A Brighter Horizon for those with Rett Syndrome
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- เผยแพร่เมื่อ 15 ธ.ค. 2019
- Rettsyndrome.org is committed to providing research with results, while empowering families to thrive. The Rett syndrome horizon is bright with possibility and hope. Help us create a world without Rett syndrome.
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Such beautiful kids! I hope this treatment and therapy is effective and becomes widespread very soon to help all the families affected by Rett Syndrome!!!
We just keep hearing this! Over and over and over. I know the videos are meant to give us hope but gosh our girls are running out of time! 💜
God bless this mother. One would be so hard to deal with but twins with Rhett is mind boggling. My prayers are with the parents & loved ones.
What I don’t understand is if they lose function of their hands why do they constantly clap or flail their hands around. What causes that
It's a stim like with Autism. Some of my patients cannula their hands to eat but that's the only motivator beyond the clapping/rubbing.
My brother have 3 kids all girls two of them rett syndrome victims one is not because she's haven't feed by mother in 3months my relative have same case two of them rett syndrome victims one is not because she also haven't feed by mother .now I have doubt may be there something wrong with mother feeding I main cause of rett syndrome.plzz (confirm sry for bad English)
this is not the case...its a genetic mutation.