MY MULTIPLE SCLEROSIS DIAGNOSIS | MS | AUTOIMMUNE | WEIRD MS SYMPTOMS
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- เผยแพร่เมื่อ 7 ก.พ. 2025
- Hey everyone, in today's video I share all about my multiple sclerosis diagnosis. The good, the bad and the ugly. Make sure to subscribe to our channel and give this video a thumbs up if you liked it. Thanks for watching!
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My daughter had been diagnosed with autoimmune multiple sclerosis. She's been hospitalised for the 2nd time and today She had seizures and was taken to the ICU. They did MRI and
ICU doctor said they found a blood clot on one of the vessels in the brain so now they going to do a CT scan to zoom to the exact place and start my girl on blood thinning medication. I am going through so much and can't stop my tears and I have been praying for her. I love my daughter very much!
She is ok
I was diagnosed in 2000 fresh out of high school! I have had this for 20yrs and I think any person with MS is just meant to be a warrior!!!!
Wow, 20 years, so sorry you have to go through this. MS is a shit disease, I wa recently diagnosed as well. How are you feeling these days? I hope your MS is “mild“! Are you on any DMT? Is it helping?
@@DRT813 it’s ok at this point is just life I’m dealing with this like a gangsta lol
Thank you for sharing your story. My mother had MS. She had three daughters, my two older sisters and myself. Each time when she was pregnant she felt amazing but after she gave birth she would have a relapse. I wish that doctors could figure out exactly what it is that makes women with MS feel good during pregnancy, bottle it up, and use it as a treatment.
Yes! I felt great during my pregnancy it's just after the birth..it is the hardest part. My neurologist said they are working to make a treatment to trick the body to thinking it is carrying a child. All of this is so interesting to me. Do you or any of your sisters have MS or any other autoimmune disease? Thanks for leaving a comment babe!
Sara I know what you mean,I have Muscular Dystrophy and I noticed it didn't start progressing till after I had my 2 ND child🤔,I was walking 2 yrs ago,today I can't even stand up😞, God bless everyone suffering tonight🙏 n for anyone who would like to check out my living with MD story come check me out at yanetcortes,,thank u in advance,more vlogs will b coming soon.
Kirstyn Diane No just my mom had MS.
That's so wierd,but true,after I had my kids my Muscular Dystrophy progressed faster 🤷🏻♀️ I'm in a wheelchair already I'm 44 single mom 3 grown kids that take care of me,,I'm so blessed,🙏 I pray for this young later n all you out there struggling with this or something similar,I have a channel I just started,my goal is to be a support system for those going through a hard time or knows someone,my videos r about me showing how I do what everyone else does but in a different way,n to help people see that yes it's hard n it sucks but be stronger than it. Don't let take over your mind,I got so much I want to do n show,not only to show n tell but so others can see that nomatter wat you going through find your purpose n have fun cuz we can't change what's happening to us😞 but we can laugh,joke around n that God for everyday even for the hard times🙏
It’s bc when pregnant you’re body is somewhat immunosuppressed so your body doesn’t reject the baby. So it keeps the MS under better control.
Great to hear your story, even though it's a tough one. Hang in there! A lot of what you describe is shared by others of us with it
Thank you for sharing your story! I am in a similar spot where my tests are coming back negative but I have so many symptoms. The doctors don't believe me, they won't treat me, and because I have a history of mental illness they assume I am crazy. My body is not well right now, and hearing your story makes me feel like I"m not alone and not crazy! I will just keep fighting.
Yes girl keep fighting!! Sometimes/most of the time you have to be your own advocate and fight to get the answers you want and need. Don't give up! I promise you will eventually get them!
Leave those quacks alone and get specialists....
I'm in a similar situation myself. Although I'm exhibiting most of the symptoms of ms, my doctor just did a physical examination, and concluded that I was fine. Yet, I'm aware that there are a number of tests needed in order to arrive at such conclusions. I have had involuntary ticks, which had travelled from my leg, to my arm, and lastly to my head. I ask one of my Gp what I needed to do about this. He simply said, 'you just anxious.. try not to think about it and the tick will go away on it's own'. And I was like, what if it doesn't? And what if it goes and comes back again? Will have have to go through a circle of simply ignoring it? I was thinking, what about finding what's actually going on with me? Anyways, I left the surgery if more questions, than I had when I went in. So I documented all my symptoms, and booked a telephonic consultation with my allocated Gp. Funny enough, I spoke with her this morning. She confirmed with me that all my blood tests came back normal (with the exception of my vitamin d level, which had always shown to be low, hence she prescribed more supplements for me to take - baring in my that I'm already taking the highest dose of this already). My Gp was like, there's nothing to worry about. I was like, I'm still struggling to stay on my feet longer than 10 minutes. Not sure what to do. Is there not any other tests that can be done, cause I'm clearly not feeling well, and don't have the luxury of staying home any longer (as I live by myself, and will have to go back to work at some point). She was like, 'what do you want me to do'? I was like perhaps have MRI done? Or seeing a neorologist? She was like 'if you insist', but you've had a look by the doctor and you seem fine. I kept saying to her that, I'm not doing alright though. I've been mostly in bed for 2 weeks (after managing to get a sick note from the surgery), yet I'm still in the same state as I was two weeks before. Nothing much have changed, I said. And the pain keep travelling from one part of the body to another. She was like, do you want to have this done privately? I was like, hmm, I wouldn't be able to afford that. And she was like, I'll refer you to a neurologist (if you insist), but it's gonna take long before they see you. I was speechless hearing her say that, and was like, what other option do I have? Cause I'm still not feeling great. And she was like, 'are you sure it's not your depression'? I was quite offended by that question, cause that made me feel like, 1) I wasn't being listened to and 2) that she viewed me as someone who might have no clue of what they on about (due to their mental health). I responded 'no... I don't have any of the feelings I have when i' m in a depressive mood... I'm mostly in a lot of pain (physically)'. So she went on emphasising that she going to ,' refer [me] to a neurologist' (if I insist): although she couldn't offer me any alternative or a plausible explanation as to what's going on with me. So yeah, you just have to fight to find answers yourself, cause you know your body best. Most gps are just there to prescribe you the medication needed, and that's it. Some don't have a clue of what they doing, and others have no time '' to waste" on finding out the underlying cause of your symptoms.
