The Texas Vampires
ฝัง
- เผยแพร่เมื่อ 9 ก.พ. 2025
- Edit: To specify, they were from the Baylor College of Medicine, not Baylor University.
If nothing else, I hope this video leaves you thinking about the many benefits of inbreeding.
But more seriously, this episode was made possible by the friendly and open attitude of people who knew that I was essentially going to be calling them bad names on the internet (and I should make note that none of the people featured on screen were those who had their blood stolen, nor are to my knowledge any more inbred than the rest of us).
The reality is that all of our family trees have knots, and even the most abhorrent of actions come with a potential silver lining.
Patreon account, for those who care: / overview
Follow our Instagram: / rareearthseries
Follow Evan's twitter: / evan_hadfield
Follow Francesco's Instagram: / frapetitti
This video was made possible thanks to our incredible Patreon subscribers Aaron lx, Adam Theo, Alan Biedenharn, Alberto Daval Cordeiro Araujo, Alejandro Fuentes Salazar, Alessandro, Alex Bob, Alex Van de Sande, Alex Ross, Alexis Michelle Smith, Amaty Marshall, Amay Khara, Andrej Turan, Andres Rama, Andrew Larson, Anina Keller, Asher Lanzone, Audrey Brown, Austin Cousineau, Basil Hassoun, Benjamin Achrén, Blade Marcantel, Blue Penguin, Bradley Sparks, Bradley Brown, Brandon Autrey, Brendan Antosh, Brian ONeel, Bruno Mikuš, Carl Bodnaruk, Carlos Henrique Brandt, Catherine Berry, Chris Ferguson, Chris Carrigan Brolly, Christ k, Christopher Castro, Cosmo, Damon B., Dan Walker, Daniel Demsky, Daniel Lee, Daniel Tyler, David James McConnell, David Rowe, David Lister David Badilotti, Denise Lipscombe, Djof, Douglas Danger Manley, Edee Nackers, Edward Sykes, Einar Holmedal, Elmar Tirtarahardja, Eric Downes, Erik Ensing, f1r3w4rr10r, Fiona Cameron-Mackintosh, Fiona, flox, Frode Thomassen, Gabe, Gavin Cross, Georgy Petukhov, Ggamefreak22, Giffy, Gilberto Hart, Giulian Fava, Hedi Zisling, Heikki Tiainen, Henderson Moret, Henrik Due Rønning, Hollis Davis, J Neko, Jacob Willemsma, Jacob Rebec, James Frink, James Calfee, James Mari, Jamie Cox, Jarod Hoffarth, Jerome, Jo Timmermann, John Abel, John Adams, John Cline, John Goff, Jon Niezgoda, Jon C Scott, Jonathan Webb, Jonathan Lonowski, Jonathon Keddie, Josh Hoppes, Joshua L Smith, Joshua Clarke, Jose Escobar, Julia Thiele, Julian Fiander, Julian Taylor, Julien Leclerc, Kaitlin Wadley, Kevin Lee, Kidd Mclayer, Krak, Kristjan Kalve, Lars Hjort Christensen, Leah Eisenhart, Leo Höppner, Leszek Szczepański, Liam Oliver-Mallory, Lucas Geerdes, Lucas van Wijk, Lukas Jackowski, Luke Trust, Akasha Yi, M. F., MacFoxington, Mad Sumac, Malte Ziem, Marc Dupont, Marc Chang, Marek Slabicki, Mark Mills, Markus Sawinski, Martin Hölzel, Martin Faszinka, Marty Otzenberger, Marzo, Matt, Matthew Benteau, Melanie Sumner, Merodac, Michael Cao, Michael Wladysiak, Michael Zare, Michael Teesdale, Michael Loken, Michael Leers, Mike Pearce, Mladen Piasetskyi, MrElk, Muncorn, Nathaneal Register, Nick Achatz, Nicolas Alexander Schmitt, Nyan Saik Krat, OG NETWORKS, Oskar Paź, Ossian, Patrick Jason Wells, Paul Estella, Paul Cleeves, Paulina Jonušaitė, Paweł Wojciechowski, Penny Brown, Peter Bjorvand, Peter Wood, Peter Lonjers, Pippin, Remi_Scarlet, Robert Rose, Robert Velten, Ruddy Ezequiel Arroliga, sam, Sam C., Sarah Dougan, Scott Crawford, Sean Lavery, Sergey Chukanov, setoh, sharpie660, Shayne Stride, Shravan Bendapudi, Simen Thoresen, Simon Tobar, Stephen C Strausbaugh, Steve Martin De Souza, Steven Fontinelle, Svein Ove Aas, Sven Erik Jonsson, Taé Tran, Tad Moore, Taylor Fussner, theLovitas, The one and only Billy Shear, This Has Not Gone Well, Thomas Edwards, Thomas Paris, Tino Dervisagic, Tomáš Vacula, Tommy Friedrichs, Tracey Coffin, Twisol, Unnamed Muffin, Vicki Allardice, Walter Schneider, Wes Mills, Yash Jain, Zach Kuzmicz and Zachary Hall. We love you guys!
