I'm sorry I'm so late with this comment! You did a great job! Thanks for doing this challenge! I was just thinking how fun it would be if a bunch of us with feeding tubes were together and we all did this challenge at the same time! How fun would that be?!
The Frey Life hello mary. I'm cindy and I have a PEG style feeding tube to. and I don't known how to make videos yet but when I learn soo I will do this challage. I wanted to say I watch you all the time. I have terminal cancer and I have a power port mine is triangle shape its a bard power port its a pretty puruple color. lol and I'm accssed right now so you know what that means " I got a needle in my chest in my chest " lol I'm on a PCA pain pump threw I'm IV port it has dilliuid in it. but I'm still doing good. I have 6 months to 2 yrs and my dream is to meet you but I cant travel so maybe you guys could make it out to see me. your my big inspiration and you help me in ways you would never understand and were close in agae as well please comment back would mean the world to me
Damn, finding this video back now as a new PEG-owner, just hits different. When I first saw it I was like "how can you know your tube so well?!" But now as a tubie myself, even though it has only been a few days, I totally get it
I am thinking a blind TPN challenge video wouldn't be a good idea lol. I have the stuff for tube feeding just waiting to get a surgical tube right now so TPN only for me at the moment.
You have an NB TUBE TOO!?!? I don’t post that I have one because I’m too scared of the reaction I will get but I use boost plus for my formula and I have longer bags then you do but I use the same pump as you. I want a mickey but I might get my ng out soon so they don’t want to do that or any type of button
I remember I used to have feeding tube since I was a baby to 13 year old honestly it’s was not fun because I couldn’t not stand the pain when my mom used to change my old tube and it’s was little pain when she tried to put back on idk why.. and did it hurt when they trying to change your feeding tube or nah?
Aubrie Jackson she can but it aggravates her stomach and she usually doesn’t have the appetite eat real food so that’s why she has the feeding tube to give her the nutrition she isn’t getting
I'm sorry to say I would hate not being able to eat by mouth. 😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭
I'm sorry I'm so late with this comment! You did a great job! Thanks for doing this challenge! I was just thinking how fun it would be if a bunch of us with feeding tubes were together and we all did this challenge at the same time! How fun would that be?!
The Frey Life hello mary. I'm cindy and I have a PEG style feeding tube to. and I don't known how to make videos yet but when I learn soo I will do this challage. I wanted to say I watch you all the time. I have terminal cancer and I have a power port mine is triangle shape its a bard power port its a pretty puruple color. lol and I'm accssed right now so you know what that means " I got a needle in my chest in my chest " lol I'm on a PCA pain pump threw I'm IV port it has dilliuid in it. but I'm still doing good. I have 6 months to 2 yrs and my dream is to meet you but I cant travel so maybe you guys could make it out to see me. your my big inspiration and you help me in ways you would never understand and were close in agae as well please comment back would mean the world to me
The Frey Life I watch you and you are so amazing as well
@@cindyshaw5867 Did you ever get to meet her? I hope you can one day xx
Are you in college?
I love the Frey Life! Thumbs up to you for trying the challenge. That looked hard, but you did great!
whenever my blood sugar goes low at night I play the "blindfolded diabetic challenge"
Oliver Likes Cats I should try that, I usually just turn on the light and get me some dextros
Me too
Lol right that's always fun !!!
Lol right that's always fun !!!
I just watched Mary and Peter's video on this! Great job! Love your videos 😄💕
The frey life are amazing also with Amy's life x
YES! Another Frey watcher!
Glad to know you watch the Frey life! I love Mary and Peter!
Damn, finding this video back now as a new PEG-owner, just hits different. When I first saw it I was like "how can you know your tube so well?!" But now as a tubie myself, even though it has only been a few days, I totally get it
I am thinking a blind TPN challenge video wouldn't be a good idea lol. I have the stuff for tube feeding just waiting to get a surgical tube right now so TPN only for me at the moment.
Madison I agree, a blind TPN might not be a great idea 😂
Madison nooo😂😂. I can only imagine between handling the needles to inject the vitamins and keeping everything sterile it would be a mess😂😂😂😂
You did a great job
You did good.
You have an NB TUBE TOO!?!? I don’t post that I have one because I’m too scared of the reaction I will get but I use boost plus for my formula and I have longer bags then you do but I use the same pump as you. I want a mickey but I might get my ng out soon so they don’t want to do that or any type of button
She has an nj tube. We'll she did in this video
How much you take calories on daily basis.. And which type of liquids you take by nj tube
Well done
I remember I used to have feeding tube since I was a baby to 13 year old honestly it’s was not fun because I couldn’t not stand the pain when my mom used to change my old tube and it’s was little pain when she tried to put back on idk why.. and did it hurt when they trying to change your feeding tube or nah?
Ashley Wolf she has a nj tube so her changes have to be at the hospital and she can opt for medication
I hope this isn’t offensive. I’m just curious, can u eat solid food at all or is it just your formula?
Aubrie Jackson she can but it aggravates her stomach and she usually doesn’t have the appetite eat real food so that’s why she has the feeding tube to give her the nutrition she isn’t getting
Can you eat regular food to or just the liquid food
Yes she can eat I have one too I eat food but my stomach hurts mostly all day
How long does one bag last?
depends on how your pump's set.
and on how many ml in your bag are.
o _p0tterhead oh, thank you
Allison Crawford you're welcome:)
I'm sorry to say I would hate not being able to eat by mouth.
😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭
Pump from hell
What formula do you use?
Forever Rose Kate Farms core essentials
@@LifewithStripes are those expensive.
Can we be friends q
😙😙😙❤❤❤👏👏👏👏👏👏
can she eat other foods by her mouth
norah parmese Yes but it she never usually the appetite to do so it also makes her sick and she dosent get enough nutrition without the tube so yeah
Are you still able to go to school with the feeding tube ?
Sharki _ she is homeschooled
That's what I want to know.
@@usrafieckx9 you can most definitely go to school with a feeding tube.
i have the same pump as U and im a tube feeder too