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This is such an awful condition to live with. I resonate with this condition sadly. What a brave man to talk about this and to post a video diary on this.

I have Fybromyalgia but am convinced I have this too. I can nosedive into a flare so quickly, 10+ years for me, I also suffer IBS(D), arthritis etc. my life is over, at least the old me has gone. The biggest problem is loneliness. X

RIP Gary ❤

I would feel well after waking in morning but approx ten minutes later after getting up the awful exhaustion would set in and I would be back in bed feeling incredibly ill.

I had severe CFS that only got worse in time. I am now fully recovered. You can too. I did a video on my recovery and CFS and allergies to persistent pollutants.

One of the best descriptions I have ever heard of ME, so accurate, well done.

So sad, he seemed like such a lovely bloke 😢😢😢

OMG I was just thinking what a lovely man he is. Usually I don’t like many tv presenters. Now to find he’s died… how sad 😢😢😢

Also chronic fatigue syndrome is a terrible name for an illness - no sympathy or research

That's my Analogy too, plus an old phone - that won't charge up

thanks hun ❤

love you gary ❤ i get a what i can only describe as a when ur going through a tunnel a train it goes black at the sides but normally the tunnel goes black as u go in. but i get the black tunnel effect happen the opersite way round it really strange everything feels heavy its painful my neck shoulders and wrists hur hands do too coordination goes can’t move cant lift a cup as gary said you ache so much u just have to go bed or stop doing anything and sleep or relax but i just dont no how to explain it to the dr it to hard if i can’t explain it to me how do i explain it to my dr, i miss u so much gary. i no u would say go to the doctor but right now i hurt so bad i couldn’t ❤ so i watch your videos to help me relax and they help miss u so very much ❤

the best advice garry every game when we chatted was look after youself watch the bees on the flowers just relax. i had a few weeks and the first thing i did was watch gary’s videos to remind me to to look after myself rest recharge that battery you no what garry you’re so so right and i miss u so very much. ❤

thank you ❤

Where are you at right now?

Where are you at now?

i really appreciate your advice and our chats i miss you so much but know you’re always there thank you for being you .❤ i over did it so i came and re watched what i now call garry’s rescue video

That's how i feel after a walking two or three hours in the street, i can endure up to a five hours walk in the street they i feel extreme fatigue i have to go back to my house and take a three or four hour nap to recover from the pain and fatigue...

Thankyou.

How are o today ! Have pain all over

Watch the documentary I remember me. It's on CFS 2007. It's on here if you look for it.

Omgosh, this is exactly my life!!! "A battery that won't charge", nailed it 💯

Can you brush and floss your teeth and take a shower AND still go for your coffees? I get too worn out trying to get ready to go wherever i need to go and feel like i need to sleep to get enough energy to go. Its terrible living like this. Its been a year for me. I have a four year old to tend to as well. I try reserve as much energy as i can for him. Its so hard and sad living like this.

7 years of this disease. First few years where the worst unbelievable suffering 24/7. I could not look after my son who was born in 2017 and months after that i started getting symptoms till i was diagnosed 3 years later. My husband had to give up work to look after us. Absolutely hell on earth. I had so many symptoms and did get counselling to deal with the trauma of it all. I never lost my faith in God as a Christian, and trusted God through it all. I am so much better now and went on holiday with my son and husband went to a waterpark and lived life. Unfortunately symptoms creeping back and i still cant manage or understand how i sometimes are relieved of it all but it always comes back and i find myself in bed housebound. Grateful for the healing that has happened and praying to God gor a full recovery. Please read the bible and turn to God to help you endure this hardship.

Gaslighting from my doctor and other health care professionals has been cruel and demoralizing.

"Paralytic exhaustion" is an apt descriptor. So debilitating. 😢

Thx for sharing

Hi, while I know this video itself is 6 years old; it's brand new for me today. I really appreciate how you've described the symptoms. I am dealing with these now and repeatedly struggle to find the language...for myself and others.

He actually spoke to me when I messaged him . I was going out my mind with long Covid . Gary has now gone & I will never forget his kindness. RIP sweetheart

I don't feel hollow, but solid and heavy like made of stone. Blood heavy like mercury but thick and slow like molasses. Limbs so heavy hard to do anything.

