April 20, 2017 Huntington's Disease

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  • เผยแพร่เมื่อ 20 ส.ค. 2024
  • Join me as I discuss my very hard two days, the devotional is titled The Music of Your Loving Kindness, and the worship song is Praise You in this Storm.
    Song: • Video
    Lyrics:
    I was sure by now, God you would have reached down
    And wiped our tears away,
    Stepped in and saved the day.
    But once again, I say amen
    That it's still raining
    As the thunder rolls
    I barely hear your whisper through the rain
    I'm with you
    And as your mercy falls
    I raise my hands and praise
    The God who gives and takes away
    And I'll praise you in this storm
    And I will lift my hands
    That you are who you are
    No matter where I am
    And every tear I've cried
    You hold in your hand
    You never left my side
    And though my heart is torn
    I will praise you in this storm
    I remember when I stumbled in the wind
    You heard my cry you raised me up again
    My strength is almost gone how can I carry on
    If I can't find you
    As the thunder rolls
    I barely hear you whisper through the rain
    I'm with you
    And as your mercy falls
    I raise my hands and praise
    The God who gives and takes away
    And I'll praise you in this storm
    And I will lift my hands
    That you are who you are
    No matter where I am
    And every tear I've cried
    You hold in your hand
    You never left my side
    And though my heart is torn
    I will praise you in this storm
    I lift my eyes unto the hills
    Where does my help come from?
    My help comes from the Lord
    The maker of heaven and earth
    I lift my eyes unto the hills
    Where does my help come from?
    My help comes from the Lord
    The maker of heaven and earth
    And I'll praise you in this storm
    And I will lift my hands
    That you are who you are
    No matter where I am
    And every tear I've cried
    You hold in your hand
    You never left my side
    And though my heart is torn
    I will praise you in this storm
    And though my heart is torn
    I will praise you in this storm

ความคิดเห็น • 23

  • @lydiamoore142
    @lydiamoore142 2 ปีที่แล้ว +1

    Jesus is always with you.

  • @robotgurl6900
    @robotgurl6900 5 ปีที่แล้ว +4

    I have Huntington's disease to I'm praying for you you're awesome God loves you

  • @visionvixxen
    @visionvixxen 2 ปีที่แล้ว

    Praying for you….Thank you for being you. 🙏

  • @lydiamoore142
    @lydiamoore142 2 ปีที่แล้ว

    Prayers go out to you

  • @erikd3688
    @erikd3688 5 ปีที่แล้ว +3

    You are so strong, I cant tell you how impressive you are- God Bless you my friend

  • @darkskyatnight
    @darkskyatnight 6 ปีที่แล้ว +8

    Glad you DID hit the record button! Hang in there. Let us look forward to a cure in that 4th Chromosome! Until then, you are awesome.

  • @lashawnablanton4649
    @lashawnablanton4649 6 ปีที่แล้ว +5

    Thanks for sharing your journey. You have encouraged me. Praise you in this storm is my fav. Beautiful and true worship song. Never lose faith or hope. God bless

    • @stephaniechase1540
      @stephaniechase1540  6 ปีที่แล้ว +1

      LaShawna Blanton thank you so much!

    • @lashawnablanton4649
      @lashawnablanton4649 6 ปีที่แล้ว

      Stephanie Chase your welcome and Thank you for the encouragement

  • @lydiamoore142
    @lydiamoore142 2 ปีที่แล้ว

    Love ya

  • @oliviaacosta6239
    @oliviaacosta6239 3 ปีที่แล้ว +1

    God bless

  • @irme8930
    @irme8930 4 ปีที่แล้ว +1

    Water with lemon and seawater help with these conditions. Mms and dmso, too. Sun exposure, swimming, sauna.

  • @scottgordon241
    @scottgordon241 5 ปีที่แล้ว +3

    my ex gf has stage 3 hd and weve since had a falling out . imiss her even though she had bouts of anger.. anyway god bless u and i will pray for u

  • @coxcox7350
    @coxcox7350 2 ปีที่แล้ว

    Thank you for this video 🥰 I have huntington's disease too it's a very difficult brain 🧠 disease.

  • @mikeheffernan265
    @mikeheffernan265 4 ปีที่แล้ว +1

    Loosing something like keys or a lighter is brutal for us.

  • @dianeostertag244
    @dianeostertag244 3 ปีที่แล้ว +2

    This was 3years ago. How are you doing now hun?

  • @josephbyrd6642
    @josephbyrd6642 ปีที่แล้ว

    where are You?

  • @user-zs2dw1cg7y
    @user-zs2dw1cg7y 6 ปีที่แล้ว +2

    my ex boyfriend has it and he lives with my mom and me but even if he been diagnosed 3 years ago i cant understand him when he talks . We saw the doctor only 3 times and we dont know how to help him . The worst is health care is free here

    • @stephaniechase1540
      @stephaniechase1540  6 ปีที่แล้ว +1

      catherine duffy thanks so much for sharing with me about your ex. I started seeing a speech therapist that gave me different exercises for slurring my speech., is he able to get a referral to see one?

    • @user-zs2dw1cg7y
      @user-zs2dw1cg7y 6 ปีที่แล้ว +1

      Stephanie Chase we are talking about it since so long with the social worker and its not happened yet :( . i cant understand anymore when he talks and i dont know why but his disease is going so fast . Im asking for him to do some rehabilitation since many many months . this is so hard

  • @elizabethsemirg6837
    @elizabethsemirg6837 7 ปีที่แล้ว +1

    Do you have more movements when you're stressed? I have Chorea and was diagnosed at 15, I'm 34 now. Not Huntingtons or Sydenhams.

    • @stephaniechase1540
      @stephaniechase1540  7 ปีที่แล้ว

      Elizabeth Semirg thanks for your comment! I don't have chorea when I get stressed. Do you?