Lung Cancer: EGFR L858R- exon21 + Exon 18 - E709K positive. PET Scan after 22months w/ Tagrisso

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  • เผยแพร่เมื่อ 7 ธ.ค. 2022
  • Another PET Scan after 22months from the first diagnosis in Jan 2021. This was done due to pain in my “tail bone “ are and non stop headache which was assumed heightened after Covid infection in October.

ความคิดเห็น • 47

  • @Samira.l626
    @Samira.l626 ปีที่แล้ว +1

    Im so sad i just find her channel today .so beautiful young lady and she still young to do .. rest in peace sweetheart 💔 😢😢😢😢

  • @truthtalker9375
    @truthtalker9375 ปีที่แล้ว +3

    You don't know how much positive i have become just by seeing your videos ☺️....my dad also has same problem like you and seeing you this happy and energetic feels like I'm seeing my dad doing the same thing....btw he's very funny and strong,even doctors are sometimes shock by his statements over cancer 😅... he's mentally very strong that's why some medicine effect him way too good than others that's what our oncologist says..it all have connections with our mind so be strong Ivory no matter what situation ✊....(don't tell anyone he was with us when we were doing mountain climbing 😅...he promised us that not to tell anyone or doctor about this 🤭)

  • @betsydooner6422
    @betsydooner6422 ปีที่แล้ว +2

    May the lord’s face shine on you

  • @cristinap7133
    @cristinap7133 ปีที่แล้ว +4

    That is awesome news, my dear! I am so happy for you and your family! You look so beautiful!😍❣

    • @ivorysdiary2361
      @ivorysdiary2361  ปีที่แล้ว +1

      Thank you much ☺️ great news indeed! Hoping that it will stay like this for awhile 🙏🏻 Happy holidays! 🎄

  • @ameliaford5636
    @ameliaford5636 ปีที่แล้ว +4

    Ivory I am happy the meds are working, and things are so hopeful. I had been praying for you, and it was good to see this video. Love and respect! You got this

    • @ivorysdiary2361
      @ivorysdiary2361  ปีที่แล้ว +3

      Thank you so much! I’m so happy that you are always with me on this journey! Happy holidays my friend! 🎄Sending my love and kisses 🤗😘

    • @Samira.l626
      @Samira.l626 ปีที่แล้ว

      ​@@ivorysdiary2361😢😢😢😢😢😢😢

  • @michaelshannon8201
    @michaelshannon8201 ปีที่แล้ว

    Always keep praying Go’s is healing you. God Bless you.

  • @josianejojo2605
    @josianejojo2605 ปีที่แล้ว

    All the best wishes n stay strong 🙏

  • @betsydooner6422
    @betsydooner6422 ปีที่แล้ว

    Such a sweet wonderful person ❤️

  • @mariavalverdeboutilier7370
    @mariavalverdeboutilier7370 ปีที่แล้ว +3

    Greetings from Canada,
    I am on Tagrisso as well. Sending much love and calm healing ❤

  • @marygonzales5957
    @marygonzales5957 ปีที่แล้ว

    My hair use to be naturally super wavy after treatments. Y all my hair grew thinner y straight! . Now in this retiring stage . I decide I let grow.... I am praying for you. Positive give many thanks. Pray y. You got a 40th. Happy 🎂

  • @monettevandenbroek6042
    @monettevandenbroek6042 ปีที่แล้ว +2

    Happy is not so alarming dai..ThankGod...be strong always..you look good with your curly hair..adds more beauty in you my dear..love you always..

    • @ivorysdiary2361
      @ivorysdiary2361  ปีที่แล้ว

      Thanks Tita, now we look alike! 🤭😁 thank you for being there for me all the time! Love you too! 🤗😘

  • @MarjUA
    @MarjUA ปีที่แล้ว +1

    Sending love ❤️

    • @ivorysdiary2361
      @ivorysdiary2361  ปีที่แล้ว

      Received with a grateful heart! Thanks and I wish you a happy holidays! 🎄

  • @traceyszostek6264
    @traceyszostek6264 ปีที่แล้ว

    How are you? I am praying for you. Keep your strength. You are beautiful ❤

    • @411sponge72
      @411sponge72 ปีที่แล้ว

      She passed away 😥

  • @bobs1356
    @bobs1356 ปีที่แล้ว +3

    Shirley here, you look healthy or you do not look like you have cancer. My mom had super straight hair and when her hair grew back it came in curly and she loved it.