Good luck in finding the answers and right diagnosis 😊
@@e.erskine1206 I’m so sorry your going through this 😞 Did you get any diagnosis yet? I’m going through something very similar. I finally found a doctor I like at the clinic I go to, she did some blood tests that haven’t been done yet and referred me to a rheumatologist. After further research I see now I need a MRI or to go straight to a neurologist. Of course she’s a traveling provider so she goes all over to different establishments. My symptoms keep becoming more severe and different ones keep popping up frequently. It’s really frustrating.
Doctors and some Consultants don't have a good bedside manner. I've learnt through my journey, stress can really ramp things up and make me feel worse. Thank God for family help and caring friends who listen. Thankfully I didn't have a lumbar puncture.
Stay strong and continue learning your balances in life. Great insight.
Music has been a great escape for me. Thank you for your story
I’m sorry you had to deal with ignorance of Doctors ! I was having symptoms for years and they said “pychosomatic”. Ended up with Parkinson’s Disease. They jump on stress with Women , it’s not right .
@@breezydelacourt4498 why are YOU being a giant b*tch? You do realize EVERYONE who is an adult knows doctors are not psychic. Wtf? So stupid. Also, some 'doctors' are a joke.
Yes! I totally understand where you're coming from. Its not right. Glad you finally got some answers! Hope you are doing well now :)
thank you :)
Hi Greensaver Val, I hope you are doing well now, I will pray for you, I know what it is like living with an illness that takes over your life, But Jesus gave me a miracle and healed me, Jesus loves you and can do the same for you, if you ask Jesus into your heart to be your personal Lord and Saviour, Jesus will change your life for the better
@@jesussaves1827 ...omg get out of here and preach somewhere else ... Honestly so weird !!!!
Hey love. I’m going through getting tests done to see if I have MS. I’m glad you’re doing better and that you made this video. It’s given me hope. ❤️
I'm about to be in that process. Wishing you the best!!!
I have an appointment tomorrow to discuss symptoms that I've been having. I'm concerned that these symptoms sund like MS. What symptoms do you have?
How did it go I’m in the boat rn
@@TJWC did you get checked out?
You are awesome and an inspiration!!!!! Keep fighting, girl! You got this. I'm 13 Year in and every day there's a "new normal". If you ever wanna talk or vent, I'm here :)
Thank you so much for your support. It means the world!
Such a debilitating disease. You, thankfully, appear to be strong and proactive in guiding your lifestyle so the disease doesn't completely control you. I know sometimes you have no choice but to relent to it because it wears your body down. I have 2 family members with MS (sister and (female) cousin), so I'm aware of your plight and am rooting for you and your beautiful young family. 🌺
Researchers discovered a strong correlation between bacteria and MS (Multiple Sclerosis). They found that those who have MS have very little Bacillus bacteria as opposed to the general population. My intuition led me to this theory and it was confirmed by these researchers. Researchers in general are discovering more about the microbiome and how important it is for mood, and even personality (risk averse vs. reckless behavior) etc. Type "Spore forming bacteria in Multiple Sclerosis" in youtube to see for yourself. So what makes sense to me is to take natural supplements that are proven to be powerful killers of harmful bacteria, this is: (Monolaurin, olive leaf extract and drinking a glass of parsley). Then take a probiotic that is full of beneficial bacillus bacteria, like Youtheory or JustThrive probiotic. If you know someone who has MS please tell them about this and have them try it to see if it improves symptoms or makes them completely better. Take either 1 or all of the bacteria killers: Monolaurin (from coconuts) at the vitamin store/amazon, olive leaf extract. or take about 15 stalks of organic parsley and blend in a little water with lemon to taste, then later in the day take Youtheory or Justthrive probiotic and please report back, I'd love to hear if this works or not in somebody with diagnosed MS. I'm a budding naturopath/medical intuit
You are such a strong person and I’m so proud of you!❤️
Girl I am amazed. Newly in the game working towards diagnosis. A lot of people with RRMS seem to have much milder symptoms during flares. Loved hearing your story and that you got better!! Thanks for sharing.
Thanks girl. This is why I wanted to make a TH-cam channel to begin with is to help and connect with others! Thank you so much for watching. What kind of symptoms do you have?
I'm still reeling from my CIS. I dealt with some of the same stuff you did. It's so helpful to see that I'm not alone. I also totally get the relief that comes with knowing what you're dealing with. Much luck to you on this journey.
I had CIS when I was in second grade wasn’t diagnosed with MS until after I graduate high school
A lot of people with RR MS including myself never return to a normal "baseline" after a relapse. You get a new "normal"
Right! Even with this last flare I feel like I have a new normal
You’re so strong girl! I am so glad you are doing better! My mother in law suffers with MS as well, she does shots every other night and they seem to be really working for her! Thank you for sharing your story!
So sorry you went through all of this, you are inspirational and thank you for sharing your story ❤
Girl, i am so sorry you had to deal with all of that. I was recently (in the last 2 weeks diagnosed with RRMS. I have 4 lesions but I flare up maybe once a year and my symptoms have not been eye related yet, just numbness and tingling in my right leg. It doesn't stop me from walking and pain, migraines and a ton on brain fog. It was great hearing your story as I dont' really have anyone here to talk to. Thank you so much for sharing.
Wow. I am so sorry for your diagnosis but atleast we know what we are dealing with so we can take the right precautions for healing! Hope you are doing well. Thank you for your support babe.
Thank you for sharing your story. So sorry you had to experience all of this and I pray you are doing and feeling better. My little sister was just diagnosed this week and there is so much uncertainty about what’s ahead.
Thank you so much. Praying for your little sister! I can’t imagine what it would be like to get diagnosed in a pandemic. Hoping she’s doing okay
I'm sorry you've gone through all this. I hope you continue to improve.
hi i recently got diagnosed and just trying to get a better understanding of what exactly this disease is. your story helped me very much idk what to expect but just have to be strong i guess. anyway good luck to you thanks for being so open!!
