DAY IN THE LIFE OF CALI| MEDICAL NEEDS|VLOG| PFEIFFER SYNDROME
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- เผยแพร่เมื่อ 21 ส.ค. 2024
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My sweet daughter Caliyah Joy was born with a rare syndrome called Pfeiffer Syndrome, which causes premature fusion of certain bones of the skull (craniosynostosis), affecting the shape of the head and face. You will see her overcome many obstacles and live life to the fullest despite her disability. If you are still wondering, what is Pfeiffer Syndrome? Well you can learn all about it here, • WHAT IS PFEIFFER SYNDR...
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Unbelievable!!!, Cali is feeding herself. I just love. She has grown so much, we thank God for the journey so far. Both parents are doing a fantastic work. God bless you. 🥰😍😘❤️
I absolutely love the team work that goes into Callies care. Y’all are amazing!
Rome and Falesha are "Parents of the Century". I ❤❤❤❤❤❤this family so very much! And Cali is SOOOOO beautiful 😍 ❤!!!! Much love and prosperity to the Johnson family!!!!💝
Wonderful loving parents. Cali is such a special little angel. Love this baby.. 👼👶❤😘
I can never understand anyone who would not like this video and cheer for Cali Joy. Two thumbs up for Cali always! ♥♥
Oh my! This melt my heart i'm so glad to see Cali's improvement...very impressive, good job Cali. Love you
Our Cali is a little fighter. She is enjoying every moment 🥰. Why not she has wonderful parents ❤️
Thank you 😊
Facts
Cali didn't have a full night's sleep and still managed to get her work out in! What's my excuse? Lacing up my sneakers and heading out thanks to you Cali. You're my inspiration baby girl! Love you.
I can’t tell you enough how I love Cali’s smile… priceless. She’s lovely :)
Sweet girl works so hard and never complains. She’s doing so good ♥️♥️
Cali is as happy as a bumble bee and she's been up since 4a.m. . so energetic. :)
She’s on the go from the moment she wakes up
It’s so wonderful to see you and your hubby work together with Cali. That to me is everything. ❤️🤗❤️👍🏽
Y'all see Ms Calli, she ain't playing wit it... She's frisky and loves to smile 😁... I love her so much ❤️🙏🏾
❤️❤️
@@WeAreTheJohnsonFamily your little girl is so cute I love the way you dress her matching Head bands, may God keep blessing you all, ❤️❤️
@@WeAreTheJohnsonFamily Give her Goodnight hugs. (◍•ᴗ•◍)❤
I just love watching her grow and develop hitting all her milestones and then some. I've been following you guys since the day Cali was born, absolutely warms my heart to see her doing so well but I always thought she would. 💗
Sooooo your husband just got all the major cool points in THE WHOLE ENTIRE WORLD 🌎... for singing Marques Houston Naked". MH is my absolute all-time favorite singer. Rome definitely knows good music 🎶
😁😁😁 thank you
She is so lucky to have a very patient & loving parents... God bless your family :)
I was just thinking about one of the first vlogs that Cali had her xylophone in, when she was more interested in sucking the sticks than playing tunes.
I was so pleased to see her playing her own composition...and then, the sticks were back in her mouth, they must feel so good on her gums 😁 still a pretty tune though 😀 Cali shows such determination and understanding her future looks really bright🌞
I know Cali is close to her carers but there is a perceptible joy in her demeanour when she has a day with only mummy and daddy. Thanks for sharing her with us 🥰
💜💜💜 parents are the big strength for a child.they are really inspiration for every child.
They are love.
Everyone leave us but they didn’t..
Good job..
A lot of love for u and ur family.
Specially cali💜💜
First time watching your channel. And my heart is full just seeing what loving and caring parents you are .
Please keep it up. Cali is a darling. It’s not easy to care for children with challenges. But love knows no boundaries.
I have a niece who lives right there in the US with similar challenges she is blind unable to walk or do anything for herself. She is fed via a tube. Her parents adores her.
I am in Jamaica
She is getting so big, I was having a bad day, but looking at this video and y’all, made me smile. Thanks
Is it just me or does she smile just like her daddy? 🤗😁😍🥰 Cali is just everything and more🙌🏿
JUST!!!! She is his twin to me
@@a1dev755 Yes! Absolutely his twin! 🤗 I'm glad I'm not the only one who noticed 🙌🏿
Hey Cali ! You are rocking your outfits,and I'm always happy to see you smiling,and doing so well. Wonderful and amazing parents. And I think you both are doing a wonderful job with cali. You guys will continue to be in my prayers. Love always.
Cali did so well with her workout. You and hubby are the true definition of teamwork.
Cali so sweet love her beautiful smile. Such a good calm baby 💕💕💕💕💕❤️❤️❤️😍😍
Yesssss..Cali is rocking it!! I can see her line of toddler and infant gear " Cali girl".
Cali is so pleasant with that smile . Just like her Momma. God is with them every step of the way . Wat a Wonderful Family my God 🌈🥰🌈🥰🌈🥰
Yeah Calli, I'm so proud of you.
