Doctor diagnosed me with IBS because of stomach and back pain. I went back for a second opinion and CT scan showed up enlarged lymph nodes, and Doctor diagnosing me with lymphoma. Always get another opinion!👍
My wife religiously when to the doctor and hospital, she was diagnosed with “congestive heart failure” and when a cardiology facility and they didn’t catch it. She went to the hospital without fail if she felt sick and even stayed there from time to time and NO ONE caught the cancer until the last stages and had her in a cancer hospital ICU. She survived but died last month because of the damage done to her lungs during her 4 years of remission. Tell me it wasn’t that easy
I was diagnosed with lymphoma .my main system was sever pain in my neck,back and legs. I then developed a small lump on my neck. Had a blood test for cancer that came back negative.turns out lymphoma doesn't always show up in these blood tests. Then I was referred to the pain clinic who interviewed me over zoom.They sent me for an MRI that showed the lymph nodes.i was referred to a heamatolagest who had my lump biopsied. Getting diagnosed is not as easy as this video makes it seem. If I hadn't of been in so much pain it might of been years before I could of been diagnosed.
I have small soft bumps but they are really small and aren’t bumps I have pain in my shoulder blade from over using and dove headfirst into leaf pile not smart. But I overused it and have a muscle knot. I also have a cold and I can’t stop painfully touching them they are tender but it makes them worse by touching and touching inflamed them they are moveable and soft not a lump no symptoms not growing lymph nodes no neck pin leg pain or back pain
Thank you for sharing your stories 👍👍👍am in my 3 days lump left side of neck and hope its not lymphoma instead twisted muscle knot due to poor head position during sleep... i pray🤲😭
I have ALL the symptoms except for night sweats. 20% body weight drop in four months, fevers, rashes/itching, chest pains, quickly out of breath (also, I could HARDLY breath for 5 consecutive days), pain in my abdomen (especially right under my ribcage, anemia, bruising, constant infections... OH! And not to mention 5 lumps in my neck and face, which I found about 8 weeks ago but could’ve been there for longer. And guess what? My internist doesn’t want to do any testing because my bloodwork was just a little bit off, I’m young (25), It’s probably psychosomatic and the procedures and tests themselves could harm me. (Radiation/biopsies etc) Well... my body is harming me now! 🤯 I don’t know what to do anymore now.
Hi Mickey2196. Thank you for your post. It sounds like a very difficult situation for you - experiencing symptoms that you are worried about. We have lots of information on our website about the possible symptoms of lymphoma. If it would help to share this information with your medical team, you can find it here: lymphoma-action.org.uk/symptoms-of-lymphoma Sending you best wishes.
I have no aniema no unexplained weight loss no pain in abdomen no shortness of breath no night sweats no super swollen hard painless hard like rock immovable lymph nodes no easy bruising. I have had a cough for about a month but it always takes me months to kick a cough my nodes swell when I get a cough but cervical lymph nodes are always palpable. My nodes are tender and I only have two but they are getting smaller I’m a hypochondriac doc checked and felt and said it’s fine and normal that’s when I had an ear infection and I had a cold as well I still have the cold but it takes me months to kick one. They aren’t noticeable and almost barely felt. They are normal it’s just cervical nodes can always be palpable. Because they are shotty nodes they aren’t getting bigger not immovable not hard like a. Rock instead they are small soft moveable and not growing but shrinking they are shotty or reactive doc said it’s fine I’m just a hypochondriac. Cause I have no symptoms
Dr's are miss diagnosing patients everyday. They've sent people home with no answer's and being told their anxious (crazy) Healthcare isn't what it was even 10yrs ago. As the last of the good Dr's retire, we're losing the last of the best we ever had..
I was diagnosed with mantle cell lymphoma stage 4 in 14, I am a Vietnam veteran and mantle cell lymphoma is the number one presumptive disease caused by agent orange! Doctors at VA administered chemo for six months and then had a stem cell transplant! I have been in remission for about five years, living a completely normal wonderful life! Praise God! Question? About 10 years before I was diagnosed I had to have my spleen removed because it had ruptured, never found a reason for my spleen to rupture, no accident no trauma no anything just started feeling full inside went to doctor and that is when they discovered ruptured spleen! Could that ruptured spleen have been caused by agent orange? As far as I know they didn't test for cancer! They were just trying to keep me alive, I did just about die!!
