Living with Trisomy 13 (An Extra 13th Chromosome)

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  • เผยแพร่เมื่อ 17 ธ.ค. 2024

ความคิดเห็น • 374

  • @abeolivares7875
    @abeolivares7875 3 ปีที่แล้ว +321

    Awww her daddy’s voice must be so soothing to her since she’s so calm when he’s holding her 💕

    • @pippadawg7037
      @pippadawg7037 2 ปีที่แล้ว +5

      She fell asleep at the end.

    • @pinacoloda226
      @pinacoloda226 ปีที่แล้ว +1

      I noticed that also

  • @elizabethgrogan8553
    @elizabethgrogan8553 3 ปีที่แล้ว +296

    Nora is blessed with 2 amazing parents. I pray that they have her for many years. Nora knows that she is loved because she is surrounded in love.

    • @andyjarvis37
      @andyjarvis37 2 ปีที่แล้ว

      sadly babies born with patau syndrome dont live past 6 months

    • @brookemckinley5709
      @brookemckinley5709 2 ปีที่แล้ว +4

      You can tell she knows by that big smile 😊

  • @OriginalOWL
    @OriginalOWL 3 ปีที่แล้ว +143

    I come back to see Nora so often. So glad the channel had it's comments returned so everyone can express how important to the world Nora is!!

  • @thomasplouffe1363
    @thomasplouffe1363 ปีที่แล้ว +143

    as of now, nora is a 6 year old kindergarten student who just pulled herself up and stood by herself for the first time ever! shes talking more now and her vision has actually improved with glasses!

    • @Angeleechie
      @Angeleechie ปีที่แล้ว +17

      Way to go Nora! Thanks for the update. It is wonderful to hear about her vision improvement. Have fun in kindergarten Nora 😁 we are all so proud of you 👏

    • @kirstenmackay83
      @kirstenmackay83 10 หลายเดือนก่อน +11

      That’s so cool, her lovely parents must be so delighted and proud of their strong, smiley, beautiful daughter.

    • @tandiparent1906
      @tandiparent1906 10 หลายเดือนก่อน +8

      ❤Thanks soo much for the wonderful update!!❤

    • @AyeshaFarhan-o5g
      @AyeshaFarhan-o5g 7 หลายเดือนก่อน +3

      Waow superb I m.glad

    • @ericawilson4759
      @ericawilson4759 2 หลายเดือนก่อน +2

      Praise God!!!

  • @guiltyhank
    @guiltyhank 3 ปีที่แล้ว +366

    My child has the same condition like nora... i love him so much

    • @blondesense1708
      @blondesense1708 3 ปีที่แล้ว +26

      I’m sure he is a sweet blessing to you. I cared for a child like Nora and he was a joy. Take care of yourself too! 🤗

    • @summer9799
      @summer9799 3 ปีที่แล้ว +16

      Aww🥺God bless your child🥰

    • @estelleschneider9033
      @estelleschneider9033 3 ปีที่แล้ว +10

      Msy God have mercy on those who suggest ending a life which Only He giveth and taketh away
      They are Blind they know not what they do what they do!!!
      Blind guides !!!

    • @catg943
      @catg943 2 ปีที่แล้ว +8

      God bless you, prayers!

    • @artman3850
      @artman3850 2 ปีที่แล้ว +15

      @@johnstudley8951 what is wrong with you

  • @CactusJinx
    @CactusJinx 3 ปีที่แล้ว +161

    Nora’s parents are blessed… they’re absolutely amazing people. Her dad seems like such a wonderful father.