You do so much for your gal,God bless you,I'm proud of you as parents and I pray God's blessings for your family
Congrats 50,000 subbies I knew your channel was going to grow because of the beauty of sweet Calia. I remember when you first started your channel it literally seems like yesterday. Along with Calia you and Rome also make the channel warm just like watching a family member. Once again I would like to shout of "CONGRATULATIONS" now it's nothing but climbing to the top from here.
She always makes my heart melt ,what an angel and she's doing amazing! And you guys are amazing parents as well..and she's so smart and funny😍😂. .sending all my love from South Africa
Thank you for the love! She’s such a joy ❤️
You're amazing parents. God bless you more and more for being positive about Cali.
Oh my Gosh!!! I love to see how well she is developing. Cali is an amazing little girl. Her smile really makes my day.
Love always and Cali's smile is everything ❤
Thank you ❤️
So happy to see her improving.
Hello
Great parents. Just love cali so much. Praying she walks soon, she is strong willed, determined and a conquerer.. Also constantly ask of God's miraculous and healing hand over her and the entire family.
God continually give you grace. I was overwhelmed by your love for the little gift God gave you
I love how Cali interacts with with her parents & I love Cali's spirit. Cali is sooooooooooooooo beautiful❣
Cali is doing so well ur guys r awesome parents God bless u all
Great job Cali feeding yourself . Beautiful smile as always love u all
My independent girl ❤️
I havent watched you guys in a bit. Cali has grown so much. So beautiful to see. God bless.
She’s grown so much 💜
Those strawberry pjs gorgeous…… Cali is such a beautiful happy little girl 💕
How can anyone dislike this!! This little bundle of joy is an inspiration. Her parents are gorgeous and amazing!!! ❤️ Loving her pink Adidas trainers I'm well jel
Baby Cali is so amazing just like her parents..her smile lights up my day..God bless mommy,daddy and Cali.
Aww Cali Joy I am so proud of you. You are such a big girl. 👏🏽👏🏽👏🏽👏🏽😍🥰💜🙌🏽 I see you taking them steps, Cali you got this!!!!❤️❤️
I’m so in love with Cali! She is amazing and have the best parents ever! Love you guys thanks for sharing Cali with us!
I love this baby I am infatuated with her she is so pretty I would love to be her guardian parent . If there's such a word 🥰😍🤩😘😍🤩🤩🤩🥰💯💯💯🥰🤩😍😍😍😍💕💕💯🥰🤩🤩😍💯💯💯🥰😍😍😍😘😘💯🤩🤩😍😘😘🥰😍😘🥰🥰🤩😍😘 she makes me feel so good just to see her parents keep up the good work 🍭🍭💕💕💯🍭💕💕💯🍭🍭💕💕💯🍭💯💕💕🍭🍭🍭💯💯💕💕🍭💯💯💯🍭🍭💕💕💯💯🍭🍭🍭🍭💯💯💯🍭🍭🍭💯🍭🍭💯🍭🍭🍭🍭💕💯🍭🍭🍭💕😍😍😍🍭💯💯🍭🍭🤩🤩🍭🍭💯🍭🍭💯💯🍭🍭🍭🍭💯💕💕💯💯💯🍭🍭🍭🍭💕💯💯💯💕💕💯🍭💕💯💕🍭💕💯💯🍭🍭💕💯💯🍭💕🍭🍭🍭💕💯💯💯💕🍭🍭🍭💕💯💯💯💯🍭💕💯💯🍭🍭💯💯💕🍭🍭🍭💕
Cali is going to be a runner instead of a walker. She is getting stronger every day . She understands you when you ask to to do her daily exercises she does it with that beautiful smile of hers .🤗🤗🤗
Love from Italy, God bless you guys
Cali is now a big girl and she doesn’t want to stay still😁 wait until she starts walking fully, she will walk to your office and and start replying your emails🤣🤣 I love you Cali♥️♥️♥️♥️
Cali is so smart you all are doing so well
That's wishful thinking but...........
Cali is so delightful, and full of energy, you can't help but to love her.😊❤️❤️🙏🙏❤️
She is so smart and listen and do what mommy says. Mother you are the greatest.
Happy to see her feeding herself. God is faithful and you are amazing mr and Mrs Johnson.
She’s trying so hard and she’s so sweet god bless her and her parents
Cali so beautiful. She always dressed as the princess that she is. I miss my girls being small. Cali dont play at all. She's always on the go🥰😍
YAY! This little girl always has me cheering for her, I just love Little Miss Muffin (my name for my granddaughter who is 15 now) :) I'm proud of you Cali Joy, daddy and mommy and for the team of nurses and all those who have helped along the way, thank you. Much gratitude. ♥♥♥
That was so beautiful 😍💗🥰 loved your video. With strong loving parents by her side, nothings stopping Cali 😃
Phenomenal parents, phenomenal Cali!!!!!
Wow she is so strong. Her smile is everything
Cali!!!! Way go so smart she is amazing!!!!
