. This boy will definitely have a brighter future and I can guarantee that 😊
Sending love to this lovely family, parents be strong, unite and hope your boy Elliot grow up independent in future
They are doing such a wonderful job raising their child!
Such amazing parents. Lots of love to them. The boy is the cutest, also wish him the best for the journey that is life.
This story is heartwarming and I believe this kid will have bright future because parents support and love their kid. Good luck and hope your journey goes well. 😊
Amazing parents. God Bless this family.❤️
Extremely inspiring. All the best!
I am so touched to the core while viewing this video. My husband and I are involve in Ephpheta Foundation for the Blind, Inc. Our mission right now is the free cataract operation in cooperation with our donors and loyal benefactors. Praise God the foundation was able to survive for more than 40 yrs. It was nevet easy but with God's grace we are able to continue with our mission. Father Jess Fernandez, SJ our founder is turning 90 years old on June 28, 2021. God bless to both of you for this video.
He will be independent just like millions of visually impaired people in the world.
Very inspiring couple and parents. I could never do this. Elliot is lucky to meet you all. Sending some love to this beautiful family ❤️❤️
Dear Elliot, I pray you will grow up and your eyes will heal 100% well once again. May God bless you, dear Elliot. Fear not, for God answers good prayers requests with good also. Take care, love lots.- from Auntie Amy Chua.👓
You are such a wonderful family. Thank you for taking such good care of this little angel. You're amazing parents and your love for your son is so obvious it shines so bright. 🤗
proud of you, pride and role model of the world.
Wishing him and his parents More blessings and sucess.
you are so strong bro.when i saw this video its make me cry..i hope the boy will always healthy and become good person on his future
With the love of parents and their support, I hope that through God' s grace that their child will see again.🙏
I wish that this issue can be addressed by community as a whole, so this young wonderful gift of life can see again.🙏
@ Sebastian Figueiredo AMEN🙌
and if god doesn't? why did your god not give him sight in the first place?
@@xxs0ulxx1 . Are u a atheist to give me such a ridiculous comment.
@@sebastianfigueiredo8560 how is it ridiculous. I think you are the ridiculous one giving false hopes
My heart pains I am crying over so badly much love to the parents, I really feel bad and inspired by them to have good amount of patience with kids.
Elliot is such a beautiful child. So adorable. God bless this family and Elliot!
Elliot has such wonderful parents!
This world renowned pianist, Nobuyuki Tsujii, 32, has the same condition as baby Elliot. I’m a big fan of his, and going to his concert is such a wonderful and encouraging experience. He is living by himself now and go around the world to perform. His mother discovered his talent to memories notes at a very young age.
All the best to Elliott. Very inspired and touched by your love, patience and strength
Amazing parents . Wishing for a miracle so Elliot can see his parents !
I really admire two of you. Lovely boy and good luck to him and your family.
Great parents! My best wishes and all the best to the family.
So much love in one video. Wishing all the happiness and joy you guys deserved. He will grow up well!! 💪
This family is so full of love
Loves to the parents that don’t give up on their child
God Bless this family.
Hope someday, technology can bring this child vision.
My baby also blind it’s very tough for parents 😭😭😭😭😭😭😭
You guys are amazing parents. Elliot is so blessed to call you mom & dad. He is so adorable and looks happy and at ease because of you. You guys give me so much inspiration. I have my little one and I also feel an endless love for her like I can do everything for her no matter how tired I am. But your love is another level and I aspire to be a loving, patient, optimistic parent like you. May God bless your lives immensely.
Lots of love and prayers to baby..and hats off to parents. It's a huge learning i have had today generally when I lose my calm with the child
Amazing parents and beautiful baby.
My heart is broken
Jia You Elliot
You guys are doing a great job with Elliot, he is a lucky boy to have parents like you.
He is absolutely adoreable. I wish him all the best and nay he lead a fullfilled life. I'm moved to tears over how fantastically theu are parenting Baby Elliot.
Hey! There's Kodi Lee from AGT for good reference & I believe Elliot will find his own inner gift as he grow older. He's born SPECIAL too.
He is a special little person