    • @adrianagonzalez2834
      @adrianagonzalez2834 ปีที่แล้ว +4

      Esa frase es muy estúpida, cómo es posible decir que están bendecidos al ver a una hija enferma con mucho dolor que no puede ser igual que otros niños que no ha tenido el mismo derecho que los demas
      es cosa del diablo nada de bendición ellos son buenos padres y la niña es un angelito que no tiene porqué estar sufriendo esa situación

    • @CactusJinx
      @CactusJinx ปีที่แล้ว

      @@adrianagonzalez2834 only certain people can love unconditionally in situations like this. 😞

    • @mollyprysunka7741
      @mollyprysunka7741 ปีที่แล้ว +2

      And still defying all expectations! Her fam just posted their Easter family pictures. She’s getting so tall! Her mama got a job at her school. This little girl opened up a career path for her mama AND opened up an incredible resource for the next little who may need special care, extra understanding, and proper dignity at school. I’m so happy that Nora’s mum is there. Happy Easter, Nora and family! Hope the Easter bunny made your basket with extra love 💕

    • @mollyprysunka7741
      @mollyprysunka7741 ปีที่แล้ว

      @@adrianagonzalez2834 you have a completely warped view and I want you to know how much I pity you. If you were blessed with a little angel like Nora, it’s crystal clear that you would spend her existence feeling sorry for YOURSELF. And that’s exactly why you weren’t and never will be trusted with such a blessing. People say god never gives you more than you can handle. You’re far too weak to know what joy youre missing.

  • @michelleross1668
    @michelleross1668 2 ปีที่แล้ว +23

    She seems so calm in Daddy's arms. He is right she is a beautiful Daddy's girl!!

  • @kristengracem.443
    @kristengracem.443 3 ปีที่แล้ว +84

    I just want to say she is beautiful and thank God for such loving parents! She's always smiling!

  • @jade-wr9pn
    @jade-wr9pn 3 ปีที่แล้ว +102

    "we haven't talked enough about how cute she is yet"😂😂😂 that's so great.

    • @marielagent4387
      @marielagent4387 3 ปีที่แล้ว +3

      Why the laughing emoji? I don't find anything about this funny.

    • @jade-wr9pn
      @jade-wr9pn 3 ปีที่แล้ว +3

      @@marielagent4387 because it was adorable and made me giggle. There's always one self righteous Karen trying to find a problem in the nice comments 🙄. The eye roll emoji is to send home how unhelpful your comment is. Stop trying to create problems where there are none just so you can feel like a super sjw.

    • @estelleschneider9033
      @estelleschneider9033 3 ปีที่แล้ว +1

      @@jade-wr9pn
      A Soft answer turns away wrath but a harsh word stirs up anger Provetbs 15:1 KJV
      Drive out the scoffer, and contention will go out, Even strife and dishonor will cease. NASB 1995
      Takes a mature person to button their lips and tongue
      Respect

    • @jade-wr9pn
      @jade-wr9pn 3 ปีที่แล้ว +4

      @@estelleschneider9033 😂😂😂😂😂

  • @Truth17John17
    @Truth17John17 2 ปีที่แล้ว +25

    I know this video is about Nora, who is very special (as are her parents), but Chris, you are amazing.... just amazing..... I love how NOTHING, NOTHING stops you from being goofy and it doesn't matter how others receive it, as long as the one you are desiring to communicate with receives it with the joy you intend. You, Chris, are an amazing individual, just like beautiful Nora and her beautiful parents.

    • @mesia663
      @mesia663 ปีที่แล้ว +1

      I agree, and Nora’s dad said when she’s showing love, she licks. She was definitely trying to eat Chris’ fingers up. I enjoyed this interaction. They are a beautiful family. ❤

  • @1961-v9k
    @1961-v9k 3 ปีที่แล้ว +54

    Aww the words of Nora’s father are so profound I want to cry ❤️

  • @kileysimon955
    @kileysimon955 3 ปีที่แล้ว +14

    The way Chris interacts with Nora in the video is just awesome.

  • @AtMyHappyPlace
    @AtMyHappyPlace 2 ปีที่แล้ว +21

    I love her parents. Amazing people. What a lucky girl Nora is to be so loved!

  • @entamology581
    @entamology581 3 ปีที่แล้ว +83

    i go back and rewatch this video sometimes to see nora's joy and her family's love, just to remember the world contains wonderful things

    • @flygirl1297
      @flygirl1297 3 ปีที่แล้ว +4

      Me too!!!!! I watched it 3 times the first night i saw it. She is one of the cutest girls I've ever seen 😩

    • @c.a.greene8395
      @c.a.greene8395 3 ปีที่แล้ว +2

      Her life is a miracle!

