Changing The Way We Talk About Disability | Amy Oulton | TEDxBrighton
ฝัง
- เผยแพร่เมื่อ 12 ก.พ. 2018
- You can take a wheelchair just about anywhere. Amy addresses societal perceptions of disability and her vision for how we all change the way we approach disability. Amy has been a wheelchair user for the past ten years; she has Ehlers-Danlos syndrome, a rare genetic condition that causes weak tissues, joint dislocation, chronic pain and fatigue. In spite of this, Amy lives an exciting and hugely positive life, travelling the world, working as a graphic designer for a charity and campaigning to change the way society understands disability. Most recently, Amy has published for Buzzfeed on her three-month adventure around South East Asia, writing about, filming, and photo-documenting her experiences in her wheelchair.
www.buzzfeed.com/amyoulton/ne...
This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx
"hyper-visible and also completely invisible" woah I love that quote it means a lot
In my experience the hardest thing about being disabled is not the disability itself, but the way normal people perceive the disability.The resulting stereotype slams many doors of opportunity shut, whether it be forming friendships or looking for work, every facet of disabled life is colored by it. The best way I can describe the effect of this preconception or disabled stereotype is a feeling akin to the contempt or scorn a homeless person must inevitably feel from the masses. Normal people get and give a basic respect, that disabled people just don't receive. Instead, this basic respect is replaced by contempt and pity. Without this basic respect real friendships and regular relationships between co-workers cannot exist. There always seems to be an invisible wall or ceiling that is rarely breached. This ceiling, in my experience eventually leads to circumstances where the individual is setup to fail by the majority until the the person gives up or quits. It is extremely frustrating because when exclusion becomes the rule, instead of inclusion, it adds up to lose of opportunity, which ultimately determines ones ability to become successful.
I very much agree.
I love this. Worded it spot on!💯☝️ I hope this is what I can break one day so we no longer need to feel this way🙏
i tried explaining that to my counsellor... she responded by saying i had low self-esteem and i just wanted to be normal.... yeah, i don't get it either
you should have been the one doing the Ted Talk
Ive been humiliated because of it
One of the things that is very difficult about being disabled is seeing how some disabled people do well and do things like traveling to another country and most disabled people like myself live an average or below average life .
Hi Amy - I don't know if you will see this, but my name is Claire, and I have Hypermobile EDS, Postural Orthostatic Tachycardia Syndrome, Mast Cell Activation Syndrome and a few other EDS co-morbid disorders thrown in the pot. I am still walking thanks to a mixture of many, many braces, a cane, lots of lido-cane patches and ace bandages, and a dash of sheer force of will. I want you to know your video was really thought provoking and . Before my disability was visible (aka before it was bad enough that I needed multiple braces and a cane, visibly marking me as disabled) I still had almost all of my symptoms just as badly. Yet doctors did not believe me, strangers did not believe me, and honestly some days I wished I had visible markings of my disability.
Well, the doctors believed me when I had brain damage and damage to my optic nerve, and shortly thereafter my condition deteriorated and my invisible disability became very much visible. Now, I get asked a minimum of 3 times a day if I "fell/sprained my ankle/got in an accident", which befuddles me because I have like 7 braces, a face mask, and more on, and only one of the braces is even on my ankle. With this question, I'm forced to either just say yes or say no, I have a genetic condition, and explain EDS briefly. I get two responses to this. Most often, I get a kind of horrified, quiet sort of pity - a sudden hesitation to question further (which they should have had in the first place, to be honest) now that know what I have is not going to heal or go away in a matter of weeks or months, but will be a lifelong battle. The other response I often get is that I am inspirational/amazing for still staying in school - a few people have even implied (one flat out said) that I was inspirational for living. I was like... thanks? I'm glad you find me inspirational for not... killing myself I guess? I just want people to understand and appreciate that I live with pain and fatigue and have some sympathy if every now and again I need an extension on an assignment or cancel on a night out. Congratulate me if I get an award or graduate or something, not because I'm disabled but because that's an achievement in and of itself. I'm human first and foremost, and I happen to have a disability. Thanks for the Ted talk :) loved it
Yes, i have Cerebral palsy and i totally agree with you, French people dont know the thing at all ,they say but it's curable ? and feel so embarrassed when you say it's not. I would also have liked some empathy and understanding of my extreme fatigue like short délays for exams when i really needed to rest but i never got any. In that sense,graduating university and becoming à teacher were à bigger achievement for me than for abled people,even though no one thought of it this way.