Thanks for watching! You're clearly one of the good ones.
I too grew up in Texas and survive like a leech on your life force. Support us here: www.patreon.com/rareearth
Also grew up in TX. Spent a lot of time late 90's in a club off 6th where eyeliner was part of the dress code. :P
I would like to say a very sincere thank you, Mr. Hadfield, for always making such thoughtful content. I work in the vampire industry, and your video prompted me to give a long hard though on what brought us to the current "space race" of biotech. Things are evolving so quickly that it's easy to get caught up in new breakthroughs without thinking where they originated. In short - thank you, as always, for the phenomenal and in-depth story telling.
Born in Los Angelas. Raised in Dallas.
This isn't exclusive to Texas, nor the United States; but a product of capitalism as a whole.
Thank you for all you do!
How do you feel about your dad getting a star? I thought it was pretty cool!
“All great stories start with incest” rare earth 2018
Game of Thrones, Star Wars...
Checks out.
Just a bit though. Just the tip.
@@rodger2073 if we use the Adam and eve example is having children with yourself incest in the way it would be with a twin (since eve was made from his rib and therefore was genetically almost identical)
Greeks mythology?
How could something that feels so good be so bad 👀
This is exactly why I don't want to do an ancestry DNA or 23andMe kit. I don't want to sign my DNA over to unknowable future corporate interests.
copyright or trademark your dna
Wow, you have an enormous Patreon group.
I'm glad because I like your videos and can't afford to contribute.
This one was one of your interesting ones.
Thank you.
Thanks! I appreciate you watching. That's really all I ever hoped for.
Watching certainly helps, that's what we can do to contribute so we should keep it up! but the patrons definately sponsor the worldwide trips for sure
666k subscribers, hmmmm
hmmmm
hmmmm
Hail Santa.
It's December, is it not?
Sorry to spoil the fun but the real number of the beast is 616 not 666.
@@Tsukiko.97 you must be fun at parties
Don't have to be an expert on law or biology to know Baylor may have not been completely ethical if they knew the people donating their blood were consenting to something they did not completely understand. It'll be interesting going forward to see how things shake out in the marketplace for human DNA. My guess is the raw material, even if somewhat rare, won't be hard to come by, so the real money will be downstream in other segments of bio tech market.
Yeah. To me this seems less a case of who own the blood, but more of people seemingly signing away their rights on their blood while not getting the scope of the "deal". And any such deal is dead on arrival to me. Making the people doing it nothing more than thieves.
Yes if they lied then absolutely they're in the wrong. I don't think there's anything wrong with the rest of it, since no company is going to do something just out of charity, but knowingly swindling someone is just wrong, and especially hypocritical coming from a "Christian University"
Legally you can deceive participants in the study BUT, after they've participated they must be made aware of the true reason behind the study. Researchers have to disclose everything and the participant then decides to allow them to keep the info or to dispose. Deceiving also has its own criteria but i won't bore you.
To discuss that I believe one should get his hands on a copy of the Contract to see whether it was breaking the deal's terms on the texans' side or just naivete of the islanders who have signed a contract they didn't understand. Before one can see the actual document it's all worthless "they're bad! no they're bad!" like kids in a playground.
Fuck downstream mabo jambo
I've fallen down the dark hole of rare earth content and it has scared my soul. Keep up the good work man.
I would pay to see that Jonah Hill/Nic Cage movie.
The simpsons already did it.
Clearly the answer here is Hoxhaism. Newfoundland should close its borders and build bunkers all over the island to prevent being invaded by Texan vampires.
