Just came across this interview years later after it's been put online. Bethany, if you ever read this comment, you are a blessing. Having the courage to come forward and spread the voice of so many fellow patients, with plain honesty and wit, in public helps all over the world. We must change narratives and overall stigma on these diseases. This keeps killing people, in many different ways. Out of shame or lack of proper medical care. To people reading this comment, never feel ashamed to get help and try clozapine, if other medications have failed. It can life-changing, as it did to me. Don't listen to this idea that clozapine would only be prescribed to resistant patients, other medications just don't work on the many other neurological and biological pathways that have been identified as faulty in this disease. And maybe new treatments will fill that void in a near future.
I follow you Bethany. You are an amazing woman. My 32 year old son has this illness too...was diagnosed at about 26 years. He finished university with a chemical engineering degree and is currently employed, not as a engineer yet though. He has been hospitalized about 5 times and since last hospital stay has been on invega sustenna His positive symptomes are gone, but as you well know the negative ones can be more of a challenge. Is there anything that has worked for you on the treatment on negative symptomes?
So feeling so sedated that you cannot maintain full-time work, cannot drive, and exhibit symptoms of tardive dyskinesia counts as "recovery"? Well, I suppose what constitutes a "delusion" is truly in the eyes of the beholder. In my book, this type of life really sucks.
One good thing about that is that she appreciates the improved life that she has been given through the miraculous benefit of medicine.....probably more than most people who have their health.
I'm afraid that Bethany continues to exhibit spectacularly poor insight and judgment -- unlike a diagnosis of schizophrenia, a diagnosis of cancer doesn't take away a person's civil rights or expose them to the prospect of involuntary treatment. Lol.
All brain diseases should be just as supported by the public and and health care system as is cancer. I believe that was the point she was speaking to.
Just came across this interview years later after it's been put online. Bethany, if you ever read this comment, you are a blessing.
Having the courage to come forward and spread the voice of so many fellow patients, with plain honesty and wit, in public helps all over the world. We must change narratives and overall stigma on these diseases. This keeps killing people, in many different ways. Out of shame or lack of proper medical care.
To people reading this comment, never feel ashamed to get help and try clozapine, if other medications have failed. It can life-changing, as it did to me. Don't listen to this idea that clozapine would only be prescribed to resistant patients, other medications just don't work on the many other neurological and biological pathways that have been identified as faulty in this disease. And maybe new treatments will fill that void in a near future.
I follow you Bethany. You are an amazing woman. My 32 year old son has this illness too...was diagnosed at about 26 years. He finished university with a chemical engineering degree and is currently employed, not as a engineer yet though. He has been hospitalized about 5 times and since last hospital stay has been on invega sustenna
His positive symptomes are gone, but as you well know the negative ones can be more of a challenge. Is there anything that has worked for you on the treatment on negative symptomes?
Hi Bethany
How much of a dose of clozapine are you taking, and how long did it take to kick in ?
Thanks in advance
So feeling so sedated that you cannot maintain full-time work, cannot drive, and exhibit symptoms of tardive dyskinesia counts as "recovery"? Well, I suppose what constitutes a "delusion" is truly in the eyes of the beholder. In my book, this type of life really sucks.
One good thing about that is that she appreciates the improved life that she has been given through the miraculous benefit of medicine.....probably more than most people who have their health.
another woman…
I'm afraid that Bethany continues to exhibit spectacularly poor insight and judgment -- unlike a diagnosis of schizophrenia, a diagnosis of cancer doesn't take away a person's civil rights or expose them to the prospect of involuntary treatment. Lol.
All brain diseases should be just as supported by the public and and health care system as is cancer. I believe that was the point she was speaking to.
@@cloudcloud490 You are absolutely right. That was the point that she was trying to make.