    • @ivorysdiary2361
      @ivorysdiary2361  ปีที่แล้ว +1

      Thank you! ☺️ I get that comment a lot and i think most people have the typical impression or idea of a sick person and surprised that even if you are terminally ill you could still look like healthy in the outside 😊 I’m not in chemo yet so I guess that also makes a lot of difference. Although I experienced hair fall especially in the beginning but also loving the curly regrowth! Say hi to your mom for me! 🙋🏻‍♀️ Regards and happy holidays! 🎄

  • @hichamlyaacoubi1196
    @hichamlyaacoubi1196 ปีที่แล้ว +2

    I hope it will work for you for many many years and maybe heal you definitely.
    What country are you from ?

    • @ivorysdiary2361
      @ivorysdiary2361  ปีที่แล้ว +1

      My prayer as well.. 🙏🏻 I’m Filipino but living in the Netherlands already. How about you?
      I wish you a Merry Christmas 🎄

  • @jeremywatson9129
    @jeremywatson9129 ปีที่แล้ว +1

    Ivory, I just started taking Tagrisso. Today will be 3rd day. How long before you could notice a tangible improvement in symptoms.

    • @ivorysdiary2361
      @ivorysdiary2361  ปีที่แล้ว

      Hi! When I started with Tagrisso, a few days later I also started with Zometa Infusion. So I think in just 3weeks I already feeling way better! What’s your mutation btw?

    • @jeremywatson9129
      @jeremywatson9129 ปีที่แล้ว +1

      @@ivorysdiary2361 EGFR exon 19 deletion.

    • @jeremywatson9129
      @jeremywatson9129 ปีที่แล้ว +1

      @@ivorysdiary2361 thanks that's good to hear.

    • @jeremywatson9129
      @jeremywatson9129 ปีที่แล้ว +1

      @@ivorysdiary2361 I'm on my 6th day with Tagrisso and it's giving me some pretty intense muscle/nerve pain. Did you experience that? If so, did it lessen after an "adjustment period?"

    • @ivorysdiary2361
      @ivorysdiary2361  ปีที่แล้ว

      @@jeremywatson9129 Hi! I never have this. I have occasional cramps in my hands or legs but it goes away after a minute or so. Maybe it’s good to check with your doctor? Other side effects so far? Like diarrhea, pimples, rashes or dry flaky skin?

  • @jaybarrion2904
    @jaybarrion2904 ปีที่แล้ว +1

    Sending hugs and prayers, God bless you Mam. #kusinanimanuel

    • @ivorysdiary2361
      @ivorysdiary2361  ปีที่แล้ว

      Thank you so much! Have a happy holidays! 🎄

  • @elizabethparker3456
    @elizabethparker3456 ปีที่แล้ว +2

    Hi dear can you please give me the site where I can join the group..thank you

    • @ivorysdiary2361
      @ivorysdiary2361  ปีที่แล้ว +1

      Hi! Here’s the link to the EGFR Group:
      facebook.com/groups/EGFRResisters/?ref=share

    • @ivorysdiary2361
      @ivorysdiary2361  ปีที่แล้ว

      You can ask to join and they will ask you some questions why you want to be part of it. Goodluck! 🤗

  • @ntandosekay
    @ntandosekay ปีที่แล้ว

    ❤❤❤❤❤❤❤❤🌹🌹🌹🌹🌹

  • @chabisayainholland7791
    @chabisayainholland7791 ปีที่แล้ว +2

    More 40 years iv

    • @ivorysdiary2361
      @ivorysdiary2361  ปีที่แล้ว +1

      All is possible in God’s Grace 🙏🏻 Keeping my faith and trust the process🤗🙏🏻

  • @michelles9897
    @michelles9897 ปีที่แล้ว

    🤍

  • @HzKiahChosen
    @HzKiahChosen ปีที่แล้ว +3

    I always say in everything it's God who provides and allows us to get through things in life like with healing and restoration. It's God who extends His mercy upon us and gives us opportunities in life through any means He wishes to use. These are miracle that God gives according to His mercy and plans for each individual. Only the Lord knows what's in store for us in the future. We are grateful that Jesus Christ who by His love towards mankind died and resurrected for our sins to redeem us. And it is through Him that we have that opportunity for eternal life, if we receive Him as Lord and Savior. It is a miracle to see how God gives man the wisdom in science that brings to us medications that heal but it is Only by His Grace and Mercy. We owe it all to God, Jesus Christ, He is Lord. I thank Him for your healing and restoration, it is a gift of God. 🙏

    • @ivorysdiary2361
      @ivorysdiary2361  ปีที่แล้ว +1

      Amen to that 🙏🏻 Godbless 🙏🏻

    • @HzKiahChosen
      @HzKiahChosen ปีที่แล้ว +1

      @@ivorysdiary2361 God bless you too Ivory.

    • @MissMariQueen
      @MissMariQueen ปีที่แล้ว

      That aged well!!!

  • @woolsheepthree
    @woolsheepthree ปีที่แล้ว +1

    Rip