    • @c.a.greene8395
      @c.a.greene8395 3 ปีที่แล้ว +10

      @@reign6of6e6terror yeah, right...if I had listened to the doctors my son Zachariah ( which means God remembers ) wouldn't be alive today.
      They told me he would be born with multiple birth defects and more than likely wouldn't survive the first hr....everytime I went to see my baby doctor he would shame me for not terminating my pregnancy.
      Today my son Zach is 27.
      Hes normal. Nothing wrong with him.
      Hes educated, started his own business, and is taking care of me during my illness.
      I thank God for him everyday.
      Doctors are often wrong.

    • @weetzybat
      @weetzybat ปีที่แล้ว

      @c.a.greene8395 What were they seeing that made them think that? And it was more than 1?

    • @هُدىحسين-س7ذ
      @هُدىحسين-س7ذ ปีที่แล้ว

      You are really nice,

  • @sandip.7968
    @sandip.7968 3 ปีที่แล้ว +68

    Chris, you are so wonderful , amazing and patient with children of all ages and abilities, regardless of their condition. Some future day I hope you are blessed with a house full of kids of your own to love, enjoy and cherish. Sincere thanks for all that you do to shine a light on special people everywhere.

    • @VOMITQUEEN
      @VOMITQUEEN ปีที่แล้ว +3

      This guy would make the greatest father ever.

    • @anaishealy5073
      @anaishealy5073 ปีที่แล้ว +1

      Imagine all the love, kindness and happiness these children would spread to each other and to others after having such wonderful caring parents 🥰🥰🥰
      It's a lovely thought 🥰

  • @dianebryant4684
    @dianebryant4684 หลายเดือนก่อน +3

    Such a beautiful little girl. She deserves every right to be on this earth. Congratulations Nora❤❤❤

  • @shawnaclarkson9401
    @shawnaclarkson9401 3 ปีที่แล้ว +38

    The daddy as he talks about her is just beautiful

  • @willettej7988
    @willettej7988 3 ปีที่แล้ว +61

    She’s beautiful. It’s so obvious that there is a special plan for her life. She can touch people in a way that no one else can and only she can fulfill her mission. God bless Mom and Dad.

    • @devinyoung5735
      @devinyoung5735 ปีที่แล้ว

      I really like how you put that

  • @mariadigiorgio7440
    @mariadigiorgio7440 2 ปีที่แล้ว +4

    What an absolutely priceless and beautiful little girl, and such amazingly loving, caring, doting and devoted young parents!!!! This is a story of love triumphs over all, and this precious family is a beacon of hope for all; God bless!!!!

  • @analuciamedeiros4828
    @analuciamedeiros4828 2 ปีที่แล้ว +13

    the way Nora's father talk about her, I'm stuck in that part of the video... Super cute!

  • @lisannebannister5449
    @lisannebannister5449 2 ปีที่แล้ว +7

    My niece has a daughter who has this, and they have done soooo much with her! She is amazing!!!

  • @mcondry8036
    @mcondry8036 3 ปีที่แล้ว +8

    Fantastic parents. Bless this family.

  • @seanronayne3654
    @seanronayne3654 2 ปีที่แล้ว +3

    She Loves her Mommy and daddy So much ! What a beautiful baby :) And wonderful parents. God Bless you all !!

  • @GodsChosenMekAmoR
    @GodsChosenMekAmoR 4 หลายเดือนก่อน +1

    To Nora's parents, THANK YOU FOR YOUR FAITH and sharing your testimony. This was beautiful to see and hear and gives me hope. God continue to bless and strengthen you.

  • @beth6288
    @beth6288 2 ปีที่แล้ว +5

    She is as blessed with her mother and father as the same they are blessed with her so much love here ✨

  • @peggywilsondobbs3235
    @peggywilsondobbs3235 3 ปีที่แล้ว +49

    She puts that toy to that one eye. This makes me think she sees the lights from that toy in that eye.