I’m unclear on one detail: how much were the study participants paid? If the answer is “nothing” then there is definitely a huge problem. When I contributed DNA for scientific research back in the late 1980’s I was paid, and when the researchers discovered something anomalous in my DNA they footed the bill for additional testing to figure out what was going on (fortunately nothing horrible). It sounds to me like the residents here should have collectively hired a law firm to represent them in the negotiations with Baylor, that law firm would have negotiated a contract that would have (hopefully) ensured adequate compensation and answered the questions of who has what rights to the data contained in the DNA and what obligations Baylor has toward the research subjects. Canada might consider legislation that would require institutions like Baylor to pay the up-front legal costs for the initial contract negotiations on behalf of the research subjects, but even absent such legislation there are law firms that would take on the work for a cut of the final contracts, which would probably leave the people in much better shape than what happened here.
Bayer/Monsanto bases their GMO business model on this. They create an experimental life-form that is unique enough to patent, but almost like corn or soy. Yet, no one can patent corn...that's natural. They can patent experimental life forms that look and taste like corn, but are different on the genetic level.
They don't sell seeds. They sell a license to use their seeds to grow crops that are almost like the natural foods they are designed to look/taste like.
as a disabled person i don’t appreciate being called a freak i’m as much a human as you are even if i can’t walk and will likely pass of a preventable cause since the medical industry turns a blind eye
"Les Cousins Dangeroux" gotta love that Arrested Development reference. Well done, sir.
If you haven't read David Grann's book Killers of the Flower Moon, it sounds exactly like something you would do a video on.
Basically the author unconvers a massive plot in the 1920s to murder a wealthy Native American tribe that remained unknown until he did the research and put the pieces together in 2017.
Thanks for that, I'll look into it. Sounds compelling.
The U.S. has laws in place regarding this type of issue. Most of them are complex and are mostly tied to medical work.
Edit: I only know they exist, not to what extent these particular laws protect people.
Companies don't patent the gene itself, but the process by which they isolate the gene. They don't claim to own the person. Patents are very specific.
I think it's obvious that the contracts that the Baylor researchers had the locals sign were very carefully drafted. It does look very much like a case of taking advantage of an isolated population that isn't sophisticated enough to smell a rat until it was too late. Who knew rats spoke with a Texas drawl :(
As you say, genetic research and treatments are the new gold rush. The Baylor scientists stand to rake in huge profits with zero compensation to the people who provided the essential research material.
However, in the future they WILL be able to pay through the nose for a treatment that will make some U.S. pharmaceutical giant a(nother) huge fortune (especially since the patent rights for new discoveries have been greatly extended).
There will always be people who will say that it's right and just that the scientists and pharmaceutical companies that spent the time and money to bring the treatment to market deserve compensation and they do have a point, but to me the whole idea of a healthcare "business" guided solely by profit is very shady.
At the sharp end, it means you live or die based on whether or not you can afford the treatment. Is this really how we want to go forward as a species?
DivideByZero The problem with relying on charities for this kind of thing is that they are always underfunded and oversubscribed. There are very few charities (if any) that would be able to even partially fund the kind of treatment required in these cases. Charities do not magically spring up whenever the "open market" creates treatments that are only affordable to a privileged few.
The fact remains that Baylor's researchers were not doing pure scientific research. They were doing applied research for a pharmaceutical company with the goal of making a profit. In the course of doing this research, they deliberately deceived these people. That is wrong, full stop.
@DivideByZero
Actually, I never intended to suggest a solution. I just said that relying solely on charities is not going to work, especially in this case. You mention charities that provide insulin and cancer treatments. This is laudable and it does make the lives of many people better. However, the treatment being developed using the Baylor research is not likely to attract the attention of the already oversubscribed and underfunded charities. Also, despite the good work that charities do, there are still many people who either bankrupt their families or go without treatment even with charitable help. It is true that if you want something done badly with way too much bureaucracy, government is the way to go :)
That being said, there are efficient government programs that do manage to assist large numbers of people who would otherwise go without. Also donations to charities are tax-deductible so, in essence, there is still tax money being channeled through the charities. I'll just repeat what I said initially (and, again, I wasn't trying to suggest a solution): "At the sharp end, it means you live or die based on whether or not you can afford the treatment. Is this really how we want to go forward as a species?" I don't know exactly what the solution is, I just want people to think about that. I truly believe we can do this better.