I am 22, I have these 2 or 3 very very small lumps on my right side of the leg, near the groin area. Its here for like 6 days now, at first it feels like a muscle pain from a work out untill i touched it and there's these very very small lumps, Last night I had a very sweaty night to the point I had to change clothes, but I also thought that it could be from me overthinking a lot about it and I did not turned on my electric fan bu I did let the window open for a breeze to come in, and also my bed sheet is a kind of like a not so good textile where it easily gets warm not like the cotton textile.type of bed sheet where it is comfy and a bit cold, so maybe its also a factor to consider, of the 6 days that its here that was the only night i had a sweaty night...now on its 6th day it has gotten smaller in size (I am happy about it) and I no longer feel that muscle pain kind of thing...I wish and I hope and I pray to god that this is not a lymphoma because I am just a poor man, no work, no job no savings. I am from the Philippines. And I don't have the money to go to a doctor for a check up. I hope that my condition now will continue to improve. Pray for me guys, I want to live my life, I still haven't fullfilled my dreams in life...
We're so sorry to hear of your concerns, and appreciate this must be a very difficult time for you, we hope that your symptoms settle down soon. We're aware of a charity in The Philippines that may be able to offer some guidance, here are their details : www.philcancer.org.ph/ We send our best wishes.
Its been 2 years I have enlarged lymph nodes behind my ear. As suggested by my GP, I did all blood test and everything was okay. I even did ultrasound of my whole neck and it says there are multiple lymph nodes spread inside my neck. I am having allergies, weight loss and also dizziness sometimes. Is it cancer?
Go to doctor, maybe they will take a biopsy to make sure. Dont worry and check it now, if its good then thank god, if not then better fight it earlyer. Wish you all the best
I have a cough and stuffy nose so a cold and coughs cause swollen lymph nodes mine are going down I have no symptoms and it’s not getting bigger but smaller I have reactive or shotty nodes I’ve had this before
No freakin way! My wife gotten miss diagnosed with “congestive heart failure” went to a cardiology facility and NO ONE caught it? She went to the doctors and hospital and was constantly worried about lumps and NO ONE caught it until stage four. I’m at a loss for words…
We're so sorry to learn of your experience, and what you and your wife have been through. This sounds a very difficult time, and we send our very best wishes.
Does the lump on the neck feel empty bit like jelly Until you feel deeper down I’m knackered all the time but can’t sleep past 3am My fingers tingle I’m always itching I’ve gained weight But now losing abit I’ve got an appointment with the ENT on Tuesday and I only told the doctor this Tuesday so needless To say I’m terrified it’s cancer What do yous think???
I felt very blessed to get a diagnoses. The chemo made me feel so much better. Don't be afraid take each day as something special. Not all treatments make you lose your hair. Treatment is so advanced now.
My doctor said I was fine and it was normal but since I’m a hypochondriac I still convinced myself I had it thus leading to me to painfully touch my back of my neck with no lymph node
I lost my father last year after 5 years of fighting Hodgkins Lymphoma. Since then every single palpable little lymph node is automatically health anxiety and uncontrollable fear for me
I was so sorry to learn that you lost your father last year, following his diagnosis of Hodgkin lymphoma., and after 5 years of fighting the condition. I can appreciate that this has likely been a very difficult time. It's very understandable to have concerns about your own health, with all that you have experienced, this would be very natural. Generally speaking, enlarged lymph nodes are quite common, and generally nothing of concern, but if you have persistent nodes, then sensible to get checked out by a doctor, but very commonly, will be linked to an infection, for example. Although family members can be at a slightly higher risk of having lymphoma, this is still very small, and lymphoma is not considered to be hereditary. We send our best wishes to you, take care.
@@LymphomaAction Thank you so much. Early detection saves lives. Please see the case of Connecticut teenager "Cassandra Callender", forced into chemotherapy. Please reply to me, any thoughts on her case?
