My Second Month on the Disease Modifying Treatment: Gilenya!

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  • เผยแพร่เมื่อ 3 ต.ค. 2024

ความคิดเห็น • 18

  • @lindamacmanus6352
    @lindamacmanus6352 5 ปีที่แล้ว

    I get symptoms coming and going all the time . Unless a symptom gets worse i try to ignore it . Well done for not freaking out. I know how scary it can be. Sometimes a symptom flare can mean u are over doing it . Hugs. I'm have MS nearly 20yrs .

    • @lindamacmanus6352
      @lindamacmanus6352 4 ปีที่แล้ว

      Seb add me on facebook if you , like .. Linda Barry Mac Manus
      So glad u are feeling good 💚

  • @37Raffaella
    @37Raffaella 8 ปีที่แล้ว +1

    Thank you so much......I was diagnosed about a month ago....devastating, as I am a professional classical musician....my whole professional future is in limbo😖 I will be starting on Tecfidera in a few weeks.....hope I have good results.....keep your videos coming....I really have hope when I watch inspiring videos like yours....hope you got the job!!!

    • @LifeofSebMS
      @LifeofSebMS  8 ปีที่แล้ว +1

      I hope that Tecfidera is suiting you well! It's important to try to remember that the medication nowadays can help us not give up entirely on our dreams and allow us to think of the (near) future :-)

    • @37Raffaella
      @37Raffaella 8 ปีที่แล้ว

      +Life of Seb thank you......

    • @Biancar_
      @Biancar_ 7 ปีที่แล้ว

      wendy kemp how did the tecfidera work out for u?

  • @jeannellebouvette8856
    @jeannellebouvette8856 8 ปีที่แล้ว +2

    I hope you got the job, you look very dashing.

  • @Lugmillord
    @Lugmillord 6 ปีที่แล้ว

    This is making me more optimistic, thanks. I'll probably try Gilenya next.

  • @nolanmiller6509
    @nolanmiller6509 7 ปีที่แล้ว

    enjoyed watching this diary. I have been diagnosed for about 8 years. and I started on rebif but last may i switched to tec. well the tec has done nothing for me and I now have five new active lesions and my neurologist is putting me on gilenya. thanks for sharing

  • @Lugmillord
    @Lugmillord 6 ปีที่แล้ว

    I've had Gilenya for a month now. I'm really happy that I pretty much never had side effects, though my walking is still awful. I may try Fampyra soon which hopefully helps me with my symptomes. In any way, taking GIlenya is so much better than giving myself a weekly shot that always gave me an awful day afterwards.

  • @88888887774
    @88888887774 6 ปีที่แล้ว +2

    Can you run normally??

  • @Sbannmarie298
    @Sbannmarie298 8 ปีที่แล้ว

    Thank you

  • @andythrash.
    @andythrash. 5 ปีที่แล้ว

    I started gilenya yesterday!!

  • @enricotigani8944
    @enricotigani8944 6 ปีที่แล้ว

    Hello I'm in my sec month Gil. this week had the same attack like when i gonna sleep and was afraid but it just was gone the next morning. I do heave heavy headiness.

  • @julie6798
    @julie6798 7 ปีที่แล้ว

    Hey quick question, I've been on Gilenya for 3 months and I keep braking out in small rashes. Did that happen to you too?

  • @cementra2007
    @cementra2007 8 ปีที่แล้ว

    I was just diagnosed with MS on Thursday, and tomorrow I'm going to be admitted for a week on IV cortisone . My doctor wants to have me on injectibles afterwards, but I think Gilenya might be the best option for me. What do you think?

    • @LifeofSebMS
      @LifeofSebMS  8 ปีที่แล้ว

      Definitely go for Gilenya! My experience on the shots was very bad...