Living with Epilepsy - Emily's Story
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- เผยแพร่เมื่อ 2 ต.ค. 2024
- Meet Emily - Over the past two years, Emily and I have grown closer
than sisters. She may be dealing with epilepsy, but her positive attitude brings so much joy into my life. I hope you all love her as much as I do! Thanks for watching!
-Hayley
*I'm putting support out there to everyone who has epilepsy, non-epileptic seizures and other medical conditions!*
Thank you I have it to I cought it on tape before I almost started crying
@@justjaidyn5662 np I'm just putting it out there because I have it too and ik what it's like to not get any acknowledgement
Such a touching story of an amazing girl!! Epilepsy sucks!😡 I'm part of a fundraiser each year called Talent for Epilepsy and Emily's story really touched my heart and people like her are exactly why I will continue to support the cause.💜💜
That's awesome
Talent for Epilepsy sounds awesome! Thanks for helping out! Emily actually got out of the hospital yesterday from her brain surgery, and she's on her way to recovery:)
+Hayley Mikell That is awesome news!! Thanks for updating!!
I had a friend that has sisruurs
thx for sharing your story iv had epilepsy since 14 im 22 now, just a few days ago I had one where my shoulder dislocated but I understand the emotional struggle we all go through. I know were some of the strongest people out there and I feel the same way if someone is down around me im gonna do my best to make you happy cuz everyone deserves to be happy.
I just started crying. emily I had brain surgery too because of epilepsy. you will be seizure free
I have epilepsy and I understand what she goes or was going through I have seizures everyday but I'm in high school and only a couple off people know I have epilepsy and that I have seizures everyday and only 1 person knows I have a seizure everyday and she doesn't tell the teacher because she knows what to do I knew I had epilepsy as soon as my teacher said that I had a seizure throughout class and they come and go at random times and if so I'll end up having 3 or 4 in a row and I don't understand how people in my class still don't know I have epilepsy when I have had a few in class all they care about is this other person who has epilepsy that's not as bad as mine and I have been scared to tell people I have epilepsy because I feel as though people don't want to be my friend anymore and I started high school in September
You're so strong, and I admire you very much for that. Keep your chin up, and don't let this bring you down! Be a role model for others going through the same thing (: Hope everything gets better
+Hayley Mikell thx very much 😋
I'm so sorry, but oddly enough people are usually fascianted and gain more respect for you. So you know where I'm coming from: I had my first seizure at 1, Diagnosed at 3, constant seizures till 11. I'm on Onfi now, VERY effective. In between then and now it's been 65+ seizures (longest at 3 hrs.) and 90+ hospital visits. But with my triggers functioning I have had five more since the age of 11. I am now 18. I've tried Kepra before. Worked a little... I was on the ketogenic diet, other diets, yada yada yada...
LUCKILY, I have no mental or physical disorder, no concussions, and no broken bones to speak of. Whiplash, though the last of it JUST finished healing. That took over a year...
I don't LIKE telling people but I will if i WANT to or NEED to (for a film or theatre where my parents definitely won't be there).
Your so strong Your a brave person
I started high school in August For me most of the people in my year know I have epilepsy because I have them about every 2 minuets I have absonces seizures all the time people know I have it just by being in the same class room as me because they see me blank out a lot I mean a lot. As well as that I have myoclonic seizures as well I have about 100 or so of them. So all together I have about. 800 or more seizures a day. But I don’t let that get me down I look on the bright side of things. I stay as bright as I can and when I can xxxxxxx
Thank you for sharing this story, being a mom of an epileptic daughter myself (who also has grand mal seizures) is a very emotional experience. Cheers for Emily and Martha. How did the surgery go? This video was posted 2 years ago, I hope you guys are a seizure free family now
sadly i have epilepsy and im 12,my fisrt seizure was when i was 2 and my last seizure was actually a few weeks ago,i also have non-epileptic seizures which are weird,and bro i sucks i wont be able to drive when im older and my theatre class is actually going on a feild trip to main event,and i cant play lazer tag,like it sucks so plz try and raise awareness for this disease
hey:) ik this is late, hope ur well, but do you think ur seizures were caused by genetics? did anyone else in ur family have them before?
isabella b. You dont always know
My son is 13 and has been diagnosed with a rare form absence status epilepsy. His seizures show no symptoms until the seizure has lasted for hours! The only warning we had was he started acting only tired at first then gradually he started acting confused and from there for 24 hours he didn't know what year it was, where he went to school, or even what grade he was in etc. his motors skills were perfect and he talked to everyone normal the entire time, he just couldn't answer certain questions. The hospital kept him overnight and gave him fluids and in 24 hours he slowly started remembering and they said he was good and sent us home. We know now that he was having a constant seizure the ENTIRE TIME of his confusion! Almost 3 months later he begins having the same symptoms when I woke him up for his 2nd day of school. we are sent for an EEG, which revealed at 10 am he was actually having what the neurologist referred to as the worst EEG he had seen) we then were sent to a different children's hospital where they observed him until 8:00pm, all this time my son passes every test, he is talking and his motor skills are completely normal! They finally begin his EEG around 9:00pm. It reveals he is still in seizure! They are blown away. Say they have never seen an absence case like his and they quickly gave him a big dose of adavan which immediately stops the seizure and he is able to regain his memory immediately. Does anyone have a child who has these same symptoms? His neuro doctor ordered a brain glucose test, but when we went for a follow up last week they said the test had been canceled and they had no idea what happened? When I asked if they were going to draw his blood and re do the test, they said that his medicine was controlling the seizures so far so they didn't feel the need to do the test! I need advice and some direction. I searched further; visited epilepsy websites, blogs. I find info about someone having the same symptoms. I was really determined. Fortunately for me, I stumbled on a testimony of someone who had epilepsy for several years and was cured through Herbal medication. I read awesome stories of people whose condition were worse. I was not a fan of Herbal Medication, because I once believed that they have not researched it enough. But due to numerous testimonies I was more than willing to try it…. I contacted the doctor, and my son used the herbal medication. It became a miracle for my son free from rare form absence status epilepsy within 3 months. The herbal medication worked without any trace of side effects on my son…. totally free. I decided to share my son story to tell people out there, that there is a hope for those with epilepsy using herbal medicine, and anyone who suffers from seizures can be cured.