Doc said I was fine and felt said it was normal mine are a moveable soft tender small lymph node but I do have a cold as well so it is explained. If you however have a growing hard like rock round rough immovable and they come when you have nothing going on it’s best to go get checked mine are reactive and are getting smaller the only reason there still here is because I don’t stop painfully touching it and I’m still have a cold even tho it takes me months to kick a cough this has happened since I was really young so that’s why they are still there cause coughs cause then to swell and being a hypochondriac like me and constantly touching them isn’t good it’s not good for them healing and not good for your skin in general. Plus I had an ear infection couple weeks ago took me 2 weeks to get rid of it and they were swollen then even tho however cervical nodes are always palpable. If the small axis is bigger then 15 mm get checked mine aren’t. Dealing with my hypochondriac self is tough but I’m starting to stop or trying to stop inflaming them by touching because doc felt and said it’s normal because there not noticeable there normal
Started a hurtful. Lymphoma. In my neck. 7yrs. Later continu Side. Effects. Like. Oh. Asthma. Osteoporosis. Oh. Sitchy. Skin. Rashes. But my dr is awesome FYI. Cancer is a GHOST. HIDES. TAKE YR DOCTOR. HE KNOWS.
If you have a lump with no obvious signs of infection like cold or ear infection or the flu. Cancer nodes will also present a high fever and huge growing hard like rock not moveable lymph nodes
Cancer Lymph nodes are painless not tender, not moveable, not smooth, round, getting bigger. Non cancer nodes are painful or tender moveable soft like mine smooth and oval shaped
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We found last month my wife has lymphoma cancer. So we begin our journey of treatments. Wish us luck.
How is she
Miracle Ragin-Bland doing good. Thanks for asking. She has her good days and her bad days.
K Siddartha Shastry One of the signs we noticed was she was in pain for quite a while and couldn’t sleep on her left side.
All the very very best with everything
Susan Meagher thank you
Doctor diagnosed me with IBS because of stomach and back pain. I went back for a second opinion and CT scan showed up enlarged lymph nodes, and Doctor diagnosing me with lymphoma. Always get another opinion!👍
My wife religiously when to the doctor and hospital, she was diagnosed with “congestive heart failure” and when a cardiology facility and they didn’t catch it. She went to the hospital without fail if she felt sick and even stayed there from time to time and NO ONE caught the cancer until the last stages and had her in a cancer hospital ICU. She survived but died last month because of the damage done to her lungs during her 4 years of remission. Tell me it wasn’t that easy
I was diagnosed with lymphoma .my main system was sever pain in my neck,back and legs. I then developed a small lump on my neck. Had a blood test for cancer that came back negative.turns out lymphoma doesn't always show up in these blood tests. Then I was referred to the pain clinic who interviewed me over zoom.They sent me for an MRI that showed the lymph nodes.i was referred to a heamatolagest who had my lump biopsied. Getting diagnosed is not as easy as this video makes it seem. If I hadn't of been in so much pain it might of been years before I could of been diagnosed.
How are you
I have small soft bumps but they are really small and aren’t bumps I have pain in my shoulder blade from over using and dove headfirst into leaf pile not smart. But I overused it and have a muscle knot. I also have a cold and I can’t stop painfully touching them they are tender but it makes them worse by touching and touching inflamed them they are moveable and soft not a lump no symptoms not growing lymph nodes no neck pin leg pain or back pain
I don’t have severe pain
@@spookily1661 not everyone has pain. It's difficult to diagnose lymphoma. But I would get the lumps checked out .they could be anything.
Clinically. Stem cells transplant. I'm doing. Great. On. Remission my wonderful Dr know exactly what yo
Oh my gosh! Your doctor actually listened to you?!
Going tomorrow to get checked. They haven't listened before, let's hope they do 😂😂😂😂😂
Thank you all for sharing your story it’s so helpful.
Thank you for sharing your stories 👍👍👍am in my 3 days lump left side of neck and hope its not lymphoma instead twisted muscle knot due to poor head position during sleep... i pray🤲😭
Thank you all sharing your stories
I have ALL the symptoms except for night sweats. 20% body weight drop in four months, fevers, rashes/itching, chest pains, quickly out of breath (also, I could HARDLY breath for 5 consecutive days), pain in my abdomen (especially right under my ribcage, anemia, bruising, constant infections...