    • @emohairball
      @emohairball 3 ปีที่แล้ว +21

      At 2:48 he says that her right eye can recieve light

  • @robmullin1128
    @robmullin1128 2 ปีที่แล้ว +26

    One of my nieces niece was born with Trisomy 18,she lived until she was 3 years old. She brought a lot of happiness to our family.

  • @hixxyted1244
    @hixxyted1244 3 ปีที่แล้ว +6

    Nora is absolutely beautiful!! Sending Nora a virtual hug 🤗

  • @arikaagee4979
    @arikaagee4979 3 ปีที่แล้ว +17

    She is such a beautiful girl . Praying she is still doing great .

  • @catg943
    @catg943 2 ปีที่แล้ว +4

    I hope that she knows how much she is loved. Such good parents

  • @johnhancock2914
    @johnhancock2914 2 ปีที่แล้ว +3

    Prayers to all families going through something like this

  • @jonukwho
    @jonukwho 3 ปีที่แล้ว +27

    Bless this beautiful family

  • @FlickeringEmber
    @FlickeringEmber ปีที่แล้ว +5

    Such a lovely family. Nora has such a beautiful smile and it's lovely to see just how much she's loved, especially when her daddy holds her.

  • @nariabeautiful8043
    @nariabeautiful8043 3 ปีที่แล้ว +6

    She is her fathers twin. Love how he talks🤗🤗🤗🤗🤗🤗both loving parents

  • @jeremeysmelltoast7829
    @jeremeysmelltoast7829 3 ปีที่แล้ว +67

    These two are amazing . I lost my daughter the day she was born i was told trisomy, variant . They kept me outside waiting for hrs and when I finally was told what was happening she was already gone . I just wanted to meet her like the guy said .... crying my eyes out rn ....(the mother and I had separated before we knew she was w child and her new boyfriend didnt want me around her)

    • @sarac.3259
      @sarac.3259 3 ปีที่แล้ว +20

      Oh what terrible sadness not to meet her. I am so sorry. I do believe you will meet her one day and all will be well. Somehow she knows you loved her and love her. I just feel that the bonds between people who love each other are too powerful for this not to be the case.

    • @Chibiusa-p
      @Chibiusa-p 2 ปีที่แล้ว +3

      I'm so sorry for your loss! I can't imagine what that's like to go through! May she rest in peace 🙏 May one day, you and your daughter be together forever in Heaven

    • @jeremeysmelltoast7829
      @jeremeysmelltoast7829 2 ปีที่แล้ว

      ty . Love light and smoke to you all . Very greatfull for your kind words.

    • @GeorgiaGeorgette
      @GeorgiaGeorgette 2 ปีที่แล้ว +4

      My heart breaks for you. I am so deeply sorry. Your darling daughter is still with you. She is forever a part of you, she lives on in every cell of you so she is always with you. You are her Daddy, and nothing and no one can ever take that away from you 💞 Heartfelt best wishes to you.

    • @amandahollingsworth1105
      @amandahollingsworth1105 6 หลายเดือนก่อน

      Not only the fact that the doctors were not allowing you to hold her while she was alive and breathing as she passed and then keeping you in the dark and not telling you what was going on until AFTER your baby girl passed is so wrong on every level, and I am so sorry for your loss.

  • @andrihanna
    @andrihanna 3 ปีที่แล้ว +10

    She is the sweetest and absolutely gorgeous! This video made my day

  • @emmarose4234
    @emmarose4234 ปีที่แล้ว +22

    When I saw the giant bow, I was like, “Southern.”
    Then the accent from her mom.
    Me: “Yep.”

  • @sabrinabetz6178
    @sabrinabetz6178 2 ปีที่แล้ว +12

    Your daughter is so adorable!! I love her so much!!

  • @rocketpower420
    @rocketpower420 3 ปีที่แล้ว +11

    What her father was describing about the joy he saw in her really resonated with me. I've heard a lot of misunderstanding about the quality of life someone who might be considered "profoundly" disabled (I apologize if this is not proper terminology!) has. I'm grateful I got to hear her story and meet her thru this video.