Contact him: Dr.lawson52@ gmail. com
I live with epilepsy as well. I would like to praise your caring family for being so kind to you! I am usually alone unless im at school or work which makes it more risky for me. god bless you and your family honey
Thank you so much for taking the time to make this. I was diagnosed with brain cancer when I was 16 and I had to have two brain surgeries because of that. The damage to my brain caused me to develop epilepsy. I've been dealing with it for 5 years now. I'm having epilepsy surgery in a month to hopefully stop the seizures forever. Your joy and vulnerability brought me so much peace. I pray that you are recovering well and that you would live a seizure free life from here on out! Much love. Alexandra
Thank you so much for sharing your story! I wish you the absolute best during your surgery and your recovery. Stay strong!
hey how are you??💓
@@HayleyMikell
Have you tried ketogenic diet? Look up Charlie Foundation. It is heping a lot of epileptics thru diet. It was founded by Jim Abrahams when his son Charlie was totally cured of his epilepsy by a mere diet.
I was recently diagnosed with epilepsy myself and it sucks. I can no longer drive or be by myself. No medication is working for me and it just plain sucks. I'm here to support anyone with this disorder. It really sucks. People do not understand at times.
Micheal Epilepsy makes you stronger. I hav e it all my life and I have never let it define me or beat me. Dont let it beat you.
hi:) how r u? what do you think caused ur epilepsy? was it genetics or something else?
I aslo have epilepsy too. Have u ever tried omega it calms your brain waves 4:16 ❤❤ 4:26
I have epilepsy as well I started having seizures at 13/12yrs old ive been on so many meds. Right now I am on epival lamictal and keppra for my drop seizures. The drs say that my brain cannot be operated on cuz I have so many kinds its all over my brain drop seizures are the scarest for me. I also take clonazepam and lorazepam for my auras I feel disoreanted and thats wen I take lorazepam and relax on my bed
Man it hurts me to see a person having the same problems as me with epilepsy
I hope your seizures stop! My case is very similar to yours. I was born with a brain malformation and have had seizures since I was 8 months old. I still have them, I'm 14. My last one was about a month ago. It makes me feel better to know there is someone out there that had been through the same thing 💞🌎
Very powerful story. Can you please provide us with an update on how Emily is doing and results of her surgery. I am hoping that she is no seizure free.
Hey Em
Hope your doing well
Thanks for sharing.
keep positive I know what you're going through I have the same thing I have petit mal seizures
I have epilepsy and i had a seizure in a bathtub i was literally drowning my parents struggled to try and open the door since i locked i also have had other times that i almost died it really sucks to have epilepsy
I have been living with Epilepsy for 5 years now
I have epilepsy
I have been suffering now for 20 years with seizures and I am tired. I’m actually in the hospital bed now after suffering 4 back to back yesterday. I am headed for the brain surgery.... I am giving this to God! Pray for me and I am praying for all of you😘
Shanise Smith praying for you and I hope the surgery went well!!! 💛💛
Don’t give Emily I suffer from epilepsy since I was 1 year old I still have seizures there’s no cure from epilepsy and I still have seizures and age 39 year old still have seizures I cannot drive my doctors said I got brain tumour don’t worry Emily don’t give up I cry for my seizures i will pray for you and myself don’t worry Emily don’t give up you are special brave girl as me I am not giving up I am just like you never give up take care Emily
Hi Emily I suffer from epilepsy since I was one year old and I still have seizures and sometimes I have slight seizures and sometimes I have slight seizures and I am 39 year old and I take 16 tablets a day and there no cure I just want to tell you and all so that’s the life Emily you are brave Emily and take care and you brave woman just let you know take I hope everything goes fine take care
Living with epilepsy isn’t fun. I new live with a device that tht keeps my seizures away but still have constant seizures aura but tht I can deal with. They put me n the hospital to do similar tests b4 surgery. Tht was a nightmare lol. They wanted to remove a part of my brain but wasn’t to thrilled about tht lol
Just had surgery Friday. Hopefully everything is working out for you now
I,m so sorry I have epilepsy and I know about all of it
Hi I no how you fell I got it too
Emily you are so beautiful god bless you 💖💖💖i have epilepsy too
hj
Brave young girl, keep positive
Me too i have vns
i have the same and i hate haveing them