I have a friend with the same condition and she's said the same things too. I have the invisible disability of autism and it's definitely been the way people perceive you which marks your life. Mine was marked by social workers who decided the fact that my children and I all are autistic meant I was not allowed to parent and my children were permanently forcibly taken. We will all live with this and the damage it's caused for life. Yet it was not actually my disability itself but societal attitudes that harmed us.
You right. I'm also a disabled person and try to find some solution on that's why i was watching this kind of video.
Everyone should watch this. We all have to learn these things together as a society
So good to see this and see you talk about your experiences and not someone else talk about someone in a wheelchair...
Eragon Kvothe so bad of a argument
@@Bonecean huh? they're just saying it's good to see ppl who use wheelchairs talk about their own experiences
still searching for videos on disability in order to get my disability away. Thanks for this.
Society loves to labels n judging people. But believing in one self n continue living our ordinary living just like others. Inspiring. Thank you, bless you. All your dreams come true.
Its much easier to take a wheelchair anywhere if you can drive too. Living with disabilities does require creativity. We need to recognise that its harder for people who have fewer resources. Those who cannot use cars, or who don't have supportive families/friends nearby. I'm currently creating resources for disabled people who do not have these advantages and will post again when they are live.
Honestly tow big things abled people don't realist. STARS ARE EVERYWHERE! I'm not kidding, EVERYWHERE. Also, disabled is not a bad word, you can ask me "what's your disability". That is a million times better than "what's your, you know, your thing'
More people need to learn about this...
Balsam Khalaf, I agree
Balsam Khalaf no we don’t only brain dead people need it
The only way normals will learn is if and when they become disabled.
@@sharonjensen3016 Absolutely! People don’t realize it could be them as well.
Aside from all the topics, I LOVE HER ACCENT! I could stay ours long and listen to her!
I wish I had such a sweet and soft accent
Yes yes YES!!!!!! I have EDS as well and am a part time wheelchair user. I resonate with everything you said. SPOT ON!!!! ❤️❤️❤️❤️❤️
She’s such a cool and beautiful person! That backpacking trip must have been incredible
Everyone just wants to be treated like everyone else.
I don't want to be treated like everyone else. I want to be treated like I'm in a wheelchair.
I don't want to be treated like everyone else, I want to be treated like an individual. The probable with collectivist propaganda like the kind in most ted talks, is it robs people of the joys of there own individuality.
Treeforged being treated with the same respect as everyone else isn’t propaganda designed to rob people of their individuality....
people with disabilities are more often only limited by society's perception of us. my wheelchair gets me everywhere i need it to except when people get in my way because they think i need help with a door.
Katie Ahronson exactly. Treat others the way you would like to be treated.
Very well spoken.
"hyper-visible and also completely invisible" those quotes were really amazing . The topic about how society judge's you really terrified me .
"...things that will tip me out on my face, and steps." Sooooooo true.
This is a great talk. Glad to see more conversations on inclusion.
I just look bad from the muscular dystrophy and there's nothing I can do to convince people im just physical disabled from genetics, not paralyzed, but physically weak 24/7.
sorry brother. I'm a tremor affected person.
I just finished filming and uploading a video, "My Superpower", about Tiffany Manning, an artist and Halloween prop maker who also brings much of her experience with Osteogenesis Imperfecta into her work and Halloween characters. She mentioned to me how she wants people to see her art and passion first and not the wheelchair. She does want to bring awareness to OI but would love people to see her as a person and artist first and that this can be very difficult if many life aspects.
