@@irishcountryman4866 I hang in there best I can. Some days are worse than others. I regularly experience symptoms like headaches, muscle stiffness, bone/joint pain, dizzy spells, slight confusion, I swell, blurry vision, forgetfulness, wake up with random bruises and the fatigue is awful sometimes..the list goes on and on. I of course don't experience every symptom every day, it varies, but I experience symptoms all day every day. My only treatment so far is phlebotomies and I've sadly been uninsured which is scary at times if i think too much about it. Honestly, lately its the mental aspect of it. PV has decreased my oral health significantly and I experience a lot of anxiety and major depression lately from it. When diagnosed, I wish my doctors had told me to take care of my mental health also, I thought it would just be a physical struggle, I was wrong. I think I handle it okay for the most part, but I really get through every day because I have no choice. What makes PV more difficult is people sometimes. My needs, concerns, symptoms, etc tend to not be taken seriously just because I "don't look sick" or don't "look like a cancer patient". PV is certainly not for the weak, that's for sure.
![🎤 ไปกันต่อออ! จับฉลากร้องเพลง x P’ #XXSIVK [EP.2] (1/2) เพลงของใครจึ้งสุดน้าา 💓🎤 #MXFRUIT](http://i.ytimg.com/vi/mLI_K0sAS4o/mqdefault.jpg)
I was diagnosed 27 months ago
I just got diagnosed yesterday
I was diagnosed 10 years ago at age 23.
How are you now?
@@irishcountryman4866 I hang in there best I can. Some days are worse than others. I regularly experience symptoms like headaches, muscle stiffness, bone/joint pain, dizzy spells, slight confusion, I swell, blurry vision, forgetfulness, wake up with random bruises and the fatigue is awful sometimes..the list goes on and on. I of course don't experience every symptom every day, it varies, but I experience symptoms all day every day. My only treatment so far is phlebotomies and I've sadly been uninsured which is scary at times if i think too much about it. Honestly, lately its the mental aspect of it. PV has decreased my oral health significantly and I experience a lot of anxiety and major depression lately from it. When diagnosed, I wish my doctors had told me to take care of my mental health also, I thought it would just be a physical struggle, I was wrong. I think I handle it okay for the most part, but I really get through every day because I have no choice. What makes PV more difficult is people sometimes. My needs, concerns, symptoms, etc tend to not be taken seriously just because I "don't look sick" or don't "look like a cancer patient". PV is certainly not for the weak, that's for sure.