It’s awesome that GOD has giving you the strength to move forward! GOD BLESS YOU 🙏🙏
Amen! Glory be to God ❤
Hang in there! Only super super super brave souls take this challenge! 👏
I just turned 50. 8 years ago I was diagnosed with RA. 3 years later I'm told I don't have RA, I have fibromyalgia and Sjogrens. Last week I was diagnosed with tarsal tunnel syndrome however I'm 90% convinced I have MS. I'm telling my pcm all of my symptoms that I've experienced for at least 10 years off and on. Numb big toes, pins and needles in arms, hands, legs, feet etc...Recently frequent urination, peeing minimum 3 times at night, trouble swallowing off and on for 9 years, feeling like something is stuck between my toes, feeling like water drops down my legs, confusion, memory, facial pain, blurry vision, lightheaded, clumsy, spasms in lower back and legs, taste changes like everything is bland, weak, lost a lot of muscle after radical hysterectomy 18 months ago, no desire for intimacy, feeling like I'm being squeezed tight around my mid section, severe itching to where I cause scabs, move slower and tons more. I'm hoping to get a brain mri soon. I'm in a lot of pain every day. Im a 7 out of 10 most days with it being an 8 or 9 occasionally. It was only about 2 weeks ago that I thought it could be MS.
Oh gosh. Your symptoms do sounds like MS! If nothing appears on the MRI I would have them do a lumbar puncture so you can really rule it out. Praying they find the answer to all of your symptoms!
Robin, you have the classic symptoms of a severely low B12. You need a methylmalonic acid test, which will show if your B12 tissue level is low. A normal serum B12 test won't show this. You can google B12 deficiency symptoms and see that frequent urination, numbness, pins and needles, etc are all signs of this deficiency. Good luck and God Bless.
Hi Robin did you get tested?
Glad to hear your story. I have a lot of symptoms of MS. Waiting to see Neuro Dr. Currently on Gaba.....wishing you the best dear!!!!
Did you get diagnosed?
Hey girl, thank you for sharing this video! I was also diagnosed with MS this year in January. I was diagnosed with MS by optic neuritis. I hope you are currently doing well with your MS. Sending blessings! continue to be strong :)
Life with the Langley's I’m doing pretty well, thank you :) taking it a day at a time. & yess from your video I can’t even imagine.. you had a difficult diagnosis, I’m sorry.. IV steroids have been my saving grace But thank you so much for raising awareness! Xo
Researchers discovered a strong correlation between bacteria and MS (Multiple Sclerosis). They found that those who have MS have very little Bacillus bacteria as opposed to the general population. My intuition led me to this theory and it was confirmed by these researchers. Researchers in general are discovering more about the microbiome and how important it is for mood, and even personality (risk averse vs. reckless behavior) etc. Type "Spore forming bacteria in Multiple Sclerosis" in youtube to see for yourself. So what makes sense to me is to take natural supplements that are proven to be powerful killers of harmful bacteria, this is: (Monolaurin, olive leaf extract and drinking a glass of parsley). Then take a probiotic that is full of beneficial bacillus bacteria, like Youtheory or JustThrive probiotic. If you know someone who has MS please tell them about this and have them try it to see if it improves symptoms or makes them completely better. Take either 1 or all of the bacteria killers: Monolaurin (from coconuts) at the vitamin store/amazon, olive leaf extract. or take about 15 stalks of organic parsley and blend in a little water with lemon to taste, then later in the day take Youtheory or Justthrive probiotic and please report back, I'd love to hear if this works or not in somebody with diagnosed MS. I'm a budding naturopath/medical intuit
My first really bad flare up I had my body tingling all over but around my left eye. Went to the doctor and he said I should be studied...lol.
Shame is most neurologists I went trough are clueless about MS.
I am past the RRMS but this progressive form I have now, even thoug there is something always bothering me, its easier to deal than the sudden RRMS relapses.
Vision is a mess, I walk with a cane, always dizzy and so on.
I just found a way to live with my new normal.
Stay Sharp!
I will be praying for you! It's an adjustment for sure. Im still trying to find the balance with everything!
Researchers discovered a strong correlation between bacteria and MS (Multiple Sclerosis). They found that those who have MS have very little Bacillus bacteria as opposed to the general population. My intuition led me to this theory and it was confirmed by these researchers. Researchers in general are discovering more about the microbiome and how important it is for mood, and even personality (risk averse vs. reckless behavior) etc. Type "Spore forming bacteria in Multiple Sclerosis" in youtube to see for yourself. So what makes sense to me is to take natural supplements that are proven to be powerful killers of harmful bacteria, this is: (Monolaurin, olive leaf extract and drinking a glass of parsley). Then take a probiotic that is full of beneficial bacillus bacteria, like Youtheory or JustThrive probiotic. If you know someone who has MS please tell them about this and have them try it to see if it improves symptoms or makes them completely better. Take either 1 or all of the bacteria killers: Monolaurin (from coconuts) at the vitamin store/amazon, olive leaf extract. or take about 15 stalks of organic parsley and blend in a little water with lemon to taste, then later in the day take Youtheory or Justthrive probiotic and please report back, I'd love to hear if this works or not in somebody with diagnosed MS. I'm a budding naturopath/medical intuit
@@bluecrystalpalace hello
@@nicolebeauchesne8213 hey
My grandpa passed on December 19th when I was 8 years old, odd! I'm sorry you had to go through all of this.
Poor Girl. This is a horror story. With my MS diagnosis(PPMS) I had to engage professionals outside the mainstream medical profession to engage a process that is sustainable. Completely changed my diet to manage inflammation. I went from thinking I was dying to making great progress. No steroids. Daily workouts and stretching. All this takes time everyday but worth it. My daily problems are poor sleep patterns, bladder problems and making sure I don’t over do it. My neurologist told me he only needs to see me if I have new symptoms that are not familiar. God bless. I hope your continued journey is better.
Hey I know someone who went the same journey too but God always has a reson this to happen. Please be strong and be thankful for each day . May God be with u !! Bytheway always remember thier is someone who learn out of this. thanks
God has nothing to do with it!
the first MRI that was clear, do you still have it? Was it doctor error or maybe the lesions had only been in your spine at the time? How long until your next MRI?
Glad you are doing better, and being strong.
Hey, I had MS since i was 7 years old. The worst experience of my life but luckily the doctors found out that i didnt have MS but something else (i don't know what it is). I had buzzing in the ear, my muscles were weak, short term memory loss, i couldn't speak, numbness, i would take medication once a week. I don't really remember my childhood due to my short term memory loss but I had "MS" for 11 years but thank GOD i am healthy. You will survive this, i promise you!
Thank you for being so encouraging. I have my good days and bad as you may know how that is! Hope you're doing well!
