Managing Pain and Sleep Issues in MS: Part 1- Pain in Multiple Sclerosis
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- เผยแพร่เมื่อ 28 พ.ค. 2024
- Pain and sleep disorders often cause confusion and frustration for people with MS, their loved ones, and healthcare providers. Learn from scientists and clinicians about strategies for symptom management, available treatment options, and ongoing research to identify the cause of pain and sleep disorders in MS.
www.nationalmssociety.org/Symp...
![Mood & Cognition in MS: [What you can do]](http://i.ytimg.com/vi/9uKYOpN4pyA/mqdefault.jpg)
Pain is pain nothing makes you feel like less of a human than chronic pain. The deception of having to hide that fact is even more deadly
Absolutely !!!!!! 😪😪😪
Yes and it's so discouraging to be put out of so many emergency room visits as a "drug seeker".
Sometimes it makes me feel like giving up. I have to advocate for myself and am learning how to in a polite but tactful way. Looking for any tips or ideas anyone may have. Thank you for this video.
I guess Im asking the wrong place but does anybody know a way to log back into an Instagram account..?
I was stupid forgot the account password. I appreciate any assistance you can offer me
@Andrew Zeke instablaster =)
@Axel Blaine i really appreciate your reply. I got to the site thru google and im trying it out atm.
Seems to take quite some time so I will get back to you later with my results.
I've had Ms for over 20 Yrs suffering in Hourable Pain I'm now Bedridden And I'm Not who I was Thank you For Sharing 💜😔💕🦋🦋💜🙏🦋
Sending all my luv and healing prayers ❤️🙏❤️
Soon in Jehovah’s new world no one will say I am sick Isiah 33:24. Try exercising on a stationary bike for about 20 minutes a day.
@@delta101able how can a bedridden person do this?
🙏🏾🙏🏾🙏🏾
I was able to give up pain meds cold turkey once I found cannabis. I was on high dose of the Fentanyl patch as well as Dilaudid and the like. I'm MUCH smarter on weed than on traditional pain meds. And CBD, well, that doesn't get you high at all, just does wonders for pain. It's expensive though, and I cannot always afford it.
Now we have PEA Palmitoylethanolamide a lipid that can help your cannabinoid system regulate pain and inflammation.
Worked wonders for my guy then it just stopped working. He smokes weed daily and doesn't touch the neuro pain at all anymore
Do you know what strains you liked the best.
Sodium and potassium are needed in balance ish.. when your sodium rich your low in potassium... i use cream of tartre in your local baking section to lower my sodium ions.
28 years of ms... still walking. Ketosis is anti inflammatory. Check out yoshinori 2016 Nobel winners.. upreg stem cells. Recycle and repair. Good luck.
Thank you. I have been going to a pain clinic for over six years but I think I better understand my pain.
LakesideRosie I don't think your the hero to not be rid of pain but it's hard to find the controversy between addiction and a no addiction who doesn't take more than prescribed so thanks for putting it straight
Have had Ms and chronic pain for over 30 years. Never out of pain ever it's bad most of the time. The medical profession can say and do what they like I have tried possible pain medication. None of it works expect this is the same for most people with MS that experience chronic. Have tried cannabis doesn't seem to help with the pain. But I can handle it better when smoking cannabis
Great video! I haven't been diagnosed with MS but I have chronic pain and fatigue that has suddenly come on 2 years ago that has been absolutely debilitating to the point I can't work anymore. Doctors haven't been able to find a cause of my pain yet. Much of the pain in nerve related so really this could be all in my head. Medications help only a small percentage. I'm currently in pain management making my way through every treatment option available. It is very depressing to say the least. I enjoyed watching the video. Good advice. :) Thank you. ♡
Similar story here. Hang in there!
Nancie S.
Currently I've been experiencing several of the early symptoms of MS, (actually for quite some time)and am being evaluated for possible diagnosis of MS. These videos are excellent and have given me so much information about MS. That has been has been very reassuring, knowing what can happen and how MS is managed, along with the fact that there are neurologists out there who specialize in MS. Thank you so much for all your help!
@@nanciearielscanavino6162 3 years later.. may i ask what your diagnosis was?? and what were ur symptoms before diagnosis
Explained some of my symptons and explained more
I suffer from cold feet and they also feel like they are burning. It often times soar up my legs. It sucks!!!
Raphael Mechoulam has done the research since the 70s.
yes, my father has this trigeminal nerve pain and suffering from last 25 years. we still don't find any specific medicine of this pain and MS as well. Please tell me if there is any cure at lest of this kind of pain.
Pragati Verma CBD oil
Carbamazepine works.
Thanks for your very interesting article, here are a few more tips for a treatment for MS
Get plenty of rest
Exercising, yoga, tai chi, meditation, deep breathing, hypnosis,
Use green juice, wheatgrass, fresh organic fruits and vegetables, etc.
Some things to avoid if you have ms are alcohol, dairy products, eggs, commercially prepared and fast foods, margarine, milk, red meats, commercial salt, sugar, aspartame.
(I discovered these and why they work from Denelle Multi Care website )
What sugar substitute do you use & what milk replacement do you use
Someone needs to do some fact checking on the dangers of cannabis smoking. If anyone really is concerned with smoke. You can use a vaporizer that does not create any combustion. My response to cognitive problems would be. That's a very minor side effect compared to the pain I am in without it. I always have to laugh at that one. It's a fairly minor cost compared to the increase in my quality of life.
