About PANS PANDAS from ASPIRE

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  • เผยแพร่เมื่อ 8 ก.พ. 2022
  • Learn more about PANS PANDAS.
    PANS PANDAS are misdirected immune responses that result in acute onset of OCD, tics, and/or restricted food intake, along with two neuropsychiatric symptoms in seven categories.
    PANS - Pediatric Acute-Onset Neuropsychiatric Syndrome
    PANDAS - Pediatric Autoimmune Neuropsychiatric Syndrome Associated with Streptococcus
    -Signs and Symptoms
    -Diagnostic Criteria
    -Disease Course
    -Range of Symptom Severity
    -Triggers & Disease Mechanism
    - Diagnosing
    -Treatment
    Learn even more about PANS PANDAS at www.ASPIRE.care
    Alliance to Solve PANS & Immune-Related Encephalopathies

ความคิดเห็น • 30

  • @cleversmosh
    @cleversmosh ปีที่แล้ว +5

    I have pans and was diagnosed nearly 2 years ago now, I recently started experiencing age regression, like really recently, like in the past month or 2. I didn't know it had anything to do with the pans. thanks for educating me on that, so now I can stop worrying it's something else

  • @kebrrrkosplayz7858
    @kebrrrkosplayz7858 ปีที่แล้ว +11

    Im 14. I fit into all of these symptoms. Inever acterd or felt the way I do now until after my grandmother had walking phenomena and ever sence I don't feel like I can do anything anymore. Can't eat, sleep, do school in general, feel extremly shy and scared around people I know and trust and the ones I don't know I want to hurt for some reason, cry for no reason, the list just keeps going on and on. I feel SO bad for my father who can almost no longer take my now constant crying and screaming. im on antipsychotics and they don't work. THANK YOU SOOOOOOHOHOHOOO MUCH FOR MAKING THIS VIDEO!

    • @aspirepanspandas
      @aspirepanspandas  ปีที่แล้ว +4

      We are so sorry. PANS is horrible. We hope you will be able to access medical treatment too.

    • @Blu3b3rrymuffinn
      @Blu3b3rrymuffinn ปีที่แล้ว

      Omg, in 14 and have PANDAS/PANS too!

    • @GrantAndKelli
      @GrantAndKelli ปีที่แล้ว +3

      Y’all are not alone! My daughter is 10 and has been dealing with this for years! Hang in there! As a family of 5 we put our hope in Jesus because when all hope is lost here we know that one day soon we will be with Him and all sickness and disease will disappear!

    • @Blu3b3rrymuffinn
      @Blu3b3rrymuffinn ปีที่แล้ว +2

      @@GrantAndKelli Aw thank you so much! I hope that you daughter is doing okay. I’ve been dealing with it for maybe 10 years. I’m so sorry that you daughter and you and your family are going through this. I hope that you all are doing okay. ❤️

    • @kebrrrkosplayz7858
      @kebrrrkosplayz7858 ปีที่แล้ว +2

      @@Blu3b3rrymuffinn Well I haven't been diagnosed, but thank you!

  • @caz7363
    @caz7363 2 ปีที่แล้ว +5

    Thank you for educating me. ❤️

  • @RadianceRush
    @RadianceRush ปีที่แล้ว +2

    Great video. Thank you

  • @bobbyjones6066
    @bobbyjones6066 ปีที่แล้ว +2

    wonderful video

  • @adrianarigano1300
    @adrianarigano1300 ปีที่แล้ว +1

    Thank you ! 🙏

  • @lovisaricks9168
    @lovisaricks9168 2 หลายเดือนก่อน +1

    Is there a connection to PaNs and pandas and autism?

  • @brainwithani5693
    @brainwithani5693 ปีที่แล้ว +2

    Is there any research or connections between Thiamine and PANS? I'm looking for answers. My understanding is that pathogenic mutations in the SLC19A3 and SLC19A2 genes can cause issues with processing Thiamine and leads to problems with the basal ganglia, which is involved in PANS. Studies have shown High dose Thiamine and Biotin can help with the inflammation that occurs in this part of the brain.

    • @hearme4581
      @hearme4581 11 หลายเดือนก่อน +2

      Idk but I took antibiotics and they depleted my b1 vitamins and I had horrible mental illness for about two weeks until I need my research on the medication and what I needed. There is alot of pandas symptom that sound like thiamine deficiency symptoms. I would say try methylated b vitamins and see what happens.

  • @Katieriddle-lestrange8716
    @Katieriddle-lestrange8716 9 หลายเดือนก่อน +2

    when i was 3 years old i had strep (i think or another infection ish thing) and i fit into a lot of these symptoms like ocd progressing, severe (seperation) anxiety disabling me almost completely for going to school or other places, i have suspected adhd and i have tics and some other stuff (insomnia and sensitive to light and sound) do u think this could be pans/pandas? i’m not sure because i’m also gifted

  • @elenam1101
    @elenam1101 2 ปีที่แล้ว +2

    Are you located in UK?

  • @AlexTch
    @AlexTch ปีที่แล้ว

    Rife machines should help!

  • @LindleyArnold-nc9vy
    @LindleyArnold-nc9vy 7 หลายเดือนก่อน

    Me having adhd didn’t help my case

  • @grrrwah
    @grrrwah ปีที่แล้ว +2

    oh. i thought everyone did this 😅