I was just diagnosed with MS, this autoimmune disorder is so unpredictable. Wondering if I’ll ever be able to walk correctly again, they didn’t tell me what kind of MS I have. I’ve had spells before but nothing like this. This video gives me hope. Hope you’re in remission forever ❤️
You will girl! Takes a little bit of believing and hard work but you will get there I promise you! If you ever need anyone to talk to I’ll be here for you 💗
TH-cam Alan Mac Donald MS is a parassitosis
Same here new to all this I can handle living with the symptoms just in limbo if this qualify for disability and financially lost
I HATTTE when doctors jump straight to the "psycho" statement when the answer isn't obviously in their face!!!! I just it!
I've had two doctors say it's just my anxiety
Yes happened to me with pain management. The only thing that shut them up was when I did the emg test. It proved me right. I'm so tired of doctors thinking they can talk to us the way they do
I have depression and PTSD and anxiety disorder. I'm having MS symptoms but I'm afraid to go to the doctor because they might jump to the conclusion that it's stimming from my mental health crap. 😞😢
@@nitalightell336 That happened to my friend who was diagnosed officially and a neurologist said that to her. Unfortunately docotors will cast their judgement but you have to check your health
@@nitalightell336 That is fully understandable. I have had that to happen.
Thank you for sharing your story. It’s a different level of learning to hear someone’s personal story.
Absolutely! I feel the same way,,takes guys to tell your story like that..I am also disabled.i have muscular Dystrophy,which is hard too because when the muscle dies who dies that's, no therapy helps, well at least in my case, can't do anything for myself in pain all the time I also have to try to stay positive if not I would go crazy, sometimes there's days I feel like I am and not one night do I go to bed without crying 😢
I miss my independence,my son is my care taker,,my MD has progressed,it's sad n hard but with the right support attention n understanding I'm ok..n so will many of you..I also have a channel it's new,I will be doing a story time soon..I would be appropriate the support,there's so much of my progression from 9 till now 44..I would love to share with everyone if you would like to come see please come see like comment subscribe and please share with someone who you think my videos will also help. @yanetcortez😘
You are a warrior! Stay tough and my prayers are with you
Thank you so so much!
I have had hands and feet going numb and tingling for years and they tested for everything. Now I’m starting to get pins and needles all over my body where it feels ice cold on some spots and fire on others with a lot of muscle spasms and weakness. Most recently I’m feeling very exhausted and my throat feels sore and weak and I’m slowly losing bladder control. 😢
Did you get tested for MS?
@@hellomynameis5520 I don’t even know how to all for that. :(
I’m so sorry you had to go through so much with the lumber puncture procedure. It took 3 years for me to be diagnosed. I kept going to the doctor with symptoms of numbness and pins and needles. They checked me for stroke and said you’re ok, come back if it gets worse. My symptoms got gradually worse until one morning I woke up and couldn’t walk. An MRI showed the lesions on my brain and spine.
Oh wow! I also thought I was having a stroke when I felt the numbness come on. It’s the weirdest feeling when you’ve never felt anything like it. How are you doing now?
Kirstyn Diane I’m 8 years post MS diagnosis now and it’s a bumpy ride. My MRIs show no new lesions and my Neurologist is very pleased with me, I feel very unstable when I walk and I have numb hands which was mistaken for carpal tunnel. I really suffer with slowed walking and pins and needles in my feet and legs.
Did you have numbness for prolonged periods of time?? I only experience my hands going numb when I’m sleeping or laying down. Is this normal of MS?
@@TheSimplisticBeauty yes I only have numbness in my hands when I’m lying down/asleep.
@@missdoglover1644 Thank you for responding. That’s the only symptom I seem to have. Along with some tingling in my feet. I don’t know what to think of these symptoms. I have an MRI scheduled for this month, hoping for the best. Did you have any other early on symptoms? If so, can you share them with me?
I love you girl! Stay strong! Thank you for sharing.
My daughter is suffering with MS for 29 years. She is now completely disable and wesk. It is a bad sicknes. Pray for you
Oh wow. So sorry to hear that. What MS did she start out with? Praying for her too
@@KirstynDiane she was starting with progressive and between the age of twenty it went into remission until twenty five. From there on it was fiwn hill sll the timr.I must say I have the best help with her snd she has no pain.We take it day by day that us all we can do.
I also have MS I have PPMS onset in 2016 I’m on the ocrevis.and another few MS drugs called ampyra & baclofen to help me walk and gabapentin for the burning sharp stinging pains in my back and legs. Sorry to hear you had to go threw all of that. Thanks for making the video very brave.
Thank you so much. Yes the burning pain in my back is unlike any other thing I have experienced! Have you tried CBD oil for the pain?
Tbh this stuff scares me because everyone tells me to not worry but I was just diagnosed and it's all so new to me but I donr want to have hope and than relapse and I'm in way worse condition and can't do anything for myself...idk..I hate it
They removed your goal bladder ..........OMG talk about wrong diagnosis, I do hope you cope with your symptoms and adapt to the conditions and stay strong and positive.
Right! Thank you so much!
Mine too!
Turns out you need it.
I dealt with weird symptoms that no doctor could give me a answer to. I wore heart monitors, blood work, i saw a audiologist, my vision was getting worse so on and so on. In june i had an attack that affected the left side of my body. I could not control my leg when i walked and i couldn't control my left arm. I went to the hospital and got an MRI. it was very apparent that i had new and old lesions and was diagnosed with ms. It is a terrible disease but i do my best day to day. Nothing is "normal" anymore.
Wow! You had some pretty hard hitting relapses. Glad you are doing better.
Thank you so much!
Omg finally I also have ringing in my ear, I don't hear many other people with ms say this
This video is 1.5 years old. But, I also have many different symptoms. I had a brain scan and it looked good. The neurologist said right away that they are inexplicable symptoms and I would not have an MS. I am still struggling with different types of symptoms that come and go and now I have been referred to a clinic for inexplicable complaints. Yet I think they are not really trying to see what is going on. ( sorry, if there is any fault in the text, its from google translate ). I hope you are feeling oke these days now.
Hi, did you ever figure out what was going on? Or did your symptoms improve?
Right now their leaning towards "Somatization disorder" from the neurologist, I'm having a lot of MS symptoms even the ER doctor mentioned it sounded more like MS, i was told i have amplified sensory processing in my brain. My MRI was clear on my brain, i was also diagnosed with Spinal stenosis on my back. in 2000 i was told i had Fibro, i have alot of memory issues
Iv'e never heard of that disorder! I hope they find you an answer so you can get the correct treatment. Praying for you!