    • @rocketpower420
      @rocketpower420 3 ปีที่แล้ว

      @Stella doll ❤️❤️❤️

  • @heldlightning7118
    @heldlightning7118 3 ปีที่แล้ว +14

    She's a cutie, hope the best for her and her family.

  • @lyssabiss2317
    @lyssabiss2317 3 ปีที่แล้ว +6

    so much love coming from these parents, love to see such a sweet family

  • @nyahirimatinyi211
    @nyahirimatinyi211 10 หลายเดือนก่อน +4

    So glad I cam across this video today. I gabe birth to my son 2 weeks ago, he also had trisomy 13. Unfortunately mine didnt make it past the first week. Somehow this video gave me so much joy because I see my son in Nora. Nora is indeed lucky to have you❤

  • @ShawnPlusOne
    @ShawnPlusOne 2 ปีที่แล้ว +2

    This precious baby is a blessing loved and adored.🙏🏾❤️

  • @kimlashawn73
    @kimlashawn73 3 ปีที่แล้ว +22

    I have a son his name is Daniel he has trisomy 13 and he is 27 years old and i love him very very much.

    • @insertusername132
      @insertusername132 7 หลายเดือนก่อน +1

      isnt that the oldest person with trsomy 13 then?

  • @nikki9966
    @nikki9966 2 ปีที่แล้ว +5

    Nora is so cute!!! I love how she was giving Chris so many kisses and her smile is the best.

  • @erinifty
    @erinifty 3 ปีที่แล้ว +80

    Ugh, when Nora's father made a point to acknowledge how they hadn't talked enough about how pretty her outfit was!! Yes, LET'S talk about those embroidered princesses!

    • @mesia663
      @mesia663 ปีที่แล้ว +2

      Yes! He loves that girl! Apple of her daddy’s eye. ❤️

  • @DAVEJJR
    @DAVEJJR 3 ปีที่แล้ว +3

    What a gorgeous little girl! She has the best dad and mom any child could have! Plus she has the love of God ♥️

  • @gayleleier8115
    @gayleleier8115 ปีที่แล้ว +8

    I don't understand. Is this fair to either the child or the parents?? I know a parent who gave up her whole life and the lives of her other children for the one who knew nothing. At 21 she had to put her into a home. "Child" died 1 year later. Never aware of anyone or anything. These babies have wings at whatever age they leave this earth. These people try to put forth that this child is responding to them. She may be respond to touch or bouncing but it is purely tectile.

  • @willworkforyarn4893
    @willworkforyarn4893 3 ปีที่แล้ว +3

    What a special and precious gift from God. Bless your family!!

    • @jager896
      @jager896 3 ปีที่แล้ว

      Every good gift 🎁 and every perfect present is from above coming down from heaven James c1v17 Eileen

  • @jinga210
    @jinga210 3 ปีที่แล้ว +17

    Holy wow may we all fight for and love our children like these parents and the world would be filled with caring people. Children are an amazing blessing

  • @seattlered3018
    @seattlered3018 3 ปีที่แล้ว +23

    She's absolutely precious and loves a fun song 😊 such a cute smile!

  • @rissyxo224
    @rissyxo224 2 ปีที่แล้ว +4

    Nora is So cute. And her parents are Wonderful. I'm so Happy for Nora that she is SO SO LOVED 💗💗💗 XOXO

  • @sabrinabetz6178
    @sabrinabetz6178 ปีที่แล้ว +1

    I also saw your slideshow of Nora! Through it all she smiled and that made my heart warm because she is always so happy!! She is so beautiful!!