Every time I see Cali she get prettier. God bless her and you as a family!
Falesha you are amazing with your baby. Cali is so happy and she loves you guys....great parents.
LOLOL!!!! Cali does not feel a bit bad about waking everyone up! 🤣😂🤣. She is the cutest!!! Sending love and kisses! 🥰❤️🥰
Just started refollowing...HAPPY to see she is getting on well...Good job Mom and Dad!!!
Her workout outfit is darling! Those shoes! She's all smiles with the bunny! Cali continue with your excellent progress sweetie. Thanks mom for sharing those products!❤
Her little workout was so cute! Thanks for watching ❤️
@@WeAreTheJohnsonFamily 🥰
Cali is happy as bumblebee and y'all are amazing!
Nice to see how strong she getting, I luv there native body wash, deodorant are great luv the sustainable part. Tell Rome we luv the R&B bath time. I think parents luv the creator of the swaddle. Training was seriously intensive 20 hours wow. You guys are amazing!
🙌🙌🙌
Her smile is everything 😍
It is 🥰
@@WeAreTheJohnsonFamily yes ma'am the most beautiful thing it is.. thank you for sharing your beautiful family with us 🥰🥰
I am simply amazed at your determination and courage. I never thought I'd be hooked on following Cali and you here on YT, but here I am... What an inspiration you are. Love from the other side of the world @ Kuala Lumpur :)
Cali parent are so loving and caring. God bless you
Cali is doing so well with her exercises.
♥️♥️♥️♥️for Cali, Mommy, and Daddy..Thanks for having me♥️♥️♥️♥️
i love how when she eats you said you want to do it by yourself its soo cute
What great intelligent and committed parents Cali has
Smart girl. Love your outfit. Well done baby girl. To Mum and Dad, a big hug. God bless you all.
HEY PRECIOUS LIL BEAUTIFUL CALI!!!! YOUR MILESTONE IS AMAZING YOURE SOOO STRONG!! AND DOING A GOOD JOB AT EVERYTHING SHE DOES 💪🏽😍😍GOD BLESS YOU ALL IN THE NAME OF JESUS CHRIST!!!! GLORY BE GODS!!!🙏🏽🙏🏽❤️❤️❤️🥰😘😘
Yes Cali love it
My girl is progressing so well so proud
This baby girl is amazing. To watch her trying to feed herself is so wonderful. You see what team work and alot of love can do? WOW
Indiscutiblemente ustedes padres, y se que también hay otros padres dedicados al 1000% a sus hijos, y tanto ellos como ustedes merecen un galardón de los "PADRES MAS VALIENTES DEL MUNDO" y yo les doy mi admiración por su amor, responsabilidad y dedicación a la hermosa Cali, mis respetos a ustedes muchachos
i like how cali is feeding herself great job pretty baby
I can't believe her progress. That's awesome.
Such a beautiful caring family
A happy life together ❤
Baby girl said she doesn't want to miss anything..♥️♥️♥️♥️
Wow she is getting stronger 💖💖💖💖 Go Cali Go Cali .
Cali can Smile for the World ❤️❤️ she's Smart and intelligent to👌❤️
God bless. You guys are awesome parents❤❤
10:00 wow Cali is great xylophone player 🎶🎶🎶
I loved that to🥰
God bless Cali parents. I am so proud of you
God bless, she is beautiful and happy , the care and love you guys give her is amazing and amazing parenting bless you all.💞💞💞
She's such a little poser 😆 soooooo soooo happy all the time, and them smiles melt my heart xx
Aww she is adorable
Her smile so sweet
God Bless her
Thanks Callie my friend....nice concert.💙❤👍🏽
Glad you enjoyed it
Falesh girl, what happened to thee impending surprise you told me about the other day Queen? Did you did decide against showing it just yet & instead putting it in a longer, future video? I'm so souped, I just can't wait chile, you know I've been repeatedly checking back for new videos over & over & over again every day bcuz this is truly such an EXCITE# D advancement🙌🏾💯🙌🏾💯🙌🏾!!! Well okay my love, since you've got us waiting it out, Auntie's gonna try her best to find some patience & in the meantime in between time, I hope you decide 2- aire it sooner rather than later...Love you guys 🥰😘👌🏾❤❤❤!!
Wow! Wow! Mommy and Daddy You are amazing 🙏.I just fell in love with you "Team Cali" She is Gorgeous amazingly smart and adourable.Bless you family.It is the first time i selected you on UTube and guess we what? You've touched my heart.I am truly humbled.The love of God is tangible in this family.I love you❤️❤️❤️May God shower you with unending blessings and give peace..
Huggs and kisses Cali.🥰
The best Mum ❤️❤️❤️❤️❤️
Omg Cali is doing so well
All things are possible with God, I praise You God for Cali’s and her parents 👏👏👏👍🔥🔥💋🌞🔥🙌
Yes I fully understand all about that I almost have some training when my daughter was born she was a preemie, but thank God she came out fine after 4 months in NICU.
Waooow calisun can feed herself.I luv her much💕