CRMO Webinar with Dr. Polly Ferguson

Hear from Dr. Polly Ferguson, Director, Pediatric Rheumatology, Allergy and Immunology; Department of Pediatrics University of Iowa Carver College of Medicine to discuss all things CRMO and specifically what we know about the cause of this rare rheumatic disease.
We will also be joined by guest emcee, Dr. Lori Tucker, Clinical Professor in Pediatrics, Pediatric Rheumatology, BC Children’s Hospital, University of British Columbia who will share a bit about a new CRMO research group in Canada. Bring your questions for the live Q+A!
Lastly, joining us as a CRMO parent speaker is Sheila Grant of Vancouver Island who discusses her two son's journey with CRMO.
Time Stamps:
CRMO Webinar Time Stamps
0:00 - Introduction by Dr. Lori Tucker
3:00 - Dr. Lori Tucker introduces Sheila Grant (Parent Speaker) and Dr. Polly Ferguson
5:55 - CRMO Presentation by Dr. Polly Ferguson: What we know about the cause of CRMO
7:00 - Basics of Immunology
8:00 - Immune Activation and Inflammation
9:50 - Immune System Cells
10:30 - What causes immune activation in CRMO?
15:35 - Genetic Factors in CRMO
33:30 - CMO Mouse Experiment
39:00 - Why don’t we use IL-1 Inhibitors to treat CRMO?
41:15 - Treatments for CRMO (Blocking Pro-inflammatory Proteins)
44:55 - Misconceptions around CRMO (“What can I feed my child to make CRMO go away?”)
47:00 - Diet Advice for CRMO
48:10 - Closing and Acknowledgements
48:56 - Dr. Lori Tucker thanks Dr. Polly Ferguson and introduces Sheila’s Presentation
49:30 - Sheila’s Presentation about her family’s journey with CRMO
57:00 - Dr. Lori Tucker thanks Sheila
57:25 - Q&A session starts
58:05 - Why is it so hard to diagnose CRMO?
1:00:55 - How long does treatment need to continue? Is it possible to discontinue treatment? Are there risks of relapse if treatment stops?
1:04:15 - What percentage of kids will continue having problems with CRMO into adulthood or does this disease resolve?
1:09:30 - Can you have CRMO only on one site?
1:10:35 - Can you have CRMO and ERA in the same person?
1:12:05 - Do you have any advice for how parents can support their kids in learning how to advocate for themselves?
1:16:00 - Is there currently a way to identify if other family members are at risk?
1:16:53 - Conclusion of the Q&A session
1:17:53 - Closing Remarks

[@alicebaghwar]

I think I have CMRO🥺🥺

[@cafsociety]

Hi Alice! You might find our CMRO resource page helpful! There are some FAQ's and more resources to check out- you can find it here: cassieandfriends.ca/crmo/