My Brain Cancer, Chemotherapy and Radiotherapy Update

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  • เผยแพร่เมื่อ 4 ต.ค. 2024
  • Having a Brain Tumour at 21 is rare, fascinating, (but also downright sucks). Take it from me! I've created this mini-series called the Brain Tumour Diaries to talk about some of the peculiar things that I'm going through: because most of the time, as shitty as it is.. It's pretty interesting! I hope that sharing my story can accomplish two things: one, reassure those of you out there going through something similar that you're not alone! As that's what I felt when I first found out. Two: I hope to slowly build a video series of all the information I learned on this journey to create an Open Access hub of advice and experience to help anyone that might need that information for comfort or action.
    (Sorry if I sound nasaly: I had a cold. Chemo = Low immune system)
    Also currently making a video about going through an 8 hour craniotomy awake and participating. So #VeryOpenAccess
    SO many of you have reached out to me asking how I am doing or sharing your stories: today is about keeping you updated.
    Stalk me:
    Instagram: tinyurl.com/htz...
    Website: www.josephinevermilye.com
    Blog: www.roguegonevo...
    Facebook: tinyurl.com/hah...
    Filmed on: Canon DSLR 700D

ความคิดเห็น • 47

  • @gabbymullins2654
    @gabbymullins2654 7 ปีที่แล้ว +18

    It's quite a unique feeling to be so proud and so humbled by someone I've never met. You're a very special kind of person and I hope that everything goes well for you. :)

  • @lrpowers767
    @lrpowers767 7 ปีที่แล้ว +24

    You are so incredible and so brave. What an absolute inspiration you are. 💕

  • @linneaenberg3653
    @linneaenberg3653 7 ปีที่แล้ว +10

    You're amazing! So much love and strength to you sister!

  • @alicepepike
    @alicepepike 7 ปีที่แล้ว +6

    Another great video! I'm back in London next week, can't wait to give you your (very late) birthday pressie!

  • @S8Louise
    @S8Louise 7 ปีที่แล้ว +5

    Good luck with everything! We're all here rooting for you :)

  • @burlgoff
    @burlgoff 7 ปีที่แล้ว +5

    You are just the sweetest. ✌💓

  • @SamanthaL
    @SamanthaL 5 ปีที่แล้ว

    You are amazing! I'm 22 and was just diagnosed with breast cancer, but a brain tumor sounds even scarier!

  • @chrisferry3308
    @chrisferry3308 7 ปีที่แล้ว +2

    Just came across your video and wanted to say that I'm going through the same thing. GBM in my right frontal lobe. It's almost my one year anniversary of surgery! I have an MRI tomorrow and hopefully the results come back looking good!
    Yeah my head looked ridiculous before I shaved it all when I was doing radiation. Looked like Hulk Hogan with nothing on top and hair in the back...But beanies made it all fine! Good luck with your chemo!

  • @aliclark580
    @aliclark580 7 ปีที่แล้ว +3

    💜💜💜 Strength and peace

  • @Eskapismus
    @Eskapismus 7 ปีที่แล้ว +4

    Woah, the last photo! It's so impressive what doctors can do nowadays. (I wouldn't mind a brain photo but YT might. :'D)
    You're so cute and vibrant. Good luck for the chemo (not much puking etc.)! :)

  • @popstudios7611
    @popstudios7611 6 ปีที่แล้ว

    Hi, I have Brain Cancer As well, I appreciate you making this video. It is a tough disease to have some days are really tough and most ppl don't understand why your down in the dumps so its nice to see im not alone. I hope everything gets better for you though!

  • @chnaealisha4113
    @chnaealisha4113 7 ปีที่แล้ว +3

    You are so brave . Keep going strong 😊

  • @matilda9574
    @matilda9574 7 ปีที่แล้ว +3

    Wow. You are such an amazing woman ❤️

  • @britishbaby218
    @britishbaby218 7 ปีที่แล้ว +3

    You are so brave! Girl you will get through this! I love you and believe in you 😻

  • @fufucat1
    @fufucat1 5 ปีที่แล้ว

    I'll start my radiotherapy in two weeks then I will go chemotherapy for 4 to 6 months. This video helped me so much. Thank you . All the best for you 🙏💕

  • @MsDogMom
    @MsDogMom 7 ปีที่แล้ว +1

    You're incredible. And I've learned so much from you about cancer and the types of therapies ... I have a close friend who's going through chemo, and I never know what to say -- but you've made it a much easier topic to discuss. Thank you xo

  • @CorinaEco
    @CorinaEco 7 ปีที่แล้ว +1

    I love you very much. You are amazing. Lots of positive energy. Huugs

    • @RogueGoneVogue
      @RogueGoneVogue  7 ปีที่แล้ว +1

      I love you very much too ❤️ thank you honey xx

  • @brittanythompson9079
    @brittanythompson9079 7 ปีที่แล้ว +2

    You are incredible! You have such a lovely personality, sending lots and lots love ❤️

