Nigel Dempster - Life with Progressive Supranuclear Palsy
ฝัง
- เผยแพร่เมื่อ 7 ต.ค. 2010
- An exclusive video made by Nigel Dempster, on life with Progressive Supranuclear Palsy (PSP).
PSP is a terminal degenerative brain disease which robs those affected of their ability to walk, talk, eat and see. The PSP Association provides help and support for those living with PSP, whilst funding research into the causes, treatments and eventual cure for the disease.
www.pspeur.org
I’ve just read that poor Nigel passed away in 2007, so almost 13 yrs ago, and I’m ashamed to say I had absolutely no idea he had been ill with this dreadful disease, or that he had died, just assuming he had retired and was enjoying himself travelling the world or similar !
I’m so sorry Nigel, and although I didn’t know you personally, it broke my heart, and enraged my soul at the same time, to see his face when he said how much he missed his friends and that NONE of them had been to see him! Whoever he was referring to, I hope your conscience is severely pricked and your thoroughly ashamed of yourselves . Think how he must have felt ! And imagine for a moment, that God forbid any of you are ever struck down in a similar way, you have TRUE,GENUINE friends who will visit, not be embarrassed,because you can’t speak properly, can’t walk well, or at all, in fact you, like Nigel, are no longer the person they used to know. But inside you are. And that spark inside you, doesn’t miss a thing....everyone should treat their friends with the love and respect they deserve...allow for the hiccoughs of life that can interrupt any
Of us at any time, but for Gods sake..be kind...it must have hurt Nigel so badly...and it’s too late now to say sorry, or to have walked weeping crocodile tears behind his coffin. Life is like a stage in a theatre,,,we have one chance to walk on and perform with our fellow actors to the best of our ability .and at the end of our performance,with or without the support of our fellow actors, we walk off again...permanently...so live life to the full, and help your friends,loved ones and those not “managing the show “so well, before you walk off for the last time, and in theory move up a class and reunite with those you thought you thought you had lost forever...life is truly what you make it, but be kind...think of Nigels sadness and suffering, which in part could have been helped him feel cared for and that he mattered to his friends. RIP Nigel. You are still loved and
Thought of by many of us. ❤️❤️❤️🌈🌈🌈💐
I'm ll years old and my grandad has psp xx sending my love to anyone's family's who have to deal with this
x_x.Hxlly.x_ x Your love was well received in Canada. My brother has PSP. I hope you don’t cry as much as I do. 💔
Mon mari est dcd de la PSP je l ai accompagné jusqu'à la fin. Trop triste 😢❤
My husband died from complications of this dreadful disease. From a strong and healthy person he became a frail and insecure person.He often clutched my hand and never let me go. The saddest part is that he was always alert and knew what was going around but was not able to communicate. I made it a point to sit by his bedside and talk about every thing that happened that day and I am sure he understood everything. I pray that a cure would be found soon,Let's hope the best.
***** Thank you. I cherish each and everyday of my life with my beloved husband.
Condolences to you. My mom had this disease and mis diagnosed as well for something else.. I wish the medicine will be here soon. It is so hard to see your love ones struggle. While all you can do is to hope that help will be there asap. I am still hoping that one of these days a cure will be discovered and i wanna say eff you PSP. I reallly really hate you :(
My mom 71 yrs old just three months before diagnosed by this disease lm very afraid of her pls help me
@@gunashanmugam9166hi, any update about your mom pls? Mine was diagnosted recently too at 65 and I’m very scared
Claimed my Dad too. From being an ultramarathoner at age 78 to bedridden by 83 and gone by 84. Man do I miss him, but to see what PSP did to him I am happy he is at rest.
God bless him for Converting to the Catholic Faith so late in life. It brings comfort to pray in Mass take the Eucharist and ultimatley be given your last rites. I tirelessly prayed the Rosary for my later father who died of Parkinsons Disease age 69 and like Nigel lost balance standing and fell over easily. I was told my father had seen many crosses in pavements,fences, walls months before his death. He was christian but not practicing. Unknowingly I had the same experience as my father in those coming weeks untill his death. All I can say is god works and gives us his consolation and reasurance and ultimately our release if we believe. RIP Nigel Dempster
just got back from seeing my grandma today for what i feel was the last time!, doctors have said its a matter of hours now and its been far too long!. 2 yrs ago she was as active as you or i and as sharp anyone you could know, this horrible disease fully took my grandma about a yr and a half ago and now it pains me to see her as a shadow of what she once was. my heart goes out to anyone who is dealing with this disease and can only hope that a cure is found soon...will never forget ya nan xxxx
Hello‼️ im sorry that your grandmother went through all of this!!!‼️how are you doing?