OH! And not to mention 5 lumps in my neck and face, which I found about 8 weeks ago but could’ve been there for longer.
And guess what? My internist doesn’t want to do any testing because my bloodwork was just a little bit off, I’m young (25), It’s probably psychosomatic and the procedures and tests themselves could harm me. (Radiation/biopsies etc)
Well... my body is harming me now! 🤯
I don’t know what to do anymore now.
Hi Mickey2196. Thank you for your post. It sounds like a very difficult situation for you - experiencing symptoms that you are worried about. We have lots of information on our website about the possible symptoms of lymphoma. If it would help to share this information with your medical team, you can find it here: lymphoma-action.org.uk/symptoms-of-lymphoma
Sending you best wishes.
I have no aniema no unexplained weight loss no pain in abdomen no shortness of breath no night sweats no super swollen hard painless hard like rock immovable lymph nodes no easy bruising. I have had a cough for about a month but it always takes me months to kick a cough my nodes swell when I get a cough but cervical lymph nodes are always palpable. My nodes are tender and I only have two but they are getting smaller I’m a hypochondriac doc checked and felt and said it’s fine and normal that’s when I had an ear infection and I had a cold as well I still have the cold but it takes me months to kick one. They aren’t noticeable and almost barely felt. They are normal it’s just cervical nodes can always be palpable. Because they are shotty nodes they aren’t getting bigger not immovable not hard like a. Rock instead they are small soft moveable and not growing but shrinking they are shotty or reactive doc said it’s fine I’m just a hypochondriac. Cause I have no symptoms
Dr's are miss diagnosing patients everyday. They've sent people home with no answer's and being told their anxious (crazy) Healthcare isn't what it was even 10yrs ago. As the last of the good Dr's retire, we're losing the last of the best we ever had..
I agree. Healthcare sucks these days
I was diagnosed with mantle cell lymphoma stage 4 in 14, I am a Vietnam veteran and mantle cell lymphoma is the number one presumptive disease caused by agent orange! Doctors at VA administered chemo for six months and then had a stem cell transplant! I have been in remission for about five years, living a completely normal wonderful life! Praise God!
Question? About 10 years before I was diagnosed I had to have my spleen removed because it had ruptured, never found a reason for my spleen to rupture, no accident no trauma no anything just started feeling full inside went to doctor and that is when they discovered ruptured spleen! Could that ruptured spleen have been caused by agent orange? As far as I know they didn't test for cancer! They were just trying to keep me alive, I did just about die!!
I'm glad your here and survived all that. And most importantly, WELCOME HOME...
I am 22, I have these 2 or 3 very very small lumps on my right side of the leg, near the groin area. Its here for like 6 days now, at first it feels like a muscle pain from a work out untill i touched it and there's these very very small lumps, Last night I had a very sweaty night to the point I had to change clothes, but I also thought that it could be from me overthinking a lot about it and I did not turned on my electric fan bu I did let the window open for a breeze to come in, and also my bed sheet is a kind of like a not so good textile where it easily gets warm not like the cotton textile.type of bed sheet where it is comfy and a bit cold, so maybe its also a factor to consider, of the 6 days that its here that was the only night i had a sweaty night...now on its 6th day it has gotten smaller in size (I am happy about it) and I no longer feel that muscle pain kind of thing...I wish and I hope and I pray to god that this is not a lymphoma because I am just a poor man, no work, no job no savings. I am from the Philippines. And I don't have the money to go to a doctor for a check up. I hope that my condition now will continue to improve. Pray for me guys, I want to live my life, I still haven't fullfilled my dreams in life...
We're so sorry to hear of your concerns, and appreciate this must be a very difficult time for you, we hope that your symptoms settle down soon. We're aware of a charity in The Philippines that may be able to offer some guidance, here are their details : www.philcancer.org.ph/ We send our best wishes.
@@LymphomaAction thank you so much, I hope this lump will be gone soon on its own.
Its been 2 years I have enlarged lymph nodes behind my ear. As suggested by my GP, I did all blood test and everything was okay. I even did ultrasound of my whole neck and it says there are multiple lymph nodes spread inside my neck. I am having allergies, weight loss and also dizziness sometimes. Is it cancer?