Did you get further tests for MS?
Hi there. I’m sorry to hear about your diagnosis. I’m currently undergoing a battery of neurological tests, including MRI, EMG, and EEG. It could be just a pinched nerve, but lately I’ve been experiencing trouble walking, loss of balance, legs in voluntarily crossing while walking (I think that is called a scissor gait), painful stiff neck, pain in arms and hands, associated with trouble with fine motor coordination. My biggest concern is MS… Although I’m trying to be optimistic that it’s not. Hang in there.
Thank you. I hope and pray for you as well. I hope that one day iMS will be a thing of the past for everyone. God bless you.
Life with the Langley's 😘
@@kittygaillot2286 hey any updates ?
Bahaa Bujazia spinal stenosis/arthritis/degenerative disc disease.
@@kittygaillot2286 is this worse than ms ?
Did you get deficiency in vitamin D? They put me on the wait for 4 days to get to the doctor again, because my blood test is fine. I can't feel my face, hands, legs and also had painful and tingling sensation before that. I've had it for about 8 months but I was dismissed before when I complained about my bone pain. But later I had many weird symptoms such as MS hug kind of feeling, pains and spasms in my muscles, Nystagmus as well. Also my dad has MS. Take care!
Do you have MS or just vit d deficiency
PLEASE have your doctors/neurologists test you for NMO - neuromyelitis optica.... it is often misdiagnosed as MS and you had a couple of the typical symptoms of NMO which is the hiccups and the vomitting. Since you had multiple negative lumbar punctures for MS getting the blood work done for NMO could get a diagnosis. Early diagnosis is key because there are 2 different treatment paths for MS and NMO and being treated for the wrong one could actually do more damage. I am also in the process of being tested for NMO after being diagnosed with MS last August. I have yet to have a lumbar puncture but will be having that soon. Keep us up to date on your journey!
the MS diagnosis came from 5 MRI's showing lesions in my brain and cervical spine. I initially went to the hospital with numbness from my ribcage down, and severe vertigo that just wouldn't go away..it was so bad that any time I moved I would vomit. They did a CT scan and blood work and pumped me full of IV steroids and then sent me on my way (still experiencing vertigo and still vomiting and still numb) and had me take a high dose of prednisone for the next 2 weeks. Finally on the fourth day the vertigo and vomiting stopped. I made an appointment with my doctor and she sent me immediately to a neurologist in a larger city near me and I went through all the neurological testing etc and told I had MS and was sent to a MS neurologist a couple months later. This new neurologist seems to think I could have NMO and so now I am in limbo. My blood work is being sent to England because apparently they have better equipment to pick up NMO even after a negative IgG or MOG test. I have had 2 bad epidurals and have nerve damage in my lumbar spine so my doctor is trying to save me from having a lumbar puncture unless its absolutely necessary.
@@ehmelynn x,,
Many thanks for sharing so much valuable information. Hope you will get better soon.
May I answer if before you get tour first symptoms of MS did you have any medication or use of drug? Any surgery before? Vaccines?
I have RRMS as well diagnosed in 2002. I had a seizure at work and was rushed to the hospital. In 2017 I retired / disabled at the age of 43.
So sorry to hear that. I will be praying for you!
I.can totally relate to that feeling 😞
So I am 44 and they just found new lesions along with old ones waiting on one more mri to finalize. I feel as if I have lost function of my left side is disabled along with dizzy I don't see returning to work... I'm concerned about disability any issues with that fir you
I would say about 80 % of the symptoms you have mentioned I am having or have had. Even down to the test. I’m commenting because now I’m seeing movement in my peripheral vision and a pulling feeling on the right eye. Prior to this symptom I had a terrible headache and now mild ones. I’m also experiencing a lot of pain especially in my legs. I’m so tired of going to the doctor, not getting any answers, and going into medical debt. It’s unfair.
HI- did you get a diagnosis yet? Hope you are well. (I am tired too girl)
@@nopressurenodiamonds5566 Unfortunately, no but I did discover my father’s cousin has MS. Although, not an inherited disease that passes from generation to generation there is a risk of genetics.
@@mtamorphis That sucks, 5 months later and you still don't know either?! smh I swear the jab or catching the Rona triggered something in me. I have been off ever since no lie! I am advocating so hard for myself and they have did everything but checked my heart or MRI. I am demanding those tests next. I feel like I am dying, and look like it too. I used to feel so beautiful and now I feel like I am changing, I look sick. If you get a diagnosis and dont mind sharing. Come back please:) Happy Holidays!
@@nopressurenodiamonds5566 So sorry you have been feeling off. Please continue to advocate for yourself and push them for answers. I will definitely come back and share my diagnosis. Hang in there and Happy Holidays!
Hang in there!! Don't let MS define you, as you are an intelligent young lady!! Praying for you & family.
Thank you so much 💗
I have the same diagnosis too, I went through the basically the same thing. Thank you so much
I’ve been having symptoms of MS for 22 yrs now and I’m finally getting a brain scan in 4 days. The worst pain I’ve felt from my symptoms are the electric shock or zaps that I’ve had right up through my “Vagina” it shoots straight up from outer part of the vagina through my abdomen; the pain if asked between a 1-10 it was a million in my eyes. Excruciating pain. Then I experienced it in my mouth the electrical zap in my front teeth it felt like it came from the back of my skull through my mouth out my front top teeth….. excruciating pain that I dread to happen again. And the other symptom I’ve had on two occasions that is excruciatingly painful is burning it literally feels like someone took gasoline and lite a match on my skin and is going up in flames, my skin turns beat Red for about 10 min I’m incapable of moving any extremity when it happens and I can’t speak or cry out. the redness of my skin color goes back to original skin color slowly after 15 to 30 min. These symptoms are Definitely a feeling of torture for me and I have a very very high pain tolerance I had root canals done with no lidocaine so when I say it’s excruciating believe me there is no pain level to describe it. Its a very bazar experience when it happens it doesn’t seem realistic that it’s happening ti me. Does anyone else experience this? I have many other symptoms but these are the ones that I’m terrified of feeling again and again😢.
