@@liftingoutofthelows1341 Just a quick question mate. Do you use much sunscreen? Weather in UK has been decent the last couple weeks. What’s your experience? I did start, but I kinda lost interest. I tan well and sun doesn’t seem to effect me, I’m on MTX 20mg and hydroxi. You’re on MTX right? Cheers man
i'm about to start methotrexate too! once my pharmacy gets it figured out with my insurance... we can see how it works, together! good luck. i hope we don't get the side effects and get a good result!
Hey! I found you cos of the scalp video… I wasn’t expecting you to talk about arthritis as well which made me interested cos I think I have it too… I just got a wrist mri last week so I was surprised to hear u did too… and my index fingers on both my hands hurt too. I think we have the same thing. Before the mri my orthopedic doctor said i just have inflammation due to hypermobility… but I think I need to see a rheumatologist like u mentioned. I don’t have plantar fasciitis tho so that is one difference
Hey, definitely push to see a rheumatologist. Thankfully in my case I got diagnosed very quickly but with a lot of people it seems to not be the case. Everyone has different symptoms but if you have a problem with 2 index fingers that’s something to take note of. Not everyone will have the plantar fasciitis. Keep a tan on it and push for the rheumatology appointment if it’s a concern. If you have PsA (hopefully you don’t) the quicker you can get it sorted and addressed the better. Good luck!
How are your hand X-rays? Do y have a lot of erosions where your flares have been worse ? My right index finger has flared at least 8 times and i have an erosion exactly where the pain was !!hope you are well, and that we both have great outcomes and somehow make the most out of this strange disease. I love your attitude ! We seem like kindred spirits.
Thanks for the attitude comment, all you can do is stay positive. I had an x-ray and it all came back clear but on my left hand there seems to be some sort of permanent swelling but I can't say if it's bone or scar tissue from ligament damage, I think the latter is more likely
Really helpful & informative. Have Psoriasis, which is severe, PASI 17 at my last consultation. Including scalp - which you mentioned, and I have nail involvement - which I believe is also fairly common in folks with Psoriatic Arthritis. Previously had swelling and a lot of pain in my Knee, my GP sent me for an x-ray and that showed damage to the joint. That has thankfully calmed down a lot. Currently have a painful and swollen knuckle, and heel pain. Noticed a couple of toes are starting to swell up. Dermatology referred me to rheumatology, but the wait time is very slow. I'll be starting Methotrexate in a few weeks, so hopefully that helps with my skin and perhaps my joints too.
i have it too. i hate the swelling in my finger joints. painful and very red/white strange. and i hate the morning fatigue. seems awful to sleep and wake up tired. i hate it. the last time i felt "refreshed" waking up (and wanting to get out of bed) was when i was on sulfasalazine- actually felt "normal"- but then i developed an allergic reaction to the med so had to stop. now on methrotrexate, (second week) so haven't found much relief yet. my tendons keep "acting up"- out of the blue- i'll get pinpoint pain in a tendon (often in my right medial wrist or lately my left medial epicondyle of elbow) which demands an instant ICE application to relieve the discomfort. i hope my insurance will approve of biologics, after a 12 wk methotrexate trial.... i still can't believe i have an autoimmune disease. we never know what the future holds!
Thank you for your videos!
My pleasure :)
Thanks for the videos, it’s great your putting these out there
Thanks mate
@@liftingoutofthelows1341 Just a quick question mate. Do you use much sunscreen? Weather in UK has been decent the last couple weeks. What’s your experience? I did start, but I kinda lost interest. I tan well and sun doesn’t seem to effect me, I’m on MTX 20mg and hydroxi. You’re on MTX right? Cheers man
Thanks for these mate. Starting mtx for my psoriatic arthritis tomorrow and your videos have helped alleviate some concerns I had.
Good luck mate. Stay positive with it
i'm about to start methotrexate too! once my pharmacy gets it figured out with my insurance... we can see how it works, together! good luck. i hope we don't get the side effects and get a good result!
@@fooled_twice4668 Good luck! like I said it was a good experience for me
Hey! I found you cos of the scalp video… I wasn’t expecting you to talk about arthritis as well which made me interested cos I think I have it too… I just got a wrist mri last week so I was surprised to hear u did too… and my index fingers on both my hands hurt too. I think we have the same thing. Before the mri my orthopedic doctor said i just have inflammation due to hypermobility… but I think I need to see a rheumatologist like u mentioned. I don’t have plantar fasciitis tho so that is one difference
Hey, definitely push to see a rheumatologist. Thankfully in my case I got diagnosed very quickly but with a lot of people it seems to not be the case. Everyone has different symptoms but if you have a problem with 2 index fingers that’s something to take note of. Not everyone will have the plantar fasciitis. Keep a tan on it and push for the rheumatology appointment if it’s a concern. If you have PsA (hopefully you don’t) the quicker you can get it sorted and addressed the better. Good luck!
How are your hand X-rays? Do y have a lot of erosions where your flares have been worse ? My right index finger has flared at least 8 times and i have an erosion exactly where the pain was !!hope you are well, and that we both have great outcomes and somehow make the most out of this strange disease. I love your attitude ! We seem like kindred spirits.
Thanks for the attitude comment, all you can do is stay positive. I had an x-ray and it all came back clear but on my left hand there seems to be some sort of permanent swelling but I can't say if it's bone or scar tissue from ligament damage, I think the latter is more likely
Really helpful & informative.
Have Psoriasis, which is severe, PASI 17 at my last consultation. Including scalp - which you mentioned, and I have nail involvement - which I believe is also fairly common in folks with Psoriatic Arthritis.
Previously had swelling and a lot of pain in my Knee, my GP sent me for an x-ray and that showed damage to the joint. That has thankfully calmed down a lot.
Currently have a painful and swollen knuckle, and heel pain. Noticed a couple of toes are starting to swell up.
Dermatology referred me to rheumatology, but the wait time is very slow.
I'll be starting Methotrexate in a few weeks, so hopefully that helps with my skin and perhaps my joints too.
Good luck with the MTX. It helped me a decent amount. I wish you well on your journey!
i have it too. i hate the swelling in my finger joints. painful and very red/white strange. and i hate the morning fatigue. seems awful to sleep and wake up tired. i hate it. the last time i felt "refreshed" waking up (and wanting to get out of bed) was when i was on sulfasalazine- actually felt "normal"- but then i developed an allergic reaction to the med so had to stop. now on methrotrexate, (second week) so haven't found much relief yet. my tendons keep "acting up"- out of the blue- i'll get pinpoint pain in a tendon (often in my right medial wrist or lately my left medial epicondyle of elbow) which demands an instant ICE application to relieve the discomfort. i hope my insurance will approve of biologics, after a 12 wk methotrexate trial.... i still can't believe i have an autoimmune disease. we never know what the future holds!
It’s true but try to stay positive through the journey. I know it’s hard. I hope you find some resolve with biologics. Good luck!