What a fantastic video thank you
didn't get on with everything she said but for the most part spot on. it'd be nice if i could go run an errand without running into people who see a wheelchair and assume i must need some kind of assistance.
I do agree with you because I'm a disability also because i am very low leaner just like cerly parsley
great talk!! 👏👍
My two brothers had Duchenne Muscular Dystrophy. It was fatal. But while they were here, both of them really lived life.
My parents advocated for them.
They did need physical help. Their muscles deteriorated with each year.
But I was never afraid to ask for help for them.
And we did answer questions. How would people learn otherwise.
Every disability is different. We can not generalize.
Thank you for a very informative video
Dope Ted Talk!
Thank you for this terrific TED Talk! I love the picture of you with the elephants! So cool!
Ironic, that. Because disability is still the elephant in the room many people feel uncomfortable talking about. I don't see that attitude changing any time soon.
Just stand up for yourself
yes
7meeda 7meeda 😊
very much so
Amazing
Merve Kurt yes really inspirational.
Merve Kurt 😊
She's as inspirational as Stella Young
awsome girl
going grocery shopping with two boys and having people ask me how did i manage that
Having been born with no right hand, some people can't believe that I tie my own shoe laces! Little do they know that I've made twelve solo parachute jumps.
True
Random videos 👍
Someone asked me if they could pray for my mom, when she was just right there hobbling to the car. I think they thought i wasn helping her enough, my mom uses a cane/mobility scooter to get around and has a stepstool to get in the car. She trys to be independent so i dont have to be there 247. She asks me if she needs help.
God bless her 🙏🙏🙏🙏💕💕💕💕💕💕♾️♾️♾️♾️♾️♾️
My Love and Respect for You ,, YUO are a STRONG WOMAN
HISSEN DAOUD wäman
buddy i think you missed the point
Woow I love the video you guys have 😋
Can you go to school, and receive disability if they have disability programs does anybody know? Without it affecting your disability? I really want to go to school for cyber security.
Thanks Smorsas
Nice video I like it
2:47 4:02 9:42 10:41 12:03 12:32 13:13 13:35
Nice
Very inspiring, I also want to appear on ur channel
Simplicity,your problems ,we matter .Are the world already for what it is now ?
I think her point is, SOME people still think a disabled person who’s in a wheelchair is laying in bed 24/7 because many years ago that’s usually what happened
Sadly, this is still a reality for many disabled people, since it can take years until insurances and stuff acknowledge the need for basic things like a propper wheelchair, and many struggle financally and have no access to propper medicinal and social care. Clearly, this is not, how things should be and I hope, society moves further forward to ensure accessibility and to enable everyone to participate in life.
I would be one of that population. I live in a rural town and have been in a wheelchair over a year. The only place I go is the doctor and only with assistance. I didn't have a wheelchair for months, then was able to rent one for a bit then told my time ran out but thankfully, my husband had found an old one at the thrift shop. I can't maneuver the wheelchair so I'm dependant on someone else. Most days I just lay in bed and wait for my people to come home from work and school. In a way I feel like a dog left home in a kennel.
Amanda Nickerson I hope things will change for the better soon and it’ll be easier for you to get out. I wish I had the right words to encourage you but I don’t. I just really hope you’ll be able to find some other kind of mobility device that’ll allow you to get around more so you won’t have to feel cooped up. Best wishes
👏👏👏
Congratulations on your weight loss, you look fantastic. Paul (Australia)
Wow! This girl is incredible, despite her accent.
Very smart, you are.
@@donniecatalano naw, just sarcastic.
@@Long_Machine thank you, I am relieved 😌
@@donniecatalano you’re most welcome😎
When she mention "backpacking to Southeast Asia", I wish she didn't do begpacking.
Kick it uphill please! It is a disability to be blindsided so close to where i have to stay. Ironsides has to come out of the corners to fix this trail of accidental insults ive tossed everywhere. I had to pull this certain open. Somethings gone wrong and it raises that way.