Okay, thank you for the info. I too have MS an im always curious about other people's recovery time
I wonder that too. I felt like it took me forever to recover. Everyone is different because every attack is different. So that’s what I had to keep reminding myself
How do you get two totally different MRIs because that’s so worrying for you and people who are trying to get a diagnosis
Yes, it is so scary. The doctor down south told us that the equipment where I am from is not as high tech as the ones in LA. So scary
@@KirstynDiane Wow .. that's a shame. Could I ask, did you have your mri's with contrast dye or no? Thanku and best wishes to you🌻
I would try and sue them!
I don't have insurance and definitely feel like something is not right... I have so many symptoms and don't know how to fix any of this! Im so weak and exhausted from the pain im in
I am going to the doctor next week because I have the ringing in my ear. I have really bad fatigue and exhaustion I feel tired all the time, and I also having breathing problems. I recently got over a viral URI but new symptoms are showing up, I have bowel issues as well on top of that, and I just feel weird and confused like I don’t feel like myself I just feel extremely nauseous.. 😞 I hope everything is well with you. I hope I can get stuff figured out.
Oh gosh girl. Get rest while you can and have your primary care doctor refer you to a neurologist! Will be praying for you!!
Hannah the buzzing in your ears, is it more of a loud static noise that you can feel ,mixed with a paper crumbling noise ..sorry for the overly description of it 💕
theres cure without medication in Europe to stop problem,note from My doctor
We find the causes of multiple sclerosis using our comprehensive diagnostics. Very often, we find viral parasites in the brain stem that cause inflammation of the nervous tissue, which ultimately leads to multiple sclerosis. In addition, we find organ causes of reduced immunity, which allows infections to be introduced into the brain. After the diagnostics, we treat patients without medication on our equipment using methods of vegetative-resonance, magnetic, laser, light-color, needle -therapy. This allows us to destroy the infection, restore immunity and promote the regeneration of nervous tissue. The results are very good at the initial stage of the disease, but if a person does not already walk, then we cannot help them.
Tara King turns out I just had an extremely bad flare up with the IBS I have, but she didn’t connect anything with the ringing in my ear 🙁.
Hannah Anderson Watch that you don’t have a pericardial effusion. I have one and have similar symptoms.
when you say eyes jumping do you mean like your eyes don't focus and they move around fast?
You have such an amazing heart. I can’t believe it 💕
Omg my name is Kirstin Dianne! How crazy. I’ve been experiencing odd symptoms and with autoimmune running in my family I’m getting some input on how to get drs to run tests. Been experiencing them for 2 years now.
Hi did you get tested?
I've been suffering with ms symptoms for years. sometimes i feel like giving up and killing myself.
Dr's are little help.. My mri scan came back clear and so neurologist doesn't think it's ms. which i know alot of people with ms still get a negative mri. My symptoms are remitting/relapsing. if find when i'm have a relapse my symptoms come on alot worse from just walking, or from just moving my limbs. it's being in limbo that bothering me the most.
Yes I agree. The fear of the future and the unknown is the scariest part of this disease. We just have to take it a day at a time. I am always here if you need to talk!
@@KirstynDiane hi,I also agree, honestly I have FSHD MD can't walk or do anything really for myself n I'm always in pain, IV also wanted to give up many times,but my faith n love for my family won't let me,,I appreciate this video,,helps me understand my friends MS, I just started a channel about my life with FSHD MD,please stop by I'll b putting up a diagnosis story time as well,,take care n yo the person who wrote before me,,I I know it's hard just keep your head up stay positive everything will fall into place I don't know if you believe in God or notbut I believe that he will never give us more than what we can handle and our purpose here is to help others mother talking about are diseases or being a teacher, etc.
I'm sorry Chris, I know how it feels. I also have had ms symptoms for many years, I know how frustrating and lonely it can be. mine seems more like the progressive type. my MRI's came back clear, what is hard is being in limbo with no diagnosis. I feel like the medical system has failed me.
I keep pressing on trying to eat healthier, ( I'm reading the Wahls protocol right now.) Taking more vitamin D3 and probiotics too. taking gluten and dairy out, and putting grass-fed beef liver in.
Changing my diet has definitely given me a better quality of life and seems to have slowed the progression some but not all.
I have decided not to give up and I hope you do too, our lives are worth fighting for. God bless!
@@carolstender588 hi Carol I'm sorry to hear about you suffering as well🙏, I too am suffering with MD I'm already in a wheelchair..it's progressing pretty fast as I get older,I also understand the frustration,iv been thru so much aside from my MD,but IV accepted that I just have to stay strong minded n keep reminding myself that I do have a purpose,how I wish there was a cure already,if not for me then for so many suffering especially the kids😢
@@yanetcortez3789 your message was an encouragement to me! You are so right, our lives have purpose wether or not we have a disease! And our mindset is important.
Thank you for sharing. Still having too many bad days with what has been said to be Inclusion Body myositis. Nothing is going easily as you have experienced and the exhaustion, inability to do stuff that used to be a no brainer but now...it does get to me.Still try to act like I can do it all,don't want to burden my son but... it is not going well. 5 mos after diagnosis met others with this rare disease and know I am not nuts but it is just.so. hard. right??
You are not alone girl!!! I know exactly how you feel. Ive recently been really trying to turn my thinking around and turning a negative to a positive. So instead of me saying "I hate to bother other people to help me" I say "I am blessed I can ask for help" this has changed a lot for me in terms of my mental state.
My dad had progressive aggressive MS ill never forget before he was doagnosed he would fall all gje tkme and literally everyone thought he was drinking all day everyday even was getting kicked off his job sites becauwe they thought he was comjng in drunk. Its been a longhard road. Stories need to be shared and research on why so many cases and ao many people are being diagnosed.
Stay strong
There are many MS diets. Dr. Swank, Dr. Jelinek, Dr. Wahls, Mediterranean, vegan. Choose one and stick with it. We do remyelinate, but it takes time.
I just saw an MS neuro yesterday to rule out MS. I had an MRI done in June that showed lesions in my frontal lobe. The neurologist this ordered it seemed to think it wasn’t something to worry about and this is why I don’t trust traditional doctors because to me, that isn’t normal. So the doc yesterday said it’s due to regular aging. I told him ok, but I’m also having neuropathy, frequent urination, depression, anxiety, memory loss, was just diagnosed with POTS and Dysautonomia, a ton of muskuloskeletal disorders, and really bad neck and upper back pain. I also have a diminished sense of smell, ringing in my ears and sometimes sounds like waves, severe sensitivity to sound. He said he wants me to get an MRI of my spine. I don’t even know what to think anymore. Any suggestions?
