Im glad You're the first one to diagnose it right . I have suffered from this annoying nightmare for years upon years . Hearing my own voice loudly . Not being able to talk properly because of my voice get distorted when i speak . I can't control the volume and pitch of my voice because of it . I also hear my own breathing like a violant wind hitting the eardrum from each side its so annoying . I have gone to so many doctors . All of them misdiagnose it for something else . Only one was able to recognize it but she told me that unfortunately the treatment isnt available because the condition is so rare like only 1 from 1000 peope have it.
Thank you for the tip. I wish I could loose weight but that's not the case here. .I'll try this. Right now I have a cotton ball in my ear to stop the double echo or kazoo sound which first started as the normal tinnitus ship humming sound when docked 😢😰 that simply got to loud to handle.
Beside the sympthoms you described that I also have, the sound of my voice vibrate such that it is like electric shocks in my brain, is that part of autophony or another issue?
Cool! I'm not sure if manually means adjust your tongue/throat muscles in a way that clears your Eustacian tubes, or if it's something external, but that's cool. Hearing your voice in your head could mean so many things; if it feels echo-y and like a wind tunnel, that can be Patulous Eustacian tubes which can be seen in rapid weight loss or underweight. Else your ability may be a cool natural variant and yay for singing! Unsure if most people can do this or not; at some point almost certainly an otolaryngologist (ENT doc) could tell you. :)
Hi, I have a problem in my ear. I always feel sensitive in high pitch sound like spoon and plate clashing, dog barks or when someone hammering nails. It only buzz when i hear the sound. it feels like it is loud for me. Both ears but right ear is a bit worst than my left. Also if i touch at the bottom of my ear down to the neck its also buzzing but only for the right ear my left ear down to neck is normal no buzzing. Can u help me what is this. Thank you so much. I really need your help.
That sounds really uncomfortable! We can't diagnose or provide medical advice to individuals who aren't our patients and encourage you to chat with your PCP to investigate this issue.
I developed PET when I had anorexia in my teens, I'm 17 years down the line and have gained a lot of weight, but it's just getting worse :( I'm on a waiting list to see a specialist, but it'll be 9+ months.
No, but I have been able to get it to a point where it only bothers me once in a while. I do have it all the time still, but manageable. I cut out all caffeine, and work on isometric neck exercises (bob and brad youtube) and also de-stress. Also use a night guard for TMD. I've got rid of the anxiety linked to PET and reduced my sniffing a lot. All these things combined, my new specialist (Norway) and I agreed to drop surgery plans for the foreseeable future. PET is a part of the medical schooling here, so I'd recommend contacting private specialists in Norway if you struggle to find someone and are close to here :) @@Sinx_Cosx_Tanx
I not do any weight lose and I am overweight still when I swallow I hear popping and after sound of breathing plz tell me I have patulous eustachian tube ?
How to get rid of patulous Eustachian Tube?? I was a singer... And music is my life.... My Dream was to become a singer..... But I can't sing anymore because of autophony.... My own voice echoes in my ear... Its very annoying.... Please tell me how to get rid of it.... Can yoga, meditation or any sound therapy can cure it??
@@ajasshaikmohammed84 I cut out all caffeine, do various things to reduce my stress levels, reduce anxiety around PET and try to manage neck/jaw/face tension through exercises and self massage (never let anyone manipulate your neck, I have permanent injury from that and it's destroyed my life way beyond what PET could ever do). Reducing how much I sniff/pop has been absolute key, and ditching caffeine was very important for that. Weight gain made no difference to me. I'm not able to manage PET on my own at home, and cancelled my ear surgery in agreement with ENT dr :) I don't even think about it daily anymore, though it does sometimes annoy me still. It's annoying though, rather than horrible.