Go to doctor, maybe they will take a biopsy to make sure.
Dont worry and check it now, if its good then thank god, if not then better fight it earlyer.
Wish you all the best
I have a cough and stuffy nose so a cold and coughs cause swollen lymph nodes mine are going down I have no symptoms and it’s not getting bigger but smaller I have reactive or shotty nodes I’ve had this before
No freakin way! My wife gotten miss diagnosed with “congestive heart failure” went to a cardiology facility and NO ONE caught it? She went to the doctors and hospital and was constantly worried about lumps and NO ONE caught it until stage four. I’m at a loss for words…
We're so sorry to learn of your experience, and what you and your wife have been through. This sounds a very difficult time, and we send our very best wishes.
@@LymphomaAction thank you
Does the lump on the neck feel empty bit like jelly
Until you feel deeper down
I’m knackered all the time but can’t sleep past 3am
My fingers tingle I’m always itching I’ve gained weight
But now losing abit
I’ve got an appointment with the ENT on Tuesday
and I only told the doctor this Tuesday so needless
To say I’m terrified it’s cancer
What do yous think???
update?
I felt very blessed to get a diagnoses. The chemo made me feel so much better. Don't be afraid take each day as something special. Not all treatments make you lose your hair. Treatment is so advanced now.
The lumps are usually hard
My doctor said I was fine and it was normal but since I’m a hypochondriac I still convinced myself I had it thus leading to me to painfully touch my back of my neck with no lymph node
1:56 the typical answer of an NHS doctor.
Plus my nodes are soft and going down I have a cough
I lost my father last year after 5 years of fighting Hodgkins Lymphoma. Since then every single palpable little lymph node is automatically health anxiety and uncontrollable fear for me
I was so sorry to learn that you lost your father last year, following his diagnosis of Hodgkin lymphoma., and after 5 years of fighting the condition. I can appreciate that this has likely been a very difficult time. It's very understandable to have concerns about your own health, with all that you have experienced, this would be very natural. Generally speaking, enlarged lymph nodes are quite common, and generally nothing of concern, but if you have persistent nodes, then sensible to get checked out by a doctor, but very commonly, will be linked to an infection, for example. Although family members can be at a slightly higher risk of having lymphoma, this is still very small, and lymphoma is not considered to be hereditary. We send our best wishes to you, take care.
@@LymphomaAction Thank you so much. Early detection saves lives. Please see the case of Connecticut teenager "Cassandra Callender", forced into chemotherapy. Please reply to me, any thoughts on her case?
@@gordanazakula5669 Thank you for your post. I am afraid we are unable to comment on individual cases. We send our best wishes.
Doc said I was fine and felt said it was normal mine are a moveable soft tender small lymph node but I do have a cold as well so it is explained. If you however have a growing hard like rock round rough immovable and they come when you have nothing going on it’s best to go get checked mine are reactive and are getting smaller the only reason there still here is because I don’t stop painfully touching it and I’m still have a cold even tho it takes me months to kick a cough this has happened since I was really young so that’s why they are still there cause coughs cause then to swell and being a hypochondriac like me and constantly touching them isn’t good it’s not good for them healing and not good for your skin in general. Plus I had an ear infection couple weeks ago took me 2 weeks to get rid of it and they were swollen then even tho however cervical nodes are always palpable. If the small axis is bigger then 15 mm get checked mine aren’t. Dealing with my hypochondriac self is tough but I’m starting to stop or trying to stop inflaming them by touching because doc felt and said it’s normal because there not noticeable there normal
Started a hurtful. Lymphoma. In my neck. 7yrs. Later continu
Side. Effects. Like. Oh. Asthma. Osteoporosis. Oh. Sitchy. Skin. Rashes. But my dr is awesome FYI. Cancer is a GHOST. HIDES. TAKE YR DOCTOR. HE KNOWS.
If you have a lump with no obvious signs of infection like cold or ear infection or the flu. Cancer nodes will also present a high fever and huge growing hard like rock not moveable lymph nodes
Cancer Lymph nodes are painless not tender, not moveable, not smooth, round, getting bigger. Non cancer nodes are painful or tender moveable soft like mine smooth and oval shaped