Acculoser4Good Drs here are ignorant as hell! For years especially the past month, I have right side mouth drooping, always urinating, feeling half drunk, can’t think straight, went to ER cuz me foot was useless with pain n swelling n they tested me for everything literally! Gout, all tick diseases, Lupus.I have old mris showing 2 lesions, I could go on n on! Now I’m waiting a month for a neuro appt. already need dad with fibromyalgia, Raynauds n Sjorgrens n chronic Epstein-Barr I mean come on. This is horrible! I totally understand how you feel. I’m the boss of me and I tell the drs what to test for. At least now I have all the ammo I need n worst part is that I look healthy so the drs think oh you’re fine. 😡
Life with the Langley's I will! Thank you so much! My old orthopedic is at meat going to see me next week n I already warned them I’m looking for neuro work up the whole picture. Finally. Hopefully I’m not getting my hopes up for another let down. I’m glad you’re finally getting the correct help! At least u kept getting admitted. The idiots on the east coast r like - nah go home n take these meds. Ugh. Btw I’m allergic to steroids so I’m kind of scared. Lol. Figures right? Hang in there girl!!! You’re not alone!
You should allow them to do the MRI of your spine. My first relapse led to me having 2 weeks in ITU. My MRI showed mulitple enhancing lesions on my brain and a lesion on my thoracic spine which shows demyleination. I got my ms diagnosed straight away. X
bethany070794 I have 2 lesions in L4 n the stupid ortho didn’t order contrast for my cervical- just w/o n my brain mri shows stable scattered punctate Periventricular white matter high T2 n FLAIR signal foci- which this one lesion was there 2 yrs ago- n I have most of the damn symptoms of MS but she’s saying I should see a vascular dr. Makes no sense. Still no answers🙄
MrsBatista4414 c
I have MS also and have had a lot of your eye issues. What did you do to correct them?
I would wear a patch but I felt like when I didn't wear it they corrected themselves. It was weird!
Hello Kirstyn- I hope you are well. Did you have weight loss or lymphadenopathy with your symptoms? I have not been well for about a year. I have so many symptoms that seem to be "global" that affect so many different parts of my body. I have lost 30 lbs. but eating normally. I have urgency to urinate, it comes on suddenly and I have to literally run to the bathroom. If I yell or sneeze or cough, I leak. I have a weird crawling sensation under my right shoulder blade that comes & goes. My eye was twitching so hard and uncontrollably one day, it went on for about 10 min and was severe twitching not a slight twitching. I also have twitching in other parts of my body, behind my knee & even in my back. My arms & legs go numb every single night, several times a night. I have to shake them very hard for quite a while to wake them up. One night my entire left leg went numb from hip to toes and it was so heavy and numb it woke me up. I stood up and fell but managed to get it awake. A few hours later my arm felt so heavy and numb. I thought I was having a stroke, so went to ER. They did catscan and said it wasnt a stroke but to see a neurologist, it could possibly be MS or some kind of neuropathy. I also have this weird shocking feeling when I scratched the top of my left foot. Every single time, I run my fingers down my foot it feels like static cling almost. I explain some of these symptoms and the doctors look at me like I am crazy or making it up. I actually was told "it was in my head." I promise to get an attorney once I get a diagnosis because I know something is wrong and its been non stop doctor appts since May of this year, PCP, ENT, Surgeons, Ob-gyn.even Hematologist-Oncologist with a million test and nobody can figure me out. Oh and the bone pain! Especially in my hips and legs, I cant believe I forgot that. That and the fatigue is debilitating. My neck has discomfort, my food and coffee taste weird, sometimes my food or drink get stuck when I swallow, hear my hearbeat in my right ear off & on, if not that my ears are ringing, some sort of inflammation on my left chest right at the first rib they say its not a tumor, one dr said costochondritis, one dr said inflammation from lymph nodes in that part of my chest. I can feel my lymph nodes in my groin, neck, and behind my ear, also under my arm. Ultrasound says they are "normal" but none of this is normal. Soooo many things wrong with me and no Dr has diagnosed me yet!! They keep saying my tests are normal. I am a working mom of 5 and I am so tired of not feeling well. Yes, I wrote a book I am sorry, but I am hoping anyone can comment to lead me in the right direction or share their experiences if they are similar. I am frustrated and seem to get more answers from regular people on YT then at my actual appointments:( praying for all who are unwell🙏🏾🙏🏽🙏🏽
How are you doing now, did you find out the cause?
@@miaharvey7112 hello there. Yes diagnosed with Lupus 2 months ago :(
@@nopressurenodiamonds5566 That sucks 😞, I have no idea what's causing my symptoms yet, I have the same symptoms as you, maybe I should get checked for lupus.
@@miaharvey7112 yes see if you can see a rheumatologist. Lupus is a very tricky disease. It took me almost 3 years to get diagnosed. The symptoms are similar to alot of other things but rheumatology will know what to test and look for.
God bless you honey. You’re in my thoughts and prayers
Life with the Langley's you’re so welcome ❤️
I don't know if anyone will read this, but im so desperate, i have to tell my story.. I've been diagnosed with fibromyalgia and i really feel like they should test me for ms.. They have never done that. Lupus has been tested, everything has been tested, but not MS. I get new symptoms all the time.. Most prominent symptom is pain, spesifically backpain, today morning it felt like someone had taken a demolition hammer and demolished my whole back. Another very difficult and prominent symptom is exhaustion, i went to sleep at 11pm, woke up at 3pm... It doesn't matter how long / short my night sleep is, im always tired. Every day i get frustrated because i can't find the word that im trying to say. Now as a new symptom i get food in my windpipe all the time when i try to eat... I have 200 other symptoms aswell but yeah, ain't nobody got time to read (or for me, to write) all that ish down.
Hey. I'm deeply sorry for what you are going through. I'm waiting to do an MRI to find out if I have Ms. How are you? I just want you to know that you are not alone. Everything will get better eventually, have faith.
I would say to fight really hard to get some answers. I have basically all of those symptoms. Try and get in with a neurologist! Things will get better. I will be praying for answers for you love.
@@katerinatetrimida2781 Hello! I don't have a diagnose still and i think i need to lie to the doctors so i could get it tested... Im just ao bad at lying and im afraid to do it.. 😔
@@katerinatetrimida2781 Oh, and thank you so much! ❤️
@@KirstynDiane Thank you so much! ❤️ I appreciate that.