  • @Holly_Zena
    @Holly_Zena 2 ปีที่แล้ว +1

    This little girl is adorable, and what fantastic parents too 🙂❤️

  • @hollithomas2222
    @hollithomas2222 3 ปีที่แล้ว +7

    You’re the cutest. I’m so glad people like you exist. Willing to be silly for the joy of others

  • @kymerwin8870
    @kymerwin8870 29 วันที่ผ่านมา +2

    This is horrifically tragic

  • @katiegobleyoung7867
    @katiegobleyoung7867 2 ปีที่แล้ว +4

    Nora's Mom is sweet, but her Dad is absolutely precious!!! 🥰❤️ How blessed all 3 are to have one another 💕

  • @pamfaircloth5284
    @pamfaircloth5284 ปีที่แล้ว +2

    I see the love she has for her mother and how she reacts to her in such positive ways! Amazing!!😊

  • @Funny_in_blue
    @Funny_in_blue 3 ปีที่แล้ว +2

    My one year old also scrunches his nose up when he's happy! Nora is so cute!

  • @lililay2627
    @lililay2627 3 ปีที่แล้ว +8

    What an amazing message he gave us
    Just have some hope :)
    Love their family and their love 💗

  • @jacquijespersen9712
    @jacquijespersen9712 2 ปีที่แล้ว +2

    Chris 🤣 any kid sing song would have been fine. Lol Nora is definitely tremendous!

  • @loribaker-gould3415
    @loribaker-gould3415 2 ปีที่แล้ว +1

    What a personality from birth on. She is precious!

  • @spacebeanstudios7979
    @spacebeanstudios7979 3 ปีที่แล้ว +2

    Omg she's so adorable !! Great to know she's doing well !!

  • @aurorarockman9389
    @aurorarockman9389 3 ปีที่แล้ว +2

    I loved the bit about hope at the end of the video so much that I wrote it down when I watched this last year. I came across the quote again this week and tracked this video down so I could watch that bit again.

  • @lilwaffleiron7845
    @lilwaffleiron7845 ปีที่แล้ว +77

    I always figured that I would terminate a pregnancy if I ever found out my child would have something with such a high likelihood of stillbirth and mortality. I'm still pro-choice, but after seeing so many beautiful families and outcomes on this channel I think that if there's any possibility my child would get to experience some meaningful happiness, I would see the pregnancy through.

    • @trinabina3900
      @trinabina3900 ปีที่แล้ว +21

      Absolutely the same. All of it. Also strongly pro-choice, but for me if my child can have a decent quality of life, be happy, and they’re not being tortured to stay alive; no matter how much intellectual disability is at play, that is all that matters to me. Who is anyone to say which lives matter and which do not.

    • @gladz2219
      @gladz2219 ปีที่แล้ว +7

      As for me, it will depend. Obviously, the financial factor will be the biggest reason for it.

    • @weetzybat
      @weetzybat ปีที่แล้ว +5

      For me the biggest thing would be worry science would advance and the child would outlive me until I couldn't take care of them anymore as they could potentially be abused by caretakers they end up with

    • @lauralaforge558
      @lauralaforge558 ปีที่แล้ว +2

      ​@@weetzybatthat could happen with a child born "normal." (People have accidents and develop conditions later on or not diagnosed in utero)

    • @rumham7466
      @rumham7466 11 หลายเดือนก่อน +3

      @@gladz2219true. Imagine being left while pregnant and going through it alone. I can see it being a different situation and decision with a supportive husband or partner. Also some people have already suffered miscarriages before and when then faced with such a diagnoses and grim outcome that the baby could be stillborn much later on, might not want to become too attached and make the trauma of another loss even worse. So I will never ever ever ever judge anyone who chooses to not go through.

  • @lauracandykiss
    @lauracandykiss 2 ปีที่แล้ว +6

    My Ivy Violet I love her forever. She passed in utero 2016. Of Patau’s - Trisomy 13 💕

    • @freereinartstudio1463
      @freereinartstudio1463 ปีที่แล้ว +1

      I lost a baby too pretty early in my pregnancy that had trisomy 13.