@@DBZHGWgamer I prefer civilised places that provide national health care instead of putting profits ahead of very easily solved problems
@@DBZHGWgamer I have never heard of someone going to USA for treatment but I have heard tons of cases of people in the USA going to Europe for treatment and why wouldn't they when there's free treatments that are effectively the same just don't cost your entire life savings.
Considering the sliminess of many Texas businessmen and politicians, rats speaking with a Texas drawl seems very likely!
The sadness of YT 2018 is that this channel wasn't represented in Rewind. Please keep doing what you do.
Live in Texas, attend A&M. My Grandpa played on the football team in the 60’s and was probably there when this was being planned, purchased, or researched. On top of that, I have many close friends that attend Baylor, and would guess at least 25% of my high school class is attending Baylor.
The State’s Society (political culture in Texas) lowkey knows that Balyor is slimy- in fact Baylor lost many key players and coaches in their athletics department due to rape charges and a coverup in 2016
This doesn’t surprise me, and as a Texan born in Austin and living in Galveston I am sorry.
They were from Baylor college of medicine you idiot thats a separate organization.Idk why I’m surprised that an aggy made a fool of himself.
@@talker4612 youre so rude over a technicality. Calm down man.
phoenix jones why He was being an asshole bringing up stuff that has nothing to do with this.
@@talker4612 sounds to me like both institutions are pretty slimy.
spiffinz Amen brother, that sulfur mountain and the American Insurance high rise are hallmarks of Galvy now
watched at 48 views 48 likes. loyal fanbase :'D
you do know that the view count lags behind the like count right?
It's because of the nature of the algorithm. views are harder to count and therefore add up slower while likes are added instantaneous. When you see 48 views and 48 likes, there probably have been more views than that. For some videos you can even see the like count overtake the view count in the first few hours after upload. This is precisely because of this effect. It usually gets sorted out though as updates drop in frequency.
@@e1123581321345589144 please don't wizz on my dreams ;)
Holy crap that newfie at the end reminded me of my dad! The flow of his sentence, the contents of it, identical to what my father would say!
How weird that a mundane sentence from a total stranger warmed my heart.
Dear Eric! I love you. Just found your channel and have been binge watching. Thanks for these beautiful stories.
The real danger is this; Imagine you go to the doctor. You tell them what's wrong, & they take some blood. A couple of weeks later, you get a letter from the lab that tested your blood. "Sorry," they say. "We can't *_touch_* your blood. We legally had to destroy the samples sent to us. Otherwise, we would have had to send them to the company that owns your blood. From now on, you'll have to go through that company to get any bloodwork done. They have a patent on your blood & your DNA, because they discovered a gene that codes for [fill in the blank], & your blood contains it. You also won't be able to have any other company read your DNA & tell you about your ancestry or medical history or, well, anything. Thank you." Anyone who doesn't think such laws were passed for these very purposes (and others) hasn't been paying attention. It wouldn't surprise me to find out that, every time I have blood sent to a lab, someone is getting a bit of it for testing & research. They may put that in the small print, or they may simply have passed other laws making it perfectly legal. I can't wait to find out how many cures are going to be held up or defeated in court based on someone else "owning" the blood, DNA, etc. that was used to find it. Oh, goody. Now they actually want to own me. And they just might. tavi.
What about poor Henrietta Lacks who couldn't afford the healthcare for her cancer, but lives on in, by now tons, of her cloned cancer cells.
It’s very awkward. In a way, the “valuable property” only becomes valuable if the university is able to utilize it for cures.
I’m not sure we can claim to be “taking a risk” by donating blood when the real risk would be to hoard it and hope for the best in a world without a cure.
Ultimately, they are performing a service that they charge for much like a mechanic tuning a car or a doctor assisting an ailment. This doesn’t seem particularly different to me, and if I knew I had the genetics of some possibly-deadly disease I’d certainly donate blood in the hope that it might one day have a cure.
