My carcinoid cancer was in the Aisle of Vater.Affecting my small bowel snd pancreas and now blood sugar I chose not to have Whipple surgery but take Lanroetide for the last 3 years. It took 7 months and MANY MRIs and scans and blood work ti find the tumors The tumors are Very rare and was very difficult to find . My ONCOLOGIST is with the START CENTER IN SAN ANTONIO TX MY Gastro doctor is the one who finally found the tumors I am doing ok with 2 insulins trying to control my blood sugar Pancreas is functioning at 50 % I enjoy your posts
Small bowel ( terminal ileum) is the most common site followed by Lungs and pancreas. Most are nonfunctional, multiple and difficult to diagnose. Carcinoid syndrome is even less common and is due to liver mets usually multiple. Pathologically grade 1 means well differentiated with Ki < 2, G2 are moderately differentiated with Ki 3-20, and G3 mean NE carcinoma with Ki > 20.
I had a very very very large heterogeneous mass in my liver took over entire left lobe of the liver and partially right. It metastasized everywhere the prrt treatment is what got me still here. It started the head of my pancreas
Thank you for this video, I have a PNet found in 2007 but symptoms since the late 90’s, mine was 2.5c at finding but with reduction of Endocrine disruptors has shrunk to 1.6c. Mine is in the start of the body but everything after is atrophied. You were the first one to talk about the atrophy condition that can happen. I have been processing and deciding if I should pursue surgery. My conditions being I only want laparoscopic surgery and only if my spleen can be preserved.
@@CHNL.s no, atrophied in that the rest of my pancreas is gone just a wispy sack like the “foot part of nylons”. I have not had surgery and decided agains it since this cancer can grow back. The risk of losing my spleen and then having to be on antibiotics for the rest of my life would me the death of my micro biome. I feel it is too important for ones health and so far it has been true for me.
@@myenchantedlife5262 thanks so much for the reply. Makes sense. I'm 28 and have had carcinoid tumor all my life until they found it at 28. I use to get hormonal symptoms all my life but it hadnt spread to.the liver. One of them was this almost arthritis like swelling in my hip joints. I would keep getting hip bursitis. I've never heard anyone else talking about it. And I had fat consisted around the waist but thin arms. This was from high cortisol all my life
I guess im asking randomly but does anyone know a trick to get back into an Instagram account? I stupidly forgot my password. I appreciate any help you can give me.
my wife has a 2.7 cm. pNET at the tail and they will do a resection but ALSO take out her healthy spleen and gall bladder. Why is that the "Gold Standard" protocol?
My sister had a cancer operation in 2017 in the small intestine (jejunum) (about 80 centimeters were removed from the small intestine). She has now 2020 NET (in the liver and multiple metastases in the abdominal wall (peritoneal carcinomatous). Her therapy since March 2020 is a monthly SSA injection. No biopsy has been done until now, except for the one from 2017. Her appointment for the biopsy is for June 2020. I don't know if that's right. Someone can clear it up for me. I'm very worried, her metastases have increased since February of this year and she hasn't started her real therapy, which will be only palliative, I think.
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Thank you so much for this video
My carcinoid cancer was in the Aisle of Vater.Affecting my small bowel snd pancreas and now blood sugar
I chose not to have Whipple surgery but take Lanroetide for the last 3 years.
It took 7 months and MANY MRIs and scans and blood work ti find the tumors
The tumors are Very rare and was very difficult to find .
My ONCOLOGIST is with the START CENTER IN SAN ANTONIO TX
MY Gastro doctor is the one who finally found the tumors
I am doing ok with 2 insulins trying to control my blood sugar
Pancreas is functioning at 50 %
I enjoy your posts
All the contrast involved caused kidney function to decreasw
I had major open surgery.& . Tumor was going to liver . Lives function went to 1900. ICU 4 days . Hospital total 7 days . Long recovery
Liver
Small bowel ( terminal ileum) is the most common site followed by Lungs and pancreas. Most are nonfunctional, multiple and difficult to diagnose. Carcinoid syndrome is even less common and is due to liver mets usually multiple.
Pathologically grade 1 means well differentiated with Ki < 2, G2 are moderately differentiated with Ki 3-20, and G3 mean NE carcinoma with Ki > 20.
ممكن توضيح أكثر وببساطة لو سمحت
Very helpful presentation 👍
But for the accent of the second speaker being hard to comprehend the rest of the talk is very useful to all the English speaking medics.
Thank you doctors.
I had a very very very large heterogeneous mass in my liver took over entire left lobe of the liver and partially right. It metastasized everywhere the prrt treatment is what got me still here. It started the head of my pancreas
Thank you for this video, I have a PNet found in 2007 but symptoms since the late 90’s, mine was 2.5c at finding but with reduction of Endocrine disruptors has shrunk to 1.6c. Mine is in the start of the body but everything after is atrophied. You were the first one to talk about the atrophy condition that can happen. I have been processing and deciding if I should pursue surgery. My conditions being I only want laparoscopic surgery and only if my spleen can be preserved.
can you describe what you mean by atrophy? like swollen joints?
@@CHNL.s no, atrophied in that the rest of my pancreas is gone just a wispy sack like the “foot part of nylons”. I have not had surgery and decided agains it since this cancer can grow back. The risk of losing my spleen and then having to be on antibiotics for the rest of my life would me the death of my micro biome. I feel it is too important for ones health and so far it has been true for me.
@@myenchantedlife5262 thanks so much for the reply. Makes sense. I'm 28 and have had carcinoid tumor all my life until they found it at 28. I use to get hormonal symptoms all my life but it hadnt spread to.the liver. One of them was this almost arthritis like swelling in my hip joints. I would keep getting hip bursitis. I've never heard anyone else talking about it. And I had fat consisted around the waist but thin arms. This was from high cortisol all my life
I guess im asking randomly but does anyone know a trick to get back into an Instagram account?
I stupidly forgot my password. I appreciate any help you can give me.
@@hendrixquinton9592 go to the login page and click forgot password.
Very best lecture
my wife has a 2.7 cm. pNET at the tail and they will do a resection but ALSO take out her healthy spleen and gall bladder. Why is that the "Gold Standard" protocol?
My sister had a cancer operation in 2017 in the small intestine (jejunum) (about 80 centimeters were removed from the small intestine). She has now 2020 NET (in the liver and multiple metastases in the abdominal wall (peritoneal carcinomatous). Her therapy since March 2020 is a monthly SSA injection. No biopsy has been done until now, except for the one from 2017. Her appointment for the biopsy is for June 2020. I don't know if that's right. Someone can clear it up for me. I'm very worried, her metastases have increased since February of this year and she hasn't started her real therapy, which will be only palliative, I think.
i have friend get this
neuroendocrine tumors of the thymus
contact me please