Thank you for sharing your story. Praying for you!! God bless!
Thank you so much 💗
When you say your eye was jumping what does that mean ? Like twitching?
If you look up nystagmus it will explain it! Maybe even a TH-cam video. Might be freaky 😳
th-cam.com/video/5vPCL7MaSDk/w-d-xo.html
I am turning 17 next month. I have had symptoms for years and my doctor laughed in my face and told me to exercise more- I was very active at the time and I have always been fit and in sports. I gave up because I believed she was right and I was being dramatic. Someone reached out to me recently about MS. I am 99% certain I have it. I have all the symptoms to a T. I have been searching for answers for years and have had the mindset “ I can’t wait until I can get meds to help all this “ and now I am pretty heart broken. My new doctors are fairly certain with it aswell but I will get tested after this covid crap.
Hi Shay. How are you doing so far?
jon hello. I still haven’t gotten tested due to Covid so I am not 100% on the matter. Hoping to get tested soon but we will see.
@@shayrose7705 Sorry to hear about the delay. Hope everything comes out good for you.
Did you get tested for MS?
I had symptoms from 2010 n physician said he cant find anything wrong
Husband blamed me for being lazy although i did everything ,educated my kids ,,(supporting them academically n my son became a pharmacist)
My son took me to a prof of neurology after my son was also diagnosed with mystenia Gravis (autoimmune,,)my daughter was also diagnosed with lupus
We were diagnosed with different autoimmune diseases within 3yrs of each other (very strange,,)
Its a long n difficult journey
Im so sorry you've had to go through so much just to get diagnosed.
Also why did your diagnosis take so long I feel so sorry that you’re going through this
i’m really scared. i was diagnosed in 2020 and lost my vision entirely. i hot plasma firesis and have my vision back now but it is still heavily impaired. i am so scared that i will never get back to baseline and i’m really losing hope
I was diagnosed on Feb 13, 2018. So a little after you. Sorry to hear about your diagnosis, hope your doing well.
Researchers discovered a strong correlation between bacteria and MS (Multiple Sclerosis). They found that those who have MS have very little Bacillus bacteria as opposed to the general population. My intuition led me to this theory and it was confirmed by these researchers. Researchers in general are discovering more about the microbiome and how important it is for mood, and even personality (risk averse vs. reckless behavior) etc. Type "Spore forming bacteria in Multiple Sclerosis" in youtube to see for yourself. So what makes sense to me is to take natural supplements that are proven to be powerful killers of harmful bacteria, this is: (Monolaurin, olive leaf extract and drinking a glass of parsley). Then take a probiotic that is full of beneficial bacillus bacteria, like Youtheory or JustThrive probiotic. If you know someone who has MS please tell them about this and have them try it to see if it improves symptoms or makes them completely better. Take either 1 or all of the bacteria killers: Monolaurin (from coconuts) at the vitamin store/amazon, olive leaf extract. or take about 15 stalks of organic parsley and blend in a little water with lemon to taste, then later in the day take Youtheory or Justthrive probiotic and please report back, I'd love to hear if this works or not in somebody with diagnosed MS. I'm a budding naturopath/medical intuit
love your story. stay safe and strong. agreed 👍
Updates on your condition?
Was the mri with or without contrast
Then you have doctors who blame everything on MS...I had hip pain that would not go away. Mr dr told me it was muscle weakness from MS. I went back she gave me an ultrasound..ZERO cartilage. I had osteo arthritis secondary to HIP DYSPLASIA. Waited years for hip replacement.
Well that would be a real error/horror for the doctor, since MS would be a very specific diagnose and that wouldn't be the first thing to think about for hip pain.
Oh my gosh thank you for this. I have a similar to this. Thank you for this.
This is so scary. Bless you sweetie!! My daughter was 8 and got optic neuritis and they thought she has ms but she didn’t. They put her on steroids for 4 months. She has type 1 diabetes which is an auto immune disease so you can imagine what the steroids did to her blood sugar. I’m so sorry you went through this
Thank you so much, you are to sweet!
Great Video, Thank you and I hope you are keeping well.
So sorry to hear of all you've been through xx
How many did all those MRIs cost?! Wow.
Thats all you got out of this story? Wow maybe she has insurance who cares what it cost, its her health.
@@nopressurenodiamonds5566 lol okay
I love my MS) I made him my friend)
That MRI was wrong ? Or the radiologist sucked ? Poor kiddo
Thank you for sharing your story.
Why didn’t they diagnose you if you had so many lesions?
I am going through symptoms similar to yours. It's hard.
Oh gosh. Saying a prayer for you now. You got this babe! There is a light at the end of the tunnel. Hang in there! 💗
@@KirstynDiane thank you! You as well!
thanks for sharing its scary, to say the least...pls post more on this
Researchers discovered a strong correlation between bacteria and MS (Multiple Sclerosis). They found that those who have MS have very little Bacillus bacteria as opposed to the general population. My intuition led me to this theory and it was confirmed by these researchers. Researchers in general are discovering more about the microbiome and how important it is for mood, and even personality (risk averse vs. reckless behavior) etc. Type "Spore forming bacteria in Multiple Sclerosis" in youtube to see for yourself. So what makes sense to me is to take natural supplements that are proven to be powerful killers of harmful bacteria, this is: (Monolaurin, olive leaf extract and drinking a glass of parsley). Then take a probiotic that is full of beneficial bacillus bacteria, like Youtheory or JustThrive probiotic. If you know someone who has MS please tell them about this and have them try it to see if it improves symptoms or makes them completely better. Take either 1 or all of the bacteria killers: Monolaurin (from coconuts) at the vitamin store/amazon, olive leaf extract. or take about 15 stalks of organic parsley and blend in a little water with lemon to taste, then later in the day take Youtheory or Justthrive probiotic and please report back, I'd love to hear if this works or not in somebody with diagnosed MS. I'm a budding naturopath/medical intuit
This was a really balanced and insightful story
Thank you for sharing your story. I’m glad you are so much better . 🙏🏻🙏🏻
Thank you for your support. It means everything!
I got diagnosed few weeks back im still boxing still fighting the moment you give in to the fatigue and all the other stuff you’ll break apart try keeping a strong mentality find something that would keep your mind at ease Having a calm mind with good diet and rest is essential dont give up