I don't know the specifics of this situation, but I've worked in research for about a decade now, half of which was in Behavioral Pharmacology. This is pretty standard. It's possible, and maybe even probable, that the informed consent process was performed inappropriately (in my experience, bio-based researchers tend to think of regulatory affairs as more of an afterthought), and if that were the case, I could understand the frustration of the participants, but beyond that this is sort of par for the course. There's just not that much funding in research relative to the cost. Of course, there's billions of dollars devoted to research, but what I mean is the people funding the research and the people doing it are usually two distinct groups. Most of the time, a Pharmaceutical company is going to contract the work out to a university or private research group with a budget and a few directions and stipulations. The university can accept or reject the contract, but then the rest is up to them to figure out and you're usually operating with a pretty tight budget. These usually aren't overly generous. If your research winds up making or saving the pharmaceutical company a lot of money, you might get another contract, but the researchers don't see a dime more. I'm lucky in that I've worked at Johns Hopkins and UPenn, two places with great leverage in these contracts. If you aren't a huge name like that, though, you don't have a ton of leverage in the relationship, but you need the money to keep your labs open to keep pushing your research forward. Since the power is mostly in the pharmaceutical company's hands and universities don't have much leverage or budget, paying participants is rare. They just search until they can find people willing to do it for free.
Your blood cells and your DNA are your property, period! Any cures or research that earn money, you should earn royalty on, just like authors whose books get made into movies. You don't need to be a lawmaker or expert to know this.
In the UK the NHS; National Health Service is in principle free to all citizens,Thus, any afflictions are permitably accessible and manageable by the NHS.
If you want to sell your afflictions, please start paying for your treatment.
I do. I'm currently arguing with my insurance company about my need for my prescription antacid. So until it's settled, I have to pay for it out of pocket. Not a huge deal, it's an old drug and I can get the generic version for $20 US. But the insurance company does this at least once a year with at least one of my meds. And while I have to wait for my dr to write a letter explaining why I need this particular medication and for them to get the letter and officially accept it, they don't have to pay their part, but they keep charging the same monthly cost just to "have insurance".
Unfortunately, the US is really stupid about more than a couple of things, health care being pretty high on that list. My upper endoscopy cost $800 US, after the insurance company coughed up what they will allow for the procedure. My part of the bill for my sleep study for apnea was $2000.
The US as a whole is like that relative you never loan money, because you know it'll be like pulling teeth to ever get it back.
Nothing better than your uploads on a Sunday morning
I would only ever sign a liscencing agreement, pay me.
You really should have included information about Henrietta Lacks and the HeLa cell line. This cell line has made modern vaccines and a large amount of research possible. Henrietta Lacks had cervical cancer and two samples were taken without her knowledge or consent when she went in for radiation treatments. The family did not get any of the profits from the research that used this cell line or compensation for the cell like being directly grown and sold. This is the pioneering incident regarding ownership of genetic material.
"If i have a syringe and you have a milk shake!" .... I never get tired of your stories, havent watched in awhile and im glad to see you arent trying to fix what isnt broken.
‘Les cousins dangereux’. God, I love your end cards.
Lol
That's the USA economy model......get rich at the cost of other people's lives.
I absolutely love this guy's work. But this is the best segment of Rare Earth I've seen yet.
This is the best channel on TH-cam, I'm convinced
WHEN YOU FROM TEXAS
Texan: YEEEEHAAAAWW YEEEEEHAAAAAWWW
TRANSLATION:English
SUCK THIS MOTHER FUCKERS BLOOD
If it wasn't you personally, we really don't care where you're from, come in, have some tea, tell a story, get some jam.
The only antidote I ever found to the Newfoundland accent is lathering on my own Boston accent. After a minute of multinational gibberish, ordinary English usually rises to the surface.
I am a lawyer which reviews contracts of Pharmaceuticals. In clinical trial, they refer to it as Pharmacogenomics or Pharmacokinetics. Subjects or Donors are paid for the blood samples. They sell body fluids or blood just like any chattel or personal property. However blood samples are usually blinded. No names, only date of birth gender or ethnicity. After the submission of samples, the pharmaceutical has the absolute ownership over the samples. Drug development entails enormous financial expenses, the ROI takes about 10 yrs. Whether pharmaceutical has the humanitarian duty to aid these blood donors? I dont know, in the first place the agreement/contract is only for the samples and payment for it. No more.
Jesus we're heading towards a cyberpunk dystopia aren't we?
Deception is the mother of invention
- Baylor College of Medicine
You never leave enough time for me to read the writing at the end of the video.
Pause the video
@@RareEarthSeries Yeah I can pause it when watching on my laptop no worries, but when casting to a Chromecast, when you pause a clip the progress bar and playlist appears from the bottom, interfering with screen. But it's all good mate, I'm probably a slow reader anyway.