  • @bellejourneelibre47
    @bellejourneelibre47 2 ปีที่แล้ว +3

    She is so adorable 💕 💕 💕 💕 💕 💕 💕 💕 💕 wish her all happiness with her sweet family💕💕💕💕

  • @lorikerr549
    @lorikerr549 2 ปีที่แล้ว +1

    God bless you Nora! You are so beautiful and a gift from God! You have chose the perfect parents the love they show for her is amazing! Such an inspiring story! Love Chris’s interaction with Nora so much! 💜💞💖

  • @krystalharwood7842
    @krystalharwood7842 3 ปีที่แล้ว +7

    she looks like a big doll

  • @wendystroh5947
    @wendystroh5947 2 ปีที่แล้ว +2

    What a sweetie! That smile...

  • @tranquilrabies
    @tranquilrabies 2 ปีที่แล้ว +1

    The parents seem like such sweet people.

  • @a_squuared7530
    @a_squuared7530 2 ปีที่แล้ว +4

    God bless Nora and her beautiful mother! Heaven awaits you both! Bank on it.

  • @66chev44
    @66chev44 ปีที่แล้ว +3

    My son was born with a bilateral cleft lip and palate , and Nora’s father is so right gosh do you miss that cleft smile! What an awesome family wee Nora has ♥️

  • @amandakattouf9678
    @amandakattouf9678 ปีที่แล้ว +2

    I love that you are educating people about rare diseases! Awareness is everything! Have you ever done a video on Lupus if not I would be willing to share my story.

  • @anne-mariekaterivartti1822
    @anne-mariekaterivartti1822 3 ปีที่แล้ว +6

    Nora is so blessed to be born in the family that cherish her as a gift of God by which she truly is.

    • @jager896
      @jager896 3 ปีที่แล้ว +2

      Every good gift 🎁 and every perfect present is from above coming down from heaven James c1v17 Eileen

  • @sdwest6840
    @sdwest6840 ปีที่แล้ว +3

    I work in a hospital and a 5 years old girl just passed away today has the same condition.. I just got her file ... that's sad

    • @sdwest6840
      @sdwest6840 ปีที่แล้ว +1

      Her name is dema. God bless her soul

  • @johannahunderwood4596
    @johannahunderwood4596 3 ปีที่แล้ว +5

    This is the third time I have watched this video since it was posted. Nora is indeed a beautiful little girl with such a lovely face and a cheeky smile. The parents are so proud of their little girl and their unconditional love is plain to see. Seeing the father doting on her, I fully believe that he would fight anyone in defence of his daughter. So genuine. I wish them well in the future.

  • @ellesbells902
    @ellesbells902 3 ปีที่แล้ว +5

    I don't know about that Nora song but at least she made it through

  • @honeyd8436
    @honeyd8436 2 ปีที่แล้ว +4

    I see my baby, Rachel, in Nora and wish that we had had the opportunity to meet her. To tell her that we loved her and that she was very much wanted.

  • @jeremeysmelltoast7829
    @jeremeysmelltoast7829 3 ปีที่แล้ว +4

    Chris you are a amazing guy . you deserve more recognition than you get . And I know your going to say no n this n that humbly but you do .

  • @anaromello
    @anaromello 2 ปีที่แล้ว +1

    Lovely parents. She looks so content.

  • @kellysheridan3149
    @kellysheridan3149 9 หลายเดือนก่อน +1

    Chris you're amazing ❤ thank you for sharing these beautiful stories ❤

  • @marleenninaka1303
    @marleenninaka1303 3 ปีที่แล้ว +5

    Hi everyone. It's so nice to see you all again on TH-cam. I want to meet you all one day. Take care and stay safe.

  • @tyrellwilliams2914
    @tyrellwilliams2914 2 ปีที่แล้ว +2

    Bless you all ❤️❤️❤️ And In Prayers daily 🙏 Very beautiful and nice child and adorable ❤️and Very Loving Parents. Love and Care and Support and Concern Always ❤️❤️❤️❤️ ❤️❤️❤️ ❤️❤️❤️❤️❤️ Best Wishes and Health and Prosperity ❤️❤️❤️❤️❤️❤️❤️❤️❤️

  • @theresaann7388
    @theresaann7388 ปีที่แล้ว +1

    Little Nora, Is a very Blessed child, To have such wonderful, caring and loving parents.. I can see the smile and happiness in her when she's around both of you.. I wish you the very best.. Teresa. From Jackson, Michigan.