Mr Dempster turning to God... how wonderfully moving
What is so sad is the fact that psp takes away any joy you have it seems. You are a shell of who u once were. My wonderful active savvy little mama now sits in a chair most days. I know u all know how horrible this disease is.
My mother has been diagnosed with this dreadful disease recently after being misdiagnosed for two years. It is so hard to accept that there is nothing we can do for her, and watching her deteriorate and suffering is just heartbroken. I feel powerless and totally devastated.
My mother has suffered from this disease for 5 years now. She has so many complications now I fear she won't live much longer.
My father in law is currently suffering from Progressive Supranuclear Palsy. The doctors believe it was caused by Agent Orange but the VA doesn't recognize it yet as linked to Agent Orange. We made this video to spread awareness.If you have a minute to watch the video, we would really appreciate. Just search youtbue for "Agent Orange 40 Years Later" If you can share it with other, that would also be greatly appreciated!
Thanks so much for your time!
Lyndsey
God Bless you Sir
I was just diagnosed last month. It is scary to think I will slow down this much. I already have problems typing and such, but the worsening part is not anticipated.
I'll say a prayer for you.
enjoy what time you have is all i can say ,,no fun getting old either im not sure yet if i have psp. in the two years i have seen a nuro with my parkinsiums, vision is fine , the movement has slowed and my speech is gone...but i don't get the shakes...
I've just seen Nigel as a panelist on Through the Keyhole, a very old tv program with David Frost and Lloyd Grossman. It's currently being shown on the Sky Challenge channel. Nigel can be seen in Series 2 Episode 4.
Good for you man!
My father has been diagnosed with this. It is terrifying.
it's really a horrible disease and my mom is right now suffering from it. she was diagnosed by this disease 6 months back and earlier they it was as Parkinson's Plus disease........ she was falling down frequently and continuous care is required. Apart from that she was having rigid left arm from shoulder and having difficulty left leg too.
My mother made it 8 years from her first signs of her falling.
Heartbreaking to watch a loved one go through this horrible disease 💔
I just found out today that my grandmother has psp 💔 watching videos on this I'm learning that shes lucky if she makes it 5 years down the line 💔
I have just met a person in Canada with this terrible disease- I’m a senior, well-educated, but had never heard of it before.
Is Nigel still alive? So sorry to hear this. More needs to be done in education of public! Thanks for sharing. 🇨🇦🌹
No, he died about 3 years after this video was made at age 65. My father is in the process of getting a diagnosis, but it looks as though PSP will be what he's told. He's nearly at the stage Nigel is in this video already.
This is so very sad 😔
About Nigel Dempster illness
Michael Proudlock who owned Foxtrot Oscar Restaurant has also sadly passed away as well 😢
Pray.
I HATE this disease, it killed my father!
Very sad. Hope new treatments and a cure are found soon.
My friends don’t come around anymore. Sobering..
My dad has this :(
My grandfather had this disease for almost 20 years!
Heritage from Calcutta how cool!
Tell or plz write your's treatment H/o
I've been in this satiation For some years! I Really struggle!
Linda Ronstadt had this. Claimed her ability to sing. Tragic.
My father is in late stage, psp has also brought him closer to Jesus Christ.
T Decarlo What are his late stage symptoms?
Please make sure you check that NPH not misdiagnosed for PSP. NPH is reversible.
Martin Bryan hi Martin! what’s NBH?
The Missionaries of The New Love Revolution sorry I meant NPH
Normal pressure hydrocephalus
Thank you, my dad's just being diagnosed with parkinsonism, the neurologist suspects it maybe PSP and we are all devastated. I'll enquire with our neurologist about NPH, I have already lost hope but will never give up fighting to make my dad's life a little better. My thoughts and best wishes to Nigel's family, there are no words to describe how horrible this disease is.
@@isabelarroyo4432 Sorry to hear that, it is terrible. PSP seems to take years to progress but terrible when you see it happen. What are your Dad's main symptoms please? In my experience it's the walking gait and extreme emotions that are inappropriately seen.
follow us on Twitter: @PSPASSOCIATION