Sending power and blessings from Melbourne Australia
Was earlier thinking about how you havent uploaded anything in the last few days (sorry I'm always keen on your guys' videos so it always feels like forever^^)
and tadaa we got blessed by a new video
I upload Saturdays at 2
@@RareEarthSeries nice to hear that :)
so I have two things to be happy about on saturdays
for one, its saturday :D and second a video from one of the best channels on YT
it´s so weird because upon release he has 666k subscribers
I absolutely love your videos. I believe designer humans will become a huge thing in the next 100 years or so. There's a lot of discussion to be had before it's too late.
An assumption that a market could exist for human DNA exists in this video. If cash were offered to individuals, and since DNA is universal, there would immediately be a race to the bottom until it became a donation market as is the market for blood. The citizens weren't conned, there is too large of a supply to make a market which profits suppliers monetarily.
Edit: Grammar
DNA is not universal, and particularly when talking about isolating differences individuals are of great value. The researchers from Texas were looking for specific factors that only exist in a tiny percentage of people. That's why they came to Newfoundland instead of simply harvesting nearby in Texas.
@@RareEarthSeries I'm not sure how you can say DNA is not universal as it's literally the building instructions for human life.
Second, you make a generalization about all DNA collection from a case you say is special because it only exists in a tiny percentage of people.
Finally, even in this special case of a "tiny percentage of people", the number does not matter. For example, say the researchers needed only one person's DNA with the special gene. Further, assume two people have that gene and the researchers offer $10 to one person. The other person would rationally accept $9 instead rather than $0, the person initially offered the $10 would rather take $8 instead of $0. The process of lowering the amount the researchers need to offer to obtain DNA would continue until the market became a donation market after reaching so little money carrying the pennies would be more burdensome than to even get paid for your DNA.
Otherwise, I like your videos and appreciate the reply.
Edit: Grammar
@@MrJacobCompton We have different DNA. The concept is universal, but valuable rare versions aren't. You're imagining vast amounts of people, and at most we are talking a few hundred max. It isn't as you're presenting it - at least, not in the story being told.
@@RareEarthSeries I used an example of two people, not what I would call "vast amounts of people" and the market still becomes a donation market.
A solution would be for the individuals with the rare condition to group together and credibly commit to not having their DNA collected unless they were compensated, but then they would look greedy in the public eye, and especially to anyone else with the condition.
DNA that are monetarily "Valuable Rare Versions" for medical research don't exist unless someone is willing to pay for them. With near zero-effort from suppliers, they will accept lower prices until reaching zero.
On another note, I would clarify saying "Valuable Rare Versions" of DNA as 'valuable to medical research'. I understand in context, but, otherwise, it makes you sound like you're assigning different intrinsic value to groups of individual's DNA over others.
That is why there are many projects trying to create a platform where patients and donors will be able to trade their data for money (eg Longenesis)
Collecting custom datasets is costly cos ppl have little incentive to share it. When they can get money for it, they are likely to be more cooperative.
Plus big pharma are starving for such datasets, which is why the are the most interested party in developing such platforms.
You honestly made them all sound a bit inbred but the black-haired girl at 4:44 is hella cute.
Go thru the names listed. I can bet you she is there
6:52 And then there's the blue lady, who is reminiscent of certain families in the Appalachian Region in the US... Unless there was some sort of poorly chosen filter(s) added in post, there is most certainly some inbreeding going on. I find it fascinating.
@@salmanariffin4916 Creepy much?
I thought the same thing lmao
Ok well like there's royal bloodlines level of inbred (like Spain's royal family had like almost 1/2 to 1/3 the normal amount of seats in the family tree of its rulers, one having 17 instead of 33) and then there's a small, semi-isolated population of a few thousand
It's weird seeing the hospital where I was born in a video like this.
ok.. I am from Edmonton. We dont want more any of your snow.
This is the kind of things I see both sides as the right side. Which is very confusing since they are the opposite of eachother. Hopefully we figure out to do this fairly the next time.
Texas Vampires also sounds like a sports team. Like middle of the ladder, state-level team.
In my opinion, medical research should be done with tax money and all medicine that are option should be given to the citizen for free or for the cost of producing it. (You can sell it to other country's but I'm against company's owning medicine, because company's by design are there to make the maximum profit so they have more reasons to treat some one but not heal him.)