  • @amythesillyunicorn8708
    @amythesillyunicorn8708 3 ปีที่แล้ว +2

    Nora is very cute I hope she's always happy 😊

  • @lins4882
    @lins4882 ปีที่แล้ว +1

    This are real parents that diserve all the best ❤
    God bless you ❤

  • @xPantanox
    @xPantanox 3 ปีที่แล้ว +4

    All my Love towards that family and their struggle, but most to the Girl who is like a Treasure to us all.Our little Princess with beautyfull red hair.

  • @vikramiitmadras3508
    @vikramiitmadras3508 3 ปีที่แล้ว +1

    She's genuinely so beautiful

  • @waynedockett4212
    @waynedockett4212 3 ปีที่แล้ว +13

    Praise God for you both and the love you share with your child, in Jesus name!

  • @sheenagriffith2635
    @sheenagriffith2635 9 หลายเดือนก่อน +1

    I pray Nora lives a long, happy life. She's a princess.

  • @HeyGirlHaaay
    @HeyGirlHaaay ปีที่แล้ว +1

    😢😢😢
    So beautiful! Hold your babies tight, parents. They aren't given to anyone who's not strong enough to brave it for them. ❤

  • @antoniotolentino8108
    @antoniotolentino8108 3 ปีที่แล้ว +12

    That is so good for this family thank the lord for their miracle

    • @nat22228
      @nat22228 11 หลายเดือนก่อน

      Definition of a miracle: an extraordinary and welcome event that is not explicable by natural or scientific laws and is therefore attributed to a divine agency- a disabled child does not fall under that category, their ailments and defects can be explained with the afore mentioned. They exist due to advances in medical science and interventions. Nothing more, no divine intervention or anything else you’d like to assign it to. A miracle would be her waking up tomorrow completely healed without any help from medical professionals. I’d believe she was truly a miracle then. With all that said she’s a sweet child & deserves all the love there is from her family now that she’s here.

  • @kathrynoneill5862
    @kathrynoneill5862 3 ปีที่แล้ว +8

    She is so precious.

  • @kimmyrachelle6880
    @kimmyrachelle6880 2 ปีที่แล้ว +4

    Ok I want Nora’s dad to be my Dad and I’m 38 lol I’d take both of them as parents: wonderful God fearing parents. I love them both and I love Nora. I wish I could hold her little cute self ❤️

  • @Heyymynameisjbells
    @Heyymynameisjbells 2 ปีที่แล้ว +1

    Awe shes such a beautiful little princess

  • @KKM0226
    @KKM0226 3 ปีที่แล้ว +5

    My first daughter had Trisomy 13, and I totally understand the fear and hope that comes throughout the pregnancy. I’m so happy for them that their daughter is Alive and is so beautiful and joyful. my daughter, Amethyst, did not survive because of her undeveloped lungs among other things but it’s so beautiful to see the survivors. My heart goes out to this family. What a beautiful blessing ❤️❤️💜

    • @jeckoo100
      @jeckoo100 2 ปีที่แล้ว +3

      I had a son with Trisomy 13, he only lived for 20 days at NICU. Never get the chance to hold him in my arms.. Sending you big hugs ❤️

    • @KKM0226
      @KKM0226 2 ปีที่แล้ว +1

      @@jeckoo100 sending them right back

  • @leeeverett9661
    @leeeverett9661 ปีที่แล้ว +2

    That's why it's so important to do ultrasonic tests prenatally...

    • @LindaLouwants2retire
      @LindaLouwants2retire 5 หลายเดือนก่อน

      Do you mean ultrasounds? Not sure they always pick up all trisomy conditions.

  • @aliciamarie9704
    @aliciamarie9704 2 ปีที่แล้ว +1

    I bet she gives the best hugs!

  • @brookemckinley5709
    @brookemckinley5709 2 ปีที่แล้ว +1

    Nora is the absolute cutest!! That smile melts my heart with those rosy cheeks 😊