نتمنى ان تكونوا تترجموا إلى العربيه
God in our life 🙂
Peace & Life Everlasting with Jesus ❤️
Pray for guidance and wait Patiently ❤️
Deberian montar video traducido en Español 🖑🖑🖑
OSCAR ANDRES MORENO GUZMAN 👍
She is special in her way :0
Hoàng Kim Việt you mean handicapped?
Hoàng Kim Việt 💛
Hoàng Kim Việt was that SUPPOSED to be an ironic joke? 😠😠
She's AMAZING. I don't know how she managed to lose all that weight while sitting in a wheelchair!
You've all missed the bloody point and it's frankly disappointing
W
Let's riot tory benefit cuts
I am new on there's
I am there's
İlk
one day I will cure disability
Im clad im not alon you make me reeliese
Sulle ot anohhin aleksander 99999999999999999999999999999999999999999999999999999999999999 euro raha
instructions unclear, still don't know what's right and wrong to think
She's HOTTER than Stella Young.
mhtinla shes hotter then my 60 year old dad
She’s hotter than Hillary Clinton
Cry 😞
Good grief, TedX, i cant do this anymore. We need to unsub-breakup. It's getting ridiculous.
what's the matter? upset cuz this isn't about "adorable" handicapped people with down's syndrome? go back to facebook.
She gave a pretty good talk
for a disabled person.
Patrik Banek totally NOT funny!
wheelchair
People in wheelchair should allow other riders to sit on their lap when the bus is crowded.
mhtinla best comment ever
bra size must be checked.
I would, if it didn't hurt.
I did this once
no
I do not actually think it should be societies task to make the life of disabled people better, but rather the task of disabled people themself to create the world fit for people with disability, because society is not directly at fault for the misfortune that may befall you and it is in your best interest to create the opportunities you want yourself.
Chaos When it's real life my friend, minorities are underprivileged to even create those opportunities. They are unheard and their voices are often ignored, and that's reality. Pointing fingers and blaming the society for being "at fault" is definitely not what this woman- or any disabled person I believe wants change- is calling for. She's asking for a shift in the way the majority (literally) is seeing things, and the way the society can and should make space for disabled people (and for all minorities).
Balsam Khalaf Balsam Khalaf
i dont know what drugs you take dear but minorities are the most heard of in our society right now thanks to mainstream media and socialistic propaganda.
If you really think minorities are not to be heard your litteraly brainwashed and needs to explore other sourches of information then your usuall stuff,
seriously!
Smörsås There really is no need for you to be condescending and bitter sounding. And if you honestly think minorities are the most heard right now, you need a reality check ASAP because it simply isn’t true, like, at all. The only reason it seems like it is, is because thanks to social media more people are having their voices heard, as long as they have the economy to pay for a smartphone, computer, tablet, etc and they have some knowledge on how to use it. Thank goodness things are changing and anyone despite background or identity has the power to make things better for EVERYONE.
Btw please go check your grammar, it’s “than” not “then”.
Have a good week and take care.
Indra Vargas
yeh maybe i was to harsh but still the question is split and all people dont agree with you on the subject especially not me
Chaosthat is true to a certain point.....but there are plenty of things people with certain disabilities just can’t do by themselves
I don't know, I don't think having broken legs is apart of your identity. 😅Plus, she says that she doesn't want disabled people to be pitied but she came on this stage to basically bent about the way people see disabled people. Which would lead to some pitying her.
Having broken legs isn't the same as a lifelong disability.
This was a terrible Ted Talk, even if the main point is good it was almost impossible to understand what she meant. The comments below are a better summary and detailed description of what she meant, and what she was talking about. Most of this video of her explanation is way to vague and ambiguous. She keeps rambling and hitting side points that avoid the nitty gritty of the topic. Her real disability isn't in her wheel chair, but in her terrible ability to convey an idea.