  • @emmamcguire25
    @emmamcguire25 7 ปีที่แล้ว +2

    you're so kind and so brave ❤️❤️ you got this

  • @eizzi321
    @eizzi321 7 ปีที่แล้ว +1

    You are so beautiful and vibrant! So much love to you and best of luck on your journey. You are so inspiring

  • @dancingonthehighway4805
    @dancingonthehighway4805 7 ปีที่แล้ว +1

    You are incredible. Sending lots of love your way ❤️

  • @kemillegreene9743
    @kemillegreene9743 7 ปีที่แล้ว

    Thanks for sharing. I've had an aneurysm treated recently along with a blood/autoimmune disease I was born with that'separate and chronic. I really appreciate your candor and your ability to become a support to others. I hope you continue to improve and stay kind, strong, and optimistic. Thanks again!

  • @charrose4752
    @charrose4752 7 ปีที่แล้ว +1

    You're amazing!!!!! All the love 💖

  • @carlamathurin2941
    @carlamathurin2941 7 ปีที่แล้ว

    Thank you for posting as I worry about you (I am old enough to be your Mum so the maternal instinct kicks in). You sound as if you are getting the best care you can and I'm always delighted to see you making the most of your time between treatments, although your normality is probably a bit off kilter at the moment. Keep going for it and if the power of prayer really does work I'm defo doing my best to help!

  • @alltherad123
    @alltherad123 7 ปีที่แล้ว +1

    so proud of how brave you are

  • @mrsmakahanaloa
    @mrsmakahanaloa 7 ปีที่แล้ว

    You're amazing! So much love and prayers from Hawai'i ❤️

  • @Linsay1524
    @Linsay1524 7 ปีที่แล้ว +2

    You go girl!! 💪🏻

  • @andreashabazz1063
    @andreashabazz1063 7 ปีที่แล้ว

    Did Rads & Chemo too. Couldn’t do the big chop. Lost a bunch similar to you and do my best to work with what’s left... lol
    Thanks for sharing.., it brightened my day to see something similar.. as it can feel quite isolating in this journey. ❤️❤️❤️

  • @jasr4000
    @jasr4000 6 ปีที่แล้ว +1

    Ill pray for you hope you can get back to your life and live peaceful and be cancer free ive been threw 2 brain surgerys and im due for kemo and radiation few weeks i have 3rd stage brain tumor it grew back during my time healing the first time thats why i needed two surgery my kemo and radiation is 30 days straight im only 26 this is not what we need hope you feel better god bless.

  • @bnbbattlesbraincancer
    @bnbbattlesbraincancer 10 หลายเดือนก่อน

    Starting both therapies next week 😮

  • @amandap.8128
    @amandap.8128 7 ปีที่แล้ว +1

    You go, girl!

  • @morgantschaen6050
    @morgantschaen6050 7 ปีที่แล้ว +1

    You are amazing and your swimsuit top is so cute. Keep making videos!

  • @miloknee6273
    @miloknee6273 7 ปีที่แล้ว

    Congrats on the clean brain! Good luck with chemo round 2!

  • @truneilson
    @truneilson 7 ปีที่แล้ว +1

    If you do shave it you would look awesome! Draw on stunning purple brows and rock the red lips, you will be the inspiration of everyone fighting cancer!

  • @annaholder5010
    @annaholder5010 7 ปีที่แล้ว +1

    Be brave!:*

  • @tamerebel
    @tamerebel 7 ปีที่แล้ว

    Whereabouts in Switzerland are you? The weather is so much less amazing in the North East haha

  • @Rose_Quartz77
    @Rose_Quartz77 7 ปีที่แล้ว +1

    Never knew she had brain cancer. I'll pray for you

  • @hirajavaid3419
    @hirajavaid3419 7 ปีที่แล้ว

    💜💜💜

  • @afsheenimran4c515
    @afsheenimran4c515 3 ปีที่แล้ว +1

    Hi how r u now

  • @jamielynn815
    @jamielynn815 7 ปีที่แล้ว

    How'd you find out you had a brain tumor and what were the symptoms?

  • @juanramirez-gu2xk
    @juanramirez-gu2xk 6 ปีที่แล้ว

    You should look into cannabis oil. Thoughts and prayers for you 🙏

  • @bepearlina
    @bepearlina 4 ปีที่แล้ว

    Hi there. What chemotherapy medicine are you taking ?

  • @brighgeal8117
    @brighgeal8117 7 ปีที่แล้ว +4

    Im so glad you made a video!!! Peace and love! 💕💕💕

  • @bepearlina
    @bepearlina 4 ปีที่แล้ว

    How long did it take for your hair to grow back? ♥️

    • @RogueGoneVogue
      @RogueGoneVogue  4 ปีที่แล้ว +1

      A good two years. It's curly now!!

    • @bepearlina
      @bepearlina 4 ปีที่แล้ว

      @@RogueGoneVogue wiii