I finally tried some CBD and even THC, brother it worked, I have dumped all my pain medz. God's gift to humans
Cannabis did help me with:
-double vision
-Eye pain
-Confusion
-Depression
Though they made my balance worsen; temporarily. Personally, I totally believe it should be prescribed as a medication for MS patients, to save us the pain and the misery.
Because of the ban on mairjuana, getting it becomes harder especially if one is disabled, and the depression makes other drugs like tobacco and alcohol more tempting to ease the pain and confusion; despite their destructive effect to MS patients.
yujin ito I have tried many medications. Opiates Gabapentin Cymbalta Lyrica and those are just a few all these medications I had adverse reaction to what was supposed to help my pain increased it or made me very very ill. The only one thing that helps taper off where I can function is cannabis. The CBD helps with my memory impairment also helps with brain fog the THC helps with the pain the combination of both is the only thing that helps me from day-to-day.
Any particular type of cannabis and cbd? My mom's copaxone shots but her in unbearable pain.
@@DarkNavy96 any Indica strain will help
This information is 9 years old? Where was I?
When I had Trigeminal Neuralgia it felt like what I would imagine a lightning bolt striking my face .
I have a disagreement with this video on the stance on opioid use to treat pain in Ms. The 1 pain I can not use mind over matter, heat therapy, meditation, and other drugs in the nerve pain in my legs that has been one of my longest symptoms and the only one that has persisted over the last 24 years. The ONLY thing I have found to lessen the pain and make like bearable.... is ULTRAM. I deal with every other pain.... that one puts me in the hospital 36hrs after my last dose... and no it's not detox as I can go 9 months and it's still there.....also thc is the ONLY way I'm currently able to pee swallow and other bodily functions and if I'm aware of the strands it actually improves my cognitive abilities... more research needs to be put into both of these areas of medicine, and hear from people who have long term use.... including during life events like pregnancy ect.... I'd be glad to share my experiances
Katie, YES! I was prescribed Tylenol 3.... nothing. Then hydrocodone.......nothing. then Ultram(tramedol).....BAM! Relief! Not complete relief of course, but enough to have some quality of life.
Trying to have my new doctor orescribe this for me but since I had marijuana in my blood work a couple months ago I have to pass a drug screen or she won't prescribe it for me. I go in tomorrow to hopefully pass the drug test. I guess there's alot of liability on doctors nowadays that prescribe scheduled meds.
I hope you are getting by and feeling better. Thank you for your comment.
@@sryburn641 I seriously do not understand the use of ultram for addiction. I make it a point to read the drug pamphlets, research the studies done and understand not only the risks but the way it works, why, and how. From what I have read Ultram works systemically. Meaning is works in the body instead of at the brain receptor blocking point. I have never felt a high from this med. It has never helped muscle pain say in my back, and it didn't help the pain in my foot when I broke it spontaneously falling, either time ect. The only pain it has ever helped with is nerve related pain. That med has kept me from literally going insane from nerve pain... You know that kind of pain that makes you want to grab a hack saw and remove the painful limb??? Ya, that pain...
I have a primary that have a willing to prescribe my ultram. I am transparent on what is required to be able to function is including the use of THC. Fortunantly there is no set guidelines at his office prohibiting him from being my pain dr. Additionally, I am not drug tested. It took over 8years to find him after I lost my drs with the Obama care movement. (That's 8 years of pain ty Obama). The good drs are out there u just have to go threw WAY to many to find the drs that actually practice medicine not to follow guidelines. Somewhere they forgot about the a-typicals, and that no 2 people are the same and no pain looks the same-threw meditation ive ya gained control of my pulse and heart rate some so even in pain it functions at a lower rate or I'd be hospitalized for tachycardia.... And can't wait til its time for real medical reform, and not to just access to the medical community we have
@@katiedangelo404 well said.
I'm glad they think the pain is not there it's not what they think ,I was diagnosed 20 years ago ,but I found out I was born with it , the pain is real , I've been on everything for meds I'm allergic reactions to most of the mess they still can't find anything yet, I have 4 people in my family that have MS My mom my uncle passed away from it 😢 an my 26 yr old son was diagnosed 4 yes ago 💔 an I have 5 other children who won't get tested they don't want to know they r scared an my 8 grandchildren I pray they get tested soon , but when they talk about pain no one knows the real pain u really r in it stinks, it seems like they think cannibas helps but I don't like how it makes me feel this is why ,u give up on meds for pain they try everything with you but It either I'm allergic reactions or it just don't work ,help if anyone has any suggestions I have many other problems ,health issues,doctors don't ĵn considerations ????
I'm studying treating MS naturally and found a fantastic website at Denelle multi care (google it if you're interested)
Mercola interview with Dr Gedde.
I want to appreciate Dr Madida on TH-cam for treating my Dad of his Multiple sclerosis with their natural meds🌿
My doctor don't believe ms can cause pain and wants me to just stay sitting and smoke a lot of weed she wants me to stay stoned but it doesn't do anything for pain I've tried 3 other doctors and a pain clinic all have said go back to my MS doctor and that my doctor is the best there is so now I have no doctor and I have to find pain pills myself this is so hard I'm only 37 now I'm thinking I'm just gonna get a gun and stop this pain fo good
Please don't give up. Have you tried Gabapentin...it helps my constant pain
PEA PALMITOYLETHANOLAMIDE is a special lipid that works with our cannabinoid system to help with pain and inflammation.
I think men are better at handling the pain!!