My sons named it The Zonk in the 1990s. Used to need a daily nap, and slept 1 day a week 24 hrs. Now, I'm happy to get 1/2 day of a week awake, dressed, and out. Seeing Unrest movie made me grateful for what I have. Agree, chiropractor helps esp top cervical adjustments. FIR sauna, or anything to sweat helps. Sitting on back patio in dirct sunbeam makes a better day. SAMe supplement keeps depression away....Modafinil Rx worked for years, but not anymore. Been working with neurologist.... he's sending me to sleep specialist in Orlando!!!

I personally think an exposure to certain viruses can be a cause of ME.

Ive been suffering with ME for years! Im tired just watching this video.

I feel like this but I have a spouse with OcPD who expects constant productivity. Today I’m in tears because I did not have the energy to do everything I was “supposed to” do.

Hello it’s been a bit. I was wondering if you have seen any improvement??

I’m sorry but you don’t have ME. You have mental problems. ME is real but I doubt that you have it.

Newly diagnosed here and realising I've been doing the wrong thing for years because when I feel good, I want to do ALL THE THINGS! And hence, ending up feeling like I have the flu with migraines and ibs flare ups, hair falling out, etc lol. Is that how others are?

Avant je ne jetais une piles élétrique maintenan çes comme si jai 80 ans jai 43 ans

How are you getting on now Gary?

Hello how are you getting on now Gary? I am 52 and have been very poorly for 23 months. I did 9 days in neurology and they diagnosed me with Guilain Barre syndrome but now they believe I have ME. The truth is from learning so much about it now I know I have it. I just wondered how it was going for you this many years on.

I miss you 😭😭😢 Mold illness is the absolute worst 💔

I have had ME/CFS for 18 years since contracting it at 42 years old from the Epstein-Barr virus. Also several other serious illnesses, 75 trips to the emergency room, several hospital stays and two emergency surgeries. I have struggled to hang onto the resemblance of my life before the virus but now I find myself at 60 years old with no family whatsoever and alone living in an apartment. I rely on one stranger who lives next door to me to check on me to make sure that I have not died in my apartment. I've had to live through the loss of 20 people and several animals passing and have very little money to pay my rent. I'm trying so hard to deal with past trauma that has set me up for this kind of life but how do I do that when I am suffering through excruciating trauma every single day. I don't even talk to people anymore because they want me to explain to them why my life is the way it is. I've been explaining for almost two decades now and I'm done trying to explain to people who can't see past the nose on the end of their face. I know I sound bitter and I'm really a happy-go-lucky person but I just can't anymore. I used to have a beautiful home, a dog, a family, a car, a job, a sister, a mother, a brother, a husband but it is all gone now and I am alone.

So five different bills not knowing which ones Targets. It.

Absolutely almost world of frustrating things I think of running out of food getting here going there what needs to be cleaned what a mess and the pain relentlessnes

Yoga nidre and guided meditations help me. Plus finding your baseline, and pacing correctly. People can recover. So never give up hope.

Thank you for bringing this misunderstood condition to the forefront. I have fibromyalgia and me/cfs. I was diagnosed 12mths ago but suffered for yrs. I also have vestibular migraines and have no balance on my right side. You are me in male form. Im struggling to accept my condition, i feel guilty and alone, even though i have a loving family. I cant pace at all and i boom and bust alot. Im going to a cfs group at the moment. Am hoping its going to help. To know im not alone is everything, so thank you ❤

I've had it for 24 years and it's just horrific. I could never be in a studio to talk to anyone, because it would trigger a massive panic attack. And I could not be anywhere near crowds without feeling faint. Constantly sweating, burning skin, night terrors. Joint pain everywhere. And after 24 years I still feel awful. More needs to be done to find a cure for this illness. But the thing is people don't believe you. That's the hardest thing.

Gary's example is my example as well. Our 'batteries' don't keep a full charge any longer and it drains quickly. Today, I'm having a very good day and it's been great. Tomorrow will likely be bad, not because today was good... but because bad days outnumber good days by a lot. It's like a random generator... you just never know.

Thank you 🙏 I have shared this to my nearest and dearest in a hope they can understand what having ME is like. Xxx

Sadly, Gary has passed. Great for him to share his story. They omitted a major part of this. During the time waiting for diagnosis and being unable to work, there is no income. So people end up losing their homes, career, life savings, some become homeless and most become socially isolated. Also not addressed is the damage of medical gas lighting. I'm glad you mentioned it can occur after surgery. ME is often called post viral illness which leaves those with post surgical illness even more marginalised. Let's not forget the proven biased differences in how men are treated compared to women ,by medical professionals. Thank you Gary for doing your best to raise awareness. Your videos have helped.