Plz reply me ..you are the only hope for me..I have the same symptoms..I hear My own voice and breathing Sound very loud in my left ear..but when I lay down it Goes.. How can I treat it..Is it permanent ?? How long will it take to heal..Plz I'm in severe depression
@@gaudianiclinic now I will visit the doctor again..but I'm really scared bcz I Read and researched that PET is not curable..due to which My Motivation Is zero And I cry every night.. Plz tell me what can be the possible treatment for this..is this permanent disorder??I'm really stressed
A.J I was in such a bad place 10 months ago!! I wouldn’t eat at all and would just exercise..but after gaining some weight, eating and exercising in a healthy manner..I didn’t experience it at all sometimes I get it when I yawn but it goes away immediately
Thank you! I asked so many doctors about this when I was experiencing it and know one could tell me why! It is a very annoying and troubling symptom!
Im glad You're the first one to diagnose it right . I have suffered from this annoying nightmare for years upon years . Hearing my own voice loudly . Not being able to talk properly because of my voice get distorted when i speak . I can't control the volume and pitch of my voice because of it . I also hear my own breathing like a violant wind hitting the eardrum from each side its so annoying .
I have gone to so many doctors . All of them misdiagnose it for something else . Only one was able to recognize it but she told me that unfortunately the treatment isnt available because the condition is so rare like only 1 from 1000 peope have it.
So sorry to hear that you haven't been able to get support! We hope you can find some relief soon.
Hey! How are you now?
Same here, i have seen a lot of doctors, done a lot of exams, the doctors don't even like to talk about it because they think It's due to anxiety!
Thank you for the tip. I wish I could loose weight but that's not the case here. .I'll try this. Right now I have a cotton ball in my ear to stop the double echo or kazoo sound which first started as the normal tinnitus ship humming sound when docked 😢😰 that simply got to loud to handle.
Beside the sympthoms you described that I also have, the sound of my voice vibrate such that it is like electric shocks in my brain, is that part of autophony or another issue?
Thanks for the info, I’m hearing myself breathe and I’m not sure if that’s considered as the symptoms of autophony
Yes, autophonia by definition is the hyperperception of one's own voice and breathing.
I can manually 'pop' my ears and hear my voice in my head which is very useful for singing. I was wondering if most people can do this or not?
Cool! I'm not sure if manually means adjust your tongue/throat muscles in a way that clears your Eustacian tubes, or if it's something external, but that's cool. Hearing your voice in your head could mean so many things; if it feels echo-y and like a wind tunnel, that can be Patulous Eustacian tubes which can be seen in rapid weight loss or underweight. Else your ability may be a cool natural variant and yay for singing! Unsure if most people can do this or not; at some point almost certainly an otolaryngologist (ENT doc) could tell you. :)
@@gaudianiclinic Cool thanks. I don't think I've got any condition as I've been able to do it for years. It feels like I'm using a muscle in my ears.
@@ameliashandcraftedmemes7888 I can do this as well, but I'm unable to actually "pop" my ears. I have a patulous eustachian tube.
@@ameliashandcraftedmemes7888 It is your palate, that you are tensing (I can do it too, this is what ENT specialist told me)
Hi, does gaining weight has to be in fat or in muscle? does that matter?
I was thinking the same question!
Hi, I have a problem in my ear. I always feel sensitive in high pitch sound like spoon and plate clashing, dog barks or when someone hammering nails. It only buzz when i hear the sound. it feels like it is loud for me. Both ears but right ear is a bit worst than my left. Also if i touch at the bottom of my ear down to the neck its also buzzing but only for the right ear my left ear down to neck is normal no buzzing. Can u help me what is this. Thank you so much. I really need your help.
That sounds really uncomfortable! We can't diagnose or provide medical advice to individuals who aren't our patients and encourage you to chat with your PCP to investigate this issue.
I developed PET when I had anorexia in my teens, I'm 17 years down the line and have gained a lot of weight, but it's just getting worse :( I'm on a waiting list to see a specialist, but it'll be 9+ months.
So sorry to hear this! We hope you can find relief soon!
Littleen which specialist are you seeing? Poe or dean?
@@nahnahbethr661 Neither, I'm in the UK
Is your PET cured now ?