You'd have to convince a lot of American's who can't afford health-care to vote in people who want to make it free.
When you risk your own money to do something, you want to be as efficient about it as humanly possible. When you risk other's money (taxpayer), your incentive is to take as long as you can, but not so long that the taxpayer money stops flowing. It's flawed and unequal, and it sucks to be on the wrong end of it, but capitalism is the currently most potent effectivizing force we know of. In the long run, reaching post-scarcity is the utilitarian move, and capitalism is the fastest way there.
I guess it will be like finding oil on the family farm only to learn grandpa sold the mineral rights for a jug of wine and a poke at a working girl a 100 years ago.
So, right after you said the incest line, I accidentally clicked on a video about a Disney movie, and the Disney logo directly followed the statement. Just a weird moment.
I moved to GFW 3 years ago and just found out about this today looking at the wiki article for the town. A regulatory board was established because of it, it decides who can and can't study the genes of Newfoundland residents. The following is not criticism, just my attempt at guessing the locations used. Looks like he filmed the "talking at camera" segments in Botwood(they are world renowned for their murals and held the 2018 Global Mural Conference.), and possibly the fisherman segments in Lewisporte or Twillingate. That's the GFW Hospital and 2 of the drone shots are definitely of GFW, tho that one at 2:06 I think is of Lewisporte so likely he filmed the fisherman scenes there.
0:27 As an attendee of Baylor University in Waco, TX, I have never heard of this "Baylor, TX" you're talking about. You seem to refer to it correctly in the rest of the video though.
My words are even more confused (see the edit). The people specifically came from the offshoot Baylor Medical College in Houston, rather than the University in Waco.
"And like all great stories, it starts with a bit of incest". Oh, okay lol
The moral of the story is "no matter how polite, NEVER GIVE A TEXAN YOUR BLOOD, they'll tap you like a well." (I love reading the closing notes!) Also, yes, I too feel that Ted Cruz must be jealous of those docs getting what he must feel is *his* awesome nickname.
"... and like all great stories, it starts with a bit of incest."
Someone needs to make a sound clip of this and over-utilize it in their productions.
A very scary video. This is the future of human biology.
“Like all great stories it starts with incest.”
This was the real horror behind Jurassic Park and the science within.
The title made me think this was an episode of The Dollop.
The snakebite doctor must not require payment.
The value is in the ability to discover, understand, and use. Simply posessing some genetic information is not valuable unless there is expertise.
Both pieces have to be there, and the one with the expertise has the upper hand.
"They think any bread other than straight, white, bread is putting on airs."
Interesting word choice friend.
My grandma is a newfie and her father was born in Ireland.... So it's not.... It's not quite as inbred as he makes it out to be.
Also if people don't know what he means by kindest people you'll ever meet: if you mention being peckish to a Newfie next thing you know you've had dinner at their place and they're sending ya home with a week's worth of food in containers.
They are LITERALLY the friendliest people you will ever meet.
(Seriously I thought that shit was hyperbolic until my dad who's a Montréaler got posted in Newfoundland & Labrador (he's in the air force). I showed him a video with a joke about the exact shit about JUST how generous they are, and he was like "THAT'S NOT EVEN AN EXAGGERATION" and started telling me all sorts of stories about his new neighbors' generosity and friendliness - that even got to the point of feeling intrusive at times.
But he also said that it was his favourite place that he's ever been posted and he'd love to go back)
its big and cold. its the Urals/Kamchatka equivalent in Canada. Not tundra, but damn near. A friends family lives there. they like the peaceful life.
I'm assuming that the researchers knew very well that the locals couldn't afford their treatments.
They harmed the locals who tested positive.
im doing a school report do you have any refences i could use i have 2 all ready but it would be helpful
It's not like any Newfoundlander would have developed it by themselves.
I hope no damage was done to the mural
What's up with colour grading?
D-
This is why I detest for profit research, and equally slimy are the DNA test companies which are claiming rights to the DNA of anyone who is tested.
My grandfather was the doctor that birthed most of the children in central Newfoundland mainly grandfalls Windsor his name was dr.Ross Martin I just say that in pride he was greatly respected and loved by many
When are you guys gonna do a video dismantling Scientology? I’d love to see that
Never really thought too much of this kind of thing. Someone's DNA could save millions, but no one ever talks about the person the doctors got the DNA from.
what about that one black lady whose genes were exploded and sent into space and are a cure for this certain disease?
I thought this was going to be about those kids who thought they were vampires and started killing people.
Yea to be real not a lot of genetic diversity in Newfoundland. My grandfathers grandfather, and my grandmothers grandmother were siblings. I've met strangers by chance and while talking to them have found out we're directly related before.
I think the scientists invest their time and effort and provide the knowledge that's needed to find such information. The person who provides the blood should get some money of course, but the discovery is mostly the scientists achievement.
Doesn't the Henrietta Lacks story indicate that the individual and their family are owed a percentage of any profits made from their genetic material? (The question is, what percentage?)
This reminds me of the ethical issues around the use of the HeLa cell line. She never consented and iirc got absolutely nothing for providing those cells.
u good sir are our Huell Howser. thank u
I don't know, but I'm looking forward to it.
I know there's a school if thought that says: if they can get away with it, you deserved it. However, being unethical should have its consequences. Also, if your DNA is the key to some biological lock, then you should be a beneficiary. In the case of the Newfounlander's, the cure should have been free to them as it was a partnership, the cure could still have been sold elsewhere without damaging profits.
So many ethical questions arise from genetics research. For example, I'm trans. What if that's determined to be a "problem" by geneticists to be eliminated down the line. It's certainly given me problems in life, but I think it's made me a better person. So where do we draw that line?
This study also touches on the story of Henrietta Lacks, and probably many many more people of color to whom doctors just assumed a right to their bodies. For a field that anguishes over ethics, there haven't always been the most ethical of participants in it.
My son's a biochemist, trying to help cure lung cancer and other lung diseases. The only thing I can say for sure is that when it comes to medical trials, he and his dept have to jump through hoops for the ethics committees at his uni and the NHS. The UK is also a capitalist country, but it's not 'medical trials at any cost' as a rule. TBH, this sounds like a very unethical setup - the intentions may be innocent and ultimately good, but the way they've gone about it is distinctly missing some ethics.
If I observe and study how "Texans" walk around, does that mean I can patent the "Texan-Walk" such that the "Texans" must Pay me in order to walk the way they do?
net81j You probably can, honestly
Edit: as long as it's distinct enough
Thanks, now i cant stop imagining the possibilities with a story line that includes Jonah Hill and Nic Cage liberating American oil!!!
Masterful editing. Great video, yeah, but this one was above and beyond.
If data is the raw ore of the modern world. Then maybe the owners of that ore should be compensated directly. IDK the answer either but compensating these people is one step away from social media and internet users being compensated. You could say they're being compensated through use of the service, a service designed to milk them for dollars the same as these people. it's worth thinking about.
Hello! I love your videos evidenced by how frequent I comment in most of them, but this one just sounded weird.
It's just the way its presented in this video, it kinda lacked structure. It sounded like you were jumping back and forth from one side to the other of the argument just to stay neutral. I wasn't able to understand what are you trying to say 100%. I get that sometimes we need to compromise ethics to have a scientific breakthrough that the world needs as this is the same with the HeLa cells and Henrietta Lacks whether she should be credited or not. I mean, I'm sure you needed to present the two sides of the argument and I like that.
Love your content as always! One of the best channels in youtube.
You can patent DNA, Baylor doesn't own their blood in their veins or their DNA, Baylor won't make any money selling their blood, even if it has a rare disease, Baylor is doing research and they only own the blood that they donated, and the people in their community will be the main beneficiaries if they manage to find a cure, Baylor or the researchers working on it might make some money holding the patent, but humanity will be the main beneficiary since the patent will only last for 20 years. And yeah, if my blood could help someone not die in their 20's I'd say that's a great investment, that's why we donate blood.
A university has an ethics commission that can investigate their behaviour and methods....
The problem here is that laws of supply and demand do not apply when said product might save your life. At that point, it's not capitalism; it's extortion. That's the whole reason these islanders were able to be swindled in the first place. No, there are not two sides to this story - instead, it is just more proof that the profit motive has no place in health care.
5:33
Why is that truck crossing the yellow line *towards* a pedestrian/film crew? I wonder what he was avoiding on the other side of the road.
Information is money i need that in my life
Given the timing of the outrage in China over Gene editing of twins I think this came out just in time.
Can you please make a t-shirt with that opening line? "And like all great stories, it starts with a bit of incest"