No, but I have been able to get it to a point where it only bothers me once in a while. I do have it all the time still, but manageable. I cut out all caffeine, and work on isometric neck exercises (bob and brad youtube) and also de-stress. Also use a night guard for TMD. I've got rid of the anxiety linked to PET and reduced my sniffing a lot. All these things combined, my new specialist (Norway) and I agreed to drop surgery plans for the foreseeable future. PET is a part of the medical schooling here, so I'd recommend contacting private specialists in Norway if you struggle to find someone and are close to here :) @@Sinx_Cosx_Tanx
I not do any weight lose and I am overweight still when I swallow I hear popping and after sound of breathing plz tell me I have patulous eustachian tube ?
Please reach out to a physician for an evaluation and diagnosis. Good luck to you!
How to get rid of patulous Eustachian Tube??
I was a singer... And music is my life.... My Dream was to become a singer..... But I can't sing anymore because of autophony.... My own voice echoes in my ear... Its very annoying.... Please tell me how to get rid of it.... Can yoga, meditation or any sound therapy can cure it??
In our clinic, weight restoration typically helps resolve this issue.
@@gaudianiclinic Thanks😇i will try to gain weight.....but will it resolve my issue? Will i get rid of autophony?? Will i able to sing??
@@sp-yu2ej I've heard a huge amount of people say it helps to gain weight. It did not fix it with me, but I really hope it can help you as well.
@@littleentn7387 how are you now? Did it went Away???? Please reply....is it permanent???? I'm in pain
@@ajasshaikmohammed84 I cut out all caffeine, do various things to reduce my stress levels, reduce anxiety around PET and try to manage neck/jaw/face tension through exercises and self massage (never let anyone manipulate your neck, I have permanent injury from that and it's destroyed my life way beyond what PET could ever do).
Reducing how much I sniff/pop has been absolute key, and ditching caffeine was very important for that. Weight gain made no difference to me. I'm not able to manage PET on my own at home, and cancelled my ear surgery in agreement with ENT dr :)
I don't even think about it daily anymore, though it does sometimes annoy me still. It's annoying though, rather than horrible.
Plz reply me ..you are the only hope for me..I have the same symptoms..I hear My own voice and breathing Sound very loud in my left ear..but when I lay down it Goes..
How can I treat it..Is it permanent ?? How long will it take to heal..Plz I'm in severe depression
Please see your medical provider to share your symptoms and this video if you struggle with eating issues. Sending you our best for hope and healing!
@@gaudianiclinic he provided me Nasal Decongestant...but I think I have eustachian tube open...not closed..
@@gaudianiclinic now I will visit the doctor again..but I'm really scared bcz I Read and researched that PET is not curable..due to which My Motivation Is zero And I cry every night..
Plz tell me what can be the possible treatment for this..is this permanent disorder??I'm really stressed
How are you now??? Please reply me...did it went away??? Or do you still have it
@@slenophile7107 please reply me...does it went away or do you still have it???
Is this Permanent??..
It generally resolves with weight restoration.
@@gaudianiclinic thank god..You are an angel..Who motivated me..❤️ because everyone Discourage pet patients...
Is it permanent ??
No, it should resolve with rehydration if necessary and weight restoration.
Gaudiani Clinic thank u so much cuz it’s been bothering me now for a while :( and it’s very hard to find videos abt it so I thank u a lot !!
A.J I was in such a bad place 10 months ago!! I wouldn’t eat at all and would just exercise..but after gaining some weight, eating and exercising in a healthy manner..I didn’t experience it at all sometimes I get it when I yawn but it goes away immediately
@@gaudianiclinic how long
@@dede0577 hi Dear..Plz Can u tell me that Are u Still suffering from it??
Plzz your e-mail??.. I want to talk about it in detail plz...
You can reach us at info@gaudianiclinic.com!
Weight loss is not the cause it's chronic infection of eustachian tube
There are multiple causes of autophonia. This video